Please complete the 2nd SCAN survey. Please particularly for health professionals. π
12.09.2025 06:38 β π 2 π 0 π¬ 0 π 0@amenduk.bsky.social
Informing, supporting, and advocating for the multiple endocrine neoplasia and inherited phaeochromocytoma / paraganglioma syndromes and adrenocortical cancer patient communities. Visit our website www.amend.org.uk. #endosky #PPGL #MEN1 #MEN2 #MEN3 #ACC
Please complete the 2nd SCAN survey. Please particularly for health professionals. π
12.09.2025 06:38 β π 2 π 0 π¬ 0 π 0Great to be here representing GenNETs, MEN and PPGL syndromes. Wonderful collaborative organisation driven by so many passionate advocates πͺ
09.09.2025 07:26 β π 2 π 0 π¬ 0 π 0π’ SAVE THE DATE - The 10th International Adrenal Cancer Symposium #IACS will take place in Brescia (Italy) 16-18 October 2026! Mark your calendars and spread the voice #cureACC #adrenocorticalcarcinoma #adrenaltumour #ENSAT @a5-adrenal.bsky.social @amenduk.bsky.social
08.07.2025 21:22 β π 4 π 3 π¬ 0 π 0Such a fantastic, inclusive and supportive community. Together with our incredible speakers, staff and volunteers, they make the Annual Information Day so special! Huge thanks to all involved. Until next year all!
#MEN1 #MEN2 #MEN3 #PPGL #ACC.
Here at #ESE/ESPE2025 in the patient experience zone and always happy to chat. We even have video today! @esendocrinology.bsky.social
12.05.2025 09:32 β π 1 π 0 π¬ 0 π 0πJoin the amazing group of #PrimaryCarePhysicians from 35 countries worldwide who already completed the free online CME-accredited #ThinkNENs Global Educational Program for Primary Care Physicians!
β
Check here and enroll: incalliance.org/think-nens/ #LetsTalkAboutNETs
Just one week left to book FREE 2025 Annual Patient Information Day tickets! Central London, Saturday 31st May. Check out our website for programme and bookings.
www.amend.org.uk/patients/sup...
#MEN1 #MEN2 #MEN2A #MEN2B #PPGL #phaeopara #pheopara #ACC #adrenocorticalcancer #patientinformation
Research funding opportunity π½
@youngdiablo.bsky.social @thyroidbritish.bsky.social @nzammitt.bsky.social @simonhspearce.bsky.social @drpetetaylor.bsky.social @vickiesmith.bsky.social @pituitaryorg.bsky.social @amenduk.bsky.social
#thyroid #endocrinology #ResearchFunding #thyroid #endocrinology
AMEND is pleased to offer this FREE webinar for anyone affected by sporadic #MedullaryThyroidCancer from 19:00-20:30 on 18 June with two premiere medical experts from The Royal Marsden. Register via the following link: shorturl.at/CyFOg
#MTC #patienteducation
πPaul from USA experienced shortness of breath. It took 6 doctors and 3 years before he first learned that he had #pheochromocytoma.
πShortness of breath is a very common symptom that can mislead physicians.
β
Get a snapshot in 11 languages: incalliance.org/net-info-pac...
#LetsTalkAboutNETs
βΌοΈ Just one month to go until our 2025 Annual Patient Information Day! FREE event for patients with multiple endocrine neoplasia, inherited paraganglioma syndromes and adrenocortical cancer. π
www.amend.org.uk/patients/sup...
#MEN #PPGL #ACC #patienteducation
New website launched for adrenocortical cancer at www.accsupport.org.uk
π We would like to introduce the new ACC Support UK website which is now; βΆοΈ Easier to navigate, βΏοΈ More accessible, βΉ Contains info on adrenal tumours in children. Thanks to the family/friends of the late Sally Zelenczuk for making this possible. π² accsupport.org.uk
#adrenocorticalcancer #ACC
π£ Introducing a new collaboration between NCUK and AMEND to tackle the biggest challenges in our communities: π Diagnostic Delays, π Lack of pathways to UK CoEs, π Access to new treatments/therapies, π§ͺ lack of research/clinical trials, π§ Psych Support. π www.amend.org.uk
28.04.2025 09:06 β π 0 π 0 π¬ 0 π 0π AMEND Annual Patient Information Day 2025 extras! Adrenal insufficiency workshop, benefits helpdesk, information tables, and free lunch and refreshments for networking. FREE event for patients, Sat 28 May, London
π² www.amend.org.uk/patients/sup...
