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Louise Ting

@neuro-observant.bsky.social

Neurodivergent. LGBTQ+ 🌈 Passionate about autism advocacy, mental health, and research. Community volunteer. Love 🐈, PPI, art and learning Creator of this popular PPI resource (used by research orgs & universities globally): tiny.cc/PPIdiagram

7,491 Followers  |  1,353 Following  |  3,549 Posts  |  Joined: 03.07.2023  |  2.1377

Latest posts by neuro-observant.bsky.social on Bluesky

It can be so hard finding the right people. I struggled for a long time but got there eventually and hope you do too ❀️

23.11.2025 14:36 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Glad you found them! 😊 Sounds like they’ve made the world of difference ❀️

23.11.2025 14:35 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

You can be in a room full of people and still feel lonely

And when you’re autistic, that feeling can be even louder

But everything changes the moment you find your people - the ones who get you, celebrate you, and make the world feel a little less overwhelming ❀️

22.11.2025 17:36 β€” πŸ‘ 59    πŸ” 8    πŸ’¬ 4    πŸ“Œ 2

Perfect! 🀩 I’ve seen these around and they’re such a nifty idea :)

22.11.2025 15:13 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Aww, hope she’s ok!

21.11.2025 13:30 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Yes exactly! The hold times can be really stressful and it really is a lot of inefficient repetition 😩 I often struggle to hear what they’re saying too, unlike written communication where you have all the words in front of you and can read at your own pace

21.11.2025 00:34 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Yeah, maybe! Occasionally I find it helpful but there really should be more than one option so it’s not the only way πŸ˜•

21.11.2025 00:30 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

It’s wild that in this day and age, some companies still say the only way to reach them is… the phone

For autistic people, that’s not a small ask

A β€œsimple” phone call can mean anxiety spikes, rehearsing sentences, overwhelming dread, adrenaline crashes, and many hours’ worth of energy gone 😒

20.11.2025 16:25 β€” πŸ‘ 45    πŸ” 8    πŸ’¬ 3    πŸ“Œ 0

Aww, how lovely!

20.11.2025 16:08 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Thank you ❀️ It’s all very stressful πŸ˜…

19.11.2025 00:59 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

The autistic experience of having far too many co-occurring conditions, all of which worsen with stress…

Including the neverending stress of being autistic in a neurotypical society

E.g.
- migraines
- gastrointestinal issues
- chronic fatigue syndrome
- anxiety disorders
- sleeping problems

18.11.2025 17:08 β€” πŸ‘ 51    πŸ” 6    πŸ’¬ 6    πŸ“Œ 1

That is… surprising

14.11.2025 21:30 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Did you know…?

Over 50% of autistic adults are diagnosed with an anxiety disorder in their lifetime

Causes of anxiety for autistic people include:

- sensory issues
- feeling misunderstood
- having to mask
- social challenges
- information overwhelm
- managing emotions
- unexpected changes

14.11.2025 17:01 β€” πŸ‘ 81    πŸ” 16    πŸ’¬ 5    πŸ“Œ 1

differ (diverge) from the norm/ average and that’s bad

13.11.2025 01:15 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Yeah, I know what you mean! But, to add an extra layer, once it becomes β€œNEUROdivergent”, it actually doesn’t bother me anymore. I guess β€œdiverse” can be less jarring because it just implies variety/ richness, whereas β€œdivergent” can feel more judgmental… like we

13.11.2025 01:15 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

β€œRoom for acceptance without the need for labelling” is a very good way to put it. I personally find β€œneurodivergent” less stigmatising as a term but have also benefitted from more specific labelling in certain contexts… It’s definitely a complex and nuanced topic

12.11.2025 21:06 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Great to hear it’s of interest! 😊

12.11.2025 21:01 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

100%! The number of times this has happened to me just this year 🫠

12.11.2025 17:47 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Research paper in full:

journals.sagepub.com/doi/10.1177/...

Authors: Aimee Grant, Jennifer Leigh, @drmbothapsych.bsky.social, Stephen J Macdonald, Kathryn Williams, Gemma Williams, Kieran Rose, @annmemmott.bsky.social and Amy Pearson

12.11.2025 17:28 β€” πŸ‘ 11    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0
Preview
What autistic people – and those with ADHD and dyslexia – really think about the word β€˜neurodiversity’ A new UK survey of more than 900 neurodivergent adults has revealed strong feelings about the language of neurodiversity.

Based on an article in The Conversation by @draimeegrant.bsky.social, @dramypearson.bsky.social and Jennifer Leigh

theconversation.com/what-autisti...

12.11.2025 17:28 β€” πŸ‘ 11    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Recommendations:

Those providing services to neurodivergent people should:

- Mirror each individual neurodivergent person's language choices

- Use neurodiversity-related terminology correctly

12.11.2025 17:28 β€” πŸ‘ 7    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

β€œInstead of replacing those words, we should focus on reducing prejudice and discrimination against neurodivergent people, and also on using language that reflects respect and understanding”

12.11.2025 17:28 β€” πŸ‘ 8    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

β€œOur research shows that while umbrella terms like neurodivergent can create community and belonging, they shouldn’t replace more specific identities such as autism or ADHD. Both have an important place”

12.11.2025 17:28 β€” πŸ‘ 8    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

✨New research

Language shapes how others see us. So, what do neurodivergent people think of the words β€œneurodiversity” & β€œneurodivergent”?

- mixed views
- important that it’s used correctly (it often isn’t!)
- for some, it’s a safe umbrella term
- for others, it can be too broad or add to stigma

12.11.2025 17:28 β€” πŸ‘ 19    πŸ” 4    πŸ’¬ 6    πŸ“Œ 1

Aww no πŸ₯² Still, your contribution was clearly of huge value to the inquiry. What an intriguing and challenging experience overall

12.11.2025 15:56 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Glad the outsides are looking mostly ok! Hopefully less and less pain with each week that passes too ❀️

11.11.2025 01:11 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

🐼 ❀️✨

10.11.2025 22:35 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

The autistic experience of thinking deeply before speaking… only for the moment to pass because everyone else already jumped in

Sometimes we just need a little more time to process and sort through our thoughts

And when we do speak, it’s with care

#AutismAwareness #inclusion

10.11.2025 17:14 β€” πŸ‘ 52    πŸ” 11    πŸ’¬ 4    πŸ“Œ 0

More children should be introduced to nature early πŸ™‚ It can be a wonder to behold and helps ground us whilst reminding us that we exist alongside many, many other living things 🌱

07.11.2025 23:16 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Love how much you appreciate and treasure nature! It’s such a precious gift πŸ’–

07.11.2025 21:43 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

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