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Inflammatory Arthritis UK

@inflamarthritis.bsky.social

Only UK charity dedicated to all types of autoimmune inflammatory arthritis. Together we are building a future where everyone affected by IA feels seen, supported and never alone. Weekly podcast πŸŽ™Inflammatory! website: inflammatoryarthritis.org

104 Followers  |  75 Following  |  81 Posts  |  Joined: 29.10.2024  |  1.9074

Latest posts by inflamarthritis.bsky.social on Bluesky

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πŸŽ™οΈ New episode of Inflammatory! β€œCan You Be a Trustee with IA?” is out now!
✨ IAUK started with one goal: no one living with IA should feel alone. 10 months later, we’ve built an incredible, supportive community. πŸ’™
Watch tinyurl.com/436x9e5x
Listen tinyurl.com/8v827uze
#TrusteeWeek #IAUK

31.10.2025 09:12 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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πŸ’™ Don’t miss a thing!
Sign up to Inflammatory Arthritis UK today & stay up to date with all the latest:
πŸ“° IA news & research
πŸŽ™οΈ Inflammatory! Podcast episodes
πŸŽ‰ Events, stories & community updates

πŸ‘‰ Join us today inflammatoryarthritis.org

#InflammatoryArthritisUK #ArthritisCommunity

28.10.2025 16:31 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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πŸ’™ #InvisibleDisabilitiesWeek!
Feeling like you’re living in permanent twilight? 😴
We’re talking about low motivation, stiff joints & staying cozy through the cold in the latest Inflammatory! episode.
Listen here tinyurl.com/bdzh9sjn or watch on YouTube here tinyurl.com/mryyznn8
#InflammatoryPodcast

24.10.2025 15:24 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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πŸ’ͺ Here’s a teaser for tomorrow’s Inflammatory! episode!

Physio & strength coach Matt Brown joins us to bust myths and share how even a few minutes of movement can help with inflammatory arthritis.

🎧 Follow the podcast so you don’t miss it!
#InflammatoryPodcast #ArthritisAwareness #StrengthTraining

16.10.2025 14:46 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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🌍 World Arthritis Day 2025: Achieve Your Dreams! πŸ’ͺ✨
Our latest Inflammatory! episode, episode 30 IA: Treatment, Pain & Daily Life asks: what do you still hope to achieve while living with arthritis?
🎧 tinyurl.com/36hrkb2x
πŸŽ₯ tinyurl.com/y2bapwn6

13.10.2025 14:21 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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β€œHow do you even describe pain?” πŸ€”
New Inflammatory! episode out now, we talk invisible pain, flare vs. dull aches, fatigue, coping tools & finding community.

🎧 Listen here: tinyurl.com/38duw842
Or watch on YouTube here: tinyurl.com/27skps9x

#ChronicPain #InvisibleIllness #ArthritisAwareness

26.09.2025 08:40 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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πŸ’₯ How painful is inflammatory arthritis? πŸ€”
This Friday on Inflammatory! we’re diving into the invisible pain that comes with IA.
✨ Does pain change your mood?
✨ What are your go-to tips for coping?
Drop a comment below & join the conversation.
🎧 Full episode out Friday + YouTube!
#Inflammatory

23.09.2025 15:59 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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This week on Inflammatory! πŸŽ™οΈ Sarah Yorke shares her journey with RA, from being dismissed as β€œtoo young” to ways to take control through rest, movement & self-advocacy.
RA is unpredictable, but no one has to face it alone. πŸ’™
Listen here tinyurl.com/34sm8t7h
Watch on YouTube tinyurl.com/5ftp47d3

19.09.2025 12:50 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Want the latest on our podcast episodes, updates in inflammatory arthritis, new research, events, and more? πŸ“°πŸŽ™οΈ

πŸ‘‰ Sign up to our newsletter and be the first to know what’s happening in the IA community.

