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CarolG

@cg66.bsky.social

Long COVID warrior, fighting for answers, help, awareness, fair treatment, understanding and respect! #COVID #Long COVID #mask-up #COVID is airborne #clean air #follow the science #not recovered #advocating#LongCOVIDCanadaCollaborative(LC3)

54 Followers  |  112 Following  |  43 Posts  |  Joined: 14.11.2024  |  2.2773

Latest posts by cg66.bsky.social on Bluesky

Thank you for all of your hard work and being a voice for the Long COVID community. As a patient, I am proud to be on the admin team of LONG COVID CANADA COLLABORATIVE. We do our best to advocate for the community. Having you champion the cause spreads our message! Thank you!

31.10.2025 21:36 β€” πŸ‘ 10    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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CBC’s Flagship Program Platforms β€œQuackery” for Long COVID CBC's national broadcast aired an interview with Gill Deacon about her Long COVID recovery. Deacon used an unproven program called the Lightning Process that's been criticized for exploiting patients ...

Earlier this week, the CBC broadcast an interview with Gill Deacon, discussing her Long COVID recovery using brain retraining.

They didn't tell you the specific brain retraining program, the Lightning Process, has been accused of exploiting patients.

simonspichak.beehiiv.com/p/cbc-flagsh...

1/n

31.10.2025 21:10 β€” πŸ‘ 65    πŸ” 21    πŸ’¬ 6    πŸ“Œ 4

Ms. Deacon's '15 minutes of fame' is over. What she is sharing is unscientific and dangerous rhetoric that can be extremely harmful to the Long COVID, ME/CFS community. As a Long COVID, ME patient I find it insulting and discouraging that the CBC keeps focusing on Ms. Deacon's story!

29.10.2025 14:06 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0

Thank you

29.10.2025 02:03 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Do you have a link for this?

28.10.2025 16:49 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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Sign the Petition Demand Federal Action on Biomedical Care for Children Living with Long COVID

How do we create a culture clinicians feel safe recognizing complex symptoms - and believe their young Long COVID patients instead of dismissing them?
It's time to act.
Sign & share the CLCN Petition calling for safe evidence -based biomedical care: chng.it/7ZSzLXnp5n

06.10.2025 14:50 β€” πŸ‘ 5    πŸ” 4    πŸ’¬ 0    πŸ“Œ 1

Hi....do you have the link for this study?

18.09.2025 14:08 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

This link doesn't work?πŸ™‚

14.09.2025 19:10 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Thank you....have a great day!

23.08.2025 15:10 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Hi Tom.....would you have the link to the article that this graphic is from?

23.08.2025 15:09 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Long COVID left her son with debilitating stomach pain. Why it’s an β€˜uphill battle’ for so many kids to get treated Children living with long COVID face an uphill battle to access care or even have their symptoms believed, parents and doctors say. Here’s why.

CCS members Rebecca Lewkowicz and Dr. Susan Kuo are featured in this article about long Covid in children. Rebecca shares her son's extreme pain & nausea from long Covid, and Dr. Kuo discusses the lack of awareness of children's long Covid among doctors.
Gift article: www.thestar.com/news/canada/...

21.08.2025 21:32 β€” πŸ‘ 46    πŸ” 24    πŸ’¬ 2    πŸ“Œ 3

Paul....I have been ill with ME for almost 4 years. Exercise! In my dreams. I can hardly walk around my flower gardens anymore! I invite you to live in my body for one day! You may change your biased, uneducated opinions!

16.08.2025 00:56 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Many thanks to you and your team for your ongoing work and dedication. This manual is a source of inspiration and hope for the community! We can now share something with our clinicians that is factual and educational....absolutely brilliant! I am so grateful and thankful for all of you!

14.08.2025 08:24 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Mount Sinai publishes 1st US guide for infection-linked chronic illnesses - Becker's Hospital Review | Healthcare News & Analysis New York City-based Mount Sinai Health System has released the country’s first clinical manual for treating infection-associated chronic illnesses, according to an Aug. 13 news release.Β  The clinical ...

Really proud of my team for getting this out. It has been a heavy lift. When we opened the Cohen Center for Recovery from Complex Chronic Illness, we wanted to create a place that could provide the very best of care for people with #LongCOVID, #MECFS,
www.beckershospitalreview.com/quality/pati...
1/

14.08.2025 00:30 β€” πŸ‘ 191    πŸ” 78    πŸ’¬ 14    πŸ“Œ 6

So grateful to Dr. Putrino and his team @ CoRE for this amazing initiative which I believe to be an historic event in medicine. This is what gives me hope!

