Dear @weeklyshowpodcast.bsky.social itโs not too late to FINALLY cover #GreatestMEdicalScandal ๐๐
30.12.2025 19:25 โ ๐ 16 ๐ 9 ๐ฌ 1 ๐ 0@johnvsjonvsme.bsky.social
#JohnVsJonVsME campaign to get John Oliver or Jon Stewart to bring the awful history of #MyalgicEncephelomyelitis #GreatestMEdicalScandal to light JohnVsJon.com
Dear @weeklyshowpodcast.bsky.social itโs not too late to FINALLY cover #GreatestMEdicalScandal ๐๐
30.12.2025 19:25 โ ๐ 16 ๐ 9 ๐ฌ 1 ๐ 0Dear @weeklyshowpodcast.bsky.social itโs not too late to FINALLY cover #GreatestMEdicalScandal ๐๐
30.12.2025 19:25 โ ๐ 16 ๐ 9 ๐ฌ 1 ๐ 0Gracias again for this important essay @lauralew105.bsky.social โค๏ธ
Have you written about the history of IACC, specifically ME? (@georgemonbiot.bsky.social calls it #GreatestMEdicalScandal of 21st century).
At @johnvsjonvsme.bsky.social we're trying to get more media to cover it-
www.johnvsjon.com
Gracias for your voice & clarity, querido @georgemonbiot.bsky.social. Any thoughts on why itโs so hard to get more people to care about #GreatestMEdicalScandal? At @johnvsjonvsme.bsky.social weโve been trying to get @weeklyshowpodcast.bsky.social @lastweektonight.com to cover it.
www.johnvsjon.com
Still dreaming of #GreatestMEdicalScandal & Wessely malfeasance coverage
#JohnVsJonVsME @johnvsjonvsme.bsky.social
Iโve kept deteriorating through this pandemic & am doing less advocacy work, but please see
www.johnvsjon.com
@ryankenacts.bsky.social @lastweektonight.com @markruffalo.bsky.social
Still dreaming Jon Stewart will look into Wesselyโs malfeasance @weeklyshowpodcast.bsky.social. The @georgemonbiot.bsky.social thread on #GreatestMEdicalScandal this is responding to is excellent. #JohnVsJonVsME @johnvsjonvsme.bsky.social
www.johnvsjon.com
Name them in the comments below and tag them and their institutions if theyโre on this site! Also like & second proposals you agree with below :). And repost this invitation for reach, please!
We'll be reaching out to @weeklyshowpodcast.bsky.social to share this post and top guest proposals.
Light blue image with a screenshot of Jon Stewart on The Weekly Show Pod listening attentively. At the top the title 'Guest Proposals for Jon Stewart and Weekly Show Pod on #GreatestMEdicalScandal, M.E., Long Covid. " Where the two guests would go in the show, there's a sillhouette with a question mark and the indication "Tag or name specialists you propose in the comments."
In honor of the big week weโve had in #ME / #LongCOVID worldโ @decodemestudy.bsky.social results last week; #KeystoneSymposia on #LongCOVID this weekโwho would you like to see Jon Stewart interview on @weeklyshowpodcast.bsky.social to highlight these historic events?
13.08.2025 19:45 โ ๐ 29 ๐ 15 ๐ฌ 10 ๐ 1I also propose @ahandvanish.bsky.social and other members of @patientled.bsky.social to discuss #LongCovid and #ME research with Jon Stewart on @weeklyshowpodcast.bsky.social
14.08.2025 00:21 โ ๐ 4 ๐ 2 ๐ฌ 0 ๐ 0Other specialists proposed as guests by #pwME #pwLC on IG (which I second!): Gez Medinger, @binitakane.bsky.social @decodemestudy.bsky.social @longcovidkids.bsky.social @rthm.bsky.social
14.08.2025 00:27 โ ๐ 2 ๐ 2 ๐ฌ 0 ๐ 0Other journalists I recommend are @thesicktimes.org founders
@betsyladyzhets.bsky.social @mileswgriffis.bsky.social
โค๏ธ
. @openmedf.bsky.social & its centers around the world are leaders in #ME and #LongCovid research & global collaboration. @janetdafoe.bsky.social can speak both about the research & #SevereME caretaking experience (and how many folks around the world have zero support from their healthcare systems).
14.08.2025 00:23 โ ๐ 4 ๐ 2 ๐ฌ 0 ๐ 0I also second and strongly encourage inviting David Tuller and @georgemonbiot.bsky.social to discuss #GreatestMEdicalScandal
14.08.2025 00:25 โ ๐ 6 ๐ 3 ๐ฌ 0 ๐ 0Seconding also that @meactnet.bsky.social
and their Scientific & Medical Outreach director
@exceedhergrasp1.bsky.social would be great guests to discuss #LongCovid #ME #GreatestMEdicalScandal (including what the current political situation in the U.S. has meant for IACI advocacy and progress)
Seconding all of these proposals enthusiastically! #GreatestMEdicalScandal
13.08.2025 20:39 โ ๐ 4 ๐ 2 ๐ฌ 0 ๐ 0#pwME #pwLC #NEISVoid tell us what you think ๐
13.08.2025 20:09 โ ๐ 9 ๐ 4 ๐ฌ 2 ๐ 0Name them in the comments below and tag them and their institutions if theyโre on this site! Also like & second proposals you agree with below :). And repost this invitation for reach, please!