πŸ”— tinyurl.com/yc4jj93b

#InflammatoryPodcast #ArthritisAwareness #PodcastCommunity #IAnews

04.09.2025 14:48 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
British Society for Rheumatology - JIA Guideline Scope for patients British Society for Rheumatology - JIA Guideline Scope for patients

πŸ“’ The British Society for Rheumatology is working on a brand-new life-course clinical guideline for Juvenile Idiopathic Arthritis (JIA). People with lived experience we need your help! Share what matters most by completing our short survey before 16 Sept.

πŸ”— tinyurl.com/3pxu3mdu

#JIA #Rheumatology

27.08.2025 10:25 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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🐾 Happy #InternationalDogDay! 🐢✨
Dogs just know when you’re not at your best, flare, fatigue, or a rough day. Their cuddles & unconditional love are the best medicine. πŸ’•

Here’s Debbie’s pup Whiskey 🐾, who we’ve mentioned on the Inflammatory! podcast. Listen here: tinyurl.com/yck6huy7

26.08.2025 12:24 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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One of the hardest parts of living with Inflammatory Arthritis (IA) is explaining it. It’s not β€œjust arthritis” like OA. IA is an autoimmune disease. 🎧 In Ep13 of Inflammatory! we use a sound system analogy to make sense of it.
Listen here tinyurl.com/4ajba8rr

#ArthritisAwareness #Autoimmune

18.08.2025 11:32 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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πŸŽ™In episode 17 of Inflammatory! we were joined by fashion and portrait photographer Rachell Smith, who shared her journey living with inflammatory arthritis. Navigating years of misdiagnosis to parenting with chronic pain. It is full of heart, honesty, and hope.
🎧 Listen here tinyurl.com/55ezx3hu

08.08.2025 10:59 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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🎧 Have you or someone you care about been diagnosed with a type of inflammatory arthritis (IA)?

Check out Inflammatory! our weekly podcast (currently on a summer break β˜€οΈ) that dives into what life is really like with IA.
πŸŽ™οΈ Listen now on our website inflammatoryarthritis.org

05.08.2025 11:19 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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🎧 Bonus summer episode out now! Debbie joins from Crete to chat about:
β˜€οΈ Travelling with inflammatory arthritis
🧴 Sun sensitivity & medication
πŸ’› Self-compassion when things don’t go to plan

Listen now: tinyurl.com/mtyepf8n
#ChronicIllness #ArthritisAwareness #inflammatoryarthritis

18.07.2025 14:57 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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πŸŽ‰ Inflammatory Arthritis UK is 6 months old!
What a journey it’s been and we’ve only just begun.

There are other charities, but our focus on lived experience shows: people need to hear from people who get it.

We’re here, and we’re needed. πŸ’™ #IAUK #LivedExperienceπŸ’™ #IAUK #LivedExperience

08.07.2025 12:25 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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#JIAAwarenessMonth
Juvenile Idiopathic Arthritis (JIA) is so much more than just joint pain.
πŸŽ™οΈ In Episode 11 Inflammatory! Word!, our co-founder Debbie shares what it’s like to parent a child with JIA, while living with it herself. Listen here tinyurl.com/mtdjfa6u
All episodes tinyurl.com/yck6huy7

07.07.2025 13:28 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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The NHS 10-Year Plan is out. We welcome the ambition but are reviewing how it impacts people with inflammatory arthritis. Timely diagnosis, access, and care matter.
πŸ”— Read our response: tinyurl.com/mr4djm5t

#NHSPlan #InflammatoryArthritis #IAUK πŸ‘‰ tinyurl.com/mr4djm5t
#NHSPlan

04.07.2025 16:17 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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July is #JuvenileIdiopathicArthritis Awareness Month πŸ’™
JIA starts before age 16, and for many, it lasts a lifetime. Our co-founder & her daughter both live with JIA.
Read Debbie's inspiring blogs here: tinyurl.com/ye3x5djr

#JIA #ChronicIllness #JIAAwareness #InflammatoryArthritis

01.07.2025 15:22 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Inflammatory arthritis doesn’t take a holiday... even when we do!
In this week’s episode of Inflammatory! we talk all things holidays, reflect on how far we have come considering IAUK is not even 6 months old!

