Emma Doble

Brilliant to hear Liz from t1international sharing their mission to make access to insulin a human right. Their aim is to make the cost of essential diabetes supplies less than 5% of a person income in any given country. Another amazing community led group leading the charge for change #IDF25Bangkok

Details on the pledge here #EndDiabetesStigma

Home - End Diabetes Stigma and Discrimination Help create a more compassionate and respectful world for people with diabetes, free from diabetes stigma and discrimination and the harms they inflict.

Now into a session on ending diabetes stigma. If you haven’t already please sign the pledge at EndDiabetesStigma.org #EndDiabetesStimga

First session is on reproductive health in women with diabetes. Learning that 1 in 4 women with type 1 diabetes may also have PCOS. Girls with T1D also tend to start their periods later than others #IDF25Bangkok

Really excited to spend the day in sessions at #IDF25Congress in Bangkok. Starting with a matcha 💚

Looking forward to heading to Thailand this weekend for the world diabetes congress. I am speaking on patient involvement in research and policy. Let me know if you will be there too!

A reminder from @renzas.bsky.social to sign the #enddiabetesstigma pledge and announcing an upcoming global summit.
#attd2025 #dedoc°

Are you interested in authoring reviews on diabetes in pregnancy for a WHO guideline? Be part of a global volunteer community engaged in health evidence work

Are you interested in authoring reviews on diabetes in pregnancy for a WHO guideline? Cochrane has an opportunity looking for patient and carer input engage.cochrane.org/tasks/3891

You can learn more about the dedoc community and all that we do here www.dedoc.org

Kirsty closes the session talking about the role of senior peer support workers in the hybrid closed loop onboarding program in Scotland. These are paid roles which give that peer support for people starting on HCL. Amazing work! #dukpc25 #dedoc

Alex brings the Type F (friends and family) perspective to the session sharing her positive experience with the diabetes uk lived experience advisory group. They are open to new members if anyone wants to get involved #dedoc #dukpc25

Kes shares the challenges she had in getting her diagnosis of type 1 with a visit to 3 GPs and 6 hospitals. She highlighted the peer support groups which have helped her cope #dukpc25 #dedoc

The amazing Alyssa shares her journey in advocacy and some amazing examples she has been part of which have seen change in policy and healthcare services driven my lived experience

Next up the #dedoc symposium with four of the dedoc voices sharing their experiences of diabetes, advocacy, misdiagnosis and peer support #dukpc25 #gbdoc

It was also amazing to hear Dan and Vicki sharing their experiences of stigma. Vicki works within the police and was shocked at the lack of knowledge of diabetes within the force when she was diagnosed

These number give just a taste of the impact of stigma

The complexity and impact of stigma is huge

Totally agree Mary! It’s been so good seeing it on the program and I am sure we are only just touching the tip of the iceberg.

First session today is on diabetes stigma starting with diabetes UK sharing the plan to tackle this. You can share your thoughts and ideas on their plans here - www.smartsurvey.co.uk/s/dukpc-tack... #dukpc25 #dedoc

Day 2 of #dukpc25 and the sun is shining! Make sure you join us online for the #dedoc symposium this afternoon! It will be live streamed on the DeDoc Facebook page and youtube channel

Finished up the day with a discussion on the roles in the multidisciplinary diabetes team. Including

- diabetes specialist nurse
- primary care nurse
- dietitian
- pharmacist
- psychologist
- GP
- lived experience

How many of these do you have?
I wish there was more mention of peer support!

My favourite session of the day was on neurodivergence and diabetes, a completely new topic for me. So many challenges! Jacq shared a powerful video of what a consultation feels like for her. Think listening to music, tapping your feet, clicking your fingers all while talking about basal rates

The opening session have Brian Kennon sharing the progress of HCL access in Scotland and Partha talking about England. Equitable access to HCL has been a focus of both nations and an important challenge for the whole diabetes ecosystem to tackle

Day 1 of #dukpc2025 in Glasgow. It may have been raining outside but there the usual conference buzz inside was amazing. I received my pass for the event through DeDoc.org which brings people living with diabetes to the big diabetes conferences around the world!

@danfarrow.bsky.social

Help Us Make the Unseen, Seen! 🌍

Have you ever faced stigma because of diabetes? UNSEEN is a global initiative to uncover and document diabetes stigma through personal experiences, data, and solutions.
Please complete this survey to help make change!

docs.google.com/forms/d/e/1F...

a sign that says work in progress on a bright blue background ALT: a sign that says work in progress on a bright blue background

Update from Diabetes Scotland on tech access in children and young people

✅ 65% with T1D on pumps
✅ Two health boards with 80% on CGM with all other boards due to reach this level within weeks.

No data shared on the number on HCL though…

High risk pregnancy

"Society is convinced weight is under an individual’s control and so the sense that I had brought this on myself—and the developing baby—was overwhelming."

Sue Fletcher-Watson describes the pressures of constant monitoring in a pregnancy deemed high risk
www.bmj.com/content/388/...

This week was my first ‘official’ meeting as a member of the @facultypharmmed.bsky.social patient and communities forum. Really looking forward to learning and sharing to better patient partnership. They have created a great list of PPI resources - www.fpm.org.uk/about/commit...

Developing guidance for patients, service users or family carers on reward, recognition and remuneration The Patients Association and SNEE ICP are creating guidelines to reward and recognise patients, carers, and service users contributing to healthcare improvements. Share your views through our survey.

Help develop guidance on reward, recognition and remuneration for patients, service users or family carers who share their personal experiences or are involved / take part in improvement projects by taking our short survey: https://buff.ly/3PxlCD8