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BMT InfoNet

@bmtinfonet.bsky.social

Trusted nonprofit offering education, research updates, and community for patients, caregivers, and clinicians in stem cell transplant, CAR T-cell therapy, and GVHD. Advancing knowledge, survivorship, and collaboration in cellular therapy.

145 Followers  |  144 Following  |  80 Posts  |  Joined: 25.11.2024  |  2.5537

Latest posts by bmtinfonet.bsky.social on Bluesky

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Learn the latest advances in GVHD care at ASH 2025. Join BMT InfoNet and PeerView Live on December 5 at 7:30 AM EST for a session on emerging therapies, patient perspectives, and strategies to improve post-transplant outcomes.

Register here:
bit.ly/2025-GVHD-T

#ASH25 #GVHD

14.11.2025 21:17 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Find joy in creativity this holiday season ๐Ÿ’›

Join BMT InfoNet & Twist Out Cancer for an Art Therapy Workshop on Nov 17 at 8 pm ET.
Weโ€™ll make Gratitude Cards togetherโ€”no art experience needed! ๐ŸŽจ

Register: bmtinfonet.org/event/art-th...

#BMTInfoNet #ArtTherapy #CreativeHealing #CancerSupport

05.11.2025 15:12 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Rare story: donor matched twice (1 in 430 odds for even one)

First recipient thrivingโ€”met in person 2024. Second gained 7 precious months with family

Why Theresa Lundowski would do it again in a heartbeat: bmtinfonet.org/story/donor-...

Join: my.nmdp.org/s/join

#BeTheMatch #StemCellDonor

31.10.2025 20:24 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Sexual health after transplant or CAR-T is rarely discussedโ€”but it matters.

Dr. Catalina Lawsin and survivor Loriana Hernรกndez-Aldama break the silence about pain, desire, and rediscovering intimacy after treatment.

๐ŸŽฅ Link in comments

#BMTInfoNet #SexualHealth #SurvivorshipCare #CARTTherapy

25.10.2025 22:18 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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The @leukemiaresearch.bsky.social is hosting a free webinar for patients & caregivers on Oct 27: Your Care Team.

Learn how your hospital team members collaborate to support your care journey.

Register: leukemiarf.org/patients/webinars/your-care-team/

#BMTInfoNet #CareTeam #CancerSupport

23.10.2025 18:07 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Pulmonary GVHD update from Dr. Cheng (Fred Hutch)

- 20% of transplant survivors develop BOS
- Often asymptomatic earlyโ€”routine PFTs essential
- FAM+LABA protocol + new therapies (Jakafi, Rezurock)
- Survival improved 40%โ†’70% with earlier detection

Watch: bmtinfonet.org/video/graft-...

#BMTInfoNet

23.10.2025 16:54 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Managing infection after transplant & CAR-T therapy.

Dr. Gowri Satyanarayana (Northside Hospital Atlanta) covers prevention, vaccines & GVHD care.

๐ŸŽฅ Watch: bmtinfonet.org/video/managi...

#BMTInfoNet #Transplant #CARTTherapy #InfectionControl

21.10.2025 20:32 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐ŸŽง Listen up โ€ฆ Something new is coming from BMT InfoNet.

Stay tuned โ€” youโ€™ll want to hear this for yourself.

#BMTInfoNet #ComingSoon

20.10.2025 01:01 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Ask the CAR T-cell Experts | BMT Infonet Do you have questions about CAR T-cell therapy? Get expert advice at this free, online webinar.

bmtinfonet.org/event/ask-ca...

17.10.2025 14:58 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Reminder! Our live CAR T-Cell Therapy Webinar is next week โ€” Tuesday, Oct 21 at 7PM ET.

Learn from leading experts what to expect before, during, and after CAR T treatment โ€” and submit up to 3 questions when you register!

๐Ÿ”— Register now: bmtinfonet.org/event/ask-ca...

#CARTcell #BMTInfoNet

17.10.2025 14:58 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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๐Ÿฆด Bone health is a key part of life after transplant.

Dr. Angeliki Stamatouli from VCU Massey Cancer Center explains how to detect bone loss early, strengthen your bones, and prevent fractures.

๐ŸŽฅ bmtinfonet.org/video/bone-h...

#BoneHealth #TransplantSurvivor #OsteoporosisAwareness #CancerRecovery

10.10.2025 20:56 โ€” ๐Ÿ‘ 2    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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BMT InfoNet invites your patients to a free live webinar with leading CAR T-cell therapy experts.

Encourage your patients and caregivers to register and submit their questions in advance!

๐Ÿ—“ Tuesday, October 21
๐Ÿ•– 7:00 PM ET
๐Ÿ”— bmtinfonet.org/event/ask-ca...

