Please pop by to see Sally's work if you can. Open until 20th February. Thank you to Sally's family and friends for their continued support of our ACC Community through their fundraising. 💚
#AdrenocorticalCancer #adrenalcancer #ACC @accsupportuk.bsky.social
18.02.2026 13:35 — 👍 2 🔁 1 💬 0 📌 0
Here’s a sneaky peek of our brand new #MEN1 members’ smartphone app. Information + support in one quick access resource, even offline. Available to all registered MEN1 members. Membership is free. www.amend.org.uk/patients/joi...
05.02.2026 05:33 — 👍 0 🔁 0 💬 0 📌 0
Cancer turned my world upside down - twice. After battling a #phaeo, I was told that I also had medullary thyroid cancer (as part of #MEN2A), followed a few years later by an #MTC metastasis. Each cancer journey is unique, even more so when it's a #RareCancer. AMEND CEO, Jo Grey #WorldCancerDay
04.02.2026 16:31 — 👍 0 🔁 0 💬 0 📌 0
#MEN1 #multipleendocrineneoplasia @socendocrinology.bsky.social
02.02.2026 18:44 — 👍 0 🔁 0 💬 0 📌 0
🚀 Our new app for MEN1 members launched today! The app replaces the MEN1 Member Pack and ensures that patients and carers received the information and support they need as quickly as possible. More information on our website:
www.amend.org.uk/new-men1-app...
02.02.2026 18:42 — 👍 0 🔁 0 💬 1 📌 0
Knowledge is power.
The multilingual #NETInfo factsheet on #RadioligandTherapy helps you understand the treatment and feel ready for it.
Available in 15 languages.
✅Download in your language: incalliance.org/net-info-pac...
#LetsTalkAboutNETs
02.12.2025 07:23 — 👍 2 🔁 1 💬 0 📌 0
Delighted to been involved in this.
25.11.2025 12:34 — 👍 2 🔁 0 💬 0 📌 0
Such a wonderful gift for everyone in the UK with ACC 💚🙏 www.accsupport.org.uk #ACC #adrenocorticalcancer #rarecancers
24.11.2025 11:19 — 👍 1 🔁 0 💬 0 📌 0
AMEND Patient Webinar on Medullary Thyroid Cancer (endorsed by the BTA). Expert talks, and a live Q&A from 19:00-20:30 on Wednesday 19th November. Registration essential:
zoom.us/webinar/regi...
#MTC #MedullaryThyroidCancer #sporadicMTC #medullarythyroidcancer #thyroidcancer
16.10.2025 12:09 — 👍 3 🔁 0 💬 0 📌 1
Please complete the 2nd SCAN survey. Please particularly for health professionals. 📊
12.09.2025 06:38 — 👍 2 🔁 0 💬 0 📌 0
Great to be here representing GenNETs, MEN and PPGL syndromes. Wonderful collaborative organisation driven by so many passionate advocates 💪
09.09.2025 07:26 — 👍 2 🔁 0 💬 0 📌 0
📢 SAVE THE DATE - The 10th International Adrenal Cancer Symposium #IACS will take place in Brescia (Italy) 16-18 October 2026! Mark your calendars and spread the voice #cureACC #adrenocorticalcarcinoma #adrenaltumour #ENSAT @a5-adrenal.bsky.social @amenduk.bsky.social
08.07.2025 21:22 — 👍 4 🔁 3 💬 0 📌 0
Here at #ESE/ESPE2025 in the patient experience zone and always happy to chat. We even have video today! @esendocrinology.bsky.social
12.05.2025 09:32 — 👍 1 🔁 0 💬 0 📌 0
📌Join the amazing group of #PrimaryCarePhysicians from 35 countries worldwide who already completed the free online CME-accredited #ThinkNENs Global Educational Program for Primary Care Physicians!
