Just Gerver

I am a NIH RECOVER Patient Rep. Something that comes up frequently is the question of how to inform doctors so they will both take precautions and inform patients. Do you have any suggestions for how to get doctors to act on the knowledge of airborne pathogens?

Changes at NIH Give Political Appointees Greater Power To Fund or Block Research - KFF Health News The National Institutes of Health’s long-held standard of peer review for grantmaking has been subverted by President Donald Trump and NIH Director Jay Bhattacharya, who gave unprecedented power to po...

Even though it's crisis #192308 in our current time, I don't think it's sufficiently sunk in with ppl in the academic community that getting federal funding for your research will primarily depend on whether Trump political appointees find you and your work useful
kffhealthnews.org/news/article...

Like...this is the biggest corruption scandal the NIH has experienced in its entire history and its not even close. Half of a BILLION dollars to a single project as a result of political spoils. That's the equivalent of several hundred R01s.

VACCINE Commentary The dismantling of the U.S. vaccine regulatory framework Gavin Yamey, Chris Beyrer Duke Global Health Institute, Duke University, Durham, NC, USA

🚨New peer-reviewed commentary that I co-authored with Chris Beyrer is now out in the journal Vaccine, gift link below

We show the ways in which the MAHA & MAGA guys—RFK Jr, Makary, Bhattacharya, Prasad—have dismantled the US vaccine regulatory framework

authors.elsevier.com/a/1lbDt,60n7...

1/5

DHS just lies constantly but this time they let the truth slip. DHS will arrest you if you are Hispanic PLUS literally any other thing that they think is correlated statistically with being here illegally; occupation, English speaking ability, the neighborhood, etc. It is sick.

Lawsuit filed against immigration authorities after U.S. citizen's arrests in raids A U.S. citizen who is a construction worker in Alabama has filed a federal lawsuit after he says he was detained twice by immigration agents within just a few weeks

DHS has effectively reinterpreted (also illegally) “reasonable suspicion” as racial profiling, so now here it is making a statement that it uses racial profiling to arrest and cuff people, even Americans abcnews.go.com/amp/US/wireS...

Holy hell. DHS just openly stated that its agents use “reasonable suspicion” to make ARRESTS. This is blatantly unconstitutional. The Supreme Court is clear that you need probable cause to arrest someone, as opposed to stop them to ask them a question or two. This is huge b/c…

Camden had zero homicides this summer. City and county leaders credit the 2013 disbandment of its police department. As of Monday, the city has seen a 43% decrease in homicides compared to this time last year. And violent crime has reached a 50-year low.

Camden had zero homicides this summer. City and county leaders credit the 2013 disbandment of its police department.

Violent crime is at a 50-year low.

This is amazing.

www.inquirer.com/news/camden-...

I used to lose 6-8 weeks out of every year to respiratory viruses. As a massage therapist, I already can’t handle more than part time but losing gigs around the holidays and Valentines really, truly hurts my annual take home. Since masking, I’ve lost zero days to being sick. None. Anxiety? Money!

Screenshot from the daily mail. There’s a photo of violet afflict wearing glasses and a white N95 mask. Text reads 'Their mask-wearing is a dangerous thing because it gives their anxiety an air of legitimacy' Read more: https://trib.al/ ZeHWZV1 Daily Mail ••• The sad truth about people like Violet Affleck who are still wearing masks - this is what's really going on

Shame on the Daily Mail for psychologizing Violet Affleck.

Being a lone masker is hard.

It takes courage, confidence and a commitment to protecting your health & the health of those around you.

It’s not “anxiety” to want to avoid a multi system vascular virus.

It’s adaptation.

streaming platforms have robbed us of the randomness that used to be both an essential property of tv watching and a quality that mitigated its addictiveness somewhat. we were wholly beholden to whatever happened to be on! if we didn’t like any of it we were obligated to go do something else!

A recent study published in Frontiers found that 7.7% of US healthcare workers have LongCOVID, causing high levels of burnout, depression and anxiety. Additionally, PASC is implicated in up to 15% of unfilled jobs, highlighting its significant impact on workforce participation. Followed by partial screenshot of the paper

🚨🧵 by Jammer aka @acrossthemersey on Twitter:

"A recent study published in Frontiers found that 7.7% of US healthcare workers have LongCOVID, causing high levels of burnout, depression and anxiety..."

Full 🧵:
threadreaderapp.com/thread/19632...

Healey counters FDA, makes COVID boosters widely available in Mass. - The Boston Globe Healey essentially wrote a prescription for COVID boosters for every person in the state over the age of 5.

🚨 Massachusetts overrides FDA & CDC limits: Gov. Healey orders COVID boosters available to all residents 5+ at pharmacies. A direct challenge to federal restrictions. For kids 6m–5y available via pediatricians.

www.bostonglobe.com/2025/09/03/m...

I keep thinking that one day, I’ll turn all those old cloth masks into something cool like this. I’m impressed that you did!

the US profoundly needs a children's rights movement. children are not property... they deserve opportunity and learning and autonomy and security.... and our country just does not acknowledge this

"I've already been disabled by one COVID infection, and cannot afford another. Imagine being so harmed by an infection that everyone around you refers to as harmless that you can’t walk more than 500 steps a day."

