PROSPERO
PROSPERO
Registered: aiming to "add on to existing knowledge regarding camouflaging in autism by understanding if and how language and communication challenges, specifically language or verbal ability, influence camouflaging" www.crd.york.ac.uk/PROSPERO/vie... systematic review of quantitative studies
06.10.2025 08:46 β π 2 π 0 π¬ 0 π 0
Optimising general practice support for autistic adults: a realist review protocol - Systematic Reviews
Background Mental and physical health conditions are more common in autistic than non-autistic people, including anxiety, depression, suicidality, gastrointestinal problems, cancer, epilepsy, and heart disease. General practice is often the first point of contact for patients, yet research has found that autistic people face barriers to healthcare, report lower satisfaction with healthcare, and have more unmet health needs than non-autistic people. This can be due to misunderstandings about the needs of autistic people, different communication styles, the clinic environment, and challenges making and getting to appointments, compounded by slow dissemination of research findings. Our aim is to find out how, why, and to what extent general practice supports autistic adults with and without intellectual disabilities (ID) throughout their lives, in order to suggest improvements to practice. Methods We will conduct a realist review which is a theory-driven systematic review. Electronic databases will be searched including MEDLINE, PsycInfo, EMBASE, the Cochrane Database of Systematic Reviews, CINAHL, Scopus, ASSIA and grey literature sources (e.g. Google Scholar). To be included articles must concern general practice, autistic adults aged 18 and over, contain information relevant to a UK setting, and be written in English. Any study design or article type may be included and articles will be assessed for relevance and rigour. In line with realist synthesis methods we will identify relevant contexts, mechanisms and outcomes and develop a programme theory to explain how, why, and when general practice optimally supports (or not) autistic adults. We will also seek to identify resources that are available for and used by general practice to support autistic adults. We will involve stakeholders in each stage of the review including autistic individuals, family members, and healthcare professionals (including general practice staff). The review will be reported in line with the RAMESES publication standards. Discussion The findings will inform guidance for i) general practice about potentially helpful adaptations to service, and ii) autistic people to help them gain the support they need. This will help to improve access to and engagement with general practice care, and thus potentially improve the health and wellbeing of autistic individuals. Systematic review registration PROSPERO CRD42024545403.
Aiming to "explain how, why, & when general practice supports autistic people, where this support is less than optimal, & why" & "develop guidance for general practices & autistic patients, to help improve healthcare" systematicreviewsjournal.biomedcentral.com/articles/10.... realist review protocol
04.10.2025 09:13 β π 7 π 1 π¬ 0 π 1
Note: this paper's authors "focus on individuals who received their diagnosis in childhood or adolescence, because older adults may have missed an earlier diagnosis of autism owing to secular changes in societal attitudes towards autism"?
02.10.2025 11:10 β π 1 π 0 π¬ 0 π 0
βI Donβt Think Anyoneβs Ever Asked Me About the Two Beforeβ: Making Sense of Co-occurring Autism and BPD in Inpatient Mental Health Settings - Journal of Autism and Developmental Disorders
Purpose Autistic individuals and individuals with borderline personality disorder (BPD) are both more likely than the general population to require access to mental health services, specifically inpatient services. Both groups of individuals have reported difficulties when accessing inpatient services including stigma, lack of understanding and lack of adaptations. Recent research has suggested having diagnoses of both autism and BPD is becoming more common and that individuals with both diagnoses may be more at risk of suicidal thoughts and self-harm behaviours. The aim of this study is to understand the experiences of accessing inpatient mental health services for individuals with a diagnosis of autism and BPD. Methods Semi-structured interviews were conducted with participants. The data were analysed using reflexive thematic analysis. Results Seven participants were interviewed. Six themes were developed: (i) Never fully understood, (ii) Intense need for care and connection, (iii) Prisoner or patient? When care and punishment are intertwined, (iv) Necessary evil, (v) System always wins, (vi) Responsible for own care. Conclusions Autistic individuals with BPD require personalised care that integrates both their diagnoses into their identities. To provide this, staff on inpatient wards need appropriate support including reflective spaces and clinical supervision. Inpatient systems also need to shift away from prioritising the needs of the system and towards prioritising the needs of the individual, including adaptations for autistic individuals.
