Solve M.E.

Quote from Emily Taylor, Solve M.E. President & CEO, praising Maryland ME advocacy's success in advancing a bill as a model for other states.

Solve CEO Emily Taylor is quoted in @thesicktimes.org re: a novel #LongCovid innovation bill (HB0027 in the House & SB0392 in the Senate) on the docket in Maryland. The bill would support grants and loans for LC research and development. Read more:
ow.ly/iIbE50YbSGX

We’re releasing a new State-by-State Resource Directory to help people living with ME/CFS and other disabling chronic illnesses find local and national support.

Free, practical, and built for real life.
🔗https://bit.ly/3ZBBIAC

Ad for free webinar "Protecting the Ones You Love: Legal and Insurance Tools for ME/CFS Caregivers." With headshots for host Monique Wike and panelist Andrew Kantor. Feb. 11, 2026, 12-1 pm PT, 3-4 pm ET.

Sign up for our webinar “Protecting the Ones You Love: Legal & Insurance Tools for ME/CFS Caregivers.” Andrew Kantor, Esq. (Kantor & Kantor, LLP) will share practical legal and insurance tools. Wed. Feb. 11, 2026 @ 12 pm PT / 3 pm ET.
ow.ly/JpSv50XmU3v

YouTube video by SolveME From Mystery to Measurable: The Science Behind the New ME/CFS Blood Test

🎥 New webinar recording! Watch "From Mystery to Measurable: The Science Behind the New #MECFS Blood Test" and learn how a 96% accurate test could transform diagnosis + treatment.

▶️ youtu.be/DqRAsy_vqJo

Screengrab of meeting with CEOs and staff from Solve M.E., Bateman-Horn Center, #MEAction, and Open Medicine Foundation.

We met up with our friends at
@meactnet.bsky.social ,
@openmedf.bsky.social y.social
and @batemanhornecenter.bsky.social
this week to share ideas.
We're so grateful for our partners!
#UnitedForME

How to Support Maryland’s HB27: The Long COVID Innovation Grant and Loan Program - Solve ME/CFS Initiative Use this guide to support a House bill in Maryland that would establish a state-level grant and loan initiative to fund innovative research, treatment development, and manufacturing solutions for Long...

🌍 Outside Maryland? You can still help.
💬 Ask orgs in your network to sign on in support
🧾 Read + sign-on to letter of support

Instructions here:
solvecfs.org/how-to-suppo...

📣 If you’re in Maryland:
Submit testimony to support HB27 - online, in person, or in writing. Your story makes a difference.

📄 Step-by-step guide: mdlegislative.com/legislation/...

HB27 creates a Long COVID Innovation Grant & Loan Program via TEDCO. It would:

✅ Fund research + treatment dev
✅ Support local manufacturing
✅ Boost MD’s life sciences economy

Maryland advances HB27 bill to fund Long COVID research, treatment, and innovation with a call to submit testimony this week.

🚨Big news in Maryland: A new bill (HB27) would fund Long COVID research, treatment, and innovation. It’s a huge opportunity to lead on post-viral illness. Here's how to help. 🧵

🚨Register for our free webinar tomorrow: “From Mystery to Measurable: The Science Behind the New #MECFS Blood Test.”

🧬Learn how a 96% accurate test could transform diagnosis + treatment.

🗓️ Jan 15, 2026 | 9–10 am PT / 12- 1 pm ET.

🔗https://ow.ly/aZk450XiOeU

Q&A series on ME/CFS featuring Dr. Roshan Kumar discussing breakthroughs and hope in research and treatment.

What’s New in ME/CFS?

We sat down with Dr. Roshan Kumar of @HiFiBio to talk about breakthroughs in immune profiling, treatment hope, and what’s next.

🎥 Watch now → youtu.be/20FcPa2L8M0

#MECFS #LongCOVID #SolveME #HopeInScience #MEAwarenessHour

White graphic with teal and orange shapes and the Solve M.E. logo reads: Thank you for helping us exceed our $321,000 fundraising goal!

🎆Thanks to you, we exceeded our year-end fundraising goal!

Your generosity is accelerating #MECFS & #LongCovid research and creating real momentum.

We’re deeply grateful and hopeful as we continue working alongside you to serve this community and move science forward.💙

A teal graphic with white lettering asks readers to make a year-end gift to Solve by midnight tonight. All gifts made to Solve by midnight will be matched up to $321,000.

