BMT InfoNet

How do teams assess readiness for transplant or CAR T in older adults?

Episode 6 of Thrive! explores frailty and resilience with guidance from Dr. Amelia Langston.

Apple: podcasts.apple.com/us/podcast/t...
YouTube: youtu.be/sSlvjW1fW1Q

#StemCellTransplant #CARTCellTherapy

From Tandem last week:
Karen DeMairo (Blood Cancer United) received this year’s Patient Advocate Award, and we loved connecting with her and Meredith Cowden (Meredith A. Cowden Foundation) — two incredible voices for the transplant & GVHD community.

#TandemMeetings #GVHD #PatientAdvocacy

At Tandem 2026 today with Christelle Salomon from the UCSF Sickle Cell Center of Excellence and BMT InfoNet’s Marla O’Keefe.

Patient perspectives and lived experience are essential as new sickle cell therapies move forward.

#BMTInfoNet #PatientCenteredCare

Hello from Tandem in Salt Lake City 👋
The BMT InfoNet team is meeting with transplant and CAR T healthcare professionals and sharing resources. Stop by!

Plus… today’s award for cutest booth visitor definitely goes to this little one. 🐶

#TandemMeetings #TransplantCommunity #CARTcell #PatientSupport

New episode of Thrive! 🎧
Episode Five looks at ocular GVHD — why eye symptoms after transplant are often missed and why early recognition matters.

🎧 Apple Podcasts: podcasts.apple.com/us/podcast/t...
▶️ YouTube: youtu.be/-jweNibsxWw

#OcularGVHD #GVHD #StemCellTransplant #Survivorship

Episode 4: The CAR T Option
A clear look at how CAR T fits into treatment decisions — and what to understand when it’s presented as an option.

🎧 Listen:
podcasts.apple.com/us/podcast/t...

#CART #StemCellTransplant

New Episode — Thrive! | Episode Three

Bone health is an underrecognized aspect of survivorship after stem cell transplant and CAR T-cell therapy.

🎧 Apple Podcasts
podcasts.apple.com/us/podcast/t...
▶️ YouTube
youtu.be/XzDKUFOzU7Q

#ThrivePodcast #BoneHealth #CancerSurvivorship #CellularTherapy #BMT

The Mind After Transplant and CAR T Podcast Episode · Thrive! · 01/06/2026 · 23m

🎧 Apple Podcasts
podcasts.apple.com/us/podcast/t...

▶️ YouTube
youtu.be/brTqBdVzBjU

Episode Two of Thrive! is now available.

This episode focuses on the immune system after stem cell transplant and CAR T-cell therapy, plus news updates.

🎧 Listen to the full episode on your preferred platform.
Feedback welcome at thrive@bmtinfonet.org.

Links in replies 👇

How are new strategies improving prevention and treatment of #GVHD after HCT?

Watch this on-demand activity featuring insights from @DrZackDeFilipp, @hamiltkyb & Dr. Amandeep Salhotra—produced with @peerview.bsky.social #ASH25 #MedEd

🔗 bit.ly/4apt6Un

The Mind After Transplant and CAR T Podcast Episode · Thrive! · 01/06/2026 · 23m

Apple Podcasts
podcasts.apple.com/us/podcast/t...

Spotify
open.spotify.com/episode/07GT...

YouTube
youtu.be/Z_kbhRw66jg

This clip is the opening of Episode One of Thrive! — a new podcast from BMT InfoNet.

The first episode explores cognitive changes that some people experience after stem cell transplant or CAR T-cell therapy, including changes in memory and focus

🎧 The full episode available now

Links in replies 👇

As we look ahead to the New Year, BMT InfoNet remains committed to informing, empowering, and supporting patients, caregivers, and survivors navigating treatment and recovery.

See you in the New Year, and we will continue our work — Together.

🔗 bmtinfonet.org/donate-today

Ending the year together, with gratitude for the community that supports BMT InfoNet’s work.

Your support helps ensure patients, caregivers, and survivors have access to trusted information and meaningful support through treatment and recovery.

🔗 bmtinfonet.org/donate-today

BMT InfoNet is offering a professionally facilitated online support group for spouses and partners of adults living with chronic GVHD.

🗓 Begins Jan 6, 2026
💻 Online via Zoom

Pre-register here:
bmtinfonet.org/form/pre-reg...

#SpouseCaregiver #ChronicGVHD #GVHD #CaregiverSupport

Our GVHD Alliance partner nbmtLINK is hosting a one-hour Power Panel on GVHD symptoms on January 5, 2026.

