Dr Jo Greer

Nigel Speight's fundraiser for Medical Aid for Palestinians Help Arthur Nigel Podmore Speight raise money to support Medical Aid for Palestinians

Hero to #pwME Dr Nigel Speight is fundraising for @medicalaidpal.bsky.social & cycling from Lands End➡️John O'Groats
"With the terrible things that are happening in Gaza & the West Bank it's difficult to think of a more worthwhile charity than MAP" Dr Speight
🔗👇
www.justgiving.com/page/arthur-...

💙 Thank you to Dr Kane for highlighting this deeply problematic mandatory training for FII.

This broad model is embedded within healthcare yet is NOT backed by evidence.

Capturing highly vulnerable families whom the medical system is failing.

It is discriminatory & damaging. We need change.

Justice for the 97. YNWA. Broken promises & ironic lack of transparency are familiar themes. @ashleydaltonmp.bsky.social promised people with #MyalgicEncephalomyelitis (incl. people bedridden & tubefed) the Delivery Plan would be published by the end of June 2025. Still no explanation for the delay.

Very grateful to all 72 Lib Dem MPs for their support re the delayed Delivery Plan for #MyalgicEncephalomyelitis. Further evidence of systemic neglect, broken promises, lack of candour. People with ME have had decades of this already. Many have died waiting for change. #whereistheplan #Fundtheplan

White text on dark teal background. Sonya Chowdhury, CEO of Action for ME, says the ME community is left in the dark with no timeline or explanation for the care plan, asking why the most severely affected are so often the most neglected. Action for ME logo in top right.

Image of Big Ben with Union Jack flag in foreground. Text reads: “Third delay to ME care plan prompts backlash from patients – The Times (paywalled).” Banner says “Policy news.” Action for ME logo in top right and a QR code is shown.

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📢 The Times (paywalled): "Third delay to ME care plan prompts backlash from patients"

Full article (paywalled) 👇

www.thetimes.com/uk/healthcar...

⬇️

Further evidence of more neglect, delay, broken promises, dismissal, inaction, lack of transparency / candour. People with #MyalgicEncephalomyelitis have had decades of this already. Some have died waiting for change. #whereistheplan #Fundtheplan #brokenpromise

This is a really important and brilliantly delivered presentation from @binitakane.bsky.social.

*please* watch, share, and urge your MP to get involved. We can and must make this change happen

#ME/CFS #LongCovid #GreatestMedicalScandal

Thanks to @mediumwhite.bsky.social for the breakdown:

bsky.app/profile/medi...

Highlights from Prof Chris Ponting’s presentation to the joint APPG on ME & Long Covid: He made clear that graded exercise is harmful, and warned that despite rising numbers, there’s still no research strategy, no effective treatments, and almost no funding. #MECFS #LongCovid

YouTube video by FRANCE 24 English Greta Thunberg speaks to France 24 after her deportation from Israel • FRANCE 24 English

speaking with such moral clarity, exposing the deep moral and political failure of mainstream media and politics and their dehumanizing disregard in the face of what is happening in Gaza

m.youtube.com/watch?v=Hk1W...

The Freedom Flotilla sailing toward Gaza is not just carrying life-saving aid. It is carrying solidarity, hope and our shared humanity.

Position de la Freedom Flotilla, au dessus de l'Égypte

La Freedom Flotilla s'approche de la bande de Gaza.

Ne les perdons pas de vue, ils et elles ont besoin de notre soutien !

Photo of the Madleen flotilla with text that says “ALL EYES ON DECK”

Live tracker of the Madleen freedom flotilla: freedomflotilla.org/ffc-tracker/

Check out One Red Leaf at a Time: an international art project - launched by The Red Leaf Creative Collaborative.

Read more about it here: theredtreeandme.substack.com/p/one-red-le...

#PwME #MyalgicEncephalomyelitis #art

One Red Leaf at a Time: an international art project As we approach the end of ME Awareness month, The Red Leaf Creative Collaborative is excited to launch One Red Leaf at a Time: an international art project.

Calling all chronically ill artists and allies to help @drjogreer.bsky.social with this beautiful project: 'One Red Leaf at a Time', bringing awareness about #ME Myalgic Encephalomyelitis, and the need for funding for research. More information here: theredtreeandme.substack.com/p/one-red-le...

theredtreeandme.substack.com/p/one-red-le... #oneredleafatatime #TheRedLeafCreativeCollaborative #TheRedTreeandME #MyalgicEncephalomyelitis #LongCovid #pwME

Black background with logos for the APPG on Long Covid and APPG on ME at the top. In the lower right is an image of the Houses of Parliament in Westminster. Text reads JOINT APPG MEETING Wednesday 14th May 2025 5 to 7pm Is your MP attending?

