Thank you for all of your hard work and being a voice for the Long COVID community. As a patient, I am proud to be on the admin team of LONG COVID CANADA COLLABORATIVE. We do our best to advocate for the community. Having you champion the cause spreads our message! Thank you!
31.10.2025 21:36 β π 10 π 1 π¬ 0 π 0
Ms. Deacon's '15 minutes of fame' is over. What she is sharing is unscientific and dangerous rhetoric that can be extremely harmful to the Long COVID, ME/CFS community. As a Long COVID, ME patient I find it insulting and discouraging that the CBC keeps focusing on Ms. Deacon's story!
29.10.2025 14:06 β π 2 π 1 π¬ 1 π 0
Thank you
29.10.2025 02:03 β π 0 π 0 π¬ 0 π 0
Do you have a link for this?
28.10.2025 16:49 β π 0 π 0 π¬ 1 π 0
Sign the Petition
Demand Federal Action on Biomedical Care for Children Living with Long COVID
How do we create a culture clinicians feel safe recognizing complex symptoms - and believe their young Long COVID patients instead of dismissing them?
It's time to act.
Sign & share the CLCN Petition calling for safe evidence -based biomedical care: chng.it/7ZSzLXnp5n
06.10.2025 14:50 β π 5 π 4 π¬ 0 π 1
Hi....do you have the link for this study?
18.09.2025 14:08 β π 0 π 0 π¬ 0 π 0
This link doesn't work?π
14.09.2025 19:10 β π 0 π 0 π¬ 0 π 0
Thank you....have a great day!
23.08.2025 15:10 β π 1 π 0 π¬ 0 π 0
Hi Tom.....would you have the link to the article that this graphic is from?
23.08.2025 15:09 β π 0 π 0 π¬ 0 π 0
Long COVID left her son with debilitating stomach pain. Why itβs an βuphill battleβ for so many kids to get treated
Children living with long COVID face an uphill battle to access care or even have their symptoms believed, parents and doctors say. Hereβs why.
CCS members Rebecca Lewkowicz and Dr. Susan Kuo are featured in this article about long Covid in children. Rebecca shares her son's extreme pain & nausea from long Covid, and Dr. Kuo discusses the lack of awareness of children's long Covid among doctors.
Gift article: www.thestar.com/news/canada/...
21.08.2025 21:32 β π 46 π 24 π¬ 2 π 3
Paul....I have been ill with ME for almost 4 years. Exercise! In my dreams. I can hardly walk around my flower gardens anymore! I invite you to live in my body for one day! You may change your biased, uneducated opinions!
16.08.2025 00:56 β π 1 π 0 π¬ 0 π 0
Many thanks to you and your team for your ongoing work and dedication. This manual is a source of inspiration and hope for the community! We can now share something with our clinicians that is factual and educational....absolutely brilliant! I am so grateful and thankful for all of you!
14.08.2025 08:24 β π 1 π 0 π¬ 0 π 0
So grateful to Dr. Putrino and his team @ CoRE for this amazing initiative which I believe to be an historic event in medicine. This is what gives me hope!
#LongCOVID
#MEcfs
#pwME
14.08.2025 05:42 β π 10 π 3 π¬ 1 π 0
I was asked about my opinion on this recent study into #MECFS and I wanted to share here as well. First and foremost, sincere congratulations to the research team for some stellar work. I will never stop cheering for groups that are working to uncover the biological 1/
07.08.2025 18:19 β π 152 π 65 π¬ 10 π 12
Mount Sinai Creates First Manual for Treating Infection-Associated Chronic Illness for Clinicians
Mount Sinai Creates First Manual for Treating Infection-Associated Chronic Illness for Clinicians
Brilliant work - huge thanks to all involved ππ½ππ½ππ½
www.mountsinai.org/about/newsro...
14.08.2025 07:31 β π 50 π 31 π¬ 0 π 1
Keep calm and buy Canadian.
Canada: Walk away from negotiations. Don't retaliate. Diversify. Find new markets. Buy European military equipment. Reinstate the digital services tax. Let Americans pay more for the things they want from us. Keep up the public boycott. Welcome American refugee talent. Be Canadian. #cdnpoli #USpoli
01.08.2025 12:29 β π 1100 π 419 π¬ 75 π 41
thank you
18.07.2025 00:29 β π 1 π 0 π¬ 0 π 0
Do you have the actual link for this infographic?
17.07.2025 16:16 β π 0 π 0 π¬ 1 π 0
Login β’ Instagram
Welcome back to Instagram. Sign in to check out what your friends, family & interests have been capturing & sharing around the world.
Here's the summary of the article from Simon
Source: The Sick Times
Share share share, this is ridiculous.
#covid #covid19 #longcovid #longcovidawareness #me #cfs #health #world #worldwide #science #medical #med #mask #masking #britishcolumbiacanada #canada
www.instagram.com/p/DL5VNUVMLp...