We'll be reaching out to @weeklyshowpodcast.bsky.social to share this post and top guest proposals.
Light blue image with a screenshot of Jon Stewart on The Weekly Show Pod listening attentively. At the top the title 'Guest Proposals for Jon Stewart and Weekly Show Pod on #GreatestMEdicalScandal, M.E., Long Covid. " Where the two guests would go in the show, there's a sillhouette with a question mark and the indication "Tag or name specialists you propose in the comments."
In honor of the big week weโve had in #ME / #LongCOVID worldโ @decodemestudy.bsky.social results last week; #KeystoneSymposia on #LongCOVID this weekโwho would you like to see Jon Stewart interview on @weeklyshowpodcast.bsky.social to highlight these historic events?
13.08.2025 19:45 โ ๐ 29 ๐ 15 ๐ฌ 10 ๐ 1Alt text for first tweet: screen shot of Bridget OโSheaโs last tweet, from handle @Bridget_OShea, at 8:29 a.m. on 7/13/25, the day before she died:
I called my mom. I told her I'm afraid I'm going to die. Her response? She hung up. ๐ซ#MECFS
โฆ โIndeed, no one should have the responsibility to know so intimately this daily, hourly, physical torture. The weight of it all is too much to bear.โ
22.07.2025 00:10 โ ๐ 3 ๐ 1 ๐ฌ 1 ๐ 0From the link above, โthe very idea that the NIH, NHS, and numerous health agencies worldwide have largely succeeded in burying such a longstanding humanitarian and societal catastrophe is something I donโt think Iโll ever comprehendโฆ.โ
22.07.2025 00:10 โ ๐ 3 ๐ 2 ๐ฌ 1 ๐ 0Hereโs Bridget in her own words on the #GreatestMEdicalScandal. How many more kind and brilliant souls do we have to lose before this gets the compassion, help, NEWS COVERAGE, and treatment patients deserve?
#JohnVsJonVsME
2/
bridgetoshea.com/blog/buried-...
The #GreatestMEdicalScandal has taken another person who should have been in the prime of their brilliant life. She spent so much of her last years howling for better understanding & treatment of this neglected disease. 1/
#JohnVsJonVsME
www.dignitymemorial.com/obituaries/c...
Alt. Text: A lifeguard safety MEme. At the top, โWe need a whole team of lifeguards to sound the alarmโ in black text. Below the top, โ#GreatestMEdicalScandal #MillionsMissing #DisabilitySOSโ in red text. On right side, โI nominate Naomi Klein for thisโ in red text. On left side, an image of Naomi Klein as a lifeguard holding a red and white safety floatation ring. The background is a photograph of an enormous ocean wave crashing near the shoreline. At the bottom, โ#JohnVsJonVsMEโ in black text.
Weโre sending out a #DisabilitySOS to @naomiaklein.bsky.social! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? ๐๐ Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth
27.05.2025 21:23 โ ๐ 9 ๐ 4 ๐ฌ 0 ๐ 1@ghostpanther.bsky.social #GreatestMEdicalScandal is right up your alleyโcoverups by the powers that be, preventing effective treatments/cures, and even a villainous knight! @emilyesfraser.bsky.social does a fantastic job of highlighting some of its worst parts! Please help us fight this stigma! ๐
28.05.2025 16:04 โ ๐ 6 ๐ 3 ๐ฌ 0 ๐ 0Iโd love for @vidyakrishnan.bsky.social to look into #GreatestMEdicalScandal bc sheโs an amazing health journalist & bc thereโs especially limited support for #pwME in South Asia, perhaps Asia in general. @nlizaki.bsky.social can attest to the lack of care in Pakistan ๐.
www.johnvsjon.com
Join our fight @jennyhagel.bsky.social! ๐
29.05.2025 03:33 โ ๐ 3 ๐ 2 ๐ฌ 0 ๐ 0Check out JohnVsJon.com @ronnychieng.bsky.social and help us fight the stigma of #GreatestMEdicalScandal!
29.05.2025 03:34 โ ๐ 3 ๐ 2 ๐ฌ 0 ๐ 0Help us find the stigma of #GreatestMEdicalScandal @gkuhlenschmidt.bsky.social! ๐
29.05.2025 03:35 โ ๐ 3 ๐ 2 ๐ฌ 0 ๐ 0@joshjohnsoncomedy.bsky.social I am counting on you to help us fight the stigma of #GreatestMEdicalScandal so #pwME can get effective cures and treatments! Help us out ๐
29.05.2025 03:37 โ ๐ 6 ๐ 2 ๐ฌ 0 ๐ 0