🚨There are just a few hours left to make a matched gift to Solve M.E.—the $321,000 year-end challenge ends at midnight! Momentum matters--when funding moves faster, discovery does too. Your gift can help ensure progress doesn’t slow as we enter a new year. ⏰
solvecfs.org/donate/

A quote from Solve ME President and CEO Emily Taylor about the successful collaboration of patients, researchers, caregivers and clinicians in 2025.

Solve M.E. President Emily Taylor reflects on the impact of staying engaged, staying vocal, and staying invested in a future that still has so much left to build.

Read more here:
ow.ly/7qML50XQcqc

#MECFS #LongCovid #advocacy #research

Q&A series on ME/CFS featuring Francisco Westermeier, PhD, discussing breakthroughs and hope in ME/CFS, Long Covid, and related illnesses.

“Distinct datasets are now converging on similar disease signatures.” — Dr. Francisco Westermeier in the new "What’s New in ME/CFS?" Q&A . 📖 Read now → ow.ly/3lnc50XQck4
#MECFS #SolveME #LongCOVID #ResearchBreakthrough #HopeInScience

2025 Advocacy in Review: What You Helped Push Forward - Solve ME/CFS Initiative In 2025, advocates led meetings, shared their stories, and pushed lawmakers to act on our community’s top federal priorities. It made a difference.

In "2025 Advocacy in Review: What You Helped Push Forward," Solve Director of Advocacy Monique Wike looks back at a year of gridlock for biomedical research and public health and how community members kept #MECFS on the agenda.

Read it here:
solvecfs.org/2025-advocac...

Circular badge promoting a matching challenge to double donations to Solve M.E. up to $321,000 by December 31 to advance ME/CFS and Long Covid research.

📢You can make a year-end gift to Solve that moves #MECFS and #LongCovid science forward—and doubles in impact.

All gifts made through Dec. 31st will be matched up to $321,000!

Please give today! solvecfs.org/donate/

Recognize "International Long Covid Awareness Day" in LA March 15 is International Long Covid Awareness Day. Sign the petition to tell the LA City Council that you want Long Covid acknowledged and City Hall lit teal in observance.

Solve is proud to support the @cleanairla.bsky.social petition for the City of Los Angeles to recognize International #LongCovid Awareness Day and light up City Hall in teal on March 15. Everyone can sign, no matter where you live. Please join us and sign here: ow.ly/bskH50XQ6kx

Banner for a Q&A series on ME/CFS research featuring a compass on wood and Dr. Zack Shan from The Thompson Institute at the University of the Sunshine Coast.

What if the confusing part of #MECFS, that it presents differently for each person, is actually the key to solving it?

Dr. Zack Shan’s work with brain scans, immune markers, and smart sensors is uncovering biological subtypes of ME/CFS.

📺 Full interview here:
ow.ly/XMCk50XNuw8

Promo graphic for "What's New in ME/CFS?" video interview series features a compass and a photo of Dr. Peter Rowe (Johns Hopkins School of Medicine) and the Solve M.E. logo).

In "What’s New in ME/CFS?" Dr. Peter Rowe says the clinical toolbox for #MECFS is expanding. He shares:

-How targeted questions during a physical exam can reveal treatable structural problems
-What gives him hope

Watch: ow.ly/1Ruq50XGuPO

#MEAwarenessHour

Researchers Dr. C. Gunnar Gottschalk and Dr. Avik Roy are pictured. Quote from Dr. C. Gunnar Gottschalk reads, "This funding from Solve M.E. will help us continue enrollment in our ongoing expanded phase and cover the cost of study drug and safety labs. Our goal is to develop a predictive test to identify which patients are more likely to benefit from rapamycin or other mTOR-targeted therapies.” At the bottom of the page are logos for Solve M.E. & the ME/CFS Catalyst Awards.

Your support funds bold ME/CFS and Long Covid research. This year, our Catalyst Award helped expand a promising rapamycin trial—and early results are encouraging. Join our $321,000 match & keep the momentum going. 💙 #MovingTheScienceForward
giving.solvecfs.org/page/FUNRSFN...

YouTube video by SolveME What's New in ME/CFS? Interview with Dr. Chris Ponting

"What’s New in ME/CFS?" A new Q&A series from Solve M.E. featuring top scientists on breakthroughs, hope, & what’s next.

We’re kicking off with Prof. Chris Ponting of @decodemestudy.bsky.social.

