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@ronnyvb12.bsky.social

T1D, SJIA/ILD/Rare Disease mom/advocate, marketing professional - Boston, MA www.sjiasupersquad.com https://events.arthritis.org/participant/Ronny-Bachrach-2025

274 Followers  |  662 Following  |  65 Posts  |  Joined: 08.01.2025  |  2.2695

Latest posts by ronnyvb12.bsky.social on Bluesky

Mediocre feels generous

08.08.2025 07:02 — 👍 28    🔁 1    💬 0    📌 0

👏👏

24.07.2025 20:28 — 👍 0    🔁 0    💬 0    📌 0

😡

19.07.2025 03:13 — 👍 0    🔁 0    💬 0    📌 0

😡

19.06.2025 19:27 — 👍 1    🔁 0    💬 0    📌 0
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It’s walk day! Donate for the Walk to Cure Arthritis today! events.arthritis.org/participant/...

08.06.2025 12:41 — 👍 1    🔁 0    💬 0    📌 0

😡

26.05.2025 10:38 — 👍 0    🔁 0    💬 0    📌 0

😡

26.05.2025 10:36 — 👍 0    🔁 0    💬 0    📌 0

😡

22.05.2025 06:49 — 👍 3    🔁 0    💬 0    📌 0

What’s your thought on the protective ability of monthly IVig in someone who can’t be vaccinated?

04.05.2025 12:58 — 👍 1    🔁 0    💬 0    📌 0

Aww

30.04.2025 15:09 — 👍 2    🔁 0    💬 0    📌 0

The cringiest

28.04.2025 12:50 — 👍 0    🔁 0    💬 0    📌 0
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I’m gearing up for the Boston Arthritis Foundation walk. I walk for my daughter Sammy. She has a rare type of systemic arthritis (SJIA). We are raising awareness & funds to help support people with all forms of arthritis. Please consider donating or join us! events.arthritis.org/participant/...

28.04.2025 12:46 — 👍 1    🔁 0    💬 0    📌 0

If you're excited about RFK2 banning a handful of artificial dyes but silent on RFK2 killing food safety inspections and gutting research on cancer, infectious diseases and Alzheimer's, you might not actually be all that interested in public health.

24.04.2025 16:45 — 👍 1298    🔁 321    💬 25    📌 7

🤯

17.04.2025 00:44 — 👍 1    🔁 0    💬 0    📌 0

Ew

12.04.2025 16:48 — 👍 5    🔁 0    💬 0    📌 0

Slippery. Fucking. Slope.

09.04.2025 15:52 — 👍 0    🔁 0    💬 0    📌 0

Sad I missed it. Can’t stand metrix anymore and not sure about how challenging it will be to start plus life for my family/extended family

07.04.2025 22:11 — 👍 0    🔁 0    💬 0    📌 0

Except metrix is not nearly as reliable as lucira.

07.04.2025 22:07 — 👍 0    🔁 0    💬 0    📌 0

I’m so sorry

04.04.2025 18:09 — 👍 1    🔁 0    💬 0    📌 0

Even “far right activist” is generous

04.04.2025 06:16 — 👍 1    🔁 0    💬 0    📌 0

Awful

02.04.2025 13:31 — 👍 2    🔁 0    💬 0    📌 0

Infuriating

02.04.2025 13:12 — 👍 1    🔁 0    💬 0    📌 0

How terribly sad

02.04.2025 00:00 — 👍 0    🔁 0    💬 0    📌 0

😂

28.03.2025 05:23 — 👍 0    🔁 0    💬 0    📌 0
Post image 28.03.2025 01:03 — 👍 1    🔁 0    💬 0    📌 0

Amen!

27.03.2025 22:08 — 👍 0    🔁 0    💬 0    📌 0

😂

25.03.2025 18:32 — 👍 0    🔁 0    💬 0    📌 0

99.4% of new drugs approved by the FDA are the product of NIH funded research.
Remember this every time you see another headline on the NIH funding cuts.
It will directly impact YOU.
#ScienceNOTSilence

23.03.2025 22:36 — 👍 10572    🔁 3030    💬 119    📌 62
Post image 17.03.2025 23:34 — 👍 6    🔁 6    💬 2    📌 1

I assume also for SJIA? Just want to make sure it’s communicated clearly to all parties.

13.03.2025 15:37 — 👍 0    🔁 0    💬 0    📌 0

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