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SM

@sdkm.bsky.social

Tattooed • RRMS dx2006 • Never give up

2,170 Followers  |  198 Following  |  388 Posts  |  Joined: 15.11.2024  |  1.9416

Latest posts by sdkm.bsky.social on Bluesky

Perfect for living room/bedroom wall decals. Permanent of course.

09.08.2025 10:00 — 👍 1    🔁 0    💬 0    📌 0

Tremendous

09.08.2025 09:58 — 👍 1    🔁 0    💬 0    📌 0

The final line in conclusion couldn't be more accurate:

"If health care providers are to ensure support of individuals with MS throughout their disease course, then we must facilitate the support of their informal caregivers as well."

I wouldn't be here without my 'informal caregiver'.

08.08.2025 08:57 — 👍 1    🔁 0    💬 0    📌 0

By 'eck as like, this is accurate! 🤦🏻‍♂️😔🤷🏼‍♂️

#MS #MultipleSclerosis

07.08.2025 17:40 — 👍 4    🔁 0    💬 1    📌 0
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"The goal of this study was to compare the effectiveness of a remotely delivered #intervention with 2 arms (ie, website & #telecoaching vs website only) aimed at reducing depression, anxiety, stress & distress in informal #caregivers of individuals with #MultipleSclerosis."
doi.org/10.7224/1537...

07.08.2025 14:48 — 👍 1    🔁 1    💬 1    📌 0

Hahahaha 😂 Having a 'clear out' is also pretty satisfying, no space for waste round here!! 🤣😂🤣

06.08.2025 18:05 — 👍 1    🔁 0    💬 1    📌 0

I like to have a regular purge. Keep the place looking neat and tidy! 😂

06.08.2025 17:37 — 👍 1    🔁 0    💬 1    📌 0

Will leave the other half of the tree for a few weeks and see what can be harvested then!

05.08.2025 19:24 — 👍 1    🔁 0    💬 0    📌 0

Unsure 🤔 It's an inherited tree from moving house. It didn't produce anything last year, this year it's gone crazy! Flipping lovely though, apple pies/crumble here we come!! 😂👍🏼

05.08.2025 19:23 — 👍 2    🔁 0    💬 2    📌 0
A trug half full of freshly picked home grown green and red apples

A trug half full of freshly picked home grown green and red apples

I grabbed a load of apples off the tree today, still half the tree to go!

05.08.2025 17:21 — 👍 2    🔁 0    💬 1    📌 0
It’s not Dom. An update from Lisa #rc4ms
YouTube video by theMSguide | Riding Canada 4 MS It’s not Dom. An update from Lisa #rc4ms

It’s not Dom. An update from Lisa #rc4ms
youtube.com/shorts/ClWT6...

04.08.2025 07:12 — 👍 2    🔁 1    💬 0    📌 1

Bosh! Right in the solar plexus 👊🏼

03.08.2025 13:41 — 👍 2    🔁 0    💬 0    📌 0

And the prize goes to the WINNER Chiara! It's a formidable label but it suits you right down to the ground! 🎉😁

N.B. I'm sorry to hear of your struggles here. It's bloody awful 😣 Thoughts are with you

02.08.2025 17:14 — 👍 1    🔁 0    💬 0    📌 0

Damn straight you can! 👌🏼
It'll prove to anyone you've been through the quagmire of shit and got to the other side.... as the WINNER! 😁👊🏼

01.08.2025 20:48 — 👍 1    🔁 0    💬 0    📌 0

Ah, this is awkward.... there's no trophy or monetary value to this prize. It's literally the label WINNER!!! 🏆 😂😂

01.08.2025 19:07 — 👍 0    🔁 0    💬 1    📌 0

The best prize in the whole World Shannon, the label of WINNER!! 🤣😂🤣🤣

01.08.2025 17:57 — 👍 1    🔁 0    💬 1    📌 0

#MS brainstem lesions cause a variety of neurological symptoms due to disruption of nerve signals. To include:
visual disturbances ✅
problems with balance and coordination ✅
difficulty swallowing, slurred speech ✅ ✅
dizziness ✅
facial numbness or weakness ❌
and tremors ✅
Almost a full house! 👊🏼

01.08.2025 09:28 — 👍 4    🔁 0    💬 2    📌 0
Mesenchymal Stem Cells for MS Explained by Neurologist
YouTube video by Dr. Brandon Beaber Mesenchymal Stem Cells for MS Explained by Neurologist

Mesenchymal Stem Cells for #MS Explained by Neurologist

@brandon-beaber.bsky.social

www.youtube.com/watch?v=mMjo...