🎥 Watch now → youtu.be/26EgGn49osw

#MECFS #DecodeME #LongCOVID #SolveME
#MEAwarenessHour

Compass on wooden surface symbolizing guidance in ME/CFS research updates is pictured along with a photo of Dr. Chris Ponting and text describing interview details. The Solve M.E. logo is placed in the bottom left corner.

"What’s New in ME/CFS?" A new Q&A series from Solve M.E. featuring top scientists on breakthroughs, hope, & what’s next. We’re kicking off with Prof. Chris Ponting of the DecodeME study.
🎥 Watch now → youtu.be/26EgGn49osw

#MECFS #DecodeME #LongCOVID #SolveME
#MEAwarenessHour

teal graphic with Giving Tuesday and Solve M.E. logos reads: Breaking News! Double Your Impact $321,000 by December 31 Matching challenge Solve M.E. Moving Science Forward

Celebrate radical generosity today, Giving Tuesday, with a gift to Solve! With our $321,000 matching challenge, your gift today will be matched – meaning double the amount of funding for ME/CFS and Long Covid research!

ow.ly/cWbq50XAqnk

A white graphic with the Solve M.E. logo is superimposed on a background photo of a laboratory. It reads, "Solve Science Spotlight: Hyperstimulated Innate Immune System Can Drive ME/CFS Associated Fatigue and Post-Exertional Malaise. Read our Summary."

A recent study by the team at the Center for Infection and Immunity at Columbia Univ. describes how a hyperactive innate immune system can drive #MECFS -associated fatigue & #PEM, laying the groundwork for preventive treatments & advancing diagnostic tools. Read our summary here:
ow.ly/piKz50Xt44g

A multicolored one-page document, "Supporting Loved Ones Through a Disability Insurance Claim ERISA 101 for ME/CFS Caregivers," contains legal tips for handling insurance disability claims, co-branded with logos from Solve M.E. and Kantor & Kantor, LLP.

For National Family #Caregivers Month, we're partnering with Kantor & Kantor, LLP to create practical tools for caregiving in complex illness.

This week’s focus: the Employee Retirement Income Security Act (ERISA).

Download our one-pager here:
solvecfs.org/wp-content/u...

#UnitedForME

Teal, orange, and white graphic promotes registration for Solve M.E.'s free webinar: "From Mystery to Measurable: The Science Behind the New ME/CFS Blood Test." Includes headshots of Solve President Emily Taylor and panelists Dmitry Pshezhetskiy, Alexandre Akoulitchev, Ewan Hunter, and Dr. Bartu Ahiska. When: Thursday, January 15, 2026, at 9–10 am PT / 12–1 pm ET

🚨 Breakthrough in #MECFS research! Join our free webinar “From Mystery to Measurable: The Science Behind the New ME/CFS Blood Test”
🧬Learn how a 96% accurate test could transform diagnosis + treatment.
🗓️ Jan 15, 2026 | 9–10 am PT / 12- 1 pm ET.
🔗https://ow.ly/aZk450XiOeU

Invitation to the IACC Case Competition hosted by University of Michigan Ross, focusing on infection-associated chronic conditions, October 31st, hybrid event.

🎓 Solve is proud to sponsor the IACC Case Competition at
University of Michigan Ross School of Business this Friday, Oct 31. Patients, advocates, & experts come together to tackle challenges like #LongCovid #ME/CFS #POTS & more.

Registration (in-person or virtual) is free!

ow.ly/XqgT50X6tQ5

We're recruiting a new Head of Advocacy and Comms - World ME Alliance We’re recruiting a new Head of Advocacy and Communications for the World ME Alliance. Might you or someone you know be interested? About the Role Are you a strategic thinker who loves connecting peopl...

The World ME Alliance is hiring! Apply now for the role of Head of Advocacy & Comms — shaping global campaigns for people with ME, a disease long neglected & stigmatized.

💻 Remote (UK or +/-3 hours of pacific time)
⏰ 14 hrs/wk

Apply by 10 Nov 2025 👉

worldmealliance.org/2025/10/were...

Action alert from Solve M.E. reads: Medicare alert: Coverage for emerging ME/CFS treatment at risk. 5 out of 7 medicare contractors (MACS) have proposed denying coverage for peripheral nerve block treatments such as stellate ganglion blocks. these procedures have been helping people with ME/CFS and Long Covid. Comment deadline: November 8th, 2025.

Even if you don’t have Medicare, this could affect your care as private insurers frequently follow Medicare’s lead.
📬 Details on how to make a public comment here:
solvecfs.org/speak-up-to-...