01.10.2025 23:51 โ€” ๐Ÿ‘ 2    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐Ÿ“ฃ Just a week away:

Join Drs. Trent Wang and Evan Chen on Sept 29 for a free leukemia survivorship webinar focused on post-treatment care after chemotherapy, CAR T, or stem cell transplant.

For patients and caregivers navigating life after treatment.

๐Ÿ•› 12PM CT | ๐Ÿ”— leukemiarf.org/patients/webinars

22.09.2025 16:31 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐Ÿ˜ด Trouble sleeping after transplant or CAR T? Youโ€™re not alone.

Dr. Rina Fox explains:
โœ”๏ธ 5 common sleep disorders
โœ”๏ธ Causes like meds, pain & stress
โœ”๏ธ Proven solutions: CBT-I, mindfulness & light therapy

๐Ÿ’œ Watch here or read the transcript: bmtinfonet.org/video/sleep-...

#BMTInfoNet #SleepHealth

18.09.2025 00:32 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Vision changes after transplant?

It could be ocular GVHD โ€” a common but underrecognized complication.

Dr. Katie Luo shares what to watch for and how to protect your eyes.

๐ŸŽฅ Watch the video or read the transcript: bmtinfonet.org/video/graft-...

#OcularGVHD #VisionSupport #GVHD

09.09.2025 21:34 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Is age a barrier to cancer treatment?

Dr. Amelia Langston says no.

๐ŸŽฅ In 26 minutes, learn why fitness, resilience, and support matter more than age for transplant and CAR T outcomes.

Watch or Read Transcript: bmtinfonet.org/video/transp...

#CAR_T #StemCellTransplant #BMTInfoNet #CancerTreatment

03.09.2025 02:44 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Health care professionals:

BMT InfoNetโ€™s Resource Hub offers free tools to help you:
โ€ข Educate patients & caregivers
โ€ข Connect families with financial & psychosocial support
โ€ข Keep program directories current
โ€ข Access CEU training for mental health providers

bmtinfonet.org/medical-prof...

28.08.2025 18:28 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Living with chronic GVHD can be isolating. Thatโ€™s why BMT InfoNet is launching online support groups this September for patients, caregivers, parents, and young adults.

These groups are professionally facilitated and offer a safe, supportive space to connect.

PreReg: bmtinfonet.org/support-grou...

26.08.2025 17:29 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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โ€˜Live and love like thereโ€™s no tomorrow.โ€™

Michaelโ€™s Survivor Story is one of gratitude, resilience, and the friendships he gained along the way. A reminder that even in lifeโ€™s toughest battles, new doors can open.

๐Ÿ“บ Watch his story: bmtinfonet.org/story/multip...

#SurvivorStory #BMTCommunity

22.08.2025 18:44 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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BMT InfoNet + Find Empathy have launched a CEU course (7 CEUs) tailored for mental health providers working with transplant & CAR T survivors.

Help expand empathetic careโ€”please share this with a provider.

bmtinfonet.org/stem-cell-tr...

19.08.2025 02:35 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Our free 6-week online writing workshop for stem cell transplant & CAR T-cell recipients/caregivers (starts Sept. 17) is full โ€” but you can join the wait list!
Sept. 17โ€“Oct. 22, 2025 ยท Zoom

Wait list: bmtinfonet.org/event/writin...

#BMT #CancerSurvivorship #WritingForHealing #OncologySupport

13.08.2025 22:34 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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n/ahttps://bmtinfonet.org/story/acute-myelogenous-leukemia-aml-gregs-story

11.05.2025 10:15 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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n/ahttps://bmtinfonet.org/story/non-hodgkin-lymphoma-patricias-story

09.05.2025 10:16 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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n/ahttps://bmtinfonet.org/product/tarjeta-consejos-utiles-para-los-cuidadores-spanish-helpful-hints-caregivers

08.05.2025 10:16 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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n/ahttps://bmtinfonet.org/product/graft-versus-host-disease-what-know-what-do

07.05.2025 14:41 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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n/ahttps://bmtinfonet.org/video/graft-versus-host-disease-eyes-0

07.05.2025 10:15 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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n/ahttps://bmtinfonet.org/video/graft-versus-host-disease-eyes-0

05.05.2025 10:16 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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n/ahttps://bmtinfonet.org/story/acute-myeloid-leukemia-aml-douglas-story

04.05.2025 10:15 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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n/ahttps://bmtinfonet.org/directory-transplant-centers

02.05.2025 10:15 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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n/ahttps://bmtinfonet.org/story/myelofibrosis-barry-and-hopes-story

01.05.2025 10:15 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

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