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@JohnVsJonVsME

@johnvsjonvsme.bsky.social

#JohnVsJonVsME campaign to get John Oliver or Jon Stewart to bring the awful history of #MyalgicEncephelomyelitis #GreatestMEdicalScandal to light JohnVsJon.com

1,234 Followers  |  163 Following  |  304 Posts  |  Joined: 21.10.2024  |  2.5706

Latest posts by johnvsjonvsme.bsky.social on Bluesky

Name them in the comments below and tag them and their institutions if they’re on this site! Also like & second proposals you agree with below :). And repost this invitation for reach, please!

We'll be reaching out to @weeklyshowpodcast.bsky.social to share this post and top guest proposals.

13.08.2025 19:46 — 👍 9    🔁 3    💬 0    📌 0
Light blue image with a screenshot of Jon Stewart on The Weekly Show Pod listening attentively. At the top the title 'Guest Proposals for Jon Stewart and Weekly Show Pod on #GreatestMEdicalScandal, M.E., Long Covid. " Where the two guests would go in the show, there's a sillhouette with a question mark and the indication "Tag or name specialists you propose in the comments."

Light blue image with a screenshot of Jon Stewart on The Weekly Show Pod listening attentively. At the top the title 'Guest Proposals for Jon Stewart and Weekly Show Pod on #GreatestMEdicalScandal, M.E., Long Covid. " Where the two guests would go in the show, there's a sillhouette with a question mark and the indication "Tag or name specialists you propose in the comments."

In honor of the big week we’ve had in #ME / #LongCOVID world— @decodemestudy.bsky.social results last week; #KeystoneSymposia on #LongCOVID this week—who would you like to see Jon Stewart interview on @weeklyshowpodcast.bsky.social to highlight these historic events?

13.08.2025 19:45 — 👍 28    🔁 14    💬 10    📌 1

I also propose @ahandvanish.bsky.social and other members of @patientled.bsky.social to discuss #LongCovid and #ME research with Jon Stewart on @weeklyshowpodcast.bsky.social

14.08.2025 00:21 — 👍 3    🔁 2    💬 0    📌 0

Other specialists proposed as guests by #pwME #pwLC on IG (which I second!): Gez Medinger, @binitakane.bsky.social @decodemestudy.bsky.social @longcovidkids.bsky.social @rthm.bsky.social

14.08.2025 00:27 — 👍 2    🔁 2    💬 0    📌 0

Other journalists I recommend are @thesicktimes.org founders
@betsyladyzhets.bsky.social @mileswgriffis.bsky.social
❤️

14.08.2025 00:22 — 👍 5    🔁 2    💬 0    📌 0

. @openmedf.bsky.social & its centers around the world are leaders in #ME and #LongCovid research & global collaboration. @janetdafoe.bsky.social can speak both about the research & #SevereME caretaking experience (and how many folks around the world have zero support from their healthcare systems).

14.08.2025 00:23 — 👍 4    🔁 2    💬 0    📌 0

I also second and strongly encourage inviting David Tuller and @georgemonbiot.bsky.social to discuss #GreatestMEdicalScandal

14.08.2025 00:25 — 👍 4    🔁 2    💬 0    📌 0

Seconding also that @meactnet.bsky.social
and their Scientific & Medical Outreach director
@exceedhergrasp1.bsky.social would be great guests to discuss #LongCovid #ME #GreatestMEdicalScandal (including what the current political situation in the U.S. has meant for IACI advocacy and progress)

14.08.2025 00:26 — 👍 6    🔁 2    💬 0    📌 0

Seconding all of these proposals enthusiastically! #GreatestMEdicalScandal

13.08.2025 20:39 — 👍 4    🔁 2    💬 0    📌 0

#pwME #pwLC #NEISVoid tell us what you think 👇

13.08.2025 20:09 — 👍 8    🔁 4    💬 2    📌 0

Name them in the comments below and tag them and their institutions if they’re on this site! Also like & second proposals you agree with below :). And repost this invitation for reach, please!

We'll be reaching out to @weeklyshowpodcast.bsky.social to share this post and top guest proposals.

13.08.2025 19:46 — 👍 9    🔁 3    💬 0    📌 0
Light blue image with a screenshot of Jon Stewart on The Weekly Show Pod listening attentively. At the top the title 'Guest Proposals for Jon Stewart and Weekly Show Pod on #GreatestMEdicalScandal, M.E., Long Covid. " Where the two guests would go in the show, there's a sillhouette with a question mark and the indication "Tag or name specialists you propose in the comments."

Light blue image with a screenshot of Jon Stewart on The Weekly Show Pod listening attentively. At the top the title 'Guest Proposals for Jon Stewart and Weekly Show Pod on #GreatestMEdicalScandal, M.E., Long Covid. " Where the two guests would go in the show, there's a sillhouette with a question mark and the indication "Tag or name specialists you propose in the comments."

In honor of the big week we’ve had in #ME / #LongCOVID world— @decodemestudy.bsky.social results last week; #KeystoneSymposia on #LongCOVID this week—who would you like to see Jon Stewart interview on @weeklyshowpodcast.bsky.social to highlight these historic events?

