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Juvenile Arthritis Research

@jarproject.bsky.social

Juvenile Arthritis Research UK charity no. 1091620 The only UK-wide charity focusing solely on Juvenile Idiopathic Arthritis, bringing hope to those with #JIA. This account is not monitored. Please contact us via website. Visit www.jarproject.org

115 Followers  |  99 Following  |  335 Posts  |  Joined: 16.12.2024  |  2.005

Latest posts by jarproject.bsky.social on Bluesky

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We are really excited to let you know that our #JAMJAR website and JAM JAR Toolkit for 2026 are now available!

Find it at www.jarproject.org/jamjar for everything you need to know to help raise awareness for #JuvenileArthritis Month in March.

#JIA #JuvenileIdiopathicArthritis #ThinkJIA

07.02.2026 09:00 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Thank you to everyone who attended our latest ParentZoom session on Wednesday. It was great to see our regulars as well as welcoming some new faces.
We run these much-needed sessions quarterly. Please keep an eye out on social media and our e-news to hear about future sessions.
#ThinkJIA #JIA

06.02.2026 16:03 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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EVENT NOW FULL.
Thank you to everyone who has booked onto our next in-person event happening in March. Bookings for the event filled up in record time. If you would like to hear if any places become available, please email katherine@jarproject.org and ask to be added to the waiting list.

04.02.2026 14:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Here is two year old Betty receiving her Little Box of Hope support pack from Juvenile Arthritis Research. Her mum told us that "she loves the finger puppet and the info has been really helpful. I had never heard of JIA before and it’s all been a lot to take in. Thank you."
#JIA #JuvenileArthritis

04.02.2026 09:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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We want to say a very big well done to Sam who has completed another walk in her 50 before 50 challenge. Sam will be turning 50 this year and to mark the occasion whilst raising awareness and funds, she decided to complete 5 hikes of 10 miles each totalling 50 miles www.givewheel.com/fundraising/...

03.02.2026 09:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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If you're in Kent (or can get to Kent) and have a child with #JIA, please do sign up to join us for an Indoor Climbing session at Clip n Climb in Tonbridge on Sunday 8th March 2026. Full details and to sign up, please see www.jarproject.org/event

02.02.2026 09:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Reminder: last chance to sign up to our next ParentZoom session for parents/carers of those with #JIA.

Full details and sign-up form is at www.jarproject.org/join

Sign up will close soon to allow our volunteers to prepare for the session.

01.02.2026 10:30 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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πŸš€ Join us on this upcoming EULAR webinar with HPR and gain practical insight into how evidence-based patient education and self-management in #RMDs has evolved.

πŸ–₯️ 4 March 2026, 17:00 - 18:00 CET

Register here πŸ‘‰ https://pulse.ly/gkil2hcitz

#Rheumatology #PatientCare #ClinicalPractice

01.02.2026 09:59 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Anne-Lise is wearing her awesome "My daughter is a JIA warrior" t-shirt from the JAR shop as she continues her epic fundraising. It is free UK P&P in the JAR shop this weekend.

Shop now at www.jarproject.org/shop

Free UK P&P ends at midnight Sunday.

#JIA #JuvenileArthritis #ThinkJIA

31.01.2026 14:09 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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We have an absolute wealth of resources to support children and young people in #education. Our #School Toolkit can be downloaded at www.jarproject.org/schools Education settings in the UK can also request their own paper copy. #JIA #JuvenileArthritis #ThinkJIA #Schools #Teachers #Teaching #poetry

30.01.2026 09:16 β€” πŸ‘ 0    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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We're ALL getting ready for #Juvenile #Arthritis Month in March including the JAR #cat who seems to be telling us that he can't wait to raise awareness of #JIA throughout the whole month. More information about #JAMJAR (Juvenile Arthritis Month by Juvenile Arthritis Research) coming soon!
#ThinkJIA

29.01.2026 18:28 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Don't forget that our next ParentZoom session for parents and carers of those with JIA is happening in a weeks' time:

When: Wednesday 4th February
Time: 7pm
Where: Online
Sign up at www.jarproject.org/join

Adults with #JIA are also welcome to join the session too!

#ThinkJIA

28.01.2026 09:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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"The reason we decided to raise money for Juvenile Arthritis Research is to help raise awareness about this condition."
You can read the full story of Team Tobyn's incredible fundraising throughout the year in our latest news post: www.jarproject.org/news/2026/te...

27.01.2026 09:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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This month, Juvenile Arthritis Research turned 8 years old. When we started back in 2018, we had no idea what the future held and just how much need there was for a #JIA charity who was able to make real impact and bring about change.

Read more on IG/FB.