31.07.2025 09:26 — 👍 0    🔁 0    💬 0    📌 0
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Can people with MS switch between ocrevus and kesimpta? Yes. This observational study found switching did not affect the rate of relapses or new MRI activity (image C) or disability worsening (image D). journals.sagepub.com/doi/10.1177/...

30.07.2025 19:17 — 👍 2    🔁 2    💬 0    📌 0
🚨 DOM IS STILL STRUGGLING – WE NEED ALL THE HELP WE CAN GET 🚨#rc4ms
YouTube video by theMSguide | Riding Canada 4 MS 🚨 DOM IS STILL STRUGGLING – WE NEED ALL THE HELP WE CAN GET 🚨#rc4ms

youtube.com/shorts/Vqexr...

30.07.2025 11:57 — 👍 1    🔁 2    💬 0    📌 0

That looks awful. My condolences to you for this terror. I hope you recover well 😂

29.07.2025 17:48 — 👍 2    🔁 0    💬 1    📌 0
Fatigue in Multiple Sclerosis Treatment
YouTube video by Dr. Brandon Beaber Fatigue in Multiple Sclerosis Treatment

Fatigue in Multiple Sclerosis Treatment
www.youtube.com/watch?v=ilUj...

29.07.2025 08:39 — 👍 1    🔁 1    💬 0    📌 0

Lung function test and speech therapy ensue next week. MS Nurse has already responded to me this morning saying this is the right approach and the Neuro cannot act upon current treatment decisions (Kesimpta) without all scan/test results. Almost sounds professional!! 😂🤣🙄

29.07.2025 09:42 — 👍 1    🔁 0    💬 0    📌 0

From what I've read, I'm no expert, there's symptom management only and/or Botox to the vocal chord! Happy Christmas everyone, happy fucking Christmas! 🤦🏻‍♂️🤬

28.07.2025 20:00 — 👍 1    🔁 0    💬 1    📌 0

#Dysphonia can be a symptom of #MS. It arises from the disease's impact on the muscles involved in speech production, particularly those controlling the larynx and breathing. This leads to changes in voice quality, volume, and even the ability to sustain speech.

Oh snap! Thank you MS. Thank you 🙏🏼

28.07.2025 15:18 — 👍 4    🔁 1    💬 2    📌 0

Last time I saw my Neuro he mentioned the BTK inhibitors coming as the 'new phase' of treatment options. It does sound promising 🙏🏼👊🏼

24.07.2025 09:12 — 👍 1    🔁 0    💬 0    📌 0
Preview
‘It was awful for me’: one MS patient shares her experience with Tyruko NHS has been switching patients including Jonelle Roback from Tysabri to the cheaper drug, Tyruko, triggering side-effects

A couple of my #MS friends in the UK have been severely impacted by this, with no option to go back to #Tysabri. Awful to see and hear the side effects they are now suffering with no alternatives being offered by Neuro's 😔🤬

www.theguardian.com/society/2025...

24.07.2025 09:05 — 👍 3    🔁 0    💬 1    📌 0
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Following one year of treatment, 90% of patients had no new lesions, relapses, or sustained disability progression. Catch up on all the findings: https://bit.ly/4lBmBR2

#MS #RelapsingMS #MSTreatment #MSResearch #MSNews #Bionews

23.07.2025 01:51 — 👍 1    🔁 2    💬 0    📌 0
Preview
Pleurisy Find out more about pleurisy, where inflammation around the lungs causes sharp chest pain.

Well well, and here we sit. Not pulmonary embolism but pleurisy. Winner winner chicken dinner, signed off work for 2 weeks!! 👊🏼

Rack up those NSAIDs, we're going long on these! 🤬🤦🏻‍♂️

Blame the auto immune condition fo sho! #MS #Pleurisy #Lungs #INeedThemLungs

www.nhs.uk/conditions/p...

20.07.2025 11:51 — 👍 4    🔁 0    💬 1    📌 0

Classic 😂🤣😂🤣 Didn't happen babes, so no pics! 👊🏼

19.07.2025 20:24 — 👍 2    🔁 0    💬 0    📌 0

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