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SCOTT

@sdkm.bsky.social

Tattooed • RRMS dx2006 • Never give up

2,256 Followers  |  404 Following  |  467 Posts  |  Joined: 15.11.2024  |  1.9642

Latest posts by sdkm.bsky.social on Bluesky

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Breaking news: Fenebrutinib Press Release My predictions may be correct.

#MS_Selfie Breaking News: Fenebrutinib Press Release

My predictions may be correct. What were yours? Is this the game-changer we were hoping for? => gavingiovannoni.substack.com/p/breaking-n...

11.11.2025 07:34 — 👍 2    🔁 2    💬 1    📌 0

My wedding and living with #MS do not work well together. I've married the most exceptional woman I've ever been with but #Fatigue won in the end. It's not how many times you fall down, it's the amount of times you get up again! #NeverGiveUp

08.11.2025 13:18 — 👍 8    🔁 0    💬 1    📌 0
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Developing a new multiple sclerosis treatment UIC researchers have developed a new way to deliver anti-inflammatory drugs to the central nervous system. Their method, which deploys immune-regulating cells wearing anti-inflammatory “nanopack...

Developing a new multiple sclerosis treatment
www.eurekalert.org/news-release...

08.11.2025 12:52 — 👍 6    🔁 2    💬 0    📌 1
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Mindfulness: A practical guide to finding peace in a frantic world A download of guided meditations aimed to complement the learnings found in Prof Mark William's and Dr Danny Penman's guide to freeing yourself from the stresses of everyday life. Containing all the m

I can advocate for this 100%. Calm your mind and move mindfully. It helps a lot done once daily.

#MS #Mindfulness #Calm #Peace

on.soundcloud.com/6FmleHNTsQmR...

07.11.2025 15:48 — 👍 1    🔁 0    💬 0    📌 0

I'm going to send them the article and see what they say/respond with. I anticipate nothing, expectation level 0. But thank you for sharing it, Prof G has been very helpful over the years and I'm grateful for all his sharing.

03.11.2025 12:18 — 👍 1    🔁 0    💬 1    📌 0

#MultipleSclerosis

👇👇

02.11.2025 21:20 — 👍 5    🔁 3    💬 1    📌 0

I mentioned experiencing PIRA to my MS Nurse only a matter of a month or 2 back, guess what? Completely ignored. It feels like I'm having to teach and coach my Neurology team a thing or two, not the other way round! 🤬

03.11.2025 10:38 — 👍 1    🔁 0    💬 1    📌 0
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S02E02. Keep Moving: The Power of Sport with MS and related conditions Podcast Episode · Let's Talk MS · 23/10/2025 · 41m

❤️🧠

“…exercise is important, not only physically, but for the brain...emotionally, we know exercise can reduce depressive symptoms & anxiety…I would say that movement & exercise is essential for those with MS”

podcasts.apple.com/ie/podcast/l...

#spéirghorm #Brain #Wheelchair #MultipleSclerosis

02.11.2025 21:16 — 👍 4    🔁 1    💬 0    📌 0

Activating Butt | Gut | Blades (BGB) Week 2 done!

Strengthening BGB | Phase 1 starts on Monday! 💪🏼👊🏼

#TheMSGym #MS #Physio

31.10.2025 16:25 — 👍 2    🔁 0    💬 0    📌 0

I only said in the last 48hrs that I was considering going back to play chess again. It's been decades since I last did, but I enjoyed it! Then I got distracted by something inane and dull! Classic! 🤦🏻‍♂️ Thanks for the reminder trigger! 🤣👊🏼

31.10.2025 08:11 — 👍 1    🔁 0    💬 1    📌 0

Sometimes crying is all we have and it, for me, sometimes really does help 😢 Don't feel bad for crying, let all that emotion out if you need to 😊

30.10.2025 07:54 — 👍 2    🔁 0    💬 0    📌 0
10 Strange Things About Multiple Sclerosis
YouTube video by Dr. Brandon Beaber 10 Strange Things About Multiple Sclerosis

10 Strange Things About Multiple Sclerosis youtu.be/FyTTRLjEpjM?...

29.10.2025 19:41 — 👍 8    🔁 3    💬 0    📌 0

BGB Strong LEVEL 1 | Phase 1 | Session 1, 2 & 3 done this week so far!!

#TheMSGym #MS

BOOM 💥 #DailyPhysio Let's do this!!!!

