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Cholangiocarcinoma Foundation

@cholangiocarcinoma.bsky.social

The Cholangiocarcinoma Foundation is a global 501(c)(3) non-profit organization and our mission is to find a cure and improve the quality of life for cholangiocarcinoma patients.

377 Followers  |  603 Following  |  131 Posts  |  Joined: 07.12.2023  |  1.6185

Latest posts by cholangiocarcinoma.bsky.social on Bluesky

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🧭 You're their guide. We're your partner.

Healthcare Providers: CCF can help you explore treatment options, connect to research, and offer trusted patient resources.

Start here πŸ‘‰ https://www.cholangiocarcinoma.org/physicians/
#Cholangiocarcinoma #Oncology #ClinicalTrials #GIPractitioners

08.08.2025 13:30 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
CCF Webinar: HAI Pump Therapy for Intrahepatic Cholangiocarcinoma
YouTube video by Cholangiocarcinoma Foundation CCF Webinar: HAI Pump Therapy for Intrahepatic Cholangiocarcinoma

youtu.be/KofQ475NMLQ

ICYMI: Watch our recent HAI Pump Therapy for Intrahepatic Cholangiocarcinoma Webinar recording.

You'll learn:
πŸ’šHow the HAI pump works
πŸ’š What to expect from surgery
πŸ’šLiving with and refilling the pump
πŸ’šThe latest clinical data for iCCA

05.08.2025 14:58 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Looking for connection and support? πŸ’š

Our August 2025 Virtual Support Groups are here to provide a safe, welcoming space for anyone impacted by cholangiocarcinoma. Whether you're a patient, caregiver, young adult, or navigating grief, there's a group for you. ✨

πŸ”— curecca.link/supportgroups.

02.08.2025 18:30 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Fellowship Program CCF established a Research Fellowship Program to support early-career, innovative researchers who are focused on studying cholangiocarcinoma.

Aug. 1: CCF will accept LOIs for:

➑️ The CCF Innovation Grant
➑️ Career Development Award (CDA)

πŸ”¬Support for bold clinical trial designs, novel therapies, and mid-career independent research.Β 

πŸ”—

23.07.2025 13:31 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Join us July 24 at 4PM EDT for a special webinar with Lynn Lazzaro and interventional oncologists Drs. Georgiades & White. Hear Lynn’s story and learn how interventional oncology plays a role in cholangiocarcinoma care.

πŸ”— https://curecca.link/july24

21.07.2025 22:02 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Lake views + cholangio awareness πŸ’š

This 4th of July tribute was created with sticks at the lakeβ€”and it was still standing days later (even with bears nearby)!

We love seeing creative ways our community spreads awareness everywhere they go. #cureCCA #CCAhope #cholangiocarcinoma

16.07.2025 19:31 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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🧭 You're their guide. We're your partner.

Healthcare Providers: CCF can help you explore treatment options, connect to research, and offer trusted patient resources.

Start here πŸ‘‰ https://www.cholangiocarcinoma.org/physicians/
#Cholangiocarcinoma #RareCancer #Oncology #GIPractitioners

15.07.2025 19:31 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Enjoy the videos and music that you love, upload original content and share it all with friends, family and the world on YouTube.

https://www.youtube.com/watch?v=gs-uPknDfMk

ICYMI: enjoy the recording from our recent webinar: CCF Webinar: Developing Self-Advocacy and Resiliency Skills. #cureCCA #SelfAdvocacy

14.07.2025 22:31 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Radiation Exposure Cancer Claims | See If You Qualify Cancer compensation is provided by the Federal Government and arises from the radioactive nuclear fallout from the Nevada Test Site.

Diagnosed with bile duct cancer? If you or a loved one lived in parts of AZ, ID, NV, NM, or UT between 1951–1962, you may qualify for federal compensation related to nuclear fallout. Not affiliated with CCF. Bereaved loved ones may also apply.
πŸ”—

14.07.2025 15:25 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Run with purpose in Indy (Nov 8) or Philly (Nov 22) with Team CCF! πŸƒβ€β™‚οΈπŸ’š
Join us for a marathon, half, 5K, or 8K while raising awareness for cholangiocarcinoma. Full training & support included.

