Sarah's Avatar

Sarah

@sarahlizzylou.bsky.social

She/her, Physio student on hold since Oct 2021 LongCovid/ME πŸ‡¬πŸ‡§ Learning to live with Cognitive Dysfunction 🧠 #FBLC #pwME My Twitter handle was @SarahLizzyLou

804 Followers  |  869 Following  |  152 Posts  |  Joined: 04.10.2023  |  2.2182

Latest posts by sarahlizzylou.bsky.social on Bluesky

Preview
BREAKING: Spain joins the Hague Group to hold Israel accountable over Gaza Comprising 34 countries, Spain has announced its intention to join the Hague Group to hold Israeli occupation accountable for genocide

BREAKING: Spain joins the Hague Group to hold Israel accountable over Gaza

In an unprecedented move, Spain has announced its intention to join the Hague Group to hold Israeli occupation accountable for genocide
www.thecanary.co/global/world...

28.09.2025 16:56 β€” πŸ‘ 108    πŸ” 43    πŸ’¬ 0    πŸ“Œ 1

Try both and see which one you like :)

22.09.2025 16:26 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I am overall. There are a few things I don’t like, for example it struggles on sideways sloping pavements and I’ve skidded a few times there. Also the tires are hard plastic and not the grippiest.
But cost for function, it’s ok xx

22.09.2025 09:27 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

They are really helpful. Good luck ❀️

22.09.2025 09:26 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

I contacted the charity called Access Your Life to ask about recs. After some discussion, they recommended Celtic Therapies & Rehab who bring chairs to your home to try out.
Mine is a Quickie Q50 and it’s 16kg. It does fit in a car boot. Xx

22.09.2025 06:58 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 2    πŸ“Œ 0

Disability equity should be Iron Clad πŸ’ͺ: Treating everyone appropriately, fairly and giving them the same rights and opportunities for πŸ₯ healthy outcomes.
#NoToDogma #NoToStigma

#pwME
I’m exited about πŸ’™πŸ™:
#Justice4ME
Donate to legal campaign: Justice4ME.uk

16.09.2025 00:03 β€” πŸ‘ 4    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Post image

Yesterday was my first day back at uni after 4yrs off sick.

I felt good after, but still took the evening off to rest up.

Everyone in class was lovely and the lecturers all gave me a hug, welcoming me back.

Partner sent me to bed early and made dinner. No PEM so far πŸ™Œ

#LongCovidDiaries #FBLC

16.09.2025 09:31 β€” πŸ‘ 11    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

This is far worse than I ever imagined. Crimes against humanity 😒

14.09.2025 20:50 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Sorry for the late reply. I’ve been resting after the big move to uni.
The electric wheelchair is an absolute game changer.

I’m sorry to hear you’ve plateaued in terms of severity. I really hope you see some improvements soon. It’s so unfair. β€οΈβ€πŸ©Ή

14.09.2025 20:44 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Brain stuff was my worst set of symptoms. LDN really improved a lot of them for me. I’m very lucky, I know it doesn’t work for everyone. And tbh when I was severe I didn’t tolerate it at all. I’m not sure what changed. I feel like so much of this is down to luck and it’s so unfair.

14.09.2025 20:41 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Sorry for the late reply. Been saving spoons while resting after the big move to uni.

Sorry to hear about those big crashes and the plateau. Facial pain sounds really sucky.

I hope you see some improvement soon β€οΈβ€πŸ©Ή

14.09.2025 20:39 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

πŸ’™

11.09.2025 22:06 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Thank Gary! How you doing mate? It’s been a while since I’ve seen your tweets. Hope you’re ok

11.09.2025 22:06 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Thanks Fran πŸ’•
Not spoken to you on Twitter for a while. Have you migrated here now?
Hope you are doing well x

11.09.2025 22:05 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Preview
Cops urged to investigate Israeli president Isaac Herzog for war crimes on his visit to the UK Diplomatic immunity should not stop police from interviewing Isaac Herzog and otherwise investigating him over war crimes

Cops urged to investigate Israeli president Isaac Herzog for war crimes on his visit to the UK

Diplomatic immunity should not stop police from interviewing Isaac Herzog and otherwise investigating him over war crimes, the @icjp.bsky.social said
www.thecanary.co/uk/news/2025...

