Dr. Brittany N Hand

Unfortunately I think that one is CDC funded and is moving forward as far as I’m aware

@bcrodriguez.bsky.social

@autisticadvocacy.org @thinkingautism.bsky.social @autsciperson.bsky.social @autismcrisis.bsky.social

I’m devastated for current and future generations of autistic Americans who are being robbed of scientific advancements that could improve their health and wellbeing.

CDMRP cuts entire autism research program for FY2025. This is a major blow for #AutismResearch in the U.S. cdmrp.health.mil/pubs/press/2...

Development of PREPARE for Autistic Adults: An Adult Autism Training for Resident Physicians Designed with Autistic Adults and Family Members | Autism in Adulthood One barrier to meeting autistic adults' health care needs is the dearth of physicians with autism training. We developed an adult autism training for residents, who are postdoctoral physicians trainin...

Development of PREPARE for Autistic Adults: An Adult Autism Training for Resident Physicians Designed with Autistic Adults and Family Members. @bn-hand.bsky.social details a program co-designed with #autistic adults to address gap in residents' education.

READ shorturl.at/eVu7Q

‘I really wanted something to happen.’ The students behind the Stand Up for Science protests New group hopes to turn out researchers for 7 March demonstrations against Trump administration policies

Scientists are now organizing events, called Stand Up for Science, on 7 March in Washington, D.C., and state capitals.

So far, they have attracted more than 100 volunteers from some 30 states who are hoping to rally support for research as a public good. scim.ag/4328LAD

Welcome to the Bluesky account for Stand Up for Science 2025!

Keep an eye on this space for updates, event information, and ways to get involved. We can't wait to see everyone #standupforscience2025 on March 7th, both in DC and locations nationwide!

#scienceforall #sciencenotsilence

Guidelines for the Creation of Accessible Consent Materials and Procedures: Lessons from Research with Autistic People and People with Intellectual Disability | Autism in Adulthood Informed, voluntary, ongoing consent is a central tenet of ethical research. However, consent processes are prone to exclusionary practices and inaccessibility. Consent materials are often too long an...

Important new insights on how to make consent materials and procedures more accessible when conducting research with autistic people and people with intellectual disability #AutRes
www.liebertpub.com/doi/full/10....

Revealed: NIH research grants still frozen despite lawsuits challenging Trump order The Trump administration is exploiting a loophole to keep a funding freeze in place, leaving researchers in limbo.

NIH research grants still frozen despite lawsuits challenging Trump order

The administration is exploiting a loophole to keep a funding freeze in place, leaving researchers in limbo

🧪 #AcademicSky
@nature.com @natureportfolio.nature.com

www.nature.com/articles/d41...

Citation Context Analysis of Autism Mortality and Suicide Findings This systematic review evaluates the accuracy of citations to a landmark study on premature mortality among autistic people.

Findings from a high-profile study on autistic mortality are widely misrepresented by citing authors jamanetwork.com/journals/jam... with "potential repercussions for autistic people, including psychological distress, altered retirement planning, insurance denials, & exacerbated health disparities"

Citation Context Analysis of Autism Mortality and Suicide Findings This systematic review evaluates the accuracy of citations to a landmark study on premature mortality among autistic people.

>70% of citing authors misrepresent findings on mortality in autistic people, often falsely claiming “people with autism die 16 years earlier” or have a “54-year life expectancy.”

New OA paper with @drlaurenbishop.bsky.social
jamanetwork.com/journals/jam...

My university library is assembling a list of resources for disappeared US government #data. Check it out: subjectguides.library.american.edu/data_rescue

What NIH research funds…

If you’ve been directly impacted by a pause or cancellation of an NIH study session, we @forbes.com would like to talk to you

Added- Feel free to share and let me know if there are others I’ve missed!

Added- Feel free to share and let me know if there are others I’ve missed!

Repetitive Behaviours in Autistic and Non-Autistic Adults: Associations with Sensory Sensitivity and Impact on Self-Efficacy - Journal of Autism and Developmental Disorders Purpose: Restricted and repetitive behaviours are a core feature of autism diagnoses but have not been widely studied in adulthood. This study examined the rates of and associations between repetitive...

“Stimming had a SIGNIFICANT POSITIVE impact on autistic adults’ self-rated self-efficacy”

“Results CONTRADICT the negative view often expressed suggesting that stimming should be eradicated”

“Stimming has a POSITIVE effect and SUPPORTS autistic individuals’ ability to COPE with difficulties”

🫠

There's half a dozen of them at this point I think!

Autism health research - bsky.app/starter-pack...
Autism research - bsky.app/starter-pack... & bsky.app/starter-pack...
Autistic professionals (includes some researchers) - bsky.app/starter-pack...
Autistic psych people - bsky.app/starter-pack...

About Whom Are We Talking When We Use Intellectual and Developmental Disabilities? - PubMed Authors of scholarly works, clinical publications, policies, and position papers are encouraged to provide a clear operational definition as well as the choice of initialisms used (eg, ID/DD, IDD, I/D...

On the confusing definitions of ID & DD: "Not everyone with a DD has ID, but do all people with ID, by definition, have a DD? Can someone have ID but not DD? How are populations of people with ID, DD, and IDD characterized in different datasets?" pubmed.ncbi.nlm.nih.gov/39585684/ autism-relevant

Would love to be added to this list if there is still room. Thanks!

Added!

Added!

Added!

Added!

Added! Thanks for the recs and definitely send more my way if you think of any :)

Added! feel free to share!

Added! Feel free to share!

Added! Feel free to share!

Lovely to be able to post our first “new” paper since I started hanging out here rather than the other place 😎

Wonderful to work with such a fabulous team on such a great project, bringing knowledge of neurodivergence to medical education. More to come, watch this space!