Please consider reading my latest (and brief) article <3
open.substack.com/pub/homeboun...
@hannahjoy1234.bsky.social
Eclectic thoughts on Life, Disability & Christianity โค๏ธ INFJ ๐ต๐ญ TCK ๐บ๐ฒ ME/CFS ๐ด Married to "Mr Nomad" ๐ท Artist ๐จ Fluent in Whale ๐ณ
Please consider reading my latest (and brief) article <3
open.substack.com/pub/homeboun...
I had the most wonderful flight home from Denver. I met the nicest young man who sat next to me. He offered to put my bag in the overhead compartment and helped me with my tray. He was always polite, saying "yes maโam" or "no maโam." Anyone would be proud to have him as a son or grandsonโso polite. People walking by were saying congratulations, great job, or even taking pictures. I turned and asked him, โWho am I sitting next to?โ I looked at his Jaguar pants, smiled, and asked, โAre you an athlete?โ He smiled and said, โIโm Travis. Yes, I was drafted by the Jags.โ I already told my sons I want his jersey. Heโs so humble and down-to-earthโI would have never guessed he was a professional athlete. JACKSONVILLE JAGS, you did good! I will be buying tickets. United Airlines, thank you for my seat assignment!
This is too wholesome
11.05.2025 16:48 โ ๐ 18823 ๐ 2468 ๐ฌ 284 ๐ 264Question for chronic illness/pain friends:
I'm waking up in pretty significant pain! Esp. neck and shoulders.
What are your favorite pain relief tips and resources?
#pwME
a spectacular crescent of golden-brown wrinkles is laying atop a soft, lime green blanket. each of the precious rolls from one end to the other no doubt came from an elaborate and precise lamination process and not just a casual plop. some might see what they believe is a shar pei puppy, but that canโt be it.
We only rate dogs. This is a very cuddly croissant. We understand the confusion between puppies and pastries, but please only send dogs. Thank you... 12/10
11.03.2025 19:10 โ ๐ 16686 ๐ 1202 ๐ฌ 364 ๐ 79Food sensitivity test results were helpful, though didn't show as much improvement as hoped. It's taken awhile to process this news and come up with a new plan. ๐ฅฒ๐๐ป๐ซ
CW: IBS
Next step: comprehensive stool test, especially since I've been dealing with bad diarrhea almost daily for over a year. ๐ข๐ซ๐๐ป
Picture of me wearing a blue shirt and a red kn95 respirator
Testing out a new mask, for lower risk environments. So far I'm a fan! โค๏ธ
10.03.2025 14:11 โ ๐ 8 ๐ 0 ๐ฌ 0 ๐ 0The unrefreshing sleep part of #MECFS is hitting me particularly hard this week ๐
10.03.2025 14:08 โ ๐ 5 ๐ 0 ๐ฌ 0 ๐ 0๐๐๐ป๐ซ
10.03.2025 14:07 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0When lockdowns started, people said: โthis is what your life is like all the time? I had no idea!โ
They seemed to understand how hard it is to be disabled & housebound. I found support & empathy.
Then they got bored. Wanted their โnormalโ back. Support vanished & disabled people were left behind.
Because every timeline needs a happy bunny on a flower bed ๐
10.03.2025 12:50 โ ๐ 1023 ๐ 126 ๐ฌ 34 ๐ 13"If we were to see immune damage manifesting at a population level, it would look like what weโre seeing today: big waves of common illnesses. Unusual spikes of uncommon illnesses. Course reversal for previously declining and eliminated illnesses. An unexplained, global wave of sickness."
09.03.2025 17:48 โ ๐ 515 ๐ 254 ๐ฌ 20 ๐ 13Wrong again
26.02.2025 16:44 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0That's not true. It seems like you don't care, though, and I accept that ๐คทโโ๏ธ
15.02.2025 23:56 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0Hitler deserved to die, preferably at the hands of an international court.
15.02.2025 23:55 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0My approach to evil dictators is: call them out, don't lie about them, don't wish harm on them, work to bring them to justice, rejoice when they are brought down. AND never lose sight of their value rooted in their humanity.
15.02.2025 23:54 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0How ought we to approach our own privileges?
With honesty, humility, and thankfulness.
With stewardship and generosity.
Measles outbreak worsens in Texas. Please pray, stay informed, and take precautions
15.02.2025 02:28 โ ๐ 4 ๐ 0 ๐ฌ 0 ๐ 0I'm still steadfastly a "the ends don't justify the means" person. Even evil people do not deserve to be murdered.
15.02.2025 02:27 โ ๐ 2 ๐ 0 ๐ฌ 3 ๐ 0Oh, haha! That's great ๐ ๐๐๐ป
13.02.2025 17:08 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0Such good advice. So important to give yourself grace, and expect care from those who wish to be your friends. If they cannot accept that I have limitations, and offer me kindness, they aren't worth the inordinate amount of time and effort it takes me to deeply engage.
13.02.2025 17:00 โ ๐ 3 ๐ 1 ๐ฌ 1 ๐ 0Absolutely! โค๏ธโ๐ป
13.02.2025 17:08 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0This book looks so cool! I wanted to shout it out, for my fellow TCKs, as well as for those who are interested in better understanding and caring for TCKs ๐ฅฒ๐๐๐ป๐บ๏ธ
13.02.2025 16:45 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0When you are chronically ill, my advice is to maintain as many relationships as you can, even if in a limited way. However, do prioritize relationships that are safe, kind, accepting, and characterized by mutual effort. ๐ซ๐๐ป๐ฅฒ๐ #spoonies #community
13.02.2025 16:43 โ ๐ 4 ๐ 0 ๐ฌ 1 ๐ 0I'm looking forward to reading this!
11.02.2025 23:13 โ ๐ 4 ๐ 0 ๐ฌ 1 ๐ 0LOVE this. ๐
11.02.2025 17:23 โ ๐ 5 ๐ 2 ๐ฌ 0 ๐ 0What brings you #JOY these days? (Pics/gifs welcome)
For me: sincere compliments, the sound of rain on a tin roof, fresh coffee, cuddles with my husband, funny YouTube videos or TV shows, going on little outings that include beautiful views & fun snacks, and remembering/imagining peaceful times ๐โฃ๏ธ
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10.02.2025 23:41 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0It's okay to be single and fulfilled on Valentine's Day.
It's okay to be part of a happy couple on Valentine's Day.
It's okay to be at home, three cell phones in front of you, fielding desperate calls from people who want to buy one of the 50 restaurant reservations you made over six months ago.
Gross! That's the behavior of a husband who uses his wife! ๐คฎ
(Sexual arousal is just part of life. It happens. It's not a problem that needs to be "solved".)