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ICanCME Canadian Research Network

@icancmeresearch.bsky.social

Interdisciplinary #Canadian Collaborative #MyalgicEncephalomyelitis Research Network (created in 2019). #MECFS #PwME #LongCovid (Account managed by Sabrina.)

782 Followers  |  206 Following  |  11 Posts  |  Joined: 12.10.2023  |  1.8711

Latest posts by icancmeresearch.bsky.social on Bluesky

Thank you for the great work!

07.11.2025 00:22 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

Day 3 of the @icancmeresearch.bsky.social conference is up as a live thread and now a brief writeup.

simonspichak.beehiiv.com/p/day-3-of-t...

07.11.2025 01:31 β€” πŸ‘ 8    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0

Thank you for supporting us! πŸ’™

07.11.2025 00:20 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

If you didn’t watch the third and last day of the #ICanCME2025 Conference for ME/CFS, here’s the live tweeting stream by @spichaksimon.bsky.social. Thanks, Simon, and thanks to @icancmeresearch.bsky.social for such a brilliant conference.

06.11.2025 22:24 β€” πŸ‘ 24    πŸ” 11    πŸ’¬ 2    πŸ“Œ 0

#ICanCME2025

06.11.2025 19:48 β€” πŸ‘ 5    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Thread for Day 3 of the @icancmeresearch.bsky.social conference. My attempt at simultaneously sharing on X and Bsky.

06.11.2025 17:48 β€” πŸ‘ 24    πŸ” 9    πŸ’¬ 3    πŸ“Œ 4
Menu for Day # 3 #ICANCME Conference

Menu for Day # 3 #ICANCME Conference

@icancmeresearch.bsky.social

#ICANCME2025 Wow what an agenda for Day # 3

06.11.2025 18:24 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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It is a privilege to represent the paediatric community, amplify young voices & share insights from families with lived experience.
Looking back at @ LCK's early work I will always be grateful to our #volunteers - inc @drsuepeters.bsky.social
πŸ‘‰#Blog
bit.ly/3LwLXCp
@icancmeresearch.bsky.social

06.11.2025 18:29 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

Are you registered?

If so, please join us for our last day together! πŸ’™

06.11.2025 13:06 β€” πŸ‘ 7    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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We were delighted to be invited to join the @icancmeresearch.bsky.social conference for day 2 to represent CYP with overlapping illnesses - LC and ME.
Sharing CYP artwork, quotes, poems from, insights on language CYP use, caregiving and support needs.

#ICanCME2025 #Paediatric #Children

05.11.2025 21:49 β€” πŸ‘ 18    πŸ” 7    πŸ’¬ 2    πŸ“Œ 1

@icancmeresearch.bsky.social thank you so deeply for bringing together the most dedicated and brilliant minds to share their care which we so deeply lack. Thank you Sabrina for your advocacy that I continually feel is a calling. πŸ©΅πŸ’™πŸ©΅

05.11.2025 22:52 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0

I'll be back live tweeting/skeeting the @icancmeresearch.bsky.social conference tomorrow. Will try to get it going on BlueSky AND X simultaneously.

#ICanCME

06.11.2025 01:18 β€” πŸ‘ 6    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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We are excited and ready for day 2 of @icancmeresearch.bsky.social!

#MEAction’s Scientific Director, Jaime Seltzer @exceedhergrasp1.bsky.social, is speaking soon!

#ICanCME2025 #pwME #MECFS

05.11.2025 17:58 β€” πŸ‘ 31    πŸ” 9    πŸ’¬ 4    πŸ“Œ 2

Excited for day two of the excellent @icancmeresearch.bsky.social conference!
Starting now! #ICanCME2025

05.11.2025 18:00 β€” πŸ‘ 9    πŸ” 4    πŸ’¬ 0    πŸ“Œ 0

It was so lovely having you there Nandini! Thank you for your kind words and the support.

05.11.2025 02:22 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

This is not just a conference. It's a meeting of scientific minds who are genuinely bridging the gap between lived experience & scientific inquiry.
Thank you @icancmeresearch.bsky.social for hosting such an incredible virtual conference. @chiefscican.bsky.social @thewhn.bsky.social

05.11.2025 01:57 β€” πŸ‘ 10    πŸ” 6    πŸ’¬ 2    πŸ“Œ 1
Preview
Day 1 of the ICanCME Canadian Collaborative Conference on Myalgic Encephalomyelitis A brief summary of the presentations.