#ThinkJIA #SmallCharityBigDifference

26.01.2026 09:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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You're invited to a special webinar!
Hosted by our Joint Voices young people group, we're welcoming racing driver and JAR ambassador Daniella Sutton.
Date: Tuesday 10 March 2026
Start: 7pm UK time
Where: Sign-up now at www.jarproject.org/webinar to receive the Zoom link shortly before the webinar

25.01.2026 09:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Back for 2026!

#JAMJAR (Juvenile Arthritis Month by Juvenile Arthritis Research) is happening again this March.

We are so excited to be raising awareness of #JIA throughout the whole month of March, including a very special webinar with Daniella Sutton. Sign-up now at www.jarproject.org/webinar

24.01.2026 14:27 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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How fabulous is this photo of our mascot Kipo and all the little finger puppet versions of Kipo! You can find the Kipo story and lots of fun Kipo-themed activities on Kipo's Corner on our website at www.jarproject.org/kipo
#ThinkJIA #JIA #ChildrenGetArthritisToo #JuvenileArthritis #JIAresearch #kipo

23.01.2026 14:21 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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It was a delight to have been invited to present at the B-active conference in Slovenia last week. The topic is one that we are incredibly passionate about - "Patient engagement in medical research".

Find out more and get in touch at www.jarproject.org/vip
#JIA #JIAResearch #JIApatients #Research

22.01.2026 09:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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"She's really a wonderful advocate and such an inspiring role model. You can see how she inspires others and her openness to talk about her struggles makes her captivating to watch and listen to."

Read more on our news page at www.jarproject.org/news/2026/da...

#F4 #f1 #motorRacing #Formula4 #FIA

21.01.2026 09:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Here's two year old Theo receiving his Little Box of Hope support pack from Juvenile Arthritis Research.

These packs are sent free of charge (thanks to the kindness of our supporters) to families in the UK who have a child with #JIA

More at www.jarproject.org/hope
#ThinkJIA

16.01.2026 09:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Thank you for an incredible 2025! And happy new year looking ahead to 2026.
YouTube video by Juvenile Arthritis Research Thank you for an incredible 2025! And happy new year looking ahead to 2026.

We might not be the best at filming videos (hello strange background noise and a "short" video that ran for 11 minutes!) but our volunteers are being amazing at making a difference in the world of #JIA.

The full video can also be found on our YouTube channel at youtu.be/tqA-2vLo-YM

#ThinkJIA

14.01.2026 16:55 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Join us for our first event of 2026!

Our next ParentZoom session for parents and carers of those with #JIA is coming up next month.

When: Wednesday 4th February
Time: 7pm
Where: Online
Sign up at www.jarproject.org/join

#ThinkJIA #ArthritisAwareness #PaediatricRheumatology #arthritis

13.01.2026 09:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Help us better understand whether women with arthritis should continue or stop taking biologic medication throughout pregnancy. Together let’s find the answers.
Find more information including how you can be involved:
➑️ www.npeu.ox.ac.uk/mama/partici...
#theMAMAstudy @themamastudy.bsky.social

09.01.2026 09:01 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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We'd like to wish EsmΓ© all the very best of luck as she embarks on 100km of walking in 2026 to support Juvenile Arthritis Research.

Read more at www.justgiving.com/page/esme-wa...

If you've been inspired to start your own #fundraising journey, request free pack at www.jarproject.org/fundraising

08.01.2026 09:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Here is 2-year-old Harper receiving her Little Box of Hope pack from #JuvenileArthritisResearch. Families describe our Little Box of Hope packs as a godsend.

These packs are available to those in the UK with a diagnosis of JIA. More at www.jarproject.org/hope
#ThinkJIA #JIA #arthritis #JA

07.01.2026 14:49 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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2026 is here and we wanted to wish all our followers and supporters the happiest new year. May this year be filled with hope, happiness, good health and the best of times.

06.01.2026 09:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Beckie and Dean are being interviewed on BBC Radio Tees about their incredible fundraising for Juvenile Arthritis Research.

You can listen to the interview at 11.20am today at www.bbc.co.uk/programmes/m...

05.01.2026 11:14 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Wishing you and your loved ones a wonderful Christmas.

Thank you to everyone who has been part of our journey this year - you matter more than you realise and have enabled us to be here to support those affected by #JIA when they most need it.

Season's greetings from all at Team JAR

#ThinkJIA

24.12.2025 09:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Today, we want to say the biggest thank you to Alice and her family who raised an incredible Β£400 by selling these gorgeous knitted chocolate orange holders at a craft fair.

If you've been inspired by Alice to start your own fundraising journey, start here: www.jarproject.org/fundraising

23.12.2025 09:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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She did it!

A huge well done to 7-year-old Martha and her family and friends who ran the 5K Santa run in #Southsea at the weekend. This is an amazing achievement for Martha who was only diagnosed with #JIA earlier this year.

Start your fundraising journey at www.jarproject.org/fundraising

22.12.2025 12:25 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

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