1/3. On 14 May 2025, there will be a joint meeting for Parliamentarians between the APPG on #LongCovid and the APPG on ME.

A main focus will be on research, with several guest speakers.

Ask your MP to attend!

More details below ⬇️

#WorldMEDay

Red Leaves and Moving Mountains A huge thank you to Louise Kenward for this thoughtful piece for The Red Tree and ME.

Ahead of tomorrow's ME Awareness Day/Week - I wrote a piece about beachcombing as a guest post for @drjogreer.bsky.social #pwME #MECFS #MEAWARENESSDAY #Disability #ChronicIllness

- take a look at the link to next week's concert too -

substack.com/home/post/p-...

#pwME #MyalgicEncephalomyelitis #bluesundayconcert2025 #meawareness @meresearchuk.bsky.social @smileformecharity.bsky.social

Red Leaves and Moving Mountains A huge thank you to Louise Kenward for this thoughtful piece for The Red Tree and ME.

Really pleased to have contributed a guest post to @drjogreer.bsky.social 's The Red Tree & ME.

#Disability #Beachcombing #NatureWriting #LifeWriting #RedLeaves #MECFS

substack.com/home/post/p-...

#BlueSunday The Tea Party for ME Online Concert Registration / Donation here:

bit.ly/bluesundayco...

#pwME #BlueSundayforME #MyalgicEncephalomyelitis #MECFS
@meresearchuk.bsky.social @smileformecharity.bsky.social

Still: A Mesmerising Glimpse By Elaine O’Neill

theredtreeandme.substack.com/p/still-a-me... Elaine O’Neill, a founder member of The Red Leaf Creative Collaborative, presents ‘Still’. This captivating piece is part of her ‘Open Door’ series & offers a glimpse into a tiny corner of her lived experience as a carer for her daughter #TheRedTreeandME

Amid the Dark Leaves: Hope as an act of resistance By Jo Greer

'...hope for me is not about seeking to deny the existence of these dark leaves. We can’t. For us, hope is resistance despite them.'🍁

@sunsopeningband.bsky.social #ThereForME #FundThePlan #LongCovid #myalgicencephalomyelitis #TheRedTreeandME #ShaunTan #Hope open.substack.com/pub/theredtr...

Through Storms and Stillness: When nature speaks In this Substack, I am sharing two pieces using photographs from nature:

open.substack.com/pub/theredtr...

“El plan de entrega para mí es una oportunidad para invertir en su futuro y revertir generaciones de abandono. Por eso, por favor, ayúdennos a mantener la esperanza y #fundtheplan”

Newspaper headline reads “Lack of funding puts plan to help ME patients in doubt”. Beneath it, in a pink notebook, is written “Dear Wes & Ashley, Please #FundThePlan xoxo”

Who’s ready for Day 2 of #FundThePlan?

The community shared so many powerful videos yesterday. Keep shooting your videos and joining in however you can 💙

Lots of action yesterday in the other place. We’d love to see it take off here too! 🦋

The effects of #ME are vast. Families are split apart, friends turn their backs, employers can’t put up with unreliable employees. Worst of all Drs here been taught that it’s an imaginary illness because standard tests show that there’s no problem. There is! #FundThePlan 🙏

#FundThePlan #ThereForME

Yesterday’s news was disappointing but not unexpected.

With over a month until the plan is finalised there’s still time for ministers to change course. And every bit of pressure helps.

More from us tomorrow on how you can fight back 💪

#FundThePlan

30 yrs have been wasted on a psychological approach to #MECFS that led to stigma, abuse, and serious harm. It was abandoned by NICE due to bad science.

Wes Streeting & @ashleydaltonmp.bsky.social

The Delivery Plan is an opportunity to undo the damage and research treatments

#FundThePlan

Dear @wesstreeting.bsky.social & @ashleydaltonmp.bsky.social

I’m a carer to my husband James who has very severe ME.

He used to be a civil servant. Now he can’t get out of bed or have a conversation.

The Delivery Plan for ME is an opportunity to invest in our future.

#FundThePlan