It can be so hard finding the right people. I struggled for a long time but got there eventually and hope you do too β€οΈ
23.11.2025 14:36 β π 1 π 0 π¬ 0 π 0@neuro-observant.bsky.social
Neurodivergent. LGBTQ+ π Passionate about autism advocacy, mental health, and research. Community volunteer. Love π, PPI, art and learning Creator of this popular PPI resource (used by research orgs & universities globally): tiny.cc/PPIdiagram
It can be so hard finding the right people. I struggled for a long time but got there eventually and hope you do too β€οΈ
23.11.2025 14:36 β π 1 π 0 π¬ 0 π 0Glad you found them! π Sounds like theyβve made the world of difference β€οΈ
23.11.2025 14:35 β π 1 π 0 π¬ 0 π 0You can be in a room full of people and still feel lonely
And when youβre autistic, that feeling can be even louder
But everything changes the moment you find your people - the ones who get you, celebrate you, and make the world feel a little less overwhelming β€οΈ
Perfect! π€© Iβve seen these around and theyβre such a nifty idea :)
22.11.2025 15:13 β π 2 π 0 π¬ 0 π 0Aww, hope sheβs ok!
21.11.2025 13:30 β π 1 π 0 π¬ 1 π 0Yes exactly! The hold times can be really stressful and it really is a lot of inefficient repetition π© I often struggle to hear what theyβre saying too, unlike written communication where you have all the words in front of you and can read at your own pace
21.11.2025 00:34 β π 1 π 0 π¬ 0 π 0Yeah, maybe! Occasionally I find it helpful but there really should be more than one option so itβs not the only way π
21.11.2025 00:30 β π 2 π 0 π¬ 0 π 0Itβs wild that in this day and age, some companies still say the only way to reach them isβ¦ the phone
For autistic people, thatβs not a small ask
A βsimpleβ phone call can mean anxiety spikes, rehearsing sentences, overwhelming dread, adrenaline crashes, and many hoursβ worth of energy gone π’
Aww, how lovely!
20.11.2025 16:08 β π 2 π 0 π¬ 1 π 0Thank you β€οΈ Itβs all very stressful π
19.11.2025 00:59 β π 1 π 0 π¬ 0 π 0The autistic experience of having far too many co-occurring conditions, all of which worsen with stressβ¦
Including the neverending stress of being autistic in a neurotypical society
E.g.
- migraines
- gastrointestinal issues
- chronic fatigue syndrome
- anxiety disorders
- sleeping problems
That is⦠surprising
14.11.2025 21:30 β π 0 π 0 π¬ 1 π 0Did you knowβ¦?
Over 50% of autistic adults are diagnosed with an anxiety disorder in their lifetime
Causes of anxiety for autistic people include:
- sensory issues
- feeling misunderstood
- having to mask
- social challenges
- information overwhelm
- managing emotions
- unexpected changes
differ (diverge) from the norm/ average and thatβs bad
13.11.2025 01:15 β π 1 π 0 π¬ 0 π 0Yeah, I know what you mean! But, to add an extra layer, once it becomes βNEUROdivergentβ, it actually doesnβt bother me anymore. I guess βdiverseβ can be less jarring because it just implies variety/ richness, whereas βdivergentβ can feel more judgmentalβ¦ like we
13.11.2025 01:15 β π 1 π 0 π¬ 1 π 0βRoom for acceptance without the need for labellingβ is a very good way to put it. I personally find βneurodivergentβ less stigmatising as a term but have also benefitted from more specific labelling in certain contextsβ¦ Itβs definitely a complex and nuanced topic
12.11.2025 21:06 β π 3 π 0 π¬ 0 π 0Great to hear itβs of interest! π
12.11.2025 21:01 β π 1 π 0 π¬ 0 π 0100%! The number of times this has happened to me just this year π«
12.11.2025 17:47 β π 2 π 0 π¬ 0 π 0Research paper in full:
journals.sagepub.com/doi/10.1177/...
Authors: Aimee Grant, Jennifer Leigh, @drmbothapsych.bsky.social, Stephen J Macdonald, Kathryn Williams, Gemma Williams, Kieran Rose, @annmemmott.bsky.social and Amy Pearson
Based on an article in The Conversation by @draimeegrant.bsky.social, @dramypearson.bsky.social and Jennifer Leigh
theconversation.com/what-autisti...
Recommendations:
Those providing services to neurodivergent people should:
- Mirror each individual neurodivergent person's language choices
- Use neurodiversity-related terminology correctly
βInstead of replacing those words, we should focus on reducing prejudice and discrimination against neurodivergent people, and also on using language that reflects respect and understandingβ
12.11.2025 17:28 β π 8 π 0 π¬ 1 π 0βOur research shows that while umbrella terms like neurodivergent can create community and belonging, they shouldnβt replace more specific identities such as autism or ADHD. Both have an important placeβ
12.11.2025 17:28 β π 8 π 0 π¬ 1 π 0β¨New research
Language shapes how others see us. So, what do neurodivergent people think of the words βneurodiversityβ & βneurodivergentβ?
- mixed views
- important that itβs used correctly (it often isnβt!)
- for some, itβs a safe umbrella term
- for others, it can be too broad or add to stigma
Aww no π₯² Still, your contribution was clearly of huge value to the inquiry. What an intriguing and challenging experience overall
12.11.2025 15:56 β π 2 π 0 π¬ 0 π 0Glad the outsides are looking mostly ok! Hopefully less and less pain with each week that passes too β€οΈ
11.11.2025 01:11 β π 1 π 0 π¬ 1 π 0πΌ β€οΈβ¨
10.11.2025 22:35 β π 2 π 0 π¬ 0 π 0The autistic experience of thinking deeply before speakingβ¦ only for the moment to pass because everyone else already jumped in
Sometimes we just need a little more time to process and sort through our thoughts
And when we do speak, itβs with care
#AutismAwareness #inclusion
More children should be introduced to nature early π It can be a wonder to behold and helps ground us whilst reminding us that we exist alongside many, many other living things π±
07.11.2025 23:16 β π 2 π 0 π¬ 1 π 0Love how much you appreciate and treasure nature! Itβs such a precious gift π
07.11.2025 21:43 β π 1 π 0 π¬ 1 π 0