πŸ”— Learn more: curecca.org/teamccf

11.07.2025 17:30 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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We're pleased to partner with PER to bring you a free, live webcast on the latest GI treatments coming out of ESMO! Join Dr. Ghassan Abou-Alfa, Dr. Arndt Vogel, and Dr. Laura Goff for Oncology Town Hallℒ️ 2025 ESMO-GI Congress Highlights.

πŸ—“οΈ July 15, 2025
πŸ“ Virtual
πŸ”— Register: tinyurl.com/2s4b2j48

11.07.2025 16:32 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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🧬 The 2025 Chicago Cholangiocarcinoma Symposium is September 26! Join experts, patients, and advocates for a day focused on research, treatment, and hope.

Register ➑️curecca.link/chicago25.

Thank you to our sponsors, UChicago Medicine, AstraZeneca, Incyte, and Merck, for making this event possible.

05.07.2025 19:30 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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A CCA survivor thriver, his wife & his oncologist, Dr. Katie Kelley, just climbed to the top of Salesforce Tower πŸ’ͺ

She’s a CCF Innovation Grant recipient & Mark R. Clements Awardeeβ€”and a true partner in the climb toward a cure.

#Cholangiocarcinoma #LivingBeyondDiagnosis #HopeInResearch

05.07.2025 15:02 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Happy Independence Day! ✨ Celebrating freedom, unity, and the land of the brave. Wishing you a sparkling 4th of July from all of us at CCF! πŸŽ†

04.07.2025 15:03 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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πŸ’š Caregivers and bereaved caregivers can now receive free, supportive text messages through HelpTextsβ€”thanks to support from AstraZeneca. Whether you're caring for a loved one or grieving a loss, you're not alone.

πŸ“± Caregivers: helptexts.com/ccf
πŸ•ŠοΈ Bereaved: helptexts.com/ccfgrief

03.07.2025 00:30 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Take Action: Call Congress Today You can find your US Representative here. Hi, my name is [Your Name], and I’m a constituent from [Your City, State]. I’m calling to urge [Representative] [Last Name] to vote […]

Cancer isn’t political. Join us in asking your Reps not to approve the FY2026 Budget Bill due to its reduced appropriations for research funding.

πŸ“ Use this simple script to contact your reps today:

02.07.2025 20:03 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Happy Canada Day to the cholangiocarcinoma community up north! πŸ‡¨πŸ‡¦ 🍁

01.07.2025 21:31 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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πŸŽ‰ Save the Date! πŸŽ‰

We’re excited to announce that the 13th Annual Cholangiocarcinoma Foundation Conference will take place on May 1–3, 2026, in Salt Lake City, Utah, as we celebrate 20 years of progress, community, and impact.

Mark your calendarsβ€”more information coming soon!

01.07.2025 17:07 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Registration Is Open for The 2025 Chicago Cholangiocarcinoma Symposium - Cholangiocarcinoma Foundation - OncoDaily Registration Is Open for The 2025 Chicago Cholangiocarcinoma Symposium - Cholangiocarcinoma Foundation / Andy Liao, Anjana Pillai, cancer, Chicago

Cholangiocarcinoma Foundation - Registration Is Open for The 2025 Chicago Cholangiocarcinoma Symposium @cholangiocarcinoma.bsky.social

oncodaily.com/blog/cholang...

#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #Cholangiocarcinoma

19.06.2025 13:56 β€” πŸ‘ 6    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Employment Opportunities View our list of Employment and Executive Volunteer Opportunities with the Cholangiocarcinoma Foundation.

πŸ“£ We’re hiring!
Join CCF as Director of Data & Techβ€”a fully remote role driving data strategy, ethical AI, & tech innovation. Full-time + benefits.