🎧 πŸ”— Listen now: tinyurl.com/y42k4scr
#inflammatoryarthritis #podcast #community

30.06.2025 13:10 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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🌟 Small Charities, Big Impact 🌟
#SmallCharitiesWeek, even though IAUK is a new small charity, we are already making a big impact πŸ’™

πŸ’¬ Show your support this Small Charities Week by:
βœ”οΈ Sharing our page
βœ”οΈ Spreading awareness
βœ”οΈ Sign up to our newsletter & donate here inflammatoryarthritis.org

23.06.2025 15:33 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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πŸŽ™οΈ New Episode: Support Act
Katy & Debbie get real about life with #InflammatoryArthritis while both managing painful flares.
From misdiagnosis to mental health, this is a must-listen for anyone living with IA.
πŸ”— Listen: tinyurl.com/yc4f5u4z
#IAUK #ChronicPain #AutoimmuneLife #ArthritisAwareness

20.06.2025 09:11 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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πŸ”₯ Stay In the Know! πŸ”₯
Sign up to our newsletter and get the latest Inflammatory! updates, cutting-edge IA news, breakthrough research, upcoming events, and more straight to your inbox.

πŸ“© Join the list now β†’ inflammatoryarthritis.org

#Newsletter #Inflammation #Immunology #ResearchNews #IAupdates

19.06.2025 10:41 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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🌟Our co-founder & proud trustee of the Teapot Trust is in Edinburgh for the next two days for board meetings.

She’s bringing her lived experience, charity sector expertise & passion to the table. Exciting times ahead as the board explore new ideas, fresh energy & shared purpose.
#CharityLeadership

17.06.2025 13:11 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Powerful and inspiring story from Adam Newton. He was cycling for charity when the pain hit.
πŸŽ™οΈOn the latest episode of Inflammatory!, Adam shares his journey with inflammatory arthritis, from denial to acceptance & how movement, mindset, & support have helped him. Listen here tinyurl.com/ymphehs4

13.06.2025 10:34 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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HELP! episode out now
πŸ‘₯ Want to make a difference, even with limited time or energy?
We’re talking about realistic, empowering ways to volunteer and shape the future of IAUK.
🎧 Listen to the full episode here: tinyurl.com/4aynyfs4

#ChronicIllnessWarrior #VolunteerOpportunity #InvisibleDisability

06.06.2025 08:23 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 1
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#Volunteerweek2025 Inflammatory! episode this week will celebrate and highlight the great work volunteers do. IAUK wouldn't exist without our amazing volunteers. If you know someone who gives up their time to help others please let us know in the comments and we would love to do some shout outs πŸ‘‡

03.06.2025 08:40 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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πŸŽ™οΈ Episode 20 our fifth Q&A is OUT NOW!
We love diving into your questions, and this one was packed with great ones.
What’s the most obscure β€œcure” for IA that someone’s ever suggested to you? πŸ€”πŸͺ„
Listen to our answers and the full episode here 🎧: tinyurl.com/5yncx8jz πŸ˜…

30.05.2025 16:10 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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If you missed last weeks episode of Inflammatory! here is a small clip of what we discussed.
Listen to the full episode here: shorturl.at/P53mT
What would be your main research priority?
Please let us know in the comments below πŸ‘‡
#inflammatoryarthritis #InflammatoryPodcast #inflammatory

29.05.2025 14:58 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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We can not quite believe it is our fifth Q&A session this week!!πŸ₯³πŸŽ‰
It is not too late to send in your questions.
Leave your questions in the comments or send them here: tinyurl.com/yc4jj93b
Please note: we only answer from our lived experience, we are not medical professionals.

27.05.2025 13:30 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 1

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