@aaronca11.bsky.social
Billboard campaign/fundraiser here https://www.notrecovereduk.org
We were trending on Twitter/X earlier!
Thanks everyone for supporting the #WhereIsIt campaign! Some pics of the van below! #LongCovid
TWITTER INSTRUCTIONS 7PM TONIGHT #LongCovid #Covid #MECFS
18.03.2025 11:07 — 👍 3 🔁 2 💬 0 📌 0#LongCovid
18.03.2025 10:39 — 👍 4 🔁 0 💬 0 📌 0LONDON VOLUNTEERS NEEDED #LongCovid
16.03.2025 21:22 — 👍 1 🔁 0 💬 0 📌 0An incredible group of people I met today! Everyone was so nice and even though the public weren’t the most receptive to the leaflets (to be fair I think any leaflet campaign is tough) none of the volunteers complained!
Hope to meet everyone again! ❤️❤️
We handed out leaflets for @longcovidkids.bsky.social and a clean air petition as well as testimonials of those with #LongCovid too!
15.03.2025 20:37 — 👍 19 🔁 4 💬 0 📌 1
Some pics from the Edinburgh #LongCovid leaflet handout today!!!
15.03.2025 20:34 — 👍 16 🔁 6 💬 0 📌 0Thanks to our amazing @LongCovidSOS volunteer @sarahbarleymc.bsky.social as well as peerless #LongCovid advocates @aaronca11.bsky.social & Margaret O’Hara for sharing their stories and calling for change in this excellent article for #LongCovidAwarenessDay 👏
🩵🩶🖤
#LongCovid anyone in North West of England willing to be interviewed on camera for ITV News?
14.03.2025 01:01 — 👍 4 🔁 5 💬 0 📌 1outside the pub The Swan on the north west exit from the Piccadilly / District line station. (Or on the corner of King St / Hammersmith Grove) from 11am-12:30pm.
46 Hammersmith Broadway, Greater, London W6 0DZ’
Please take along any banners, leaflets, merchandise etc!
#LongCovid PLEASE SHARE
@DeniseColliver (Twitter) will be holding up a banner and placards this Saturday for #LongCovidAwarenessDay and anyone who can go along and show support and solidarity would be appreciated!
Details next post -
Final graphic of the four leaflet drops for #LongCovid awareness!
Volunteers welcomed!
EDINBURGG
WARWICKSHIRE
CHISWICK LONDON
CENTRAL LONDON
And another leaflet group!! Anyone in Kenilworth?! #LongCovid
08.03.2025 14:03 — 👍 2 🔁 1 💬 0 📌 0
VOLUNTEERS NEEDED IN CHISWICK AND KENILWORTH UK!!
08.03.2025 18:50 — 👍 1 🔁 0 💬 0 📌 0
Thank you @BFWoodburn for making this for us!
If anyone wants to share this graphic across social media (if someone could post on Reddit it would be amazing) or if they want to print it out and leave in a doctors office, hospital waiting area, library etc then feel free!
LONDON VOLUNTEERS NEEDED
Due to the demand for home delivered leaflets and the number of responses to our Edinburgh campaign we have decided to run another leaflet campaign in London!
A new phase II RCT for #LongCOVID / #PostCOVID in the US by the company BioVie with their drug Bezisterim.
clinicaltrials.gov/study/NCT068...
Bezisterim is currently also being studied in Alzheimer’s and Parkinson’s. This is what it says on BioVie’s website about their LC trial.
Excellent article encompassing individual stories, input from Dr Heightman @uclh with insights from their #LongCovid clinic & Stimulate-ICP research, @LaylaMoran speaking up for #pwLC & health workers, the lack of treatment & support, & #LongCovidKids
www.theguardian.com/society/2025...
oh yes. Her.
01.03.2025 18:55 — 👍 2 🔁 0 💬 0 📌 1I wonder how the event organisers feel about him appearing on their panel and telling lies to the host and audience members. 🤔
01.03.2025 18:29 — 👍 2 🔁 0 💬 1 📌 0
Paul Garner and his #LongCovid story being quoted for the 50th time in mainstream media.
The same Paul Garner who attended a panel in October where the subject was researchers being ‘silenced’ by the media.
www.theguardian.com/society/2025...
#LongCovid
28.02.2025 17:34 — 👍 5 🔁 1 💬 0 📌 0
The Lightning Process is back!
‘This study suggests that the lightning process is a promising and safe intervention for symptoms of long COVID’
journals.lww.com/jfmpc/fullte...
ah man, uhh i’ll go for Premium! If it’s not here for Awareness Day I can just wear it to other leaflet events anyway. Even said to Helen it looks so good i’d probably wear it all the time anyway 🤣
27.02.2025 19:08 — 👍 3 🔁 0 💬 2 📌 0oh f**k 🤣🤣🤣
as long as its here for Awareness Day I can wait lol
waiting until i get paid at midnight and that hoodie is in my basket 😂😂😂
27.02.2025 18:27 — 👍 3 🔁 0 💬 1 📌 0
says the people behind these beauties
www.longcovidsos.org/merch
says the people behind these beauties
www.longcovidsos.org/merch
Keep the photos/stories coming. #LongCovid #MECFS
March 15th main leaflet distribution in London and Edinburgh.
You can also order leaflets for free if you want to do your own handout in your local town/city.
Let us know!
More to come from @lcmebillboards.bsky.social regarding a Digivan too
