Lobular Breast Cancer Alliance (LBCA)'s Avatar

Lobular Breast Cancer Alliance (LBCA)

@lobularbca.bsky.social

LBCA is the only organization in the US dedicated to invasive lobular carcinoma (ILC) also known as lobular breast cancer, the 2nd most common breast cancer type. Learn more at lobularbreastcancer.org

157 Followers  |  107 Following  |  32 Posts  |  Joined: 07.02.2025  |  1.7904

Latest posts by lobularbca.bsky.social on Bluesky

Shining a Spotlight on Lobular Breast Cancer: Global Lobular Breast Cancer Awareness Day 2025
YouTube video by Lobular Breast Cancer Alliance Shining a Spotlight on Lobular Breast Cancer: Global Lobular Breast Cancer Awareness Day 2025

October is Breast Cancer Awareness month and we continue to shine a spotlight on lobular breast cancer, the 2nd most common type of breast cancer that needs more research to improve detection and find targeted treatments: youtu.be/pd6cBXezbcg #ilc #lobularbreastcancer #breastcancerawareness

01.10.2025 19:02 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Help us raise $150k for the 15% diagnosed with lobular breast cancer now, as part of our Oct 15th Global Lobular Breast Cancer Awareness Day campaign and your gift will be matched! lobularbreastcanceralliance-bloom.kindful.com #lobularbreastcancer #ILCresearch

10.09.2025 15:59 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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LBCA is partnering with SurvivingBreastCancer.org (SBC) to provide more virtual support groups for lobular breast cancer. SBC will soon offer a metastatic ILC support group. If you are interested in co-leading, register for SBC's Facilitator Training on Sept. 27โ€“28th: forms.gle/a57G1bn8p7eg...

09.09.2025 16:24 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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We're excited that legislation has been filed in Massachusetts to make Oct. 15th Lobular Breast Cancer Awareness every year. LBCA ED Laurie Hutcheson, SAB Member Dr. Jeselsohn, and volunteers met with senators at the MA State House to strategize on the bill. #lobularbreastcancer #ILCawareness

05.09.2025 21:34 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Do you receive our monthly newsletter? Each month we share news on lobular research, advocacy, opportunities to connect with other patients or get involved to help raise awareness of ILC. Subscribe here: lobularbreastcancer.org/contact-us/s... #lobularbreastcancer #ILC

05.09.2025 21:17 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Meet Mary, a healthcare market researcher diagnosed with Stage 2b ILC who had never heard of lobular breast cancer. A mom of three, Mary now mentors others and advocates for better imaging, research, & awareness: lobularbreastcancer.org/meet-mary/ #ILCStory #lobularbreastcancer

14.08.2025 21:18 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Oct 15th Global Lobular Breast Cancer Awareness Day is 2 months away! Getting governors' proclamations of the day in the US is a great way to raise awareness. With your help we have 20 in the works. If you don't see your state on our map and can help, email communications@lbca.org #ILC

14.08.2025 17:59 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Meet Dr. Mamtani, surgical oncologist & newest SAB member! As co-director of Memorial Sloan Kettering's pioneering Lobular Program, she shares how early experiences shaped her career and explains why partnering with advocates matters. lobularbreastcancer.org/new-sab-memb...

29.07.2025 19:11 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Help us raise awareness about invasive lobular carcinoma (ILC) and Global Lobular Breast Cancer Awareness Day on Oct. 15th by sharing your story! Patient stories are key to help spread the word about ILC. If you would you like to share your story email communications@lbca.org

17.07.2025 15:09 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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New in 2025: the National Comprehensive Cancer Network (NCCN) highlights the use of the diagnostic procedure FES-PET for metastatic or recurrent ILC. This is the first time the NCCN guidelines identify any procedure for ILC-specifically. lobularbreastcancer.org/ilc-specific...

