The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
20.02.2026 15:04 — 👍 1 🔁 0 💬 0 📌 0
In our blog post, Clinical Research Coordinator Ashlyn O'Halloran outlines the UNICORN study experience and activities.
Read now at the link in our bio!
18.02.2026 15:46 — 👍 1 🔁 0 💬 0 📌 0
📰 Are you subscribed to the Penn FTD Center newsletter?
Use the link in our bio to stay up to date on our latest updates, educational events, and research advancements!
17.02.2026 14:27 — 👍 1 🔁 0 💬 0 📌 0
Emma Rhodes, PhD, Penn FTD Center’s Neuropsychologist & Assistant Professor has been inducted to the International Neuropsychological Society (INS) their inaugural class of fellows (FINS).
Congratulations, Emma! 🎉
16.02.2026 16:04 — 👍 2 🔁 0 💬 0 📌 0
The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
13.02.2026 18:44 — 👍 0 🔁 0 💬 0 📌 0
Last chance to apply for the FTD CRLI! Applications close tomorrow!
The Penn FTDC and @theaftd.bsky.social co-host this virtual program that empowers individuals diagnosed with FTD, their caregivers and loved ones to be strong advocates in the field of FTD research.
Click the link in bio!
12.02.2026 18:28 — 👍 0 🔁 0 💬 0 📌 0
Penn FTD Center Staff Highlight 🌟
Marianthi Harerasis a Clinical Research Coordinator at the Penn FTD Center. Marianthi works on the core UNICORN protocol and is the coordinator for the ancillary PET studies.
📍Read more details on Marianthi in our blog post! Link in bio!
10.02.2026 14:52 — 👍 1 🔁 0 💬 0 📌 0
Register now for the sixth annual virtual familial conference, Uncovering the Genetics of Familial FTD/ALS, on Wednesday, February 25, 2026, from 1:00PM-4:00PM EST.
Click the link in our bio for registration and more details!
09.02.2026 14:42 — 👍 1 🔁 0 💬 0 📌 0
FTD Fact Friday: FTD impacts approximately 60,000 patients in the United States.
The Penn FTD Center is here to help!
📍 Check out our Support & Resources
📰 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
06.02.2026 16:58 — 👍 1 🔁 0 💬 0 📌 0
FTD Fact Friday: FTD is one of the most common causes of early onset dementia worldwide. The Penn FTD Center is here to help!
📍 Check out our Support & Resources
📰 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link!
30.01.2026 16:01 — 👍 1 🔁 0 💬 0 📌 0
What Is Frontotemporal Dementia?
Its symptoms are very different from Alzheimer’s disease, and it is frequently misdiagnosed
The Penn FTD Center is featured in an article from AARP discussing FTD, symptoms, and support.
Read the article now at the link in our bio or below 👇
www.aarp.org/health/condi...
29.01.2026 14:37 — 👍 2 🔁 1 💬 0 📌 0
Penn FTDC and @theaftd.bsky.social are hosting the FTD CRLI! This virtual program empowers individuals diagnosed with FTD, their caregivers and loved ones to be strong advocates in the field of FTD research by educating them on the clinical research process.
Click the link in our bio!
28.01.2026 14:25 — 👍 1 🔁 1 💬 0 📌 1
FTD Fact Friday: Although age of onset ranges from 21 to 80, most FTD cases occur between 45 and 64.
📍 Check out our Support & Resources
📰 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
23.01.2026 16:50 — 👍 1 🔁 0 💬 0 📌 0
In our January blog post, Former Clinical Research Coordinator Chigozie Ibe reviews what takes place in a Research MRI and how to prepare.
Read now at the link in our bio!
22.01.2026 14:22 — 👍 1 🔁 0 💬 0 📌 0
The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link in bio for more!
16.01.2026 15:13 — 👍 1 🔁 0 💬 0 📌 0
📢Looking for the latest news from the Penn FTD Center? Want to stay up-to-date on research and trials?
Make sure you are following the Penn FTD Center on all your social platforms.
📍All of our social media accounts can be found at the link in our bio!
14.01.2026 16:28 — 👍 1 🔁 0 💬 0 📌 0
Apply today to become an FTD CRLI Research Ambassador!
The FTD Clinical Research Learning Institute is a virtual program that empowers individuals diagnosed with FTD, their caregivers and loved ones. Applications close February 13th, 2026.
Link in bio to for the application!