29.10.2025 16:32 — 👍 3    🔁 0    💬 0    📌 0

It's mine today, it shall be removed from the fridge shortly and placed upon my stomach about an hour after. I have calendar reminders otherwise I'd forget too. As you say, it's nice it's forgettable, uneventful if you will 😊

24.10.2025 16:57 — 👍 1    🔁 0    💬 0    📌 0
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And it's here, sign me up! #MS #CAR-TCellTherapy

www.bbc.co.uk/news/article...

24.10.2025 15:39 — 👍 5    🔁 1    💬 0    📌 0

I also feel it way more in the cold. I just start to stop working as a human, even more than I normally am. I crave heat!

23.10.2025 20:01 — 👍 2    🔁 0    💬 1    📌 0

☝🏼 This..... a million %

23.10.2025 15:50 — 👍 2    🔁 0    💬 0    📌 0

BGB Strong LEVEL 1 | Phase 1 | Session 5 - ☑️

#TheMSGym #MS

BOOM 💥 5 days done, let's goooooo!!

23.10.2025 15:49 — 👍 1    🔁 0    💬 0    📌 0
CureMS.net turns one!

CureMS.net turns one!

🎉 curems.net turns one!
In 12 months:
🟢 40% Italian, 60% international readers
🟢 1,250+ contacts from 56 countries
🟢 152 scientific papers cited
🟢 Biweekly updates
CureMS.net is becoming a key resource on #AHSCT for patients and professionals. Thanks to all who support and to all the readers! #MS

23.10.2025 07:42 — 👍 4    🔁 2    💬 0    📌 0

After multiple complex relapses 2 years ago, imaging now showing stability, but still feeling like I'm getting worse, I've questioned PIRA with them and got silence. As patients, we're struggling with symptoms and imaging shows stability? Well, something's going on isn't it, I'm not fucking lying!

23.10.2025 15:03 — 👍 2    🔁 0    💬 2    📌 0
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Cambridge University multiple sclerosis drugs trial has results boost The

MS trial results suggest drugs could repair damage
www.bbc.co.uk/news/article...

23.10.2025 07:21 — 👍 9    🔁 2    💬 0    📌 1

The 'funniest' (read intolerable) comment to receive back when informing others of bone breaking MS fatigue is, "yeah, me as well".

Sure. You win. Everyone is fatigued. I'm normal. How stupid of me to say anything 🤬🤦🏻‍♂️ I'll get me coat. Taxi!!!

22.10.2025 15:12 — 👍 1    🔁 0    💬 0    📌 0

BGB Strong LEVEL 1 | Phase 1 | Session 4 - ☑️

#TheMSGym #MS

22.10.2025 14:31 — 👍 1    🔁 0    💬 0    📌 0

Great post Sam, so accurate and informative. I may copy and paste a couple of sentences for those closest to me to fully understand the struggle. With your permission of course, my 'reuse don't reinvent' principle is satisfied with your great words 😊

22.10.2025 08:13 — 👍 3    🔁 0    💬 1    📌 0
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Sick and Tired of Being Sick and Tired: MS Fatigue MS fatigue isn’t “just being tired.” It’s neurological chaos that drains your battery faster than caffeine can load it. Spoiler: naps don’t fix this.

#MS fatigue isn’t “being tired.” It’s your body burning through energy faster than a crackhead through a dime bag. Yeah, I said it.

New post → mssucks.co/k

#MSSucks #MSFatigue

21.10.2025 21:00 — 👍 31    🔁 5    💬 10    📌 1

BGB Strong LEVEL 1 | Phase 1 | Session 3 - ☑️

#TheMSGym #MS

21.10.2025 15:17 — 👍 2    🔁 0    💬 0    📌 0
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A summary of the efficacy of ublituximab (briumvi) on prevention of relapses and MRI activity in multiple sclerosis (data from the ULTIMATE I/II trials) pmc.ncbi.nlm.nih.gov/articles/PMC...

21.10.2025 04:10 — 👍 8    🔁 3    💬 0    📌 0

BGB Strong LEVEL 1 | Phase 1 | Session 2 - ☑️

#TheMSGym #MS

20.10.2025 15:33 — 👍 1    🔁 0    💬 0    📌 0

26

20.10.2025 08:10 — 👍 0    🔁 0    💬 0    📌 0

Double vision

20.10.2025 08:09 — 👍 0    🔁 0    💬 0    📌 0

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