Alexis M.

You’re so welcome 🤗

Wait, Billy’s bday is on Halloween?? How did he get so lucky ?!

Long COVID and Post-Infectious Syndromes ECHOA Practical Approach to Complex Long COVID & ME/CFS Patient CasesBateman Horne Center and the University of Utah... Pelvic Health Considerations: Physical Therapy Perspective

Pelvic pain & dysfunction can be part of post-infectious conditions like #LongCOVID & #MECFS.
In our latest ECHO session, Katie Woolf, DPT, PRPC, shares how gentle pelvic floor therapy can help improve comfort, stability, & daily function.
Watch: https://youtu.be/sA-ue_B1uZk
@uofuhealth.bsky.social

Living expenses, education, housing, transportation, employment, training and support, assistive technology, personal support services, health prevention and wellness, financial management, administrative services, legal fees, oversight and monitoring

It does not make financial sense for everyone so you’ll need to check your personal circumstances & how it works in your state. You can save up to $100k w/o it affecting #SSI or #Medicaid & it grows tax free. Others can gift $ into it. The $ can be used in the following ways:
#pwME #chronicillness

If you are in the U.S. & living w/ a #disability do you know about STABLE savings accounts? Eligibility changes on January 1, 2026. Previously eligibility was if you became disabled before age 26. This changes to before 46, allowing a lot more people to qualify. #LongCovid

www.stableaccount.com

Full moon in the center of bare branches.

Happy Halloween! 🕸🎃👻

The Long COVID Treatment Trial – Tirzepatide (LoCITT-T) is now open for enrollment for people with Long COVID in all states but Hawaii (due to concerns about maintaining temperature control in shipping), DC, and PR:
longcovid.scripps.edu/locitt-t/?ut...

No Evidence Supports Using Graded Exercise for ME/CFS Studies examining the effects of activity-based interventions haven’t required post-exertional malaise as a core criterion for the now-termed ‘myalgic encephalomyelitis/chronic fatigue syndrome.’

Medscape: No Evidence Supports Using Graded Exercise for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

'PEM has been well-documented in ME/CFS research showing abnormal biological responses after exertion as assessed by cardiopulmonary exercise testing (CPET)'

www.medscape.com/viewarticle/...

Case report by @sunsopeningband.bsky.social et al. @workwellfoundation.bsky.social @wearlumia.bsky.social

This case report explored whether reduced blood flow to the head contributes to postexertional malaise (PEM) in myalgic encephalomyelitis (ME). Using a new in-ear device, researchers measured

The Long COVID Treatment Trial – Tirzepatide (LoCITT-T) is officially open for enrollment for people with Long COVID in:
Alabama, Alaska, California, Florida, Illinois, Indiana, Michigan, Ohio, Pennsylvania, Texas, Utah
longcovid.scripps.edu/locitt-t/?ut...

1/16

Two Systems in Collapse What illness can teach us about responding to climate change

How do we love what we can't save — a planet, or a body?

I wrote about the connections between severe ME and the climate crisis, and the discipline of continuing. jrehmeyer.substack.com/p/two-system...
#MyalgicE #mecfs #ClimateAction #climatecrisis

I’ve been regularly volunteering at a food bank for about a year and please, if you want to help, consider donating cash.

For $3, they can provide 15 meals and what they can do with the money you might spend on a few cans can be converted to vastly more in fresh fruit, vegetables, dairy, or meat.

How much my providers know about my condition: Photo of tiny book (possibly the smallest in the world) How much I have to know to keep them from harming me: Photo of huge book (possibly the largest in the world)

Metformin has been shown to reduce the risk of Long COVID. Why isn’t it more widely used? - The Sick Times Recent studies add evidence to a prior phase 3 clinical trial, suggesting that taking the diabetes drug during acute COVID-19 reduces the risk of long-term symptoms.

Great work from Rachel Fairbank on the winding story of metformin for #LongCOVID at @thesicktimes.org.

Quotes from @jencurtinmd.bsky.social, Rachel Hall Clifford, @chromatowski.bsky.social, Carolyn Bramante, Ed Mills, Melissa Mazur & myself.

thesicktimes.org/2025/10/28/m...

#MedSky

Immunological associations in post-infective fatigue syndromes including Long COVID—a systematic review and meta-analysis These findings provide cautious support for persistent immune activation in PIFS, but warrant further replication. Future studies should include better documentation of acute infection and PIFS case c...

The body of evidence for persistent activation of the immune system in #LongCovid and related post-infective syndromes
www.thelancet.com/journals/ebi...

I feel this so hard I wish I could wear it on a t shirt or put it on a billboard

People on SNAP could really use our help right now. Find your local food bank and donate and/or volunteer if you're able.

Not just a sacrifice of my health, but of my time. I’d rather do 5-10 very small things each day instead, move about my house how I want, not have to plan every moment & weigh every risk. It gives me the illusion of choice & control. The illusion of freedom. #LongCovid

The old wisdom of quality over quantity is not something I’ve found to be true w/ #MECFS, for me at least. Occasionally I will splurge my energy on one “big” thing & be down for the count for a few days, both before in prep & after to recover. But mostly I see that as too big a sacrifice.

I will check it out 🙂

Low-dose rapamycin alleviates clinical symptoms of fatigue and PEM in ME/CFS patients via improvement of autophagy: a pilot study - Journal of Translational Medicine Background mTOR activation is associated with chronic inflammation in ME/CFS. Previous studies have shown that sustained mTOR activation may cause chronic muscle fatigue by inhibiting ATG13-mediated a...

translational-medicine.biomedcentral.com/articles/10....

I enjoyed this episode so much. They had so much chemistry, even though they didn’t really know each other, it felt like eavesdropping on a girlfriend brunch. (And I thought her documentary was excellent)

I keep a notes app on my phone of what’s in my freezer

More info on this website and also an online (non google doc) form on there to submit specific questions

chronic.market/about-us/

Mechanisms of sex differences in acute and long COVID sequelae in mice While males are more likely to suffer severe outcomes during acute COVID-19, a greater proportion of females develop post-acute sequalae of COVID-19 (PASC) despite similar rates of infection. To ident...

19) Link to the pre-print:

Liu et al. 2025. Mechanisms of sex differences in acute and long COVID sequelae in mice
www.biorxiv.org/content/10.1...

1) Impressive study from Johns Hopkins researchers.

They infected mice with SARS-CoV-2, found that female mice had a stronger immune response and more cognitive problems after 84 days than males, and that this was due to overexpression of genes such as Tlr7 on the X chromosome.

What I wish I could say to most people when they ask to visit or interact: everything I do can or will make me physically sick, temporarily or permanently, & you are not worth it. You do not bring me enough joy or love to make it worth it, & you’ll take away from the people & things that do. #MECFS

Mixing pumpkin puree with flour makes a super easy fresh pasta dough. There’s lots of different ratios of pumpkin to flour, if you look it up or just experiment until it looks/feels right to you. You can cut pieces right from the dough ball into boiling water w/ kitchen shears, no need to shape it

A thing about chronic health issues:

It doesn’t matter how intelligent, educated, skilled, talented, etc, you are. When your body stops letting you do the things, there’s only so much you can do to fight it.

It doesn’t matter how sharp your brain is if fatigue won’t let you access it.

#NEISVoid