12.01.2026 20:59 — 👍 1 🔁 0 💬 0 📌 0
Penn FTD Center Staff Highlight 🌟
Ashlyn O’Halloran is a Clinical Research Coordinator at the Penn FTD Center. Ashlyn works on the center’s observational repository study UNICORN.
📍Read more details on Ashlyn and wish her a happy birthday in the blog post! Link in our bio!
12.01.2026 15:29 — 👍 1 🔁 0 💬 0 📌 0
The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
09.01.2026 18:35 — 👍 0 🔁 0 💬 0 📌 0
Interested in becoming an FTD Research Ambassador? The Penn FTD Center and Association for Frontotemporal Degeneration will host the 2026 FTD Clinical Research Learning Institute!
Applications for the program will open Jan 12th. For more info, click on the link in our bio!
08.01.2026 16:24 — 👍 1 🔁 0 💬 0 📌 0
Registration is open for the sixth annual virtual familial conference, Uncovering the Genetics of Familial FTD/ALS, on Wednesday, February 25, 2026, from 1:00PM-4:00PM EST.
Register now by clicking the link in our bio!
07.01.2026 14:32 — 👍 1 🔁 0 💬 0 📌 0
Recap the highlights of 2025 with the Penn FTD Center! 🌟
We are wishing you and your loved ones a wonderful holiday season and can't wait to see what 2026 brings!
19.12.2025 16:14 — 👍 1 🔁 0 💬 0 📌 0
📰 Are you subscribed to the Penn FTD Center newsletter?
Use the link in our bio to stay up to date on our latest updates, educational events, and research advancements!
15.12.2025 15:22 — 👍 0 🔁 0 💬 0 📌 0
Penn FTD Center Staff Highlight 🌟
Emily Xie is the Penn FTD Center Clinical Research Project Manager. Emily’s focus lies in coordinating research operations to support both participants and research team.
📍Read more details on Emily in the blog post at the link in our bio!
10.12.2025 15:21 — 👍 1 🔁 0 💬 0 📌 0
In our December blog, Penn FTD Center Clinical Research Program and Operations Lead and Assistant Director Dahlia Kamel, MS provides some helpful tips for navigating the holiday season when a loved one is living with FTD.
Our latest blog post can be found at the link in our bio!
09.12.2025 18:27 — 👍 0 🔁 0 💬 0 📌 0
FTD Fact Friday: FTD that runs in a family is often related to variants (permanent changes) in certain genes. The Penn FTD Center is here to help!
📍 Check out our Support & Resources
📰 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
05.12.2025 15:24 — 👍 1 🔁 0 💬 0 📌 0
📢Looking for the latest news from the Penn FTD Center? Want to stay up-to-date on research and trials?
Make sure you are following the Penn FTD Center on all your social platforms.
📍All of our social media accounts can be found at the link in our bio!
04.12.2025 14:19 — 👍 0 🔁 0 💬 0 📌 0
A podcast about living well with an aging brain, released every other Tuesday. Hear a wide range of stories from aging experts to patients and caregivers.
Listen to The Age of Aging on Spotify, Apple Podcasts, or wherever you get your podcasts.
The Alzheimer's Association International Society to Advance Alzheimer's Research and Treatment
The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure for frontotemporal degeneration. Numbers have power. Join the Registry. Advance the science. #EndFTD www.ftdregistry.org
Chief Scientific Officer for Penn Medicine.
This account is maintained by staff in the Office of the CSO. http://bit.ly/2gbO0s4
The Alzheimer’s Association is the leading voluntary health organization in Alzheimer's care, support and research. #ENDALZ
alz.org
Supporting family caregivers since 1977 🫶 We’ve got the tools, tips, and resources to help you care for loved ones 🌐 caregiver.org #FamilyCaregiving
We're a national nonprofit organization that helps individuals and families facing Dementia through Awareness, Research & Enrichment.
A Penn Medicine organization evaluating, diagnosing and researching Alzheimer's disease and related diseases.
Fighting ALS on every front through research, care services, and advocacy.
Every day we support people affected by motor neurone disease. Because with MND, every day matters.
Official account for the University of Pennsylvania. Advancing discovery and opportunity toward a better future for all. Managed by the Office of University Communications.
This is the official account for Penn Medicine, the University of Pennsylvania Health System.
AFTD envisions a world with compassionate care, effective support, and a future free of Frontotemporal Degeneration (FTD). #EndFTD
https://www.theaftd.org/
official Bluesky account (check username👆)
Bugs, feature requests, feedback: support@bsky.app