#LongCOVID
#MEcfs
#pwME

14.08.2025 05:42 β€” πŸ‘ 10    πŸ” 3    πŸ’¬ 1    πŸ“Œ 0

I was asked about my opinion on this recent study into #MECFS and I wanted to share here as well. First and foremost, sincere congratulations to the research team for some stellar work. I will never stop cheering for groups that are working to uncover the biological 1/

07.08.2025 18:19 β€” πŸ‘ 152    πŸ” 65    πŸ’¬ 10    πŸ“Œ 12
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Mount Sinai Creates First Manual for Treating Infection-Associated Chronic Illness for Clinicians

Mount Sinai Creates First Manual for Treating Infection-Associated Chronic Illness for Clinicians

Brilliant work - huge thanks to all involved πŸ‘πŸ½πŸ‘πŸ½πŸ‘πŸ½

www.mountsinai.org/about/newsro...

14.08.2025 07:31 β€” πŸ‘ 50    πŸ” 31    πŸ’¬ 0    πŸ“Œ 1
Keep calm and buy Canadian.

Keep calm and buy Canadian.

Canada: Walk away from negotiations. Don't retaliate. Diversify. Find new markets. Buy European military equipment. Reinstate the digital services tax. Let Americans pay more for the things they want from us. Keep up the public boycott. Welcome American refugee talent. Be Canadian. #cdnpoli #USpoli

01.08.2025 12:29 β€” πŸ‘ 1100    πŸ” 419    πŸ’¬ 75    πŸ“Œ 41

thank you

18.07.2025 00:29 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Do you have the actual link for this infographic?

17.07.2025 16:16 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Login β€’ Instagram Welcome back to Instagram. Sign in to check out what your friends, family & interests have been capturing & sharing around the world.

Here's the summary of the article from Simon
Source: The Sick Times
Share share share, this is ridiculous.

#covid #covid19 #longcovid #longcovidawareness #me #cfs #health #world #worldwide #science #medical #med #mask #masking #britishcolumbiacanada #canada

www.instagram.com/p/DL5VNUVMLp...

09.07.2025 21:03 β€” πŸ‘ 3    πŸ” 2    πŸ’¬ 1    πŸ“Œ 0
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Experts call new Canadian Long COVID guidelines β€œcontradictory” and β€œdeeply concerning” - The Sick Times Guidelines recommend exercise and therapy as treatments, following attempted influence from Paul Garner.

@thesicktimes.bsky.social

July 8, 2025

This is an extremely informative piece by Simon Spichak, a Canadian journalist, science communicator and neuroscientist, who has done an absolutely brilliant job on this piece bringing to light the β€œbehind the scenes events

08.07.2025 20:26 β€” πŸ‘ 20    πŸ” 8    πŸ’¬ 1    πŸ“Œ 1

Thank youπŸ˜€

02.07.2025 19:10 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Hi....could I please have the link to this study? Thank you

02.07.2025 17:59 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

‼️πŸ”₯THANK YOU MR. ANGUS FOR SPEAKING OUT AGAINST THIS LAWLESS REGIMEπŸ”₯β€ΌοΈπŸ˜ˆ

28.06.2025 11:56 β€” πŸ‘ 72    πŸ” 15    πŸ’¬ 2    πŸ“Œ 1
Post image 21.06.2025 02:19 β€” πŸ‘ 2072    πŸ” 276    πŸ’¬ 45    πŸ“Œ 10

Is this graphic from an article? If so, could you please provide link.

19.06.2025 15:16 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Video thumbnail

Incredible turnout for the #NoKings protest in Los Angeles!

14.06.2025 22:07 β€” πŸ‘ 3571    πŸ” 977    πŸ’¬ 36    πŸ“Œ 45
CHARLIE ANGUS - AMERICAN FASCISM CAUSES POLITICAL VIOLENCE
YouTube video by Charlie Angus CHARLIE ANGUS - AMERICAN FASCISM CAUSES POLITICAL VIOLENCE

On the day that millions march in the streets.
When police threaten to shoot protesters "graveyard dead".
On the day that we witness horrific political assassinations it's time to talk about the rise of fascist threat in the United States.

www.youtube.com/watch?v=o3Gl...

14.06.2025 17:44 β€” πŸ‘ 670    πŸ” 267    πŸ’¬ 39    πŸ“Œ 17

#covid #covid19 #longcovid #longcovidawareness #me #cfs #health #world #worldwide #science #medical #med #mask #masking #britishcolumbiacanada #canada #britishcolumbia #pem

13.06.2025 17:36 β€” πŸ‘ 0    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

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