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SusannaD

@susannad.bsky.social

Miljöinriktad agronom med samhällsintresse, gård, gitarr o pensel. Efter ME-skov 2015 lever jag så halvdant det går med 20%-igt energikonto, hjärndimma, POTS mm. En av de #MillionsMissing Mer biomedicinsk ME-forskning och vård!

89 Followers  |  155 Following  |  5 Posts  |  Joined: 06.10.2023  |  2.0362

Latest posts by susannad.bsky.social on Bluesky

The reason why protest is essential to political change is that only when people *see* the scale of discontent do they realise they are not alone, and that the tide can turn.

20.04.2025 07:05 — 👍 2575    🔁 686    💬 39    📌 25
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Russia Asks to Buy Boeing Jets With Frozen Assets in US Talks Russia has asked the US to let it buy Boeing Co. aircraft using money from billions of dollars in frozen state assets once there’s a ceasefire in Ukraine, according to a person in Moscow familiar with...

Russia Asks to Buy Boeing Jets With Frozen Assets in US Talks. It would be absolutely outrageous if the US agrees to this instead of handing over the Russian assets for compensation to Ukraine. I seriously hope this isn’t even being considered.

www.bloomberg.com/news/article...

16.04.2025 10:25 — 👍 307    🔁 121    💬 30    📌 9
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Sign the Petition Stop the Destruction of the World-Renowned Dartington Forest Garden

Please sign the petition. This crazy decision looks eminently reversible, if enough people step up.
www.change.org/p/stop-the-d...

14.03.2025 10:11 — 👍 206    🔁 107    💬 14    📌 6
Panel discussion: Bill Browder on an Emboldened Putin and Isolated Ukraine In partnership with The Disorder Podcast

Please join me and @billbrowder.bsky.social and Jason Pack at the Frontline Club in London on March 21 for a panel on Ukraine-Russia now that Trump is cosying up to Putin - we'll be talking about sanctions and the future of Russia's $300 billion in frozen assets www.eventbrite.co.uk/e/panel-disc...

11.03.2025 12:59 — 👍 65    🔁 18    💬 2    📌 0
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ME/CFS is a severely disabling neurological disease. It has been largely ignored by the medical community, despite the large scale of the problem. Pre-covid estimates suggest 50–60 million people affected worldwide—more than the entire population of Canada. #MEAwarenessHour

12.02.2025 20:03 — 👍 7    🔁 3    💬 1    📌 0
08.02.2025 02:05 — 👍 0    🔁 0    💬 0    📌 0
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The criticism against the studies on CBT and exercise for patients with #MECFS has often been dismissed as an expression of anti-psychiatric sentiment. Did you know that many psychologists openly have rejected these trials and the psychologization of #pwME? #MEAwarenessHour

08.01.2025 20:07 — 👍 7    🔁 3    💬 1    📌 1
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Sign the Petition Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

Cochrane about the 2019 exercise review for #MECFS: ”We acknowledge that the publication of this amended review will not resolve all the ongoing questions about this globally important health topic.” Please sign this petition to retract the review!

www.change.org/p/cochrane-w...

18.12.2024 15:18 — 👍 6    🔁 2    💬 0    📌 0

Det är visst advent och grejer. 🕯️Men jag vill be dej om hjälp ändå. Särskilt om du eller någon i din närhet värvats till forskning om fatigue vid blandade diagnoser. (Tråd)

01.12.2024 12:49 — 👍 11    🔁 8    💬 1    📌 3
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That BMJ review of Long Covid therapies does not show what it says it does The BMJ have published a “living systematic review” of interventions for the management of Long Covid. It sets out to gather all relevant studies, and to comb their findings in order to see what works...

Professor Brian Hughes slams a flawed review on #longcovid therapies: “First thing to say is that with systematic reviews […] there is always one fundamental rule: namely, Garbage In = Garbage Out.” Always a pleasure to read his analyses!

thesciencebit.net/2024/11/28/t...

30.11.2024 18:53 — 👍 9    🔁 4    💬 0    📌 0

Hur går detta till? 🤔😖

25.11.2024 18:09 — 👍 0    🔁 0    💬 0    📌 0
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Sluta skrämma unga, säger de – men vem är otäck? ”Hoppas du har bra på fötterna när du ger våra barn klimatångest.”

