Good to hear @sharonbrennan.bsky.social @nationalvoices.bsky.social championing the crucial role that VCSEβs will play in realising the shift to community and brilliantly making the point that the 10YP care plan target must not result in tokenistic recording of patient wishes. #LabourConference2025
29.09.2025 12:28 β π 5 π 3 π¬ 0 π 0
Thanks @nationalvoices.bsky.social
As assisted dying laws are being considered across the British Isles, our latest blog explores what information and support people need to understand the law and have conversations with healthcare professionals about assisted dying.
20.08.2025 10:16 β π 3 π 2 π¬ 1 π 0
Usha: we are not talking about corralling people into a certain set of decisons...one size does not fit all.
02.06.2025 11:57 β π 0 π 1 π¬ 0 π 0
How do you make culture change real?
23.05.2025 10:22 β π 4 π 0 π¬ 0 π 0
Supporting people to make end-of-life decisions: A public health campaign
A free webinar to consider whatβs needed to build a successful campaign to help people make end-of-life decisions that are right for them.
π’ New webinar!
Join us as @charlotteaugst.bsky.social chairβs a 60 minute solutions-focused webinar where we discuss whatβs needed to build a successful public health campaign that helps people to make end-of-life decisions that are right for them.
www.eventbrite.com/e/supporting...
02.05.2025 11:30 β π 4 π 4 π¬ 0 π 1
ποΈ New episode in our #ACPDay2025 series!
Dani, James & I talk:
π―ADRTs @kitzingercelia.bsky.social
π―LPAs
π―How YOU can be part of the movement on 7 May & beyond
π§ speakforme.co.uk/podcast-epis...
π£https://advancecareplanday.org/
#AdvanceCarePlanning #DyingMatters #LPA #ADRT #OpenJustice
21.04.2025 07:08 β π 4 π 5 π¬ 0 π 0
This is a great example of what we do at Compassion in Dying - find practical solutions to help people navigate decisions when they're not being listened to.
We see lots of examples that show how policy is good but the gap between that and practice can be vast.
23.04.2025 10:43 β π 1 π 0 π¬ 0 π 0
This is such an important point. We can't 'sort' dying just by investing in services (important though that is). We need to invest in community: its understanding, choices and agency.
19.03.2025 21:10 β π 6 π 3 π¬ 0 π 0
We need to make sure what comes out of the 10 year plan for end of life care includes a new focus on listening to and foregrounding the wishes of people.
π Some thoughts from me π
19.03.2025 18:37 β π 8 π 6 π¬ 0 π 0
National Voicesβ Next Generation Network
National Voicesβ Next Generation Network events are aimed at early career policy, communications and engagement professionals with an interest in health, care, and addressing inequalities.
In 2023 my lovely former colleague, Pavi Brar, & I identified a gap β there was no space for those beginning their career in the VCSE sector to meet & grow together.
This acted as the catalyst for @nationalvoices.bsky.social's Next Generation Network.
www.nationalvoices.org.uk/project/nati...
18.03.2025 12:02 β π 5 π 1 π¬ 1 π 1
New findings from @mariecurieuk.bsky.social @nuffieldtrust.bsky.social and Health Economics Unit make for an important read.
Current health spending for people in their last year of life is disproportionately distributed towards hospital care rather than primary and community care services.
05.02.2025 11:23 β π 5 π 4 π¬ 1 π 0
I agree with this wholeheartedly. We need both.
27.11.2024 11:51 β π 4 π 1 π¬ 0 π 0
Wears a black cape and fights crime. Not Batman.
Sunday Times No.1 Bestselling authorβ’The Secret Barristerβ’#FakeLawβ’Nothing But The Truthβ’
Also writes thrillers as S.J. Fleet. The Cut Throat Trial out now at all good bookshops.
DPH Sheffield Council.
President ADPHUK.
Barely active climber and below average cyclist. Fond of - 80s thrash metal.
Blog - https://gregfellpublichealth.wordpress.com/
Usually found (professionally) talking about ageing, loneliness, health, care, ageism etc. Other stuff as the mood takes me
Director of Policy and External Affairs @nationalvoices.bsky.social Prev. Asthma&LungUK, Alzheimerβs Society and award winning journalist HSJ
We are a trade union & professional body with over half a million nurse, midwife, HCA, AP & student members.
For membership and workplace queries: https://www.rcn.org.uk/Get-Help
Page monitored Monday-Friday 8am-6pm
Plan for tomorrow and live for today! | #MyFutureCare Handbook, Training & Community Support | myfuturecare.org | A @mycarematters.bsky.social project based in UK.
Increasing understanding of grief, death & loss through collaborative research, education, advocacy & public engagement.
Visit our website: https://griefcentre.bristol.ac.uk
The UK's National Advance Care Plan Day (#ACPDay2026) is a day of action & awareness. 2025 & 2024 videos available to stream for free π
ποΈ2026 date TBA
www.AdvanceCarePlanDay.org
#ACPDay2026 #AdvanceCarePlanning
We are here to make sure that everyone approaching the end of life or living with grief can access the support they need π
sueryder.org
Law, medicine, ethics, journalism.
Improving care & decision-making Prolonged Disorders of Consciousness - Co-director cdoc.org.uk Research centre, Cardiff University
Promoting Transparency in the Court of Protection
#NotSecretCourt
By @kitzingercelia.bsky.social @gillloomesquinn.bsky.social @clarkdaniel.bsky.social @amandaaphill.bsky.social + @doccmartin.bsky.social
Website: https://openjusticecourtofprotection.org
#AdvanceCarePlanning Advocate, Educator & Coach. LPA Consultant. Podcaster. #PEoLC Educator. Gym instructor. Yoga practitioner. www.speakforme.co.uk
Promoting #OpenJustice in the Court of Protection #NotSecretCourt
Check out our website: openjusticecourtofprotection.org
Also all things Lake District + Cumbria including hiking, literature, & other stuff that interests me!
Barrister, writer and educator, mainly mental capacity, mental health and healthcare ethics. Bluesky largely used to share materials - for contact, please email me at alex.ruckkeene@39essex.com.
Website: https://www.mentalcapacitylawandpolicy.org.uk
Chartered Psychologist & End of Life Doula | Death Wired Differently (neuro-affirming end-of-life support) | PhD/MSc on death competency & death anxiety | Founding member EoL Doula International Research Group | AuDHD | Taphophile | October Drift super-fan
Dog mum and Senior Policy And External Affairs Officer @nationalvoices.bsky.social | All views my own
A coalition of over 200 charities making what matters to people matter in health and care.
Account monitored Mon-Fri, 9am-5pm.
Freelance journalist: writes about health policy and politics of the English NHS in weekly column (Β£) βCowperβs Cutβ on www.healthpolicyinsight.com.