An educational resource for those who’ve undergone a stem cell transplant, caregivers, and loved ones.

👉 Learn more and register:
www.nbmtlink.org/symptom-sign...

Living with chronic GVHD can feel isolating — but support is available.

Adults with chronic graft-versus-host disease are invited to pre-register for our professionally facilitated online support group starting in 2026.

🔗 bmtinfonet.org/form/gvhd-su...

#GVHD #TransplantSurvivor #SupportMatters

Thrive! Medicine Podcast · Updated Weekly · Thrive! — A BMT InfoNet Podcast explores the evolving landscape of stem cell transplant, CAR T-cell therapy, and GVHD (graft-versus-host disease) survivorship. Each...

Apple Podcasts:
podcasts.apple.com/us/podcast/t...

Spotify:
open.spotify.com/show/4fX63FT...

YouTube:
youtube.com/playlist?lis...

Introducing Thrive!—A new podcast from BMT InfoNet sharing timely information, expert insights. For patients and professionals.

🎧 Short, weekly episodes (15–20 minutes)
📅 First full episode launches January 6

Listen to the trailer and follow on your preferred podcast platform.

Links in comments.

Learn the latest advances in GVHD care at ASH 2025. Join BMT InfoNet and PeerView Live on December 5 at 7:30 AM EST for a session on emerging therapies, patient perspectives, and strategies to improve post-transplant outcomes.

Register here:
bit.ly/2025-GVHD-T

#ASH25 #GVHD

Find joy in creativity this holiday season 💛

Join BMT InfoNet & Twist Out Cancer for an Art Therapy Workshop on Nov 17 at 8 pm ET.
We’ll make Gratitude Cards together—no art experience needed! 🎨

Register: bmtinfonet.org/event/art-th...

#BMTInfoNet #ArtTherapy #CreativeHealing #CancerSupport

Rare story: donor matched twice (1 in 430 odds for even one)

First recipient thriving—met in person 2024. Second gained 7 precious months with family

Why Theresa Lundowski would do it again in a heartbeat: bmtinfonet.org/story/donor-...

Join: my.nmdp.org/s/join

#BeTheMatch #StemCellDonor

Sexual health after transplant or CAR-T is rarely discussed—but it matters.

Dr. Catalina Lawsin and survivor Loriana Hernández-Aldama break the silence about pain, desire, and rediscovering intimacy after treatment.

🎥 Link in comments

#BMTInfoNet #SexualHealth #SurvivorshipCare #CARTTherapy

The @leukemiaresearch.bsky.social is hosting a free webinar for patients & caregivers on Oct 27: Your Care Team.

Learn how your hospital team members collaborate to support your care journey.

Register: leukemiarf.org/patients/webinars/your-care-team/

#BMTInfoNet #CareTeam #CancerSupport

Pulmonary GVHD update from Dr. Cheng (Fred Hutch)

- 20% of transplant survivors develop BOS
- Often asymptomatic early—routine PFTs essential
- FAM+LABA protocol + new therapies (Jakafi, Rezurock)
- Survival improved 40%→70% with earlier detection

Watch: bmtinfonet.org/video/graft-...

#BMTInfoNet

Managing infection after transplant & CAR-T therapy.

Dr. Gowri Satyanarayana (Northside Hospital Atlanta) covers prevention, vaccines & GVHD care.

🎥 Watch: bmtinfonet.org/video/managi...

#BMTInfoNet #Transplant #CARTTherapy #InfectionControl

🎧 Listen up … Something new is coming from BMT InfoNet.

Stay tuned — you’ll want to hear this for yourself.

#BMTInfoNet #ComingSoon

bmtinfonet.org/event/ask-ca...

Reminder! Our live CAR T-Cell Therapy Webinar is next week — Tuesday, Oct 21 at 7PM ET.

Learn from leading experts what to expect before, during, and after CAR T treatment — and submit up to 3 questions when you register!

🔗 Register now: bmtinfonet.org/event/ask-ca...

#CARTcell #BMTInfoNet

🦴 Bone health is a key part of life after transplant.

Dr. Angeliki Stamatouli from VCU Massey Cancer Center explains how to detect bone loss early, strengthen your bones, and prevent fractures.

🎥 bmtinfonet.org/video/bone-h...

#BoneHealth #TransplantSurvivor #OsteoporosisAwareness #CancerRecovery