Autistics diagnosed with BPD on their experiences of inpatient mental health services, interviews, free link.springer.com/article/10.1... "The language used by the participants to describe their experiences of being inpatients led to a sense that they were not in a hospital but a prison"
01.10.2025 10:59 β π 4 π 2 π¬ 0 π 0
PROSPERO
PROSPERO
Registered: "Is there a difference between gesture comprehension in autistic individuals compared to non-autistic individuals, and are there any variables that may moderate gesture comprehension in autistic individuals?" www.crd.york.ac.uk/PROSPERO/vie... systematic review
29.09.2025 08:37 β π 2 π 1 π¬ 0 π 0
First Impressions Matter: Exploring Childrenβs Negative Perceptions of Autistic Children - Journal of Autism and Developmental Disorders
Purpose Many autistic individuals experience social challenges that may stem from negative perceptions held by their non-autistic peers. This study aimed to examine school-aged childrenβs first impressions of autistic and non-autistic children based on viewing brief videos. The central research question was whether autistic children are perceived differently in terms of social traits and how these perceptions affect willingness to engage with them. Methods Thirty-seven children aged 5β12 years old viewed brief (10 s) videos of both autistic and non-autistic children discussing their interests. Participants then rated each child on social traits (i.e., strange, confident, honest, mean, likeable, smart) and indicated their behavioral intentions (i.e., willingness to live near, sit near, hang out with and talk to) towards the children in the videos. Results Autistic videos were rated as appearing more awkward, more aggressive, and less likeable compared to non-autistic videos. However, participants reported a similar willingness to interact with both groups. Importantly, these negative perceptions were not associated with the rater childβs age, IQ, sex, autistic traits, or social competence. Conclusion The findings suggest that school-aged children hold biased perceptions of autistic children, independent of their own personal characteristics. This underscores the need for early educational interventions in schools to address stereotypes about and biases against autism. Teaching children about autism could reduce stigma, foster inclusion, and improve social interactions between autistic and non-autistic peers.
In school-aged children (N=37, age 5-12 years), "more negative first impressions of autistic compared to non-autistic children"? link.springer.com/article/10.1... "Children in this study rated the autistic children they viewed in brief video clips as more strange, mean, and less likeable..."?
28.09.2025 09:03 β π 9 π 2 π¬ 0 π 3
In autistics, "dissociation between objectively measured perceptual sensitivity and self-reported sensory experiences" onlinelibrary.wiley.com/doi/10.1002/... "sensory challenges in autism are unlikely to be explained solely by increased low-level sensory input or basic perceptual sensitivity"
27.09.2025 10:27 β π 4 π 0 π¬ 0 π 0
Conflict of interest policies for editors and peer reviewers in medical journals:cross-sectional study
Editors and reviewers of research manuscripts may have conflicts of interest that impact their evaluations. We aimed to characterise medical journals'β¦
COI policies for medical journal editors & peer-reviewers, autism-relevant, free www.sciencedirect.com/science/arti... "journals rarely describe how disclosed interests are assessed, how they may influence the editorial process, and how journals enforce the consequences of policy violations"
24.09.2025 08:59 β π 2 π 1 π¬ 0 π 0
an autistic woman I knew (RIP) was asked if she might be to blame for 2 of her 4 children being autistic & replied that the real question, in her view, was whether she could take credit
23.09.2025 10:03 β π 2 π 0 π¬ 0 π 0
Mapping the Imageless Mind: Towards a Taxonomy of Aphantasia
An aphantasia taxonomy?--autism-relevant, free www.sciencedirect.com/science/arti... "A striking paradox characterizes congenital aphantasia. These individuals consistently deny any subjective experience of visual images, yet they can accurately recall the visual properties of objects from memory"
23.09.2025 09:55 β π 1 π 0 π¬ 0 π 0
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"hyper-focus and inattention are associated with auditory hyper-reactivity, which is related to anxiety, which is related to hyper-vigilance. Hyper-vigilance is then related to hyper-reactivity"? journals.sagepub.com/doi/10.1177/... data from autistic and/or ADHD & general population adults, free
22.09.2025 08:50 β π 3 π 0 π¬ 0 π 0
Impact of peer-support programs for individuals with autism: A systematic review - Monica HM Verkooijen, Marjolijn Ketelaar, Max van Woerden, Wouter G Staal, Indira Tendolkar, Janneke R Zinkstok, 2025
The neurodiversity approach recognizes autism as a natural variation of human experience, emphasizing unique strengths while acknowledging social and behavioral...
