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Cholangiocarcinoma Foundation

@cholangiocarcinoma.bsky.social

The Cholangiocarcinoma Foundation is a global 501(c)(3) non-profit organization and our mission is to find a cure and improve the quality of life for cholangiocarcinoma patients.

384 Followers  |  603 Following  |  195 Posts  |  Joined: 07.12.2023  |  1.5442

Latest posts by cholangiocarcinoma.bsky.social on Bluesky

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Join us for the 2025 Houston Cholangiocarcinoma Symposium on Dec. 12! ๐ŸŒŸ Hear from leading experts and CCF advocates, including Eugene Koay, Stacie Lindsey, Dan Duda, and more. Connect, learn, and advance patient care. Register today: curecca.link/HoustonSymposium ๐Ÿ•—๐Ÿ“Houston, TX

04.12.2025 19:30 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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We are just $5,000 away from hitting $100,000 in donations for Candles for the Cure. Be a part of getting us to this first benchmark in a campaign that changes lives.

Light a candle for the cure today at curecca.link/candles25. ๐Ÿ•ฏ๏ธTogether, weโ€™ll keep the flame burning bright for all who need it.

04.12.2025 02:01 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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As Giving Tuesday comes to a close, weโ€™re filled with gratitude for everyone who has already given.ย  Each candle represents hope and the tireless work we do together to change the future for patients and families worldwide.

Light a candle today at https://curecca.link/candles25,

03.12.2025 01:30 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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This holiday season, turn hope into possibility for those facing cholangiocarcinoma. โœจ

Your gift to Candles for the Cure fuels research, connects patients & caregivers, and unites the community. Give today and help bring more holidays with loved ones: https://curecca.link/candles25

02.12.2025 22:01 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐Ÿ’š Today is Giving Tuesday! ๐Ÿ’š Support patients & families facing cholangiocarcinoma. Your gift to Candles for the Cure funds research, connects patients to specialists, and provides hope. Give today to make an even bigger impact: https://curecca.link/candles25

02.12.2025 19:01 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐Ÿ’š Giving Tuesday ๐Ÿ’š
โ€œWhen my dad was diagnosed with bile duct cancer, I felt the same fear many families face. Now, every patient reminds me why CCFโ€™s research and support matter.โ€ -Dr. Trudy Wu
Radiation Oncologist & Daughter

Give today: https://curecca.link/candles25

02.12.2025 16:30 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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It's Giving Tuesday!

Thanks to two generous matching giftsโ€”$25,000 from the Breuhan family (in memory of Andrea Scott) and $9,000 from Bob and Gladys Schussel (in memory of Jill Coyle)โ€”every dollar you give today will be doubled for twice the impact.

Make a gift today at curecca.link\/candles2025.

02.12.2025 13:02 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐Ÿ’š Giving Tuesday is tomorrow! ๐Ÿ’š

Every gift brings hope to patients and families facing cholangiocarcinoma. Your support funds life-changing research, connects patients to expert care, and reminds families they are never alone.ย 

Give hope today: https://curecca.link/candles25.

01.12.2025 16:30 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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If you or your loved one has been diagnosed with #cholangiocarcinoma, one of the most important things you can do is find a specialist who specializes in your specific type of cancer; this may require a second opinion.ย 

Find a specialist today using our Specialist Map at curecca.link/specialistmap.

30.11.2025 16:01 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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February is just around the corner, and that means it is time to prepare for Cholangiocarcinoma Awareness Month! We've marked down some of our merch for Black Friday. Visit our online store today to get your awareness gear. Thanks for spreading the word with us!

curecca.org/shop/

28.11.2025 13:03 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Wishing our community a happy Thanksgiving! We are thankful for the strength of our CCF community and the hope that research brings ๐Ÿฆƒ๐Ÿ’š

27.11.2025 14:02 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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We are grateful for the incredible turnout at our recent CARE Team gatherings in Washington, D.C. / Baltimore, and Houston. ๐Ÿ’š

These meetups create space for connection, support, and community. Find upcoming events near you at https://www.cholangiocarcinoma.org/events/.

23.11.2025 19:31 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐Ÿ’š You Are Not Alone ๐Ÿ’š

Feeling the weight of loss this holiday season? Our bereaved support group offers a safe space to share, reflect, and connect with others who understand.ย 

๐Ÿ’š Request a bereaved caregiver mentor: curecca.link/BereavedMentor
๐Ÿ’š Join a bereaved support group: curecca.link/bereaved

22.11.2025 19:30 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Today is Childrenโ€™s Grief Awareness Day โ€” a day to recognize the unique challenges children and young adults face when losing a loved one. Our Grief Care Kit, with support from AstraZeneca, provides practical resources to help families guide kids through grief.ย 
https://curecca.link/GriefToolKit

20.11.2025 18:30 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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โ€œAfter my dadโ€™s cholangiocarcinoma diagnosis, I turned to CCF searching for answers and found something I hadnโ€™t felt in days: hope. This season, your support ensures no patient or caregiver walks this path alone.โ€ -Rob Howard ๐Ÿ•ฏ๏ธ Light a Candle of Hope: curecca.link/candles25

17.11.2025 21:30 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐Ÿ“… Save the Date! Join us for the 2026 Birmingham Cholangiocarcinoma Symposium on Feb 20, 2026, in Birmingham, AL. Connect with experts, researchers, patients, and advocates. Snacks, beverages, and lunch provided.