Läs @abjeppsson.bsky.social
Att peka på hot är inte skrämmande. Det är att vara rationell. Att installera ett brandlarm är inte att skrämmas. Det skrämmande är beslutsfattare som lovar fixa 1,5-gradersmålet men sen bryter mot löftet utan att hållas ansvariga
www.aftonbladet.se/nyheter/kolu...

25.11.2024 09:54 — 👍 49    🔁 19    💬 0    📌 0

Video om den stora medicinska skandal i form av negligering av diagnosen, korrupt psykiatrisk forskning, vårdskador, okunskap, spridande av fördomar som ME-sjuka ännu tyvärr tvingas kämpa emot.

Journalister, vårdpersonal politiker .. Väl bekomme!

#svMEcfs #svmed #sfam #svpol

25.11.2024 09:52 — 👍 7    🔁 2    💬 0    📌 0
ME/CFS Scandal Explainer (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)
YouTube video by Broken Battery ME/CFS Scandal Explainer (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)

New Video: @georgemonbiot.bsky.social describes the treatment of #MECFS as "The Greatest Medical Scandal of the 21st century". The video explores the impact of ineffective & harmful treatments & how they were defended by the scientific & media establishment.

youtu.be/RiwX9Y0NbiQ?...

21.11.2024 12:42 — 👍 478    🔁 223    💬 47    📌 51
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Love this ❤️

23.11.2024 22:35 — 👍 12    🔁 7    💬 0    📌 0

Thank you!

25.11.2024 05:31 — 👍 1    🔁 0    💬 0    📌 0
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Tidskriften Allmänmedicin och SFAM refuserar replik För en och en halv vecka sedan publicerade jag ett inlägg där jag påstår att Svensk Förening för AllmänMedicin (SFAM) gör sig till megafon för lobbyister. I inlägget kunde ni läsa om att det public…

Här kommer fortsättningen på den problematiska artikeln i Svensk Förening för AllmänMedicins (SFAM) tidskrift Allmänmedicin. Jag har varit i kontakt med en person som skrivit en replik men nekats publicering i flera instanser.

mitteremitage.wordpress.com/2024/11/07/t...

07.11.2024 11:12 — 👍 7    🔁 4    💬 2    📌 1

Thank you 🙏

07.11.2024 19:12 — 👍 2    🔁 0    💬 0    📌 0

Att företagsledare som säljer kvacksalverimetoder får fritt spelrum i en tidsskrift som kommer påverka en massa läkare är helt horribelt.

Eftersom media i Sverige inte granskar så kommer många av oss att skadas av det här.

Så nu vädjar jag till dig som är läkare att ta del av vad som pågår.

30.10.2024 09:14 — 👍 3    🔁 4    💬 1    📌 0
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They say climate *protesters* are disruptive.
Valencia today.

30.10.2024 22:07 — 👍 1873    🔁 685    💬 28    📌 30

A thread of rest assured.

Historical and contemporary quotes on the importance of rest for people with ME.

#MECFS #pwME #StopRestPace #MedEd #svmed #HistMed #HistoryOfMedicine #PostExertionalMalaise

04.10.2023 20:40 — 👍 50    🔁 23    💬 6    📌 5

Ping @ingrideckerman.bsky.social! Tidsskriften Allmänmedicin har publicerat pseudovetenskaplig desinformation.

27.10.2024 15:52 — 👍 10    🔁 3    💬 2    📌 0
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Maeve Boothby O’Neill died because of a discredited view of ME. How was this allowed to happen? | George Monbiot Chronic fatigue syndrome is as physiological as a broken leg. ​We must learn all we can from this tragic case, says Guardian columnist George Monbiot

1. Abuse and harassment are never acceptable. But this is not the first time I’ve seen an emphasis on abuse and harassment shielding bad science. This is a short thread on how it works.
www.theguardian.com/commentisfre...

21.10.2024 08:24 — 👍 210    🔁 98    💬 6    📌 8

@susannad is following 18 prominent accounts