Peer-support programs ("with autistic peers only") for autistics, 15-study systematic review, free journals.sagepub.com/doi/10.1177/... "all studies described an overall positive impact of peer support" "None of the included studies used a control group, and follow-up was often absent or short-term"
19.09.2025 09:58 β π 4 π 2 π¬ 0 π 0
Calendar Calculation: A Systematic Review of 100 Years of Research
Calendar calculation is the ability to answer rapidly to questions such as "What day of the week was May 12, 1978?" or "For which years is February 15β¦
Calendar calculation in autism "is intimately related with our understanding of autistic children processing of structured information, why some types of information are objects of interest, and to which extent their perception of the world differs..." www.sciencedirect.com/science/arti... free
18.09.2025 09:37 β π 3 π 0 π¬ 0 π 0
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
"the neurodiversity movement cannot expand its scope without actively making space for the lived experiences & demands of new constituent groups such as Tourettic people. Among others, a reconsideration of strong anti-cure positions is needed..."? journals.sagepub.com/doi/10.1177/... autism-relevant
15.09.2025 08:32 β π 5 π 1 π¬ 0 π 2
autistics were identified & described in the 1800s, called "idiot savants"
14.09.2025 08:10 β π 10 π 0 π¬ 1 π 0
Review and Developmental Model: Early Childhood Emotion Regulation and Co-Regulation in Autism
Emotion regulation (ER) and dysregulation (ED) significantly impact the mental health and quality of life of autistic individuals and their families, β¦
Emotion regulation in young autistics, review, free www.sciencedirect.com/science/arti... "parent report measures, emotion elicitation tasks, & observational coding systems... were developed for non-autistic children" & "may not capture the features & contexts most relevant to autistic children..."
12.09.2025 09:43 β π 8 π 1 π¬ 0 π 0
Independent researcher and writer. Author of Neurodiversity Weblog (archive at http://neurodiversity.net). Interests include ethics in autism research, human subjects protection, complex investigations.
Disability policy researcher with background in autism and health. My own views
Autism Scientist. Socialist. Football fan (Arsenal). Mountain and music lover (not at the same time). Still much to learn...
Somewhat pessimistic ex-X (Twitter) autism researcher and lifelong Villa fan.
Golden Oldie. Likes Social Cognitive Neuroscience. But not only.
Neuropsychologist and professor at UCL. Clinical psychologist in the NHS. Occasional writer. Interested in people. Views my own.
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Associate Professor, Psychology department, Syracuse University. Autism, neuroscience, development. Licensed psychologist. Views are my own.
Harris Professor; Yale Child Study Center, Yale Developmental Disabilities Clinic, Yale Center for Brain and Mind Health
http://mcp-lab.org
Associate Professor, University of Nottingham and proud kinship carer. Interested in autism and mental health.
Associate Professor at Ohio State, autism researcher, dog mom π»
Research to improve healthcare delivery and health outcomes for autistic adults and adults with other developmental disabilities
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Prof of EBM @UniOxford, author, Bad Science person, more... I run http://bennett.ox.ac.uk making tools+papers from data http://OpenSAFELY.org http://OpenPrescribing.net
Autism and neurodiversity researcher at the University of Bristol. Interested in gender, relationships, mental health, masking, and higher education (sometimes all at once)
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GP researcher @BondUniversity focused on 4 big neglected healthcare problems (non-drug treatments; overdiagnosis; AMR & waste in research); fan of #evidence-based decision making, uncommon sense & surfing. https://healthy-evidence.com/about-2/