ICanCME Canadian Research Network

Please join @putrinolab.bsky.social and I for this free webinar on Tuesday where we will be talking about increasing accessibility and collaboration in research. 👇

Thanks for hosting us and this discussion @solveme.bsky.social and @batemanhornecenter.bsky.social ! 💙

The BMJ will remunerate patient and public reviewers The BMJ will offer £50 for reviews by patients and the public From January 2025 patients and members of the public who complete a review for The BMJ will be offered £50 or a 12 month online subscript...

The BMJ will remunerate patient and public reviewers | The BMJ www.bmj.com/content/387/...

#PatientEngagement

Immune T cells become exhausted in chronic fatigue syndrome patients | Cornell Chronicle The study found that key CD8+ T cells showed signs of constant stimulation that lead to an exhausted state, a condition that is well-studied in cancer.

Immune cells become exhausted in #MECFS. Read about the latest findings of the PNAS research paper of M. Hanson et al. here: news.cornell.edu/stories/2024...

Today, on the International Day for Persons with Disabilities, I am beyond proud that the Canadian Institutes for Health Research have released their Anti-Ableism Action Plan, entitled "From Intention to Impact". 1/3

cihr-irsc.gc.ca/e/54121.html...

YouTube video by Department of Health Victoria Jordan’s long COVID story

You can protect yourself & your loved ones from COVID with these 6 steps:

😷 Wear a respirator mask
🏠 Stay home if sick
⏰ Test if you have symptoms
🌳 Let fresh air in or meet outdoors
💉 Stay up to date with your vaccinations
💡 Talk to your GP about COVID medicines.

youtu.be/FlBfq22nxt8?...

Press release: The Sick Times announces one year of covering the Long COVID crisis - The Sick Times “Our reporting on Long COVID remains as vital today as it did when we launched,” executive editor Miles W. Griffis said. “Many of our colleagues in the media continue to minimize the disease and the o...

"Many of our colleagues in the media continue to minimize the disease and the ongoing COVID-19 pandemic — but not The Sick Times." - @mileswgriffis.bsky.social

It's our birthday! One year of covering the #LongCOVID crisis without denial, minimizing, or gaslighting. bit.ly/3USv2w6

Hey everyone. Please sign the international list if you haven’t already.

Our friends in the US need our support! Canadians benefit greatly from the advocacy and research done in the US too. 💙

Anyone know how to fix an invalid handle?

I’ve noticed a few of us with them.

I have also started one for #PatientPartnership in #research in Canada.

It is still quite small still but will grow as our colleagues join us on this app.

Anyone can follow us to learn more about patient partnership - how it works and where to find #resources.

go.bsky.app/BPJWoAc

I have started a Starter Pack for ME and Long COVID. 💙

It includes some mutuals with other packs but also some new faces too. :)

Please let me know if you want to be added. I know I still have about a million wonderful people to add. 💙

go.bsky.app/6R7bqc7

Sharing this again because we need to find each other and our communities on here. 💙

We need to be connected now more than ever. 💛

If you create new starter packs, please include as many of us as possible.

go.bsky.app/KnwWePQ

Three decades ago today. The Daily Herald, Utah, US. 19th October 1994. #mecfs #cfsme #myalgicencephalomyelitis #myalgice

Long ϹΟVΙD patients suffer high rate of autonomic disorders: research

Long ϹΟVΙD patients suffer high rate of autonomic disorders: research globalnews.ca/news/1081866...

CanadaHealthwatch.ca 🍁 The most important health news, in one place.

Let’s start a thread of awesome follows on here that relate to #MyalgicEncephalomyelitis #MECFS #LongCovid or #InfectionAssociatedChronicIllnesses.

Because it is hard to rebuild community on a new platform…but doing it as a #PwME…nearly impossible.

Let’s help each other with safe suggestions.

CONCISE REVIEW FOR CLINICIANS| VOLUME 98, ISSUE 10, P1544-1551, OCTOBER 2023 Download Full Issue Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Stephanie L. Grach, MD, MS Jaime Seltzer, MS Tony Y. Chon, MD Ravindra Ganesh, MD, MBBS Open AccessDOI:https://doi.org/10.1016/j.mayocp.2023.07.032 Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic neurologic disease often preceded by infection. There has been increased interest in ME/CFS recently because of its significant overlap with the post-COVID syndrome (long COVID or post-acute sequelae of COVID), with several studies estimating that half of patients with post-COVID syndrome fulfill ME/CFS criteria. Our concise review describes a generalist approach to ME/CFS, including diagnosis, evaluation, and management strategies.

🧵
New:
"Diagnosis and Management of #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome"

Free full text:
www.mayoclinicproceedings.org/article/S002...

New, sympathetic guidelines. Have some status as in Mayo Clinic Proceedings & are eligible for CME

#MedEd #MEcfs #CFS #PwME #MedBluesky

1/

It’s in the top✨< 1%✨ most shared of all Mayo Clinic publications.

It’s the ✨most shared paper✨ amongst its contemporaries at Mayo Clinic Proceedings.

It’s in the ✨top 0.2%✨ most shared research products of all time.

It’s been live less than a week.

tinyurl.com/ywd3kmjs