✅Check here and enroll: incalliance.org/think-nens/ #LetsTalkAboutNETs
08.05.2025 06:20 — 👍 2 🔁 2 💬 0 📌 1
Just one week left to book FREE 2025 Annual Patient Information Day tickets! Central London, Saturday 31st May. Check out our website for programme and bookings.
www.amend.org.uk/patients/sup...
#MEN1 #MEN2 #MEN2A #MEN2B #PPGL #phaeopara #pheopara #ACC #adrenocorticalcancer #patientinformation
07.05.2025 13:05 — 👍 0 🔁 0 💬 0 📌 0
Research funding opportunity 🔽
@youngdiablo.bsky.social @thyroidbritish.bsky.social @nzammitt.bsky.social @simonhspearce.bsky.social @drpetetaylor.bsky.social @vickiesmith.bsky.social @pituitaryorg.bsky.social @amenduk.bsky.social
#thyroid #endocrinology #ResearchFunding #thyroid #endocrinology
01.05.2025 14:06 — 👍 2 🔁 4 💬 0 📌 0
AMEND is pleased to offer this FREE webinar for anyone affected by sporadic #MedullaryThyroidCancer from 19:00-20:30 on 18 June with two premiere medical experts from The Royal Marsden. Register via the following link: shorturl.at/CyFOg
#MTC #patienteducation
30.04.2025 19:04 — 👍 0 🔁 0 💬 0 📌 0
📌Paul from USA experienced shortness of breath. It took 6 doctors and 3 years before he first learned that he had #pheochromocytoma.
👉Shortness of breath is a very common symptom that can mislead physicians.
✅Get a snapshot in 11 languages: incalliance.org/net-info-pac...
#LetsTalkAboutNETs
29.04.2025 07:22 — 👍 4 🔁 3 💬 0 📌 0
‼️ Just one month to go until our 2025 Annual Patient Information Day! FREE event for patients with multiple endocrine neoplasia, inherited paraganglioma syndromes and adrenocortical cancer. 💛
www.amend.org.uk/patients/sup...
#MEN #PPGL #ACC #patienteducation
28.04.2025 19:03 — 👍 0 🔁 0 💬 0 📌 0
New website launched for adrenocortical cancer at www.accsupport.org.uk
💚 We would like to introduce the new ACC Support UK website which is now; ▶️ Easier to navigate, ♿️ More accessible, ℹ Contains info on adrenal tumours in children. Thanks to the family/friends of the late Sally Zelenczuk for making this possible. 📲 accsupport.org.uk
#adrenocorticalcancer #ACC
28.04.2025 14:32 — 👍 0 🔁 1 💬 0 📌 0
📣 Introducing a new collaboration between NCUK and AMEND to tackle the biggest challenges in our communities: 🔎 Diagnostic Delays, 📍 Lack of pathways to UK CoEs, 💊 Access to new treatments/therapies, 🧪 lack of research/clinical trials, 🧠 Psych Support. 🌐 www.amend.org.uk
28.04.2025 09:06 — 👍 0 🔁 0 💬 0 📌 0
Today is World Hormone Day! Get involved to highlight the importance of hormones, and the recommendations for good hormone health 📲 www.amend.org.uk/world-hormon...
#worldhormoneday2025 #endocrinediseases #MEN1 #MEN2 #MEN2A #MEN2B #PPGL #MTC #ACC #neuroendocrinecancer #rarediseases
24.04.2025 08:40 — 👍 0 🔁 0 💬 0 📌 0
💛 AMEND Annual Patient Information Day 2025 superb experts in endocrine and head and neck paraganglioma surgery, speaking just after lunch. FREE event for patients, Sat 28 May, London, for MEN, PPGL and ACC.
www.amend.org.uk/patients/sup...
#MENsyndromes #PPGL #ACC
23.04.2025 19:03 — 👍 0 🔁 0 💬 0 📌 0
“This was really meant as a makeup project for women, because women have been excluded from research for so many years,” says Garnet Anderson, a biostatistician who runs the WHI coordinating center.
