Hi Steve
Thanks for the note. The plan is to show them at an exhibition at the Oxo Tower Gallery in London in September, and hopefully a book too. We're also looking at other venues around the UK.
@jeremy-jeffs.bsky.social
Documentary photographer & film maker at Magnetofilms.com, editor/writer at PersonalWork.online Currently working on projects about ME/CFS (I have lived experience), loneliness and men's mental health. https://linktr.ee/jeremyjeffs
Hi Steve
Thanks for the note. The plan is to show them at an exhibition at the Oxo Tower Gallery in London in September, and hopefully a book too. We're also looking at other venues around the UK.
Thanks Steve, that's v kind of you to say!
v
I know, most articles use this type of unrepresentative stock photos and only CFS in the title. I guess we have to pick our battles wisely. Especially if we are pwME.
@jeremy-jeffs.bsky.social has been taking really great photos of people with ME in the UK.
As a passion project I run personalwork.online - sharing the #personalprojects of photographers. This week's interview is Ayesha Jones featuring Backbone her project on #scoliosis
#documentaryphotography
what Gav said..
30.07.2025 07:44 β π 1 π 0 π¬ 0 π 0Lovely!
30.07.2025 07:42 β π 0 π 0 π¬ 0 π 0On a teal coloured background with the Royal crest in white text saying Department of Health & Social Care to top right with MEAction UKβs response to the DHSCβs ME/CFS Delivery Plan at the bottom centre. All text in white.
Our response to the DHSCβs ME/CFS Delivery Plan - a plan without money, mandates or deadlines is not a plan - it is a wishβlist -@rthonwesstreeting.bsky.social @ashleydaltonmp.bsky.social
ow.ly/1anc50WwzAM
#MyalgicEncephalomyelitis #VerySevereME #pwME #pwLC #ChronicIllnessUK #DisabilityAdvocacy
Government plan to train doctors on ME/CFS βdoes not go far enough,β campaigners say.
www.bmj.com/content/390/...
Update 24. Responding to the Final Delivery Plan. A closer look at the plan, Final Delivery Plan in the media, why the Delivery Plan matters. New #ThereForME Substack post
Todayβs #ThereForME blog is our last update before a short pause (weβll be back in September π).
We unpack the Delivery Plan, the media coverage and why it matters.
Link in next post π
TONIGHT!
7PM (doors 6.30pm)
that's v v good!
29.07.2025 12:20 β π 1 π 0 π¬ 1 π 0#MECFS is a health scandal.
#millionsmissing from work, education & society but no agreement on how many are affected.
Ignored by healthcare, excluded from research, invisible in data.
This isnβt just neglect. Itβs erasure.
Info on exhibition and book tinyurl.com/58khuv8z
#documentaryphotography
A black and white photo of Niko, a man with a dark beard, lying in bed. In the foreground a pillow is shown. Middle ground is Niko with his head on a pillow, looking at the camera, having his hand on his cheast. Background shows white cabinet doors and two basketball jerseys hanging on them.
Iβve not posted here for a while now. Iβve not felt good this summer, and I still donβt. Opportunities for self-portraits or meaningful photos have been mostly absent.
Although I did took this one earlier, and wrote some words.
#MECFS #pwME #Photography #SelfDocumentary #Enduring
Photo of a microphone
Assistant Professor Rob WΓΌst, who is currently working on an ME Research UK-funded project, has taken part in a video in which he answers questions from 'patients' (in Dutch with English captions).
Read more: bit.ly/46pW9p0
Watch the video: bit.ly/41a1xsC
#MEcfs #CFS #PwME
π· Jean Gaumy
28.07.2025 17:52 β π 47 π 12 π¬ 4 π 0Gaza. 2025
Photographer - Ahmed al-Arini
Highlights from Dr Charles Shepherdβs (@MEAssociation) interview with BBC Scotland on the new #MECFS delivery plan β clip covers what ME is, key symptoms, how many are affected, & why the figure is likely much higher, as many with #LongCovid meet the criteria/diagnosed with ME.
26.07.2025 05:38 β π 9 π 6 π¬ 0 π 0ha. been there.
25.07.2025 13:49 β π 1 π 0 π¬ 0 π 0Poor images or terrible cost?!
25.07.2025 10:48 β π 1 π 0 π¬ 1 π 0Ha!
25.07.2025 06:50 β π 2 π 0 π¬ 0 π 0Morning #PhotographersOnBluesky, have you discovered any wonderful new #DocumentaryPhotography or #PersonalWork recently? Please share your recommendations!
Mine is www.jessdugan.com
#VisualStorytelling #HealthAndIllness #LongformWork
NEW - we asked parents in lower-income families about the summer holidays.
44% said they were likely to need a foodbank.
48% are more worried about being able to afford things for their children this summer holiday, compared to last year.
cpag.org.uk/news/challen...
there are other colours?!!
25.07.2025 06:14 β π 2 π 0 π¬ 1 π 0Ha! I've actually got 3...
24.07.2025 17:38 β π 1 π 0 π¬ 2 π 0Got to love an F2..... I'm might have more than one....
24.07.2025 07:58 β π 2 π 0 π¬ 1 π 0This looks interesting - I'd certainly be applying if only I was in Canada. If you are, give it a go.
#FilmFunding #Filmmaking #Filmmaker #Cinematography #IndieFilm #ShortFilm #Director #FilmmakersLife #IndieFilmmaker #FilmmakingLife #FilmProduction #IndieFilmmaking #SupportIndieFilm
The response of @thereforme.bsky.social is spot on. Over the past 3 years I've photographed dozens of #pwME who are trapped in bedrooms desperate for appropriate treatment.
In Sept Oxo Tower Gallery is showing the work,info tinyurl.com/58khuv8z
#MECFS #ChronicIllnessAwareness #millionsmissing
Nice - look forward to seeing the results!
23.07.2025 13:41 β π 1 π 0 π¬ 0 π 0Zed Nelson - well good photographer - talking about his new work The Anthropocene Illusion?
Online, 5PM UK time tomorrow. Yes please.
theviifoundation.org/event/the-an...
This is shaping up to be a great and inspiring event, in the gallery space where the Outsiders exhibition is on display. Highly recommended and will support a charity which is doing outstanding work with people experiencing homelessness.
23.07.2025 12:36 β π 29 π 12 π¬ 0 π 0