13.08.2025 19:45 — 👍 28    🔁 14    💬 10    📌 1

Alt text for first tweet: screen shot of Bridget O’Shea’s last tweet, from handle @Bridget_OShea, at 8:29 a.m. on 7/13/25, the day before she died:

I called my mom. I told her I'm afraid I'm going to die. Her response? She hung up. 😫#MECFS

22.07.2025 00:22 — 👍 1    🔁 1    💬 0    📌 0

… “Indeed, no one should have the responsibility to know so intimately this daily, hourly, physical torture. The weight of it all is too much to bear.”

22.07.2025 00:10 — 👍 3    🔁 1    💬 1    📌 0

From the link above, “the very idea that the NIH, NHS, and numerous health agencies worldwide have largely succeeded in burying such a longstanding humanitarian and societal catastrophe is something I don’t think I’ll ever comprehend….”

22.07.2025 00:10 — 👍 3    🔁 2    💬 1    📌 0
Preview
Buried Alive by Government “Experts” — Bridget O'Shea At first, I’d been on a plane, in a window seat, grounded and waiting to deboard. I thought this for a long time. Now, though, the scene takes me to the backseat of a car – my parent’s car – on the hi...

Here’s Bridget in her own words on the #GreatestMEdicalScandal. How many more kind and brilliant souls do we have to lose before this gets the compassion, help, NEWS COVERAGE, and treatment patients deserve?
#JohnVsJonVsME
2/

bridgetoshea.com/blog/buried-...

21.07.2025 23:56 — 👍 5    🔁 3    💬 1    📌 0
Post image

The #GreatestMEdicalScandal has taken another person who should have been in the prime of their brilliant life. She spent so much of her last years howling for better understanding & treatment of this neglected disease. 1/
#JohnVsJonVsME

www.dignitymemorial.com/obituaries/c...

21.07.2025 23:55 — 👍 14    🔁 6    💬 2    📌 0

Alt. Text: A lifeguard safety MEme. At the top, “We need a whole team of lifeguards to sound the alarm” in black text.  Below the top, “#GreatestMEdicalScandal #MillionsMissing #DisabilitySOS” in red text.  On right side, “I nominate Naomi Klein for this” in red text. On left side, an image of Naomi Klein as a lifeguard holding a red and white safety floatation ring.  The background is a photograph of an enormous ocean wave crashing near the shoreline.  At the bottom, “#JohnVsJonVsME” in black text.

Alt. Text: A lifeguard safety MEme. At the top, “We need a whole team of lifeguards to sound the alarm” in black text. Below the top, “#GreatestMEdicalScandal #MillionsMissing #DisabilitySOS” in red text. On right side, “I nominate Naomi Klein for this” in red text. On left side, an image of Naomi Klein as a lifeguard holding a red and white safety floatation ring. The background is a photograph of an enormous ocean wave crashing near the shoreline. At the bottom, “#JohnVsJonVsME” in black text.

We’re sending out a #DisabilitySOS to @naomiaklein.bsky.social! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth

27.05.2025 21:23 — 👍 9    🔁 4    💬 0    📌 1

@ghostpanther.bsky.social #GreatestMEdicalScandal is right up your alley—coverups by the powers that be, preventing effective treatments/cures, and even a villainous knight! @emilyesfraser.bsky.social does a fantastic job of highlighting some of its worst parts! Please help us fight this stigma! 🙏

28.05.2025 16:04 — 👍 6    🔁 3    💬 0    📌 0

I’d love for @vidyakrishnan.bsky.social to look into #GreatestMEdicalScandal bc she’s an amazing health journalist & bc there’s especially limited support for #pwME in South Asia, perhaps Asia in general. @nlizaki.bsky.social can attest to the lack of care in Pakistan 💔.
www.johnvsjon.com

28.05.2025 21:39 — 👍 11    🔁 3    💬 1    📌 0

Join our fight @jennyhagel.bsky.social! 🙏

29.05.2025 03:33 — 👍 3    🔁 2    💬 0    📌 0

Check out JohnVsJon.com @ronnychieng.bsky.social and help us fight the stigma of #GreatestMEdicalScandal!

29.05.2025 03:34 — 👍 3    🔁 2    💬 0    📌 0

Help us find the stigma of #GreatestMEdicalScandal @gkuhlenschmidt.bsky.social! 🙏

29.05.2025 03:35 — 👍 3    🔁 2    💬 0    📌 0

@joshjohnsoncomedy.bsky.social I am counting on you to help us fight the stigma of #GreatestMEdicalScandal so #pwME can get effective cures and treatments! Help us out 🙏

29.05.2025 03:37 — 👍 6    🔁 2    💬 0    📌 0

A Lifeguard safety MEme. At the top, “We need a whole team of lifeguards to sound the alarm” in black text.  Below the top, “#GreatestMEdicalScandal #MillionsMissing #DisabilitySOS” in red text.  On right side, “I nominate Michael Kosta for this” in red text. On left side, an image of Michael Kosta as a lifeguard holding a red and white safety floatation ring.  The background is a photograph of an enormous ocean wave crashing near the shoreline.  At the bottom, “#JohnVsJonVsME” in black text.