15.07.2025 16:56 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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LBCA SAB Chair Dr. Mouabbi and MSKCC ILC program co-lead Dr. Shen, each shared exciting ILC research study results at the American Society of Clinical Oncology conference last month: lobularbreastcancer.org/ilc-research.... #ILC #ASCO2025

15.07.2025 15:08 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Margaret Mckay (Christine) - 2025 - Ottawa Citizen Remembering Share Memories & Support the Family.

LBCA is so sad about the passing of Christine McKay, she has been a force for advocacy for ILC research as a founding member of our patient advocate advisory board. We remain inspired by her work to raise awareness of ILC. ottawacitizen.remembering.ca/obituary/mar...

03.07.2025 21:49 โ€” ๐Ÿ‘ 2    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Help us make this October 15โ€”Global Lobular Breast Cancer Awareness Dayโ€”the biggest yet! Join LBCA and partners around the world to raise awareness about invasive lobular carcinoma (ILC). Create a social media reel, host an event, each action helps. Sign up here! tinyurl.com/October15thS...

27.06.2025 20:07 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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In a recent SurgOnc Todayยฎ from the Society of Surgical Oncology, experts dive into the surgical challenges of lobular breast cancer. Moderated by Dr. Weiss, with Dr. Fayanju, Dr. Mukhtar (LBCA SAB), and ILC survivor & LBCA Executive Director Laurie Hutcheson. surgonc.org/education/su... #ILC

27.06.2025 18:15 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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LBCA is offering travel scholarship grants for advocates interested in Invasive Lobular Carcinoma (ILC) education to attend the 2025 San Antonio Breast Cancer Symposium (SABCS) in San Antonio, Texas, December 9-12, 2025. Deadline to apply is Monday, July 21st: tinyurl.com/LBCATravelGr...

24.06.2025 23:56 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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LBCA Local Advocacy Team Coordinator Kathleen Moss shared her Lobular Breast Cancer journey in a new interview on The Patient Story. Watch to hear how she reclaimed body confidence after diagnosis: thepatientstory.com/patient-stor...

24.06.2025 21:50 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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LBCA Partners with Memorial Sloan Kettering on New ILC Training for Radiologists & Breast Imagers! - The Lobular Breast Cancer Alliance LBCA is proud to announce the first of a series of ILC educational offerings for different types of clinicians.. LBCA partnered with our Scientific Advisory [โ€ฆ]

LBCA launched the first in a series of training courses on invasive lobular carcinoma (ILC) for clinicians in partnership with Memorial Sloan Kettering, the first two focus on ILC imaging for general radiologists and breast imagers. lobularbreastcancer.org/lbca-partner... #ILC #LobularBreastCancer

18.06.2025 05:16 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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At #ASCO25, Dr. Jason Mouabbi presented new research on invasive lobular carcinoma, revealing distinct genomic alterations compared to other breast cancer subtypes. This highlights the potential for tailored treatment strategies based on unique mutational patterns. #EndCancer @jamouabbi.bsky.social

02.06.2025 16:58 โ€” ๐Ÿ‘ 5    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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#sabcs25 | American Association for Cancer Research The Lobular Breast Cancer Alliance, in collaboration with the AACR, is sponsoring five merit awards to recognize the best abstracts focusing on lobular breast cancer research submitted for presentatio...

In collaboration with the AACR, LBCA is sponsoring five merit awards to recognize the best abstracts focusing on lobular breast cancer research submitted for presentation at the San Antonio Breast Cancer Symposium this Dec., submit abstracts before July 9th: brnw.ch/21wSZql

30.05.2025 00:21 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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New Local Advocacy Team Launched in Cascadia region of US - The Lobular Breast Cancer Alliance LBCAโ€™s third Local Advocacy Team (LAT) has launched in the region of the US known as Cascadia, including Washington, Oregon and Idaho and will be [โ€ฆ]

LBCAโ€™s third Local Advocacy Team has launched in Cascadia, covering WA, OR & ID in the US! Meet the LAT of Cascadia Ambassadors in this interview to learn more: lobularbreastcancer.org/new-local-ad...