#MENsyndromes #PPGL #ACC #patienteducation
Today is World Hormone Day! Get involved to highlight the importance of hormones, and the recommendations for good hormone health π² www.amend.org.uk/world-hormon...
#worldhormoneday2025 #endocrinediseases #MEN1 #MEN2 #MEN2A #MEN2B #PPGL #MTC #ACC #neuroendocrinecancer #rarediseases
π AMEND Annual Patient Information Day 2025 superb experts in endocrine and head and neck paraganglioma surgery, speaking just after lunch. FREE event for patients, Sat 28 May, London, for MEN, PPGL and ACC.
www.amend.org.uk/patients/sup...
#MENsyndromes #PPGL #ACC
βThis was really meant as a makeup project for women, because women have been excluded from research for so many years,β says Garnet Anderson, a biostatistician who runs the WHI coordinating center.
23.04.2025 12:02 β π 0 π 0 π¬ 0 π 0Letβs change the conversation around #EDCs and work together towards a toxic-free environment. Join us on 14 May to discuss research and public health measures that could help π espe-ese-congress2025.org/legacy-event...
#BecauseHormonesMatter @jeromebertherat.bsky.social
Today we launch a new collaboration with Neuroendocrine Cancer UK (NCUK): the Neuroendocrine Life Alliance! With time and resources still challenging, we will work together to address several common aims. shorturl.at/iE8BM
#neuroendocrinecancer #neuroendocrineneoplasia #neuroendocrinelifealliance
π AMEND Annual Patient Information Day 2025 superb line-up of medical experts for our morning Q&A sessions! FREE event for patients with MEN, PPGL, and ACC, Sat 28th May, London
www.amend.org.uk/patients/sup...
#MEN1 #MEN2A #MEN2B #PPGL #ACC
βΌβ° On Thursday, 24 April, the global endocrine community will unite on the first World Hormone Day to raise awareness of the vital role of hormones in health and disease. www.amend.org.uk/world-hormon...
#worldhormoneday #worldhormoneday2025 #becausehormonesmatter #multipleendocrineneoplasia
Illustration of DNA with wording: BTF Research Award - Β£35,000 research funding opportunity
π’ Funding opportunity for researchers
Applications to our BTF Research Award 2025 are now open! Apply before 31 May www.btf-thyroid.org/btf-research...
@thyroidbritish.bsky.social @socendocrinology.bsky.social @drpetetaylor.bsky.social @simonhspearce.bsky.social @nzammitt.bsky.social
Lovely article on RET @ 30 in Endocrine Related Cancer by Prof Bruce Ponder and Mr Tom Kurzawinski
erc.bioscientifica.com/view/journal...
#RETgene #MEN2 #MEN2A #MEN2B #multipleendocrineneoplasia #genetics
Read this recent review covering recent advances in #medullary #thyroid #carcinoma treatment, emphasizing surgical and systemic therapies by Mark A Jara and Luciana Audi Castroneves β‘οΈ doi.org/10.1530/EO-2...
25.03.2025 13:01 β π 4 π 2 π¬ 0 π 0What a wonderful #sfeBES2025 we had! Thanks to all those who visited our stand. See you at next years BES for at #ECE/ESPE in May!
12.03.2025 16:34 β π 2 π 0 π¬ 0 π 0We're excited to attend the #SfEBES2025 #Conference in #Harrogate next week from 10-12 March'25!
Stop by to discuss how we can #collaborate on improving #clinicalinsights, #treatmentpathways, and #RealWorldData for diverse #patientprofiles.
#Endocrinology #PatientRegistries #EndocrineResearch #SfE
Can eating invasive species and forgotten crops boost Europe's food security? ππ₯¬π¦ www.news-medical.net/news/2025031... #Food #Biodiversity #SustainableFood #NovelFoods #Food #FoodSecurity #ClimateAction #InvasiveSpecies #NeglectedCrops #Diet
11.03.2025 02:34 β π 1 π 1 π¬ 0 π 0Jo (MEM2A) and Gill (MEN1) from AMEND are here and happy to speak with you. Let us show you how we help your patients. #sfeBES2025 @socendocrinology.bsky.social #multipleendocrineneoplasia #paraganglioma #adrenocorticalcancer
10.03.2025 14:08 β π 3 π 1 π¬ 0 π 0For those UK centres interested, here is the link for more info on the National Registry of Adrenal Tumours #sfeBES2025 #NRAT #Adrenalregistry @socendocrinology.bsky.social
10.03.2025 13:47 β π 3 π 3 π¬ 0 π 0Lovely to see you again!
10.03.2025 13:44 β π 1 π 0 π¬ 0 π 0