What is Long COVID? A Beginner's Guide

Worked hard on this, and I hope it will be a useful resource for many.

A beginner’s guide to Long COVID, with a discussion of mechanisms:

www.thegauntlet.news/p/what-is-lo...

The Pandemic Has Been a Portal (for a few of us) It's true that most people keep choosing "normalcy". But the COVID conscious community is showing us a radical new way forward, that centers care

This is so good!

Thank you, @juliadoubleday.bsky.social!

open.substack.com/pub/thegaunt...

“It is those of us who were asked, how many lives would you trade for indoor dining and said…zero. Those of us who were asked, how long will you care for your neighbor and said, I always will.“

I'm on a team that's doing a gigantic review of PEM-provocation studies:

the #MECFS Research Network Data Management and Coordinating Center, #NIH (NINDS), #CDC -- Post-exertional Malaise CDE Working Group (quite a mouthful!)

Join me as I post the most interesting PEM study of the week. 🧪

Drawing with a soft, colorful style. A person wearing earmuffs is lying on a bed, together with staffed animals. There is a fist sign on center with characters “Resit is Resistance”. Image is framed by blooming flowers.

This #MEAwarenessDay, I'm sharing an artwork inspired by my beautiful partner and a hero @me-cfs.bsky.social !

REST IS RESISTANCE.
Cure ME/CFS, Cure Long Covid.
I dare to care and I ask you to care.

I am with #MillionsMissing who are #StillSickStillFighting for an another #WorldMEDay

A floral print chair with a red blanket folded on the top that says: #MEAction Still Here Still Sick.

World ME Day - May 12, 2025

We need good health care, up-to-date medical education and immediate research funding!
I have suffered from ME/CFS since 2009.
#StandByMEcfs #StillSickStillFighting #MEcfs #EndMEcfs
#MEAction #MillionsMissing #TeachMETreatME #pwME

Han Solo in Carbonate.

🌠On #MEAwarenessDay we fight for visibility, research, and justice.

🛌Millions are missing. We deserve to be seen, believed, and treated.

🧪We need urgent biomedical research to make progress.

#MillionsMissing

Carrie is wearing a red shirt for a Millions Missing. She is holding a sign that says MECFS is my cage

#MillionsMissing SOS
#MECFS stole my life.
#MECFSis my cage. I have moderate to severe ME. It is a serious, chronic, multi-system, complex neuroimmune disease. My quality of life is low.
There is no cure. Very few doctors know how to help. We don't have any approved treatments or diagnostic tests.

Research Roadmap Petition | Take Action We reached 7,000 signatures on our last letter. This time, our goal is 10,000. Please sign the letter today and share it with your friends and family.

Favor to ask!

Today is #MillionsMissing, recognizing the debilitating neuro disease I have, ME/CFS. It has no approved treatment and is NIH’s most underfunded disease by impact.

Could you help us change that by joining this call for funding? Takes 1 min, open globally, wins my eternal gratitude <3

I am one of the 2025 Millions Missing calling out an SOS: Save our support systems. Save our science. Save our society.

💙 It's May 12th, International ME/CFS Awareness Day 💙

My ME/CFS onset was in Jan 1990

🚨 Many recent ME/CFS cases have been triggered by COVID 🚨

In this thread I plan to post about 3 main things:

1. My ME/CFS story (briefly)

2. Helpful resources for […]

[Original post on disabled.social]

Me in my natural habitat - with nurse Eddie ;). I was diagnosed with ME/CFS after EDS and dysautonomia. It’s the most disabling of my conditions. Today as part of the #mecfs community I ask congress to ensure future funding for the #millionsmissing . This is an #sos moment. @meactnet.bsky.social

#MillionsMissing2025 For #MillionsMissing 2025, #MEAction is sending out an SOS.

I have ME/CFS, and I am in solidarity with those protesting in DC and at home today for #MillionsMissing! We are sending out a #DisabilitySOS 🆘. Save our Support Systems💔. Save our Science 🔬. Save Our Society 🌍.#MillionsMissing #MECFS @meactnet

Learn more: www.meactions.org/millionsmiss...

#MillionsMissing2025 For #MillionsMissing 2025, #MEAction is sending out an SOS.

Thank you for each act of courage, each share of wisdom, and each wise decision to pace and rest. ALL OF THEM ARE IMPORTANT.

Link to all actions listed above: www.meactions.org/millionsmiss...

#pwME #MECFS #LongCovid #disability #protectMedicaid #Telehealth

3 photos. Top photo: a large group of people in front of Capitol building wearing red shirts and holding signs. Bottom left: person wearing red shirt, hat, and N95 mask. Bottom right: 3 people, one in wheelchair. One holding an SOS sign with statue of liberty. All have on protective face masks. In the middle of three photos is the SOS #MIllionsMissing logo.

We are winding down our day of #MillionsMissing action but just starting a week focused on creating change! WOW! You are blowing us away with the amazing shares on social media and we are beyond grateful to all who showed up in person in DC and at actions around the world.

#DisabilitySOS

Novavax says its COVID-19 shot is on track for full FDA approval after delay Novavax says its closely watched COVID-19 vaccine is on track for full U.S. approval after additional discussions with the Food and Drug Administration.

Encouraging news. 🤞
apnews.com/article/fda-...