23.04.2025 12:02 — 👍 0 🔁 0 💬 0 📌 0
Let’s change the conversation around #EDCs and work together towards a toxic-free environment. Join us on 14 May to discuss research and public health measures that could help 👉 espe-ese-congress2025.org/legacy-event...
#BecauseHormonesMatter @jeromebertherat.bsky.social
23.04.2025 09:14 — 👍 3 🔁 1 💬 0 📌 0
Today we launch a new collaboration with Neuroendocrine Cancer UK (NCUK): the Neuroendocrine Life Alliance! With time and resources still challenging, we will work together to address several common aims. shorturl.at/iE8BM
#neuroendocrinecancer #neuroendocrineneoplasia #neuroendocrinelifealliance
21.04.2025 08:09 — 👍 0 🔁 0 💬 0 📌 0
European 🇪🇺
Newbury, Berkshire based - previously Lichfield, South London, Sheffield, Kent, Sussex.
Likes: travel eg Belgium; railways; art; music eg Americana; film eg Noir & beer.
🔸
Elsewhere: @timofnewbury
+ blogger.com/profile/02224647895500543757
We’re working to enable faster and deeper genomic research, to bring genomic healthcare to all who need it.
Publishing translational & clinical investigations of human health & disease focusing on #endocrine neoplasias & hormone-dependent #cancers. Owned by Society of Endocrinology.
Raising awareness of neuroendocrine cancers around the world. November 10 is NET Cancer Day.
INCA is the global voice of NET patients.
www.incalliance.org
Create and share social media content anywhere, consistently.
Built with 💙 by a global, remote team.
⬇️ Learn more about Buffer & Bluesky
https://buffer.com/bluesky
Endocrinologist. Clinical researcher focussing on the optimal management of patients with pituitary tumours. Bristol/Birmingham UK.
Senior Clinical Lecturer, University of Glasgow
All view my own
Research interests:
Paediatric endocrinology
Differences of sex development
Early vascular ageing
Oxidative stress
Your leading source of international, cutting-edge research, review, and opinion in clinical #diabetes and #endocrinology. IF=41·8.
🌐 thelancet.com/journals/landia/home
The people first approach, PeopleWith has developed an innovative health platform for everyone to monitor all aspects of their health. Enabling and empowering everyone to record and share evidence of their health presentation and progression.
Neuroendocrinologist, University Hospital and University of Basel, Switzerland, fascinated in the posterior pituitary
Fighting for mental health – for support, for respect, for you ✊
EU regulatory authority working for public and animal health.
We ensure that all medicines available on the EU market are high quality, safe and effective. Based in Amsterdam.
https://www.ema.europa.eu/
Endocrinologist MD, Endocrine Molecular Pathology PhD Student @Università di Bologna - Visiting Clinical Research Fellow @University of Birmingham
Endocrinology, endocrine oncology, gender-affirming hormone therapy, functional epigenetics
3' untranslated researcher. Splicing & Neuroendocrine Tumors & Pancreatic Cancer. AFOL. The last eMule user.
Scientist at Oxford Brookes University trying to understand epigenetics and endocrine cancers, particularly MEN1 and NETs. Also love travelling and dogs. 👩🏼🔬🧬🧫🔬✈️🐶
We publish Reviews and opinion articles on all aspects of endocrinology and metabolism.
https://www.nature.com/nrendo/
Official account of Great Ormond Street Hospital for Children NHS Trust, sharing stories from our patients, families and staff.
Monitored Mon-Fri
https://www.gosh.nhs.uk/
Consultant & Training Lead for #teamendo @greatormondst.bsky.social | Co-Chair BSPED HPAT Special Interest Group | Co-Chair SIOP Europe BTG Craniopharyngioma Working Group | Food plants own views
Promoting the essential and integrative role of endocrinology in public health, medical research, and health care delivery through our five publications, thematic issues, and special collections.
https://academic.oup.com/endocrinesociety
