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Vivli

@vivli.bsky.social

We are an independent non-profit whose mission is to advance human health through global clinical research data sharing. Visit us at vivli.org for more information.

80 Followers  |  183 Following  |  291 Posts  |  Joined: 12.09.2023  |  1.6162

Latest posts by vivli.bsky.social on Bluesky

A graphic saying: "Love Data Week | February 9-13, 2026"

A graphic saying: "Love Data Week | February 9-13, 2026"

Where’s the data? This #LoveDataWeek, you can unlock your clinical research data’s full potential by sharing it! Our Vivli Study Submission Guide will take you through the process step by step:

vivli.org/wp-content/u...

#LoveData26 #DataSharing

09.02.2026 17:47 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
About Vivli
YouTube video by Vivli Org About Vivli

Thinking about your next research project? Find out how accessing Vivli's clinical trial data repository can help:

youtu.be/NVqK8VCnk9Y

Have you used Vivli's data repository on a recent project? Tell us about your experience!

06.02.2026 20:20 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Graphic reading: "Vivli 2025 Progress Report | Making a Global Impact"

Graphic reading: "Vivli 2025 Progress Report | Making a Global Impact"

Vivli's Annual Report for 2025 is now available! Learn more about our key achievements from the past year, and what's happening in 2026: vivli.org/annualreport...

05.02.2026 20:30 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Graphic showing the cover of a Vivli resource titled "Elements of an NIH Data Management and Sharing Planβ€”Vivli Repository"

Graphic showing the cover of a Vivli resource titled "Elements of an NIH Data Management and Sharing Planβ€”Vivli Repository"

Are you preparing a Data Management and Sharing Plan as part of your grant application? Vivli has a guide to help you understand and complete each step! vivli.org/wp-content/u...

04.02.2026 18:08 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
A graphic showing information and dates for the 3-part "Streamlining Data Sharing" webinar series

A graphic showing information and dates for the 3-part "Streamlining Data Sharing" webinar series

We're thrilled to collaborate with our NIH Generalist Repository Ecosystem Initiative (GREI) colleagues on a free, 3-part webinar series showcasing tools & examples that make it easier to plan, share, & submit data under the NIH Data Management & Sharing Policy. Register at bit.ly/GREIWebinars2026.

03.02.2026 16:43 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Graphic saying: "Save the Date! Love Data Week February 9-13, 2026"

Graphic saying: "Save the Date! Love Data Week February 9-13, 2026"

Save the date! Love Data Week is February 9-13, 2026. Sign up for email updates at myumi.ch/ICPSRLoveDat.... #LoveData26

02.02.2026 21:27 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
A graphic showing the four steps to submit data to Vivil: 1. Create an account on Vivli 2. Provide information about your study 3. Sign the Vivli Data Contribution Agreement 4. Upload anonymized data

A graphic showing the four steps to submit data to Vivil: 1. Create an account on Vivli 2. Provide information about your study 3. Sign the Vivli Data Contribution Agreement 4. Upload anonymized data

Are you ready to unlock your clinical research data’s full potential? Share it with the research community! Our Vivli Study Submission Guide will take you through the process step by step:
vivli.org/Study-Submis...

30.01.2026 19:42 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Today's CTT Tip of the Day is about value created by Clinical Trial Transparency and the sharing of clinical data by sponsors in support of secondary research Vivli. One key metric to help captur... Today's CTT Tip of the Day is about value created by Clinical Trial Transparency and the sharing of clinical data by sponsors in support of secondary research Vivli. One key metric to help capture th...

We're delighted to be part of today's Clinical Trial Transparency Tip of the Day - head over to the poll and make your best guess!

www.linkedin.com/posts/holtzo...

29.01.2026 18:05 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
A graphic illustration showing how researchers can get CRedIT on their ORCID profiles for using Vivli as part of their research project

A graphic illustration showing how researchers can get CRedIT on their ORCID profiles for using Vivli as part of their research project

Researcher teams who submit and store their clinical research data on the Vivli #datarepository can now receive CRedIT on their ORCID profiles. Find out more information about how #DataSharing can contribute to your CRedIT:
vivli.org/vivli-update...

28.01.2026 20:27 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Data Challenge – Lessons Learned from AMR Data Challenges
YouTube video by Vivli Org Data Challenge – Lessons Learned from AMR Data Challenges

Interested in learning more about how the Vivli #AMR Surveillance Data Challenge works? Watch the video of this session from our recent Annual Meeting to find out how the Challenge started and where it's going: youtu.be/H9wF1mgWjJQ?...

27.01.2026 17:12 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Welcome! You are invited to join a webinar: Streamlining Data Sharing: Practical Tools and Researcher Stories from the NIH GREI. After registering, you will receive a confirmation email about joining ... Join GREI for a three-part series showcasing tools and examples that make it easier to plan, share, and submit data under the NIH Data Management and Sharing Policy. Register for the specific session(...

Feeling overwhelmed by data repositories? Let GREI help - Webinar this Wednesday, January 28, at 1 PM ET!

Get more information and register at: cos-io.zoom.us/webinar/regi...

26.01.2026 20:43 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Are you wondering how your research could benefit from #DataSharing or #DataReuse? Check out our Case Studies page and learn about some of the innovative ways researchers are using the Vivli data repository to accelerate their projects: vivli.org/case-studies/

23.01.2026 19:07 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Vivli is hiring! Have a look at our current listings and come join our mission-focused remote team working to share clinical research data to advance human health: vivli.org/news/news/

22.01.2026 15:34 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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We're thrilled to collaborate with our NIH Generalist Repository Ecosystem Initiative (GREI) colleagues on a free, 3-part webinar series showcasing tools & examples that make it easier to plan, share, & submit data under the NIH Data Management & Sharing Policy. Register at bit.ly/GREIWebinars2026.