09.09.2025 09:16 β€” πŸ‘ 81    πŸ” 39    πŸ’¬ 5    πŸ“Œ 2

Thank you Nele πŸ’™πŸ’™πŸ’™

09.09.2025 12:10 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Thank you πŸ₯°

09.09.2025 12:10 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Super excited. After almost four years of Long Covid, I’m returning to university in three days time to finish my degree.

On a part-time basis as I’m still very ill, but it’s a huge milestone.

Wish me luck

09.09.2025 10:14 β€” πŸ‘ 64    πŸ” 1    πŸ’¬ 5    πŸ“Œ 0
Preview
Israel is robbing disabled people in Gaza of their most basic rights The health sector in Gaza is now unable to meet anything more than 1% of the needs of disabled people, thanks to Israel

Israel is robbing disabled people in Gaza of their most basic rights

The health sector in Gaza is now unable to meet anything more than 1% of the needs of disabled people, thanks to Israel
www.thecanary.co/global/world...

03.09.2025 09:47 β€” πŸ‘ 19    πŸ” 15    πŸ’¬ 0    πŸ“Œ 1

Glad the DeCode ME study found some useful stuff

06.08.2025 20:31 β€” πŸ‘ 4    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
ME linked to your genetics - early study indicates
YouTube video by Channel 4 News ME linked to your genetics - early study indicates

The Channel 4 News TV article:

youtu.be/DWCF1_-0yP0

#pwME

06.08.2025 20:28 β€” πŸ‘ 9    πŸ” 2    πŸ’¬ 1    πŸ“Œ 0
Post image

3 episodes in and I don’t think I’m gonna make it πŸ˜‚

12.06.2025 17:26 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Such good news!

11.06.2025 23:47 β€” πŸ‘ 23    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0

But go on Labour, keep messing around with immigration and cutting disability welfare to appease a fascist minority and keep pretending all this doesn’t equate to shooting yourselves and British people in the foot.

4/4

11.06.2025 12:44 β€” πŸ‘ 4    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0

new jobs for the uni disability service have been advertised.

The team was already stretched and now I fear the service won’t be in a fit state to properly support disabled students.

This is just one example of how the rise of right-wing xenophobia in the UK is harmful. 3/4

11.06.2025 12:44 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0

…of international students able to study here. This shortfall means the uni has much less money and therefore has to layoff staff in every department.
It’s unclear what the new disability team will look like. But so far, only one staff member is remaining and no 2/4

11.06.2025 12:44 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0

Rant
Just had my check-in with my uni disability adviser.
Almost every disability service staff member will no longer be working in 2 weeks. The uni is undergoing a massive restructure and cutting staff because changes to (UK) immigration policy has greatly reduced the number 1/4

11.06.2025 12:44 β€” πŸ‘ 4    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0

That sounds exhausting. Hugs πŸ«‚β€οΈβ€πŸ©Ή

04.06.2025 10:44 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Labour is taking the Pip – and disabled people have had enough | Cherylee Houston I am in tears reading the stories of what might happen if these further cuts go ahead, which is why I’ve joined forces with others to demand action, says actor Cherylee Houston

β€œWe as a society need to stand together on this and demand that the government stop taking the Pip.”

#TakingthePip

www.theguardian.com/commentisfre...

27.05.2025 06:51 β€” πŸ‘ 37    πŸ” 17    πŸ’¬ 2    πŸ“Œ 1
I’ve Been Thinking about Love Again
Vievee Francis

Those who live to have it and
those who live to give it.

Of course there are those for whom both are true,
but never in the same measure.

Those who have it to give are
like cardinals in the snow. So easy
and beautifully lit. Some
are rabbits. Hard to see
except for those who would prey upon them:
all that softness and quaking and blood.

Those who want it
cannot be satisfied. Eagle-eyed and such talons,
any furred thing will do. So easy
to rip out a heart when it is throbbing so hard.

I wander out into the winter.
I know what I am.

I’ve Been Thinking about Love Again Vievee Francis Those who live to have it and those who live to give it. Of course there are those for whom both are true, but never in the same measure. Those who have it to give are like cardinals in the snow. So easy and beautifully lit. Some are rabbits. Hard to see except for those who would prey upon them: all that softness and quaking and blood. Those who want it cannot be satisfied. Eagle-eyed and such talons, any furred thing will do. So easy to rip out a heart when it is throbbing so hard. I wander out into the winter. I know what I am.

12.04.2025 17:20 β€” πŸ‘ 22    πŸ” 8    πŸ’¬ 0    πŸ“Œ 0

@sarahlizzylou is following 20 prominent accounts