YouTube video by European Partnership for Personalised Medicine
PARADISE - PersonAlisation of RelApse risk in autoimmune DISEase
Curious about what we do at PARADISE and what our labs, clinics, and offices look like?
Watch the video and hear directly from our young researchers. ๐ฌ Theyโll give you an inside look at our work and daily life at PARADISE! ๐ก๐ฅ www.youtube.com/watch?v=1LMb...
17.10.2025 07:56 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
PARADISE once again took part in the European Researchersโ Night in Dublin this year!
It was a fantastic experience and we truly enjoyed connecting with so many curious minds and sharing our work! ๐โจ
10.10.2025 14:22 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
Paradise
Visit the post for more.
๐ Visit our website to learn more about the PARADISE consortium, explore engaging video content, useful resources, and much more:
๐ paradise-project.eu
03.10.2025 11:06 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
AI Survey โ Vasculitis Ireland Awareness (VIA)
Are you or someone you know living with vasculitis?
Weโre looking for input on the use of AI in healthcare from people with lived experience.
๐ก Help ensure patient voices are heard in digital health innovation.
๐ฉ Take the 10-minute survey here:
www.vasculitis-ia.org/ai-survey
03.10.2025 11:04 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐ฌ In laboratories, clinics, and offices, PARADISE members are working tirelessly behind the scenes.
Many of them are early-career researchers, and this summer, they took some time to capture what theyโre working on.
Hereโs just a small sneak peek for now... with more coming soon!
12.09.2025 18:07 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
AI Survey โ Vasculitis Ireland Awareness (VIA)
๐ข Living with vasculitis?
Weโre conducting a short survey to better understand patient perspectives on artificial intelligence (AI) in healthcare.
Your voice can help guide the responsible use of AI in clinical care.
โ
Takes ~10 minutes
๐ Participate here: www.vasculitis-ia.org/ai-survey
05.09.2025 13:25 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
YouTube video by PARADISE
German 10 things to know about Vasculitis
Have you seen our informative and educational video about vasculitis yet?
If not, now is the perfect time!
๐ก The video "10 Things to Know About Vasculitis" is available in 9 different languages on our official YouTube channel!
๐ฌ Donโt miss it โ watch and share: www.youtube.com/watch?v=VfZ7...
28.08.2025 09:59 โ ๐ 0 ๐ 1 ๐ฌ 0 ๐ 0
๐ฌ In laboratories, clinics, and offices, PARADISE members are working tirelessly.
Many of them are early-career researchers, and this summer, they took some time to capture what theyโre working on.
Hereโs just a small sneak peek for now... with more coming soon!
21.08.2025 17:06 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
Exciting new - hot off the press!!!
PARADISE patient advocacy partner Vasculitis Ireland Awareness are finalists on Irish Medical Times Irish Healthcare Awards with the AI Vasculitis companion Dwayne, a generative AI-powered chatbot for patient support & education in rare diseases!
21.08.2025 16:57 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0
Do you have #vasculitis?
Weโre inviting you to share your thoughts on the use of artificial intelligence (AI) in healthcare.
๐ง Your insights matter! Help shape the future of AI in patient care.
๐ It only takes 10 minutes
๐ฉ Take the survey here: www.vasculitis-ia.org/ai-survey
14.08.2025 09:28 โ ๐ 1 ๐ 1 ๐ฌ 0 ๐ 0
๐ Transparency is a key component of the PARADISE project โ thatโs why weโre also sharing a milestone in this area with you today.
05.08.2025 14:49 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
YouTube video by PARADISE
French 10 things to know about Vasculitis
Have you seen our informative and educational video about vasculitis yet?
If not, now is the perfect time!
๐ก The video "10 Things to Know About Vasculitis" is available in 9 different languages on our official YouTube channel!
๐ฌ Donโt miss it โ watch and share: www.youtube.com/watch?v=bJTg...
05.08.2025 10:58 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐ This week, weโre back with another insight into what weโre working on in the PARADISE project.
Stay tuned as we continue to share key moments, milestones, and behind-the-scenes progress from our journey!
31.07.2025 07:14 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐ Feel free to share with anyone who might benefit from this resource!
29.07.2025 07:40 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
YouTube video by PARADISE
English 10 things to know about Vasculitis
These translations are part of our effort to make reliable, patient-informed education on vasculitis accessible to more people across Europe.
๐บ Find all versions on the official PARADISE Project YouTube channel: www.youtube.com/watch?v=wXiZ...
29.07.2025 07:40 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0
YouTube video by PARADISE
English 10 things to know about Vasculitis
๐ฝ๏ธ Did you know that our PPI group's video "10 Things to Know About Vasculitis" is available in multiple languages on our official YouTube channel?
You can now watch the video in:
French | Spanish | Greek | Swedish | Croatian | Italian |German | Dutch
29.07.2025 07:40 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0
๐ข Today, we're sharing another exciting insight from the PARADISE project!
Curious to learn more about what we do, who's involved, and how we're making an impact?
๐ Visit our official website for more information: paradise-project.eu
23.07.2025 13:58 โ ๐ 1 ๐ 1 ๐ฌ 0 ๐ 0
YouTube video by PARADISE
English 10 things to know about Vasculitis
๐ฅ 10 Things You Need to Know About Vasculitis Do you know what vasculitis is?
Weโre especially proud of the videos created as part of the PARADISE project by our PPI group, which aim to educate the wider public about this autoimmune disease.
