Rheumatoid Patient's Avatar

Rheumatoid Patient

@rheumpatient.bsky.social

Patient with rheumatoid arthritis. Interested in rheumatology and patient involvement.

63 Followers  |  13 Following  |  3 Posts  |  Joined: 20.11.2024  |  1.7597

Latest posts by rheumpatient.bsky.social on Bluesky

Preview
The Human Connection: Why Relational Continuity Matters in General Practice Strong, lasting relationships between patients and their clinicians can improve outcomes, reduce costs, and strengthen the NHS. Here, our Workforce and Learning Research Group explores the evidence be...

πŸ€” What if the key to a stronger #NHS isn't a new technology but human connection?

In our latest blog, @jtaylor001.bsky.social explores how a lasting relationship between patients & GPs:

βœ… improves patient health
πŸ‘› lowers system-wide costs
πŸ˜€ makes the GP job more satisfying

#ContinuityOfCare

16.10.2025 09:22 β€” πŸ‘ 10    πŸ” 4    πŸ’¬ 1    πŸ“Œ 1
Preview
Mapping Use of High Dose or Long‐Term Oral Glucocorticoids and Steroid‐Sparing Strategies in Adults With Chronic Conditions: A Rapid Scoping Review of Reviews Purpose Oral glucocorticoids (OGCs) have a broad range of uses and are effective in treating numerous conditions. However, it is commonly acknowledged that OGCs at high doses or over long periods ha...

New #scoping review of 137 reviews across 47 conditions shows oral πŸ’Š #glucocorticoids are widely used across numerous specialities.

Our collaborative research aims to explore how they affect quality of life and how to minimise harms.

Read more πŸ‘‰ doi.org/10.1002/pds....

15.10.2025 16:31 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Preview
Bugbears in the Waiting Room: Revisiting Arber and Sawyer's Classic Study of GP Reception Work Using Ethnography in Eight English General Practices In 1985, Arber and Sawyer described the discretionary rationing power of general practice receptionists. Our paper revisits this territory. Much has changed in the intervening decades. Digitalisation...

Our paper about GP access is out now (TLDR patients and receptionists are engaged in a quest to get the prize of an appointment but are thwarted by digital barriers and practice systems) doi.org/10.1111/1467...
#NIHR @oxprimarycare.bsky.social

14.10.2025 15:45 β€” πŸ‘ 10    πŸ” 6    πŸ’¬ 0    πŸ“Œ 0
Preview
HandScan criteria versus ACR/EULAR Boolean remission as treatment target in early rheumatoid arthritis: results of a randomized controlled trial AbstractObjectives. The HandScan is a novel method to quickly and objectively quantify RA disease activity using optical spectral transmission in hands and

🚫New RCT highlights what not to do in clinical practice. Using a fancy HandScan to guide therapy was less effective than standard care.

πŸ”The study also revealed high non-adherence highlighting real-world challenges of rigid treat-to-target protocols.

@rheumjnl.bsky.social doi.org/10.1093/rap/...

06.10.2025 12:24 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Preview
How can we keep GPs in the job? New review points to relationships, meaning, and learning New research shows GP retention depends on how services are organised, not just individual resilience. Meaningful work, strong relationships, and learning cultures help GPs stay in post and deliver be...

How do we keep GPs in the job? New research from Sophie Park.

www.phc.ox.ac.uk/news/gp-work...

30.09.2025 16:37 β€” πŸ‘ 39    πŸ” 23    πŸ’¬ 6    πŸ“Œ 4
Preview
Let’s ask the patient: disease prediction based on patients’ symptom descriptions in free text AbstractObjective. This study evaluates the value self-reported free-text symptom descriptions for supporting diagnostic decisions in osteoarthritis (OA),

AI and NLP analysed >8,400 patient-written free-text symptom descriptions.

Clinically relevant patterns helped distinguish #osteoarthritis, #fibromyalgia and immune-mediated rheumatic diseases.

This may reduce misdiagnosis and support earlier triage.

@rheumjnl.bsky.social doi.org/10.1093/rap/...

30.09.2025 17:37 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
10 years on from the landmark stroke thrombectomy trials, where are we now? A qualitative study examining professional views on the implementation of endovascular treatment for ischaemic stroke in Eng... Objective To explore multiprofessional views about system-wide factors influencing (impeding or facilitating) the delivery of stroke mechanical thrombectomy (MT) services and/or improvements to this p...

Why aren't we doing cutting edge emergency stroke care (thrombectomy)? We asked healthcare professionals. bmjopen.bmj.com/content/15/9...
(part of #NIHR Optimist/SPEEDY trial)
@oxprimarycare.bsky.social
@exeter.ac.uk
@newcastleuni.bsky.social
@ouhospitals.bsky.social
@rdm.ox.ac.uk

25.09.2025 13:19 β€” πŸ‘ 11    πŸ” 6    πŸ’¬ 0    πŸ“Œ 1

Ooh - my new paper on case study is out! What’s a case study, how do you do one, how do you spot a good one? Includes niche examples like the REF impact case study (though it’s mainly about research case studies).

24.09.2025 17:33 β€” πŸ‘ 104    πŸ” 41    πŸ’¬ 2    πŸ“Œ 4

I took paracetamol in both my pregnancies for minor joint troubles. I had a better pregnancy experience because I wasn't in pain. Neither of my kids is autistic. The high-quality studies and reviews confirm there is NO evidence that paracetamol taken by the mother causes autism in the child. πŸ§ͺ

22.09.2025 07:40 β€” πŸ‘ 645    πŸ” 133    πŸ’¬ 27    πŸ“Œ 2
Preview
Trump attacks Tylenol as officials unveil highly contentious conclusions on autism President says acetaminophen – also known as paracetamol - increases risk when taken by pregnant women, assertion contradicted by research

Please know that this is Trump scaremongering.

There is no good scientific evidence linking paracetamol (Tylenol) to autism.

A 2024 Swedish study of 2.4 million births found no relationship whatsoever between exposure to paracetamol in utero & subsequent autism.
www.theguardian.com/us-news/2025...

23.09.2025 06:04 β€” πŸ‘ 665    πŸ” 286    πŸ’¬ 25    πŸ“Œ 9

Session accepted for #BSR26. Glasgow, here I come!

23.09.2025 08:41 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

My rheumatologist used AI to write my clinic letter at my last visit. I was a bit sceptical initially, but was pleasantly surprised by the letter created. #BSR25

29.04.2025 16:28 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

Big advantages of JAK inhibitors for children include...
- effective
- safe
- fast acting
- oral (no injections!)
- no need to take methotrexate at the same time

Thanks to Prof Ramanan for sharing the results of so many trials so clearly. #BSR25

29.04.2025 08:46 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0

Think patients cannot inform evidence synthesis? Think again

Young people with musculoskeletal fatigue co-designed a scoping review, shaping search terms, flagging gaps and making findings relevant

Excellent talk by Katie Fishpool at #BSR25 @chcr-uwe.bsky.social

Abstract: doi.org/10.1093/rheu...

29.04.2025 16:13 β€” πŸ‘ 8    πŸ” 1    πŸ’¬ 0    πŸ“Œ 2

Hi All! I've moved over from X (Twitter) to see what life is like on on the other side.

20.11.2024 10:21 β€” πŸ‘ 10    πŸ” 0    πŸ’¬ 4    πŸ“Œ 0

@rheumpatient is following 13 prominent accounts