09.07.2025 21:03 β π 3 π 2 π¬ 1 π 0
Experts call new Canadian Long COVID guidelines βcontradictoryβ and βdeeply concerningβ - The Sick Times
Guidelines recommend exercise and therapy as treatments, following attempted influence from Paul Garner.
@thesicktimes.bsky.social
July 8, 2025
This is an extremely informative piece by Simon Spichak, a Canadian journalist, science communicator and neuroscientist, who has done an absolutely brilliant job on this piece bringing to light the βbehind the scenes events
08.07.2025 20:26 β π 20 π 8 π¬ 1 π 1
Thank youπ
02.07.2025 19:10 β π 0 π 0 π¬ 0 π 0
Hi....could I please have the link to this study? Thank you
02.07.2025 17:59 β π 2 π 0 π¬ 0 π 0
βΌοΈπ₯THANK YOU MR. ANGUS FOR SPEAKING OUT AGAINST THIS LAWLESS REGIMEπ₯βΌοΈπ
28.06.2025 11:56 β π 72 π 15 π¬ 2 π 1
21.06.2025 02:19 β π 2072 π 276 π¬ 45 π 10
Is this graphic from an article? If so, could you please provide link.
19.06.2025 15:16 β π 0 π 0 π¬ 0 π 0
Incredible turnout for the #NoKings protest in Los Angeles!
14.06.2025 22:07 β π 3571 π 977 π¬ 36 π 45
YouTube video by Charlie Angus
CHARLIE ANGUS - AMERICAN FASCISM CAUSES POLITICAL VIOLENCE
On the day that millions march in the streets.
When police threaten to shoot protesters "graveyard dead".
On the day that we witness horrific political assassinations it's time to talk about the rise of fascist threat in the United States.
www.youtube.com/watch?v=o3Gl...
14.06.2025 17:44 β π 670 π 267 π¬ 39 π 17
#covid #covid19 #longcovid #longcovidawareness #me #cfs #health #world #worldwide #science #medical #med #mask #masking #britishcolumbiacanada #canada #britishcolumbia #pem
13.06.2025 17:36 β π 0 π 1 π¬ 0 π 0
Interdisciplinary #Canadian Collaborative #MyalgicEncephalomyelitis Research Network (created in 2019).
#MECFS #PwME #LongCovid
(Account managed by Sabrina.)
Canadaβs frontline in the fight for democracy and the rule of law. Amplifying resistance at home and abroad. This is resistance without borders.
Solve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other infection-associated chronic conditions.
Public health warnings & health policy. Epidemiologist & health economist. Chair and Faculty at NECSI. Former 16 years at Harvard. DC & Virginia.
Bio & contact: necsi.edu/eric-feigl-ding
A story: bit.ly/raisealarm
π: drericding.substack.com/subscribe
Physician | Scientist | working on Long Covid
News, interesting information and commentary on ME/CFS.
Sen. Sanders of Vermont, Ranking Member of the U.S. Senate Committee on Health, Education, Labor & Pensions, is the longest-serving independent in congressional history.
Politics, author of Dangerous Memory: Coming of Age in the Decade of Greed. Meidas Canada/ The Resistance Lead singer with Grievous Angels. Just a boy from Cobalt.
Not a space for the cynical and snide.
Independent Visual Journalist π₯ Getty Images contributor π¬ True Believers J6 Doc ποΈ Former NowThis News Contributor πΉ
TOP 500 BLUESKY ACCOUNTS TO FOLLOW! https://vqv.app/
Eyewitness πΉ To Support My Work: venmo.com/u/sandi-bachom
paypal.me/sandibachom
ME/CFS | Long COVID | IACC
We provide support, resources & reliable science-based information to patients, parents or caregivers of those suffering from Long Covid in Canada in our FB support group. Engaging w our community& building collaborations. Because we are STRONGER TOGETHER.
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.
With ME/CFS 36 years, severe ME 31 years.
@IrishMECFSAssoc trustee 28 years
26 publications in peer-reviewed journals
Social media: https://me-pedia.org/wiki/Tom_Kindlon
Entrepreneur
Costplusdrugs.com
Associate Professor at the University of Pennsylvania. Immunologist studying T cells and B cells in vaccination and viral infection
Immunologist curious about viruses, cancer, evolution and all things human
Likes all #systems thinking and still working out all the #omics π€
#immunosky #medsky #idsky
The Yonker Lab focuses on mucosal immunity and disease responses related to airway infections in children.
Physician specializing in ME/CFS, Long COVID, & associated complex disease | Assistant Professor of Medicine | She/Her/Hers | https://t.co/TkYm2MXvir
ME CFS, Long COVID, Comorbidities & disability advocate | Former social worker | She/Her/Elle | #MECFS #EMSFC #LongCovid #CovidLongue #DisabilityJustice
TiohtiΓ :ke | Montreal π¨π¦
Infection-associated chronic illness advocate | Life sidelined by #LongCovid #MECFS #POTS | #PatientPartner | MSc | Mom | She/Her | π¨π¦ #Canada #Quebec
#CovidConscious #StillMasking
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#CovidLongue #CovidLong #pwLC