And coverage for Day 1 of the #ICanCMEConference by the
@icancmeresearch.bsky.social. Features a link to my live tweets.

simonspichak.beehiiv.com/p/icancme-da...

05.11.2025 02:00 β€” πŸ‘ 23    πŸ” 13    πŸ’¬ 4    πŸ“Œ 4

Joining day 1 of the ICanCME Canadian Collaborative Conference on Myalgic Encephalomyelitis (ME).

Huge shout-out for the respect for lived experience! Wonderful start!

#ICanCME2025

#NothingAboutUsWithoutUs

@icancmeresearch.bsky.social, applause to planning team!

04.11.2025 18:17 β€” πŸ‘ 27    πŸ” 7    πŸ’¬ 0    πŸ“Œ 0

Thank you so much!

04.11.2025 20:35 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Thoroughly enjoying learning about ME at the @icancmeresearch.bsky.social conference. Thank you for putting this all together.

04.11.2025 20:09 β€” πŸ‘ 3    πŸ” 3    πŸ’¬ 2    πŸ“Œ 0
Preview
Simon Spichak on X: "A little late to the party but following the @ICanCMEResearch conference. First keynote coming on" / X A little late to the party but following the @ICanCMEResearch conference. First keynote coming on

Covering the @icancmeresearch.bsky.social live over on the other app.

Will be posting a brief summary of the day's talks as well.

x.com/SpichakSimon...

04.11.2025 20:12 β€” πŸ‘ 8    πŸ” 3    πŸ’¬ 2    πŸ“Œ 0
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1) The Canadian ME/CFS research network ICanCME is organizing a free and online conference from 4 to 6 November.

The main presentations take place at:

1 pm - 5 pm Eastern Time
6 pm - 10 pm London Time
7 pm - 11 pm Brussels Time

#ICanCME2025

02.10.2025 17:40 β€” πŸ‘ 30    πŸ” 18    πŸ’¬ 1    πŸ“Œ 2

We’re thrilled to have you!

Your book was a really meaningful one, that is still often passed on to people newly suffering with chronic illnesses to help them learn more about the context of women’s health and research.

04.11.2025 17:02 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

#ICanCME2025 is happening this week!

This was an initiative driven by people with ME and their loved ones with the support of many along the way! We’re so thankful for everyone’s support so far.

And please be patient with us this week if we run into any issues. πŸ€žπŸ’™

03.11.2025 15:51 β€” πŸ‘ 30    πŸ” 11    πŸ’¬ 2    πŸ“Œ 1
Preview
2025 ME Conference - ICanCME

Honored to be speaking about ME, gender bias in medicine, and women's "unexplained" chronic illness at the #ICanCME2025 conference this afternoon. Thanks @icancmeresearch.bsky.social! icancme.ca/research/202...

04.11.2025 16:44 β€” πŸ‘ 35    πŸ” 8    πŸ’¬ 4    πŸ“Œ 1

The more I think about public education, climate change, science funding, the more I realize that Republican policy is predicated on the illusion that you can harm others in your environment without harming yourself.

03.11.2025 16:31 β€” πŸ‘ 104    πŸ” 29    πŸ’¬ 3    πŸ“Œ 8

bsky.app/profile/sabr...

03.11.2025 16:18 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

bsky.app/profile/sabr...

03.11.2025 16:18 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Yay! We were locked out of this account because we forgot the password.

Who can relate? πŸ™‹πŸ»β€β™€οΈ

But we’re back! And ready to butterfly it up on here for the next few days of #ICanCME2025, our conference starting tomorrow.

03.11.2025 16:17 β€” πŸ‘ 7    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Please join @putrinolab.bsky.social and I for this free webinar on Tuesday where we will be talking about increasing accessibility and collaboration in research. πŸ‘‡

Thanks for hosting us and this discussion @solveme.bsky.social and @batemanhornecenter.bsky.social ! πŸ’™

15.01.2025 13:38 β€” πŸ‘ 36    πŸ” 18    πŸ’¬ 0    πŸ“Œ 1

@icancmeresearch is following 18 prominent accounts