29.05.2025 16:15 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Common Myths vs Facts about Invasive Lobular Carcinoma (ILC) - The Lobular Breast Cancer Alliance LBCA has developed a new patient resource to help clear up common and pervasive myths about invasive lobular carcinoma (ILC) and its treatment. Many misconceptions [โ€ฆ]

LBCA has developed a new patient resource: Myths and Facts about Invasive Lobular Carcinoma to help clear up common and pervasive myths about invasive lobular carcinoma (ILC). Read it here: lobularbreastcancer.org/myths-vs-fac...

23.05.2025 20:54 โ€” ๐Ÿ‘ 5    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Professional golfer Angela Stanford shares the story of her mother's ILC diagnosis during National Cancer Research Month #lobularbreastcancer #NCRM #ILC

09.05.2025 13:26 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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For National Cancer Research Month LBCA highlights the critical need for dedicated research for invasive lobular carcinoma (ILC) to improve detection and treatments. Help with a gift today: lobularbreastcanceralliance-bloom.kindful.com #lobularbreastcancer #ILC

06.05.2025 16:06 โ€” ๐Ÿ‘ 2    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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JOIN US for a Lobular Breast Cancer Chat with Dr. Yeh, advocate Gitte Joergensen @gitteilc.bsky.social & Dr. Ulaner to discuss new metastatic ILC imaging research, the SNMMI Mars Shot program @snmmi-marsshot.bsky.social & more! Register here: forms.gle/WzWvmQn9dWhe...

28.04.2025 14:27 โ€” ๐Ÿ‘ 3    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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LBCA is hiring a part-time Development Associate! The position will work with a portfolio of major donors, support the Development Committee and peer to peer fundraising. Help LBCA in its mission to eradicate ILC. Deadline to apply is April 28th: lobularbreastcancer.org/lbca-develop...

17.04.2025 20:22 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Understanding Lobular Breast Cancer: What You Should Know More About This Type of Breast Cancer
YouTube video by Memorial Sloan Kettering Cancer Center Understanding Lobular Breast Cancer: What You Should Know More About This Type of Breast Cancer

Watch Dr. Shen, Dr. Pareja and Dr. Mamtani co-directors of the new Memorial Sloan Kettering Cancer Center ILC program, present โ€œUnderstanding Lobular Breast Cancer," it provides a comprehensive overview of the unique characteristics and treatment challenges of ILC: www.youtube.com/watch?v=gtZt...

16.04.2025 17:46 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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ILC Research Grant awardee Dr. Manisha Bahl Shares Her ILC Imaging Research Study Plan YouTube video by Lobular Breast Cancer Alliance

Hear from Dr. Manisha Bahl, ILC Research Grantee, about her award winning study, โ€œImproving Detection of ILC on Digital Breast Tomosynthesis and Reducing False-Negative Rates with Artificial Intelligence" here: www.youtube.com/watch?featur...

15.04.2025 17:57 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Mars Shot Research Fund Awards SNMMI LBCA Invasive Lobular Carcinoma Fellowship to Randy Yeh, MD The SNMMI Mars Shot Research Fund is pleased to announce that Randy Yeh, MD, a radiologist and nuclear medicine physician at Mount Sinai Health System, associate professor of radiology, and chief of n...

Congratulations Randy Yeh for receiving the SNMMI LBCA Invasive Lobular Carcinoma Fellowship. This Mars Shot grant will support his research into novel FAPI PET imaging to improve outcomes in patients w/invasive lobular carcinoma.

Read more here: snmmi.org/Web/News/Art...

15.04.2025 13:14 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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For Global Volunteer Appreciation Month, LBCA would like to thank our generous volunteers. Nothing we do would be possible without all of you! #globalvolunteerappreciationmonth #lobularbreastcancer #ILC

03.04.2025 19:03 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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This weekend we learned of the loss of another angel. Nancy - we will miss you so much! You have been a wonderful help to LBCA on our Patient Advocate Advisory Board spreading the universal message to raise awareness of ILC!

10.03.2025 17:04 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

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