๐ Watch, and share to raise awareness youtu.be/wXiZUTl0v-g
22.07.2025 08:26 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
Frontiers | Visible neural networks for multi-omics integration: a critical review
BackgroundBiomarker discovery and drug response prediction are central to personalized medicine, driving demand for predictive models that also offer biologi...
What is a "Visible Neural Network"? It's a new kind of deep learning model for multi-omics, where prior knowledge and interpretability are baked into the architecture.
๐ We reviewed dozens of models, datasets & applications, and call for better tools/benchmarks:
www.frontiersin.org/journals/art...
21.07.2025 12:36 โ ๐ 4 ๐ 1 ๐ฌ 0 ๐ 0
๐ As we wrap up this working week, weโre proud to share another important milestone in the PARADISE project.
17.07.2025 10:01 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐ข As promised, this week weโre back with another PARADISE milestone!
๐ Want to know more about the PARADISE project?
What have we achieved so far and whatโs coming next?
Over the next few weeks, weโll be sharing more insights and updates right here on our social media channels, so stay tuned! ๐
10.07.2025 07:29 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
She presented the findings of the Digit-HeaL research team and highlighted @PARADISE as a great example in practice, emphasizing the crucial role of PPI at every stage of the project.
03.07.2025 12:12 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
On June 17th and 18th, the University of Salzburg hosted the conference Dignity in the Digital Age, where our Anamaria Maleลกeviฤ gave a lecture titled Placing Human Dignity at the Core of Digital Health(care).
03.07.2025 12:12 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0
Today, weโre excited to share a key milestone: weโve completed the quality check, verification of completeness, and harmonisation of data and samples from the Rare Kidney Disease biobank in Ireland and the @idibell.bsky.social biobank in Spain.
26.06.2025 11:14 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
๐ Want to know more about the #PARADISEproject?
What have we achieved so far and whatโs coming next?
Over the next few weeks, weโll be sharing more insights and updates right here on our social media channels, so stay tuned! ๐
26.06.2025 11:14 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0
๐ Want to know more about the PARADISE project?
What have we achieved so far and whatโs coming next?
Over the next few weeks, weโll be sharing more insights and updates right here on our social media channels โ so stay tuned! ๐
12.06.2025 06:42 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
Weโre so happy and proud to have such a fantastic group with us, not just this month but throughout the whole project ๐ซ
They speak up about what matters to patients and bring such an important perspective to everything we do.
#VasculitisAwarenessMonth
02.06.2025 06:56 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
YouTube video by PARADISE
PPI video for the Vasculitis Awareness Month 2025
This May, we dedicated our time to raising awareness about vasculitis โ and what better way to wrap it up than with a video featuring our incredible patient and public representatives ๐ฅโจ
Theyโre not just part of the project โ theyโre the heart of PARADISE.
youtube.com/shorts/d4fo8...
02.06.2025 06:56 โ ๐ 2 ๐ 1 ๐ฌ 1 ๐ 0
Living with vasculitis. Patient advocate, passionate about the patient voice.
I love animals, books, nature, good food, traveling and baking!
The UKIVAS Registry is a collaboration between patients, clinicians and scientists to create a comprehensive database of vasculitis patients in the UK and Ireland to enhance the evidence. Further information: https://ukivas.ndorms.ox.ac.uk
Empowering care, strengthening Resilience: transforming elderly care through leadership and innovation. Horizon Europe Project funded by HaDEA
To improve the accessibility of the ERNs for patients across Europe, the EU has funded a pioneering 3-year project involving all member states (MS) plus Norway and Ukraine, the Joint Action on Integration of ERNs into National Healthcare Systems (โJARDINโ)
#Hospital, #MD, #Rheumatology, UK based.
A chemistry PhD & pharma bg, came to medicine late
Scrolling is a distraction from taking action. Pick some concrete way to help & get to it.
@twofishnocat.bsky.social for the likes/hobbies stuff
Clinical Research Fellow and Registrar in Rheumatology & Internal Medicine at Kingโs College London. Interested in social determinants of health, comorbidities and inflammatory arthritis.
Academic Rheumatologist UWE Bristol
Patient reported outcomes and impact of rare rheumatic disease on health- related quality of life
ANCA associated vasculitis Giant cell arteritis
Professor of Internal Medicine and Clinical Immunology France Tours University
Trialist
Founder and Coordinator of the European IgA Vasculitis Study Group
Head of the department of International Relations, Tours Medical School
Empowering nephrology professionals with the latest NKF updates and resources. ๐งก Together, weโre making strides for better kidney health.
โญ SCM26 registration NOW OPEN! Early Bird discounts availableโญ
REGISTER TODAY: https://www.kidney.org/spring-clinical
#NephMadness 2025 is live on the #AJKDBlog: https://bit.ly/WelcomeNM25 | Organized by @ajkd.bsky.social
#Nephrology Division, University of California, San Francisco | At the forefront of research, education, and patient care in #Kidneydisease
Improving the lives of people with kidney disease throughout the UK by offering support and advice to them, their families and kidney units. Please visit our website: www.kidneycareuk.org
Leader in nephrology patient care, education, and research. Located in the greatest city in the world
Official Bluesky Account of the Section of Nephrology at Yale Internal Medicine
https://medicine.yale.edu/internal-medicine/nephrol/
Nephrologist and transplant Physician ๐ซถ ๐ซ|Faculty ๐ฎ๐ณ
๐Nerd |FASN |๐ #ISNGKHA Fellow and Mentor
โ๏ธAcademics|Clinics|Research
& #NephroNuggets
Tweets: own views
Filiรจre de santรฉ nationale des maladies auto-immunes et auto-inflammatoires rares