@cholangiocarcinoma.bsky.social
The Cholangiocarcinoma Foundation is a global 501(c)(3) non-profit organization and our mission is to find a cure and improve the quality of life for cholangiocarcinoma patients.
💚 Save the Date! The 2025 Houston Cholangiocarcinoma Symposium will be held Dec. 12 at the Houston Methodist Research Institute. Join experts, patients & advocates for a full day of learning, connection, and collaboration. More info coming soon!
🔗: curecca.link/houstonsymposium
🎖️ CCF Webinar: Understanding Your Options After an Adverse VA Decision 🎖️
Join Katrina Eagle, Esq., to demystify the VA claims & appeals process and learn how to navigate denied disability claims.
📅 Oct 9 | 🕓 4 PM EDT | 💻 curecca.link/Oct9
💚 Join us for the first Legacy Caregiver Virtual Gathering 💚 A space for the CCA community to honor loved ones and reflect on how love continues. 📅 Nov 6 | 🕖 7–8 PM EST | 💻 Virtual. All are welcome. 👉 Register: curecca.link/LegacyCaregivers
06.10.2025 16:30 — 👍 0 🔁 0 💬 0 📌 0
💬 “I hope to continue being a mentor to many others for as long as I can.” – Lori Smith
At the Cholangiocarcinoma Foundation, mentors like Lori walk alongside patients and caregivers, offering guidance, comfort, and hope.
👉 Request or become a mentor here: curecca.link/cc.
October is Liver Cancer Awareness Month. All month, we’ll share resources, stories, and education on cholangiocarcinoma—the 2nd most common liver cancer worldwide. Join us to spread awareness and support. 💚 curecca.org
#Octoberis4Livers #livercancerawarenessmonth #livercancerrightsnow”
📣 New resource available in Spanish! NORD’s free training, “From Records to Research: Making Sense of Health Data for Rare Diseases,” helps the rare disease community better understand and use health data. 👉
01.10.2025 15:06 — 👍 1 🔁 0 💬 0 📌 0
💚 Rare, but not forgotten. 💚 Today on Rare Cancer Day, we honor those affected by cholangiocarcinoma. The Cholangiocarcinoma Foundation supports patients and families, advances research, and works to improve quality of life and find a cure. #RareCancerDay #CCAhope
30.09.2025 17:30 — 👍 1 🔁 1 💬 0 📌 0This Tuesday, 9/30, enjoy Panda Express and support the Cholangiocarcinoma Foundation! 💚 Thanks to Elizabeth, 28% of online orders using code 9007733 will help patients & families impacted by CCA. For online orders only, use the code at checkout to make a difference!
29.09.2025 17:31 — 👍 0 🔁 0 💬 0 📌 0
💚 We Are Stronger Together.
Through Cholangioconnect, patients and caregivers can find one-on-one support from someone who has walked a similar path. This peer-to-peer program creates personalized connections at any stage of the journey.
Request or become a mentor today at curecca.link/cc.
Changing things up on your plate or in your cup can help boost your appetite. 🥑 Try a fruit milkshake with chewable bits or turn avocado into guacamole! Creativity can make mealtime more encouraging. Find more recipes on Ina®, free & available 24/7: https://adchol.savorhealth.com/portal/
27.09.2025 15:02 — 👍 0 🔁 0 💬 0 📌 0
🔬 On #WorldCancerResearchDay, we’re proud to spotlight our Fellowship Program—supporting innovative research that advances progress in bile duct cancer. Every discovery fuels hope for patients and families and brings us closer to a cure. 💚 #CancerResearch #HopeInResearch #CureCCA
24.09.2025 13:02 — 👍 1 🔁 0 💬 0 📌 0
Wishing all who celebrate a sweet and healthy New Year. 🍎🍯
Shanah Tovah from all of us at the Cholangiocarcinoma Foundation.
💻✨ CCF Webinar Series ✨💻
“Targeting Tomorrow: Next-gen immunotherapy (rilvegostomig) + T-DXd for advanced HER2-expressing BTC.” Learn about the DESTINY-BTC01 trial and new research in BTC care.
📅 Sept 25, 2025 | 🕓 4 p.m. ET
👨⚕️ Dr. Milind Javle
🔗 curecca.link/sep25
🌟 Young adults facing cholangiocarcinoma don’t have to navigate this journey alone. 🌟
CCF has a Young Adult Patient Support Group — a safe, supportive space for patients in their 20s & 30s to connect, share, and find community. 💚
📅 September 23, 2025
🕖 7:00 p.m. (ET)
🔗 curecca.link/youngadults
ICYMI: Enjoy this week's webinar recording: Advancements in CCA Management – What’s New?
