@solveme.bsky.social
Solve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other infection-associated chronic conditions.
Invitation to the IACC Case Competition hosted by University of Michigan Ross, focusing on infection-associated chronic conditions, October 31st, hybrid event.
๐ Solve is proud to sponsor the IACC Case Competition at
University of Michigan Ross School of Business this Friday, Oct 31. Patients, advocates, & experts come together to tackle challenges like #LongCovid #ME/CFS #POTS & more.
Registration (in-person or virtual) is free!
ow.ly/XqgT50X6tQ5
The World ME Alliance is hiring! Apply now for the role of Head of Advocacy & Comms โ shaping global campaigns for people with ME, a disease long neglected & stigmatized.
๐ป Remote (UK or +/-3 hours of pacific time)
โฐ 14 hrs/wk
Apply by 10 Nov 2025 ๐
worldmealliance.org/2025/10/were...
Action alert from Solve M.E. reads: Medicare alert: Coverage for emerging ME/CFS treatment at risk. 5 out of 7 medicare contractors (MACS) have proposed denying coverage for peripheral nerve block treatments such as stellate ganglion blocks. these procedures have been helping people with ME/CFS and Long Covid. Comment deadline: November 8th, 2025.
Even if you donโt have Medicare, this could affect your care as private insurers frequently follow Medicareโs lead.
๐ฌ Details on how to make a public comment here:
solvecfs.org/speak-up-to-...
Medicare contractors want to restrict access to Peripheral Nerve Blocks like Stellate Ganglion Block (SGB), which some w/ #MECFS & #LongCOVID have just been starting to access and report early benefits from.
21.10.2025 21:30 โ ๐ 4 ๐ 3 ๐ฌ 1 ๐ 0
The World ME Alliance is hiring! Apply now for the role of Head of Advocacy & Comms โ shaping global campaigns for people with ME, a disease long neglected & stigmatized.
๐ป Remote (UK or +/-3 hours of pacific time)
โฐ 14 hrs/wk
Apply by 10 Nov 2025 ๐
worldmealliance.org/2025/10/were...
Webinar recording promotional graphic titled โThe Unified Platform: Advancing Research Across ME/CFS, Long Covid, and Other Chronic Conditions.โ Featured speakers with headshots: Megan L. Fitzgerald, PhD, Principal Investigator & Lived Experience Expert; Christy Jagdfeld, Co-founder and CEO of Brain Inflammation Collaborative; Chris Nowak, Platform Architect & Caregiver to a Person with ME/CFS, CareEvolution; and Emily Taylor, President of Solve M.E. Logos for Solve M.E., Unhide, Solve Together, and Brain Inflammation Collaborative are at the bottom.
Watch the replay of our webinar on the unhideยฎ Solve Together Unified Platform! Panelists from the Brain Inflammation Collaborative discuss the secure platform allowing patients to contribute data to support research across 30+ conditions.
youtu.be/Yssihztzw_w
Visit unhidenow.org to enroll.
Enrollment open for children and teens in a program tracking symptoms, connecting wearables, and supporting research for ages 2 and up.
๐ข Now enrolling for 30+ chronic conditions & patients of all ages! The Unified Platform is opening doors to pediatric participants (ages 2+), helping change how we understand chronic illness and brain inflammation across the lifespan.
unhidenow.org
#MECFS #LongCovid
Our pleasure!
14.10.2025 19:57 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Register today for the @icancmeresearch.bsky.social online conference Nov. 4-6. The event was designed by people w/ #MECFS and the theme is โNothing About Us Without Us.โ
icancme.ca/research/202...
A UK-based research team has developed a new blood-based assay, the EpiSwitch CFS test, that may prove very effective for diagnosing people with #MECFS. Read our summary of the study (published in the Journal of Translational Medicine) here:
ow.ly/UnXo50X9vyw
Bright orange background with text celebrating Donor-Advised Fund Day and encouraging gifts to support ME/CFS and Long Covid research by Solve M.E.
๐Itโs DAF Day 2025โa nationwide celebration of generosity through Donor-Advised Funds. Help make ME/CFS and Long Covid widely understood, diagnosable, and treatable. Join us and be part of the movement! ๐งก
ow.ly/FNuU50X9pnb
#DAFDay2025 #MECFS #LongCovid #givingtogether
ICYMI: Solve Ramsay Research Grant winner Dr. Jarred Younger explains the recent study by fellow Ramsay winner
Dr. Carmen Scheibenbogen
on the effect of #Mestinon (Pyridostigmine) on hand strength in #MECFS
ow.ly/YPzk50X8GYF
#MEAwarenessHour
Two women sit outdoors at a table covered with a Solve M.E. banner.
๐ขBig thanks to advocate and caregiver Rebecca Groble (pictured right) and her friend for hosting a booth at their local Nurtured by Nature health fair. They handed out free educational literature to help raise awareness about #MECFS. ๐๐
#MEAwarenessHour
Invitation to the IACC Case Competition at University of Michigan Ross, focusing on infection-associated chronic conditions like Long COVID and ME/CFS, held October 31st, hybrid format.
๐ Solve is proud to sponsor the Oct 31 #IACC Case Competition at University of Michigan Ross School of Business! Patients, advocates, & experts come together to tackle challenges like #LongCovid #ME/CFS #POTS & more. Registration (in-person or virtual) is free!
ow.ly/XqgT50X6tQ5
Solve M.E. logo above text about government shutdown impacts on ME/CFS, Long COVID, and IACCI communities in muted green on teal background.
The federal government has shut down, and the impacts are already being felt across systems and services our community depends on. Read our summary of the key areas of impact and tips on ways to stay connected:
solvecfs.org/government-s...
Person lying in bed with hand on forehead, illustrating fatigue and brain fog after COVID-19 illness.
