#MS_Selfie Breaking News: Fenebrutinib Press Release
My predictions may be correct. What were yours? Is this the game-changer we were hoping for? => gavingiovannoni.substack.com/p/breaking-n...
@sdkm.bsky.social
Tattooed • RRMS dx2006 • Never give up
#MS_Selfie Breaking News: Fenebrutinib Press Release
My predictions may be correct. What were yours? Is this the game-changer we were hoping for? => gavingiovannoni.substack.com/p/breaking-n...
My wedding and living with #MS do not work well together. I've married the most exceptional woman I've ever been with but #Fatigue won in the end. It's not how many times you fall down, it's the amount of times you get up again! #NeverGiveUp
08.11.2025 13:18 — 👍 8 🔁 0 💬 1 📌 0Developing a new multiple sclerosis treatment
www.eurekalert.org/news-release...
I can advocate for this 100%. Calm your mind and move mindfully. It helps a lot done once daily.
#MS #Mindfulness #Calm #Peace
on.soundcloud.com/6FmleHNTsQmR...
I'm going to send them the article and see what they say/respond with. I anticipate nothing, expectation level 0. But thank you for sharing it, Prof G has been very helpful over the years and I'm grateful for all his sharing.
03.11.2025 12:18 — 👍 1 🔁 0 💬 1 📌 0#MultipleSclerosis
👇👇
I mentioned experiencing PIRA to my MS Nurse only a matter of a month or 2 back, guess what? Completely ignored. It feels like I'm having to teach and coach my Neurology team a thing or two, not the other way round! 🤬
03.11.2025 10:38 — 👍 1 🔁 0 💬 1 📌 0❤️🧠
“…exercise is important, not only physically, but for the brain...emotionally, we know exercise can reduce depressive symptoms & anxiety…I would say that movement & exercise is essential for those with MS”
podcasts.apple.com/ie/podcast/l...
#spéirghorm #Brain #Wheelchair #MultipleSclerosis
Activating Butt | Gut | Blades (BGB) Week 2 done!
Strengthening BGB | Phase 1 starts on Monday! 💪🏼👊🏼
#TheMSGym #MS #Physio
I only said in the last 48hrs that I was considering going back to play chess again. It's been decades since I last did, but I enjoyed it! Then I got distracted by something inane and dull! Classic! 🤦🏻♂️ Thanks for the reminder trigger! 🤣👊🏼
31.10.2025 08:11 — 👍 1 🔁 0 💬 1 📌 0Sometimes crying is all we have and it, for me, sometimes really does help 😢 Don't feel bad for crying, let all that emotion out if you need to 😊
30.10.2025 07:54 — 👍 2 🔁 0 💬 0 📌 010 Strange Things About Multiple Sclerosis youtu.be/FyTTRLjEpjM?...
29.10.2025 19:41 — 👍 8 🔁 3 💬 0 📌 0BGB Strong LEVEL 1 | Phase 1 | Session 1, 2 & 3 done this week so far!!
#TheMSGym #MS
BOOM 💥 #DailyPhysio Let's do this!!!!
It's mine today, it shall be removed from the fridge shortly and placed upon my stomach about an hour after. I have calendar reminders otherwise I'd forget too. As you say, it's nice it's forgettable, uneventful if you will 😊
24.10.2025 16:57 — 👍 1 🔁 0 💬 0 📌 0And it's here, sign me up! #MS #CAR-TCellTherapy
www.bbc.co.uk/news/article...
I also feel it way more in the cold. I just start to stop working as a human, even more than I normally am. I crave heat!
23.10.2025 20:01 — 👍 2 🔁 0 💬 1 📌 0☝🏼 This..... a million %
23.10.2025 15:50 — 👍 2 🔁 0 💬 0 📌 0BGB Strong LEVEL 1 | Phase 1 | Session 5 - ☑️
#TheMSGym #MS
BOOM 💥 5 days done, let's goooooo!!
CureMS.net turns one!
🎉 curems.net turns one!
In 12 months:
🟢 40% Italian, 60% international readers
🟢 1,250+ contacts from 56 countries
🟢 152 scientific papers cited
🟢 Biweekly updates
CureMS.net is becoming a key resource on #AHSCT for patients and professionals. Thanks to all who support and to all the readers! #MS
After multiple complex relapses 2 years ago, imaging now showing stability, but still feeling like I'm getting worse, I've questioned PIRA with them and got silence. As patients, we're struggling with symptoms and imaging shows stability? Well, something's going on isn't it, I'm not fucking lying!
23.10.2025 15:03 — 👍 2 🔁 0 💬 2 📌 0MS trial results suggest drugs could repair damage
www.bbc.co.uk/news/article...
The 'funniest' (read intolerable) comment to receive back when informing others of bone breaking MS fatigue is, "yeah, me as well".
Sure. You win. Everyone is fatigued. I'm normal. How stupid of me to say anything 🤬🤦🏻♂️ I'll get me coat. Taxi!!!
BGB Strong LEVEL 1 | Phase 1 | Session 4 - ☑️
#TheMSGym #MS
Great post Sam, so accurate and informative. I may copy and paste a couple of sentences for those closest to me to fully understand the struggle. With your permission of course, my 'reuse don't reinvent' principle is satisfied with your great words 😊
22.10.2025 08:13 — 👍 3 🔁 0 💬 1 📌 0#MS fatigue isn’t “being tired.” It’s your body burning through energy faster than a crackhead through a dime bag. Yeah, I said it.
New post → mssucks.co/k
#MSSucks #MSFatigue
BGB Strong LEVEL 1 | Phase 1 | Session 3 - ☑️
#TheMSGym #MS
A summary of the efficacy of ublituximab (briumvi) on prevention of relapses and MRI activity in multiple sclerosis (data from the ULTIMATE I/II trials) pmc.ncbi.nlm.nih.gov/articles/PMC...
21.10.2025 04:10 — 👍 8 🔁 3 💬 0 📌 0BGB Strong LEVEL 1 | Phase 1 | Session 2 - ☑️
#TheMSGym #MS
26
20.10.2025 08:10 — 👍 0 🔁 0 💬 0 📌 0Double vision
20.10.2025 08:09 — 👍 0 🔁 0 💬 0 📌 0