@Maen Abdelrahim, MD, PhD, Pharm. B shared the latest breakthroughs in cholangiocarcinoma treatment and management.
📽️ View it here: https://youtu.be/gG-h8a42x8A.
💚 Join us for the New England Virtual CARE Meetup: Nutrition Does Not Have to Be Scary 💚
📅 Oct 28, 2025 | 🕕 6 PM ET | 💻 Online
Learn from Mass General’s Clinical Nutrition Manager, explore seasonal recipes & join a live Q&A! Register 👉 https://curecca.link/newengland
📢 Please join us on Thursday, September 25, at 1 p.m. EST for a NCI CCR Liver Cancer Program seminar by Dr. Daniela Sia: “Discovery of Novel Therapeutic Vulnerabilities in Cholangiocarcinoma.”
🔗 Join by WebEx
Meeting ID: 2301 482 7161
Passcode: 3vMg8XZig@7
#LiverCancer #Cholangiocarcinoma #NCICCR
📣 Healthcare professionals — don’t miss #ISGIO2025! Register FREE with code CCF 🎟️ Sept 12–13 | Austin, TX 👉 http://gotoper.com/isgioccf.
Join Drs. Bekaii-Saab & O’Reilly for 2 days of GI cancer insights: trials, biomarkers, treatment strategies & more. #Oncology #CME
💚 Survivor Story Q&A
Deborah, a retired RN, full-time caregiver, and now a cholangiocarcinoma survivor, shares her remarkable journey to encourage and inspire others facing a similar diagnosis.
👉 Read her story: https://curecca.link/deborah
💚 Thank you to Team Rooted in Faith – Cholangio Fighters!
At the Shelby County Relay for Life, this amazing team raised $1,000 to support the Cholangiocarcinoma Foundation and help fund a cure. 🙌
Happy Labor Day from the Cholangiocarcinoma Foundation! 🎉 Today, we celebrate the hard work, dedication, and resilience of everyone, especially those in the cholangiocarcinoma community. Enjoy the day, and take a moment to relax and recharge! 💪💚
01.09.2025 15:02 — 👍 1 🔁 0 💬 0 📌 0
🧭 You're their guide. We're your partner.
Healthcare Providers: CCF can help you explore treatment options, connect to research, and offer trusted patient resources.
Start here 👉 https://www.cholangiocarcinoma.org/physicians/
#Cholangiocarcinoma #RareCancer #ClinicalTrials #GIPractitioners
Stay current in BTC & GEA cancers! We’ve partnered with PER to create a resource center featuring articles, 3 CME courses, and videos from experts like the @oncbros. Explore this all-in-one hub designed to keep you current in cancer care here: https://tinyurl.com/5h5b6849
27.08.2025 15:30 — 👍 1 🔁 0 💬 0 📌 0
Caring for someone with cholangiocarcinoma is hard. 💚 CCF, with support from AstraZeneca, offers HelpTexts—a free service with personalized tips and support for caregivers and bereaved caregivers. Sign up in minutes: helptexts.com/ccf | helptexts.com/ccfgrief #CCAhope
19.08.2025 22:30 — 👍 0 🔁 0 💬 0 📌 0
🌴🏖️ Ready to run LA? Join Team CCF for the LA Marathon on March 8, 2026! 🏃♀️ We’ll cover your race entry in exchange for your commitment to raise $1,750+ for the Cholangiocarcinoma Foundation. Let’s make miles matter! curecca.link/LAmarathon
15.08.2025 22:30 — 👍 2 🔁 0 💬 0 📌 0
Missed the 2025 Portland Cholangiocarcinoma Symposium? 🎥
Watch the full recording to hear from leading experts, researchers, patients, and advocates as they share the latest advances in treatment and research.
📍 Recorded June 27, 2025 — now available on YouTube:
🧭 You're their guide. We're your partner.
Healthcare Providers: CCF can help you explore treatment options, connect to research, and offer trusted patient resources.
Start here 👉 https://www.cholangiocarcinoma.org/physicians/
#Cholangiocarcinoma #Oncology #ClinicalTrials #GIPractitioners
youtu.be/KofQ475NMLQ
ICYMI: Watch our recent HAI Pump Therapy for Intrahepatic Cholangiocarcinoma Webinar recording.
You'll learn:
💚How the HAI pump works
💚 What to expect from surgery
💚Living with and refilling the pump
💚The latest clinical data for iCCA
Looking for connection and support? 💚
Our August 2025 Virtual Support Groups are here to provide a safe, welcoming space for anyone impacted by cholangiocarcinoma. Whether you're a patient, caregiver, young adult, or navigating grief, there's a group for you. ✨
🔗 curecca.link/supportgroups.
