@jimmyplowell.bsky.social
Act!!!
07.06.2025 19:55 β π 0 π 0 π¬ 0 π 0Some things are more important than the Stanley Cup. Some. Not many.
05.06.2025 00:41 β π 0 π 0 π¬ 0 π 0As Huntingtonβs Disease Awareness Month winds down, Burlap and I made it to #sybilspicnicβ¦ late as usual but right on time! Weβre here in the States in Lowell, Massachusetts. If youβve got a Sybil, join us , wherever you are.
No awareness campaign has had the reach and longevity as #sybilontour
#crushitlikequint
14.05.2025 01:25 β π 0 π 0 π¬ 0 π 0Join us!!! Do something impulsive!!! Itβs for a great cause!!! A splendid time is guaranteed for all!
03.05.2025 20:18 β π 0 π 0 π¬ 0 π 0Ellis Paul just posted this gem. Topical tunes needs up to put wind in their sails! please share!!! www.facebook.com/ellispaulmus...
21.04.2025 05:07 β π 0 π 0 π¬ 0 π 0Thanks to Larry Luxner and Rare Disease Advisor for this profile. Lots of stuff I donβt mention often. Thanks, again, Larry!!! www.rarediseaseadvisor.com/features/jim...
19.04.2025 05:27 β π 0 π 0 π¬ 0 π 0#HDGratitudeDay
Factor-H.org
#HDGratitudeDay
Factor-H.org
Barranquitas, Venezuela has the worldβs highest prevalence of HD. Tonight they had a candlelight vigil honoring family lost to HD, leading to HD Gratitude Day this Sunday recognizing the partnership of families and scientists in the quest for a cure. Join us! #HDGratitudeDay
20.03.2025 03:33 β π 3 π 1 π¬ 0 π 0#HDGratitudeDay
20.03.2025 01:24 β π 0 π 0 π¬ 0 π 0GREAT MOMENTS IN HD RESEARCH
1996: First transgender HD mouse model.
Truth.
18.02.2025 19:58 β π 1 π 0 π¬ 0 π 0Save the date!!! Join us as we mark, recognize an appreciate the partnership between scientists and families living with Huntingtonβs. Itβs brought us this far and is the foundation on which cures, treatments, all is built! A social media event. #hdgtstitudeday More info? Let me know!
09.02.2025 16:51 β π 3 π 0 π¬ 0 π 0Holidays are stressful. Those living with cognitive challenges may become overwhelmed, to avoid or escape overstimulation they make make an βIrish Exit!β Hereβs a door hanger with a brief explanation and 4 limericks to better understand. Want free copies? Contact me!
02.12.2024 00:44 β π 0 π 0 π¬ 0 π 0My first post here!
02.12.2024 00:31 β π 1 π 0 π¬ 0 π 0