Register today to reserve your spot: https://curecca.link/birmingham.

15.11.2025 16:01 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐Ÿงฌ Today is Cancer Biomarker Awareness Day!

Cancer #biomarkertesting helps doctors match patients to best treatment based on the cancerโ€™s unique biology. Ask your doctor about biomarker testing today!ย 

Learn more at biomarkersmatter.org.

#CancerBiomarkers | #CancerBiomarkerDay

13.11.2025 16:02 โ€” ๐Ÿ‘ 2    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐Ÿ’š Upcoming Webinar: A Guide to Immunotherapy
Join us Nov 13 @ 4:00 p.m. (EDT) with Jenna Oโ€™Rourke, MSN, FNP-BC from Beth Israel Deaconess Medical Center to learn about immunotherapy, side effects, and how doctors decide if itโ€™s right for someone with cholangiocarcinoma. https://curecca.link/nov13

10.11.2025 19:30 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Looking for a gentle, gut-friendly meal during treatment? ๐ŸŽƒ Try pumpkin oatmeal! Itโ€™s packed with easy-to-tolerate fiber, vitamins, and mineralsโ€”low in fat and FODMAPs to help ease GI symptoms. ๐Ÿ’š

Get more evidence-based nutrition tips with free Inaยฎ: https://adchol.savorhealth.com/portal/

04.11.2025 19:02 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐Ÿ’š This November, join our support groups to find connection, comfort, and understanding for anyone affected by cholangiocarcinoma.

โœจ Register for any group here: curecca.link/supportgroups

03.11.2025 20:02 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐Ÿƒโ€โ™‚๏ธ๐Ÿ’š Weโ€™re grateful to Anton Semelroth Jr. for running the Marine Corps Marathon in honor of his grandpa, Dick, raising $3,490 for the Cholangiocarcinoma Foundation. Thank you, Anton, for your generosity and dedication! https://give.cholangiocarcinoma.org/fundraiser/6489752

01.11.2025 18:30 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐Ÿ•ธ๏ธ ๐ŸŽƒ Wishing you a Happy Halloween!ย Weโ€™re batty about this community! ๐Ÿฆ‡

31.10.2025 14:31 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐Ÿ“ฑ Sign up for free expert grief support โ€” delivered via text.

Help Texts provides personalized tips, resources, and gentle guidance to support you as you grieve.ย Getting support is as easy as getting a text.

๐Ÿ‘‰ Sign up today at helptexts.com/CCFgrief.

28.10.2025 17:01 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Join the CCF Webinar Weaponizing White Blood Cells to Fight Cholangiocarcinoma with Dr. Gregory Lesinski (Emory University) on Oct 30, 4 PM EDT. Learn about CAR T cells, tumor-infiltrating lymphocytes, and emerging immunotherapy research. Sponsored by the Bloom Family.

๐Ÿ”— curecca.link/oct30.

28.10.2025 00:30 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

๐Ÿ’š Honoring Jimโ€™s memory, Susan Camberis hosted her first annual โ€œSmoke Out Cholangiocarcinomaโ€ at Mission BBQ. Friends and family came together to celebrate his life, enjoy his favorite food, and raise $1,525 to support others impacted by cholangiocarcinoma. ๐Ÿ’š Thank you!

27.10.2025 19:30 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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โœจ CARE Events are happening across the country! โœจ

๐Ÿ“ New England Get-Togetherย 
๐Ÿ—“๏ธ Oct. 28 | ๐Ÿ’ป Virtual

๐Ÿ“ Houston Memorial Park Meet Up
๐Ÿ—“๏ธ Nov. 8 | ๐Ÿค In-personย 

๐Ÿ“ Washington, DC/Baltimore Inaugural CARE Event
๐Ÿ—“๏ธ Nov. 15 | ๐Ÿ’š In-person

Register at curecca.link/25careevents.

25.10.2025 19:30 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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โ€œMy mentor has been such a blessing to me. Always there at just the right times.โ€ CholangioConnect connects patients, caregivers, and bereaved mentors with someone who understands their journey.ย 

๐Ÿ”— Request a mentor today: curecca.link/cc.

24.10.2025 18:02 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Meet Dorian and Jade from The Woodlands, TX, two legacy caregivers, ministers, and mentors who are lifting others in the cholangiocarcinoma community. Become a mentor and support someone navigating their journey: curecca.link/cc.

23.10.2025 16:31 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐Ÿ’š Grief looks different for everyone โ€” and thatโ€™s okay. The Grief Care Kit Project offers resources to help children and young adults navigate loss with compassion. Thanks to AstraZeneca, kits are free for families in need. Request one here: https://curecca.link/GriefToolKit.

22.10.2025 19:30 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Join Team CCF's Choose Your Challenge this November by signing up for a local Turkey Trot or organizing one yourself! You can create a fundraising page and receive fundraising support.

Visit https://curecca.link/cyc to get started. The first 5 participants will receive a pair of Turkey Trot socks.

20.10.2025 23:02 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

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