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Fiona Wood

@mewarrior1.bsky.social

Wife, mum, Severe ME, πŸ’™βœοΈβ™ΏοΈFibromyalgia Observe small things, don't rush, love & forgive #loveyourself #loveothers ❀️ #chronicillnesswarrior1 on X & IG Opinions are my own πŸ€“

500 Followers  |  185 Following  |  151 Posts  |  Joined: 07.08.2024  |  2.071

Latest posts by mewarrior1.bsky.social on Bluesky

2/

This bill risks creating a two-tier system for disabled people.
Disabled voices must be heard, not sidelined.

Vote with principle on 1 July.

#PIP #DisabilityRights #Labour

28.06.2025 11:54 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

1/

🚨 To all @UKLabour MPs:

You hold 403 seats.
127 of you have now signed the amendment challenging the proposed changes to disability benefits.

That’s not a minor rebellion β€” it’s a movement.

28.06.2025 11:54 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0

To all Labour MPs
@teamlabouruk.bsky.social

28.06.2025 11:41 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

2/

rushed through without consultation.

@JessicaToale -my MP
@areyoflight

Please share & tag your MP and anyone who should know about this!
Thank you πŸ’™

#WelfareNotWarfare
#TakingThePIP
#ReformNotRevenge
#ProtectLCWRA

28.06.2025 11:38 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

1/ To all @UKLabour MPs β€” don’t be pressured into voting YES on July 1st.
Reform is needed, but not like this. The recent U-turn protects current PIP claimants while unfairly targeting future applicants. That’s not reform β€” it’s division.

We need leadership that listens, not legislation

28.06.2025 11:38 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

3/

#ReformNotRevenge #WelfareNotWarfare
#TakingThePIP
#ProtectLCWRA

28.06.2025 11:06 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Please watch the Instagram post below. It reflects the real fears and voices of disabled people who will be directly affected by this bill.

We need leadership that listens, not legislation rushed through without consultation.

instagram.com/reel/DLaa3V6I9…

28.06.2025 11:06 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

To all @UKLabour MPs β€” don’t be pressured into voting YES on July 1st.
Reform is needed, but not like this. The recent U-turn protects current PIP claimants while unfairly targeting future applicants. That’s not reform β€” it’s division.
1/

28.06.2025 11:06 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

@aaronca11.bsky.social how are you? Your account on X seems deleted. I’m just worried
@thecanaryuk.bsky.social ? ?

04.06.2025 18:40 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
a blue candle with the words always a hero on it ALT: a blue candle with the words always a hero on it

2/
for whatever reason whether you knew them or not. Perhaps sit quietly for a minute of two to think of them & their families πŸ’™

#WeRemember 🀍

12.05.2025 12:20 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

As this is #MEAwarenessDay let’s remember those who are no longer with us.
We pay tribute to them for their courage and fighting this truly awful undermined disease.

Please post in the comments who you miss because they died due to ME or connected to it
1/

12.05.2025 12:20 β€” πŸ‘ 6    πŸ” 4    πŸ’¬ 2    πŸ“Œ 0

It is definitely relative πŸ’―
Even during my current severe stage it’s changed within it. I can do far less now than two years ago.
I do my best not to look at what others can or can’t do, & not to compare myself to myself even a few months ago.
Our illness journey is not linear.

09.05.2025 13:28 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I found this hard to answer.
Intrinsically I am still me, as in my nature. In many ways that has increased bc I have more time, but then my memory loss can inhibit me πŸ˜‚
I’m more confident in who I am as a person bc I’ve had to learn how to stand my ground with doctors!
Practically, nothing left!

27.04.2025 09:53 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Great video! Loved that they were all living together! Love your commentary too Chris!

27.04.2025 09:41 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Our two dogs go to my husband or carer around 11am everyday for their morning treat πŸ˜‚

27.04.2025 09:38 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

πŸ™‹β€β™€οΈ I want one even if I don’t go anywhere other than hospital but they definitely need to see it!

26.01.2025 18:26 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Thank you πŸ’™

21.01.2025 13:29 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

It’s really good. May we use it? X

21.01.2025 13:13 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
x.com

2/

think that means we can’t be proud of the UK πŸ‡¬πŸ‡§

However, Musk was so incredibly enthusiastic to the point you’d think he was the new president πŸ˜‚
I wonder if that’s his agenda?

x.com/AutismCapita...

21.01.2025 13:12 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
x.com

1/
I’m not especially knowledgeable on our politics let alone the US.
I do not agree with lots that T says, but I did like his enthusiasm for his country. That felt authentic.
We seem to have lost pride in our country somewhat. I believe in inclusion of different faiths, cultures etc but I don’t

21.01.2025 13:12 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Good luck πŸ‘

21.01.2025 11:19 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

2/
the exercise until you have returned to a mild baseline.
I exercised for 3 years after onset of ME but wasn’t diagnosed. It slowly & surely made me more ill having more severe PEM. Eventually I stopped bc I couldn’t do it.
Please take care of yourself especially whilst still symptomatic
πŸ’™

21.01.2025 11:13 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

1/
Hi Bobby
I have severe ME and been ill for over 15 years, last 8 severe.
You mentioned you have PEM. Have you been diagnosed with ME as PEM is the hallmark symptom of ME.
Graded exercise is not seen as a treatment for ME or LC and can be quite dangerous for you.
If you are in PEM please forget

21.01.2025 11:13 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Totally empathize! I miss cleaning πŸ€·β€β™€οΈπŸ˜‚
Desperate to sort my cupboards, but I’m bed bound & for some reason crashing even more. Could be the UTI. Two weeks of antibiotics now finished and UTI has now gone according to my dip stick this morning.
Understand your frustration πŸ’™

21.01.2025 10:58 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Please take your medication ie, histamines because you need a constant dose to help block the mast cells.

As for eating high histamine foods, I cave in too. Christmas was horrendous, but (almost) getting my head around it again as from Saturday!

It’s done & tomorrow is a new day πŸ˜‰ πŸ’™

21.01.2025 10:53 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

I’d drop the CFS personally and just say ME.
I quite like ME Unravelled as someone said ⬆️
Good luck πŸ’™

21.01.2025 10:48 β€” πŸ‘ 5    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

4/

@jessicatoale.bsky.social as my MP, please help.

Please re-post tagging others in.

#SaveSophia

@karenlhargrave.bsky.social
@oonaghcousins.bsky.social
@swastrosarah.bsky.social
@rorpreston.bsky.social

07.01.2025 19:16 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

3/
the basic necessity as nutrition onto the agenda of government and the NHS.
All I can physically do is this!
Re-post & tag people into important posts such as the real life, real time lived experience of Sophia and @tenacious_mumma

07.01.2025 19:16 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 2    πŸ“Œ 0

2/
nutrition is being blatantly ignored by our government and health services.
us.

I’m sure if interviewed by journalists the response would point to the allusive Delivery Plan!
When will β€˜they’ stop the BS and actually save lives!

@georgemonbiot.bsky.social
please please help us to get

07.01.2025 19:16 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

1/copied from X

So very accurate Carole Bruce.

I’m so outraged I can hardly adequately express my feelings to this madness of allowing human beings to starve to death.
I wish with all my heart I was exaggerating or catastrophizing but the reality is that receiving life giving absolutely essential

07.01.2025 19:16 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

@mewarrior1 is following 20 prominent accounts