Patient voices were heard! The ADDRESS-LC trial on Bezisterim is now open to those who have been living with #LongCovid for more than 2 years. Weโre glad to see BioVie's trial continues to reflect patient + scientific input! Find a trial site near you:
addresslongcovid.com/sites
Thanks for tuning in! We can pass that question along.
24.09.2025 17:02 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0Patient voices were heard! The ADDRESS-LC trial on Bezisterim is now open to those who have been living with Long COVID for more than 2 years. Weโre glad to see Biovieโs trial continues to reflect patient + scientific input!
Find a trial site near you: addresslongcovid.com/sites/
Check out this article on a London photo exhibition by Jeremy Jeff depicting life with #MECFS. The exhibition, presented by The ME Association, will be on display Sept. 24-28.
www.londonworld.com/community/th...
#MEAwarenessHour
photo of Emily Taylor (brown hair, glasses) with quote text: "Solve joined this call to NIH leadership because people with ME/CFS, Long Covid, and related illnesses like POTS and MCAS deserve research that truly reflects their realities. By ensuring clinical trials account for the differences among patients, we can accelerate discoveries that lead to real treatments and improved care. This is a moment of great responsibility, and we are committed to making sure science rises to meet the needs of millions still waiting for answers.โ
Solve and partner organizations urge NIH leadership to include subgroup tracking and analysis for #MECFS (using IOM criteria), #POTS & other forms of #dysautonomia, and #MCAS in the RECOVER TLC trials.
Read our letter here:
ow.ly/CHME50WUcx1
#United4Me
IACFS/ME Research and Clinical Conference, (virtual) Oct 22-25, 2025 On Oct. 23rd, Solve & the Brain Inflammation Collaborative (BIC) will co-present an IACFS/ME panel on our participant-centered digital health platform for ME, Long Covid, and related conditions. Join us to learn how digital tools can support inclusive research and real-world data collection. Register at IACFSME.ORG Proud Supporting Sponsor: Solve M.E. logo
Solve is a proud sponsor of the virtual International #ChronicFatigueSyndrome / #MyalgicEncephalomyelitis (#IACFSME) 17th Research and Clinical Conference (Oct. 22-25), & will co-present a panel with our partners at Brain Inflammation Collaborative (BIC).
Register for IACFSME: ow.ly/mxz950WRARt
Webinar promotional graphic titled โThe Unified Platform: Advancing Research Across ME/CFS, Long Covid, and Other Chronic Conditions.โ Event date: Tuesday, October 14, 2025, at 3 pm PT / 6 pm ET. Featured speakers with headshots: Megan L. Fitzgerald, PhD, Principal Investigator & Lived Experience Expert; Christy Jagdfeld, Co-founder and CEO of Brain Inflammation Collaborative; Chris Nowak, Platform Architect & Caregiver to a Person with ME/CFS, CareEvolution; and Emily Taylor, President of Solve M.E. Logos for Solve M.E., Unhide, Solve Together, and Brain Inflammation Collaborative are at the bottom.
Register for our free Oct. 14 webinar, โThe Unified Platform: Advancing Research Across #MECFS, #LongCovid, & Other Chronic Conditions" w/ Christy Jagdfeld & Megan L. Fitzgerald PhD (BIC) & Chris Nowak to learn how you can get involved.
Sign up: ow.ly/luTT50WGMXV
You are invited to join #MEAction for our latest Pillow Writersโ Salon on Thursday, September 18th at 11am PT/2pm ET/7pm UK.
Register: us06web.zoom.us/meeting/regi...
More about Pillow Writers: pillowwriters.wordpress.com
#pwME #MECFS #spoonie #WritingCommunity #LongCovid #MyalgicE
Happening today at 3pm PT / 6 pm ET.
You can still register at
ow.ly/ReIW50WApvO
Solve & @batemanhornecenter.bsky.social co-hosted a webinar series on Severe ME. In this ep. dedicated to removing barriers to research for people with #SevereME, sabrinapoirier.bsky.socialโฌ & @putrinolab.bsky.social discuss how patients are reshaping research.
Watch: https://ow.ly/xcAE50WNhXP
We also want to take a moment to acknowledge the recent shooting at the CDC and send our heartfelt support to our colleagues there as they process and heal from this tragedy. Our thoughts are with all those affected.
15.08.2025 21:51 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0
A teal blue graphic with white lettering adn orange and white decorative shapes reads, "Thank you message to Dr. Beth Unger for your years of service to the ME/CFS community. Your work at the CDC has helped protect vital programs, expand research, and keep patients' needs at the center. Read the open letter from our community -- link in bio."
Today, we join the #MECFS community in thanking Dr. Beth Unger for her years of dedication at the CDC. Her leadership helped protect the ME/CFS program, expand research, and elevate patient voices.
๐ Read our open letter of gratitude: ow.ly/Im0a50WGS3m
Pt. 2 of the Severe #MECFS Webinar Series co-hosted by
@batemanhornecenter.bsky.social + Solve. The session covers legal planning for those with severe ME & their caregivers. Topics include SSDI, SSI, POA, guardianship & more.
ow.ly/mGAP50WGMBf
#SevereMEAwareness #DisabilityRights
The unhideยฎ + Solve Together Unified Platform makes clinical research simple. Join from anywhere, pick the studies you want, track symptoms, and complete surveysโall on
your phone or computer. Your voice. Your platform. Letโs unhide, together.
www.unhidenow.org
A black and white photo of a hand resting on a pillow, lighted by a flash in an otherwise dark bedroom.
On this Severe ME Awareness Day, I present to you my newest exhibition: โIn the Absence of Lightโ. 1/3
www.aquietstorm.me/in-the-absen...
#MECFS #SevereME #SevereMEday #pwME #Photography