Apply now or share:
πŸ”—https://www.cholangiocarcinoma.org/employment-opportunities/
#AIJobs #TechForGood #NonprofitTech

30.06.2025 20:02 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Looking for connection and support? Our virtual support groups are a welcoming space to share, listen, and find community. πŸ’š We’re also launching our first-ever Young Adult group for those in their 20s & 30s.

πŸ”— Register: http://curecca.link/supportroups
#CCFCommunity #SupportGroups

27.06.2025 22:30 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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At 40, Matt faced a rare cancer diagnosis. Thanks to CCF, he found support, received a liver transplant, and now mentors others. πŸ’š

Your gift to the Campaign for the Cure powers the research, connection, and hope that patients like Matt rely on.Β Make a gift today at curecca.org/c4c25.

24.06.2025 16:02 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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πŸ’¬ β€œI felt very lonely before I connected with the Cholangiocarcinoma Foundation and my mentor.” – Anonymous mentee

If you’re feeling alone, CholangioConnect can help. Get matched with someone who understands.

Request a mentor: curecca.link/cc

18.06.2025 15:30 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Save the date! The 2025 Chicago Cholangiocarcinoma Symposium is on September 26 at the Knapp Center. Join experts, patients & advocates to explore the latest in research & care. Hosted by Dr. Pillai & Dr. Liao.Β Β 

Register at https://curecca.link/chicago25.

16.06.2025 15:30 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Q&A with Dr. Trudy Wu: β€œEvery Patient With Cholangiocarcinoma I Treat Reminds Me of My Dad” At the Cholangiocarcinoma Foundation, we are inspired by people who channel their personal experiences into meaningful change for others. Dr. Trudy Wu is one of those people. As a radiation oncologist at UCLA Health, CCF research advocate, and legacy caregiver, Trudy brings a unique perspective to her practice and the community we serve. In this candid Q&A, Trudy shares how her father’s diagnosis changed her life and how she now uses that journey to guide and empower patients and families.

After her father’s cholangiocarcinoma diagnosis changed the course of her life, Dr. Trudy Wu works to empower patients through compassionate care and informed decisions.

πŸ’š

13.06.2025 12:06 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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🚨 Early-career researchers in #immunotherapy:

Apply now for the 2026 SITC SCION Workshop (Feb 16–18, Boston)! Collaborate w/ field leaders, build a trial concept & get expert feedback.

πŸ§ͺ Advance clinical trial design
πŸ—“οΈ Apply by Aug 7
πŸ”—https://tinyurl.com/ykennsha

#CancerResearch #ClinicalTrials

09.06.2025 14:03 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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πŸ’š Adventure Awaits! CCF is sponsoring cholangiocarcinoma survivors to attend a free Epic Experience Camp in Colorado, Aug. 20–26, 2025. Connect with others, enjoy the outdoors, and be part of a supportive community. Apply now: https://curecca.link/EpicExperience πŸ’ͺ

06.06.2025 19:06 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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🌍 Global #cholangiocarcinoma resources are just a click away! 🌍
Explore translated materials to educate, support & empower your community. Let’s collaborate to raise awareness & bring hope worldwide. πŸ”— https://www.cholangiocarcinoma.org/global-support-and-shared-resources/
#rarecancer

05.06.2025 20:30 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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🌈 This Pride Month and always, we celebrate the LGBTQ+ community. πŸ³οΈβ€πŸŒˆ

Whether you're a patient, caregiver, or ally, you deserve to feel seen, supported, and empowered. Together, we build a more inclusive future filled with strength, community, and hope. πŸ’š

#PrideMonth #StrengthInCommunity

02.06.2025 13:49 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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🌟 On National Cancer Survivors Day, we honor the strength and resilience of patients with cholangiocarcinoma and survivors. Your journey reflects the power of community and the hope research brings. πŸ’ͺπŸ’š

01.06.2025 14:31 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

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