A Lifeguard safety MEme. At the top, “We need a whole team of lifeguards to sound the alarm” in black text. Below the top, “#GreatestMEdicalScandal #MillionsMissing #DisabilitySOS” in red text. On right side, “I nominate Michael Kosta for this” in red text. On left side, an image of Michael Kosta as a lifeguard holding a red and white safety floatation ring. The background is a photograph of an enormous ocean wave crashing near the shoreline. At the bottom, “#JohnVsJonVsME” in black text.

We’re sending out a #DisabilitySOS to @michaelkosta.bsky.social! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth

28.05.2025 22:18 — 👍 9    🔁 4    💬 0    📌 0

A Lifeguard safety MEme. At the top, “We need a whole team of lifeguards to sound the alarm” in black text.  Below the top, “#GreatestMEdicalScandal #MillionsMissing #DisabilitySOS” in red text.  On right side, “I nominate Jordan Klepper for this” in red text. On left side, an image of Jordan Klepper as a lifeguard holding a red and white safety floatation ring.  The background is a photograph of an enormous ocean wave crashing near the shoreline.  At the bottom, “#JohnVsJonVsME” in black text.

A Lifeguard safety MEme. At the top, “We need a whole team of lifeguards to sound the alarm” in black text. Below the top, “#GreatestMEdicalScandal #MillionsMissing #DisabilitySOS” in red text. On right side, “I nominate Jordan Klepper for this” in red text. On left side, an image of Jordan Klepper as a lifeguard holding a red and white safety floatation ring. The background is a photograph of an enormous ocean wave crashing near the shoreline. At the bottom, “#JohnVsJonVsME” in black text.

We’re sending out a #DisabilitySOS to @jordanklepper.bsky.social! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟
Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth

28.05.2025 22:36 — 👍 10    🔁 3    💬 0    📌 1
A Lifeguard safety MEme. At the top, “We need a whole team of lifeguards to sound the alarm” in black text.  Below the top, “#GreatestMEdicalScandal #MillionsMissing #DisabilitySOS” in red text.  On right side, “I nominate Amber Ruffin for this” in red text. On left side, an image of Amber Ruffin as a lifeguard holding a red and white safety floatation ring.  The background is a photograph of an enormous ocean wave crashing near the shoreline.  At the bottom, “#JohnVsJonVsME” in black text.

A Lifeguard safety MEme. At the top, “We need a whole team of lifeguards to sound the alarm” in black text. Below the top, “#GreatestMEdicalScandal #MillionsMissing #DisabilitySOS” in red text. On right side, “I nominate Amber Ruffin for this” in red text. On left side, an image of Amber Ruffin as a lifeguard holding a red and white safety floatation ring. The background is a photograph of an enormous ocean wave crashing near the shoreline. At the bottom, “#JohnVsJonVsME” in black text.

We’re sending out a #DisabilitySOS to @amberruffin.bsky.social! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth

28.05.2025 22:54 — 👍 10    🔁 5    💬 0    📌 0

As a climate justice advocate sidelined by ME, it's been eye opening to see the same tactics used by the fossil fuel industry (manufactured doubt around scientific consensus, decades of delay, sacrificing lives to a violent status quo) wielded against me as a sick person. #GreatestMEdicalScandal

30.05.2025 19:45 — 👍 36    🔁 16    💬 2    📌 0

We need a hero @jordanklepper.bsky.social! Help us fight the stigma of #GreatestMEdicalScandal! 🙏

29.05.2025 03:36 — 👍 4    🔁 2    💬 0    📌 0

A Lifeguard safety MEme. At the top, “We need a whole team of lifeguards to sound the alarm” in black text.  Below the top, “#GreatestMEdicalScandal #MillionsMissing #DisabilitySOS” in red text.  On right side, “I nominate Jenny Hagel for this” in red text. On left side, an image of Jenny Hagel as a lifeguard holding a red and white safety floatation ring.  The background is a photograph of an enormous ocean wave crashing near the shoreline.  At the bottom, “#JohnVsJonVsME” in black text.

A Lifeguard safety MEme. At the top, “We need a whole team of lifeguards to sound the alarm” in black text. Below the top, “#GreatestMEdicalScandal #MillionsMissing #DisabilitySOS” in red text. On right side, “I nominate Jenny Hagel for this” in red text. On left side, an image of Jenny Hagel as a lifeguard holding a red and white safety floatation ring. The background is a photograph of an enormous ocean wave crashing near the shoreline. At the bottom, “#JohnVsJonVsME” in black text.

We’re sending out a #DisabilitySOS to @jennyhagel.bsky.social! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth

28.05.2025 23:19 — 👍 7    🔁 3    💬 0    📌 1

@johnvsjonvsme is following 20 prominent accounts