21.01.2026 17:41 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Vivli Researcher Spotlight: Dr. Byeongzu Ghang on investigating whether urate-lowering therapy (ULT) is effective in delaying the progression of chronic kidney disease (CKD) in patients with gout - Vi... Byeongzu Ghang is an Associate Professor and Rheumatology Specialist in the Jeju National University School of Medicine, Jeju, Korea. His primary research and clinical focusΒ ...

Vivli Researcher Spotlight: πŸ”¦ Check out our newest update, with researcher Byeongzu Ghang on using Vivli to help answer key questions in managing chronic kidney disease (CKD) in patients with gout: vivli.org/vivli-resear...

20.01.2026 18:58 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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For Dr. Youssef Zeidan, data sharing and reuse via the Vivli platform has been an essential mentoring tool that has helped launch his medical students’ careers. Read more about his work in our newest Vivli case study: vivli.org/case-studies/

16.01.2026 20:35 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Vivli's Annual Report for 2025 is now available! We're thrilled to share our key achievements from the past year, and what we're looking forward to in 2026: vivli.org/annualreport...

15.01.2026 17:35 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Vivli's global data-sharing and analytics platform is enabling access to research data on a wide range of conditions. Learn more about how we're accelerating the progress of research through #DataSharing and #DataReuse:

14.01.2026 20:13 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Vivli is delighted to be part of this important initiative led by PHUSE:

advance.hub.phuse.global/wiki/spaces/...

13.01.2026 18:56 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Vivli Data Request Form Training Video
YouTube video by Vivli Org Vivli Data Request Form Training Video

Thinking about requesting to reuse data from Vivli? Get tips and tricks on how to complete your Data Request Form: youtu.be/Kt_ECYv2Mi8

Have you got tips for preparing a data request form? Let us know!

#DataSharing #DataReuse

12.01.2026 16:43 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
LinkedIn This link will take you to a page that’s not on LinkedIn

Vivli is hiring a Marketing and Communications Lead. Come join our mission-focused remote team working to share clinical research data to advance human health: vivli.org/vivli-is-hir...

09.01.2026 17:19 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Did you know that the Vivli repository now has 8,000+ trials with data from nearly 60 contributing members? Explore today how #DataSharing can accelerate your next research project: search.vivli.org

#DataReuse #DataRepository

08.01.2026 21:08 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Are you looking to get your data organized and ready for sharing? GREI has the resources to help you get there - register today for the 2026 webinar series on Streamlining #DataSharing:

cos-io.zoom.us/webinar/regi...

07.01.2026 16:12 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Vivli Researcher Spotlight:Β Improving mentorship and clinical practice in breast cancer care with Vivli - Vivli Dr. Youssef Zeidan is a radiation oncologist, using Vivli to help answer key questions in radiation therapy research that are relevant to breast cancer patients.

Vivli Researcher Spotlight: πŸ”¦ Check out our newest update, with researcher Youssef Zeidan on using Vivli to help answer key questions in radiation therapy research that are relevant to #breastcancer patients: vivli.org/vivli-resear...

#DataSharing #DataReuse

06.01.2026 17:49 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Training Videos - YouTube

Wondering how the Vivli platform works for #DataSharing or #DataReuse? Browse the Training playlist on our YouTube channel and learn how it can help accelerate your research:

youtube.com/playlist?lis...

05.01.2026 20:21 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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All of us at Vivli wish you a peaceful and healthy holiday season, and good things to come in 2026!

22.12.2025 18:32 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Tafamidis treatment and neuropsychiatric dysfunction in patients with cardiac aTTR: a post-hoc analysis of the ATTRACT trial Published in Amyloid: The Journal of Protein Folding Disorders (Ahead of Print, 2025)

Congratulations to Joel Skaistis of Corewell Health on your public disclosure, β€œTafamidis treatment and neuropsychiatric dysfunction in patients with cardiac aTTR: a post-hoc analysis of the ATTRACT trial.” We’re proud to facilitate your access to data. #ClinicalResearch

12.12.2025 19:00 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Articles from collection Vivli AMR Open Data Reuse Data Challenge - Wellcome Open Research Read the latest peer reviewed Vivli AMR Open Data Reuse Data Challenge articles and more on Wellcome Open Research

Antimicrobial Resistance is a global threat to #PublicHealth. With the Vivli AMR Register, researchers worldwide are uncovering new insights using AMR surveillance data. Explore our collection of articles on Wellcome Open Research. #AMR #HealthResearch

12.12.2025 16:00 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Congrats to Gus Slotman on your public disclosure, β€œIncreased Mortality Among Study Drug Non-Responders Erases Beneficial Treatment Effects & Causes Randomized Clinical Trials Of New Molecules For Septic Shock & Severe COVID-19 To Fail.” We’re proud to facilitate your access to data. buff.ly/uuNf2zp

11.12.2025 19:00 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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We're thrilled to collaborate with our NIH Generalist Repository Ecosystem Initiative (GREI) colleagues on a free, 3-part webinar series showcasing tools & examples that make it easier to plan, share, & submit data under the NIH Data Management & Sharing Policy. Register at bit.ly/GREIWebinars2026.

11.12.2025 16:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

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