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Sarah Walter

@sarahmwalter.bsky.social

Working to empower research participants and co-create research that involves their perspectives and priorities. Alzheimer’s, Dementia, Down Syndrome with Alzheimer’s, Clinical trials, Advocacy. PhD Candidate, University of Edinburgh

560 Followers  |  298 Following  |  55 Posts  |  Joined: 14.11.2024  |  1.9728

Latest posts by sarahmwalter.bsky.social on Bluesky

Current list of terminated grants by NIH. taggs.hhs.gov/Content/Data...

20.03.2025 14:02 — 👍 8    🔁 4    💬 0    📌 4

Affected in any way by recent federal science cuts? Please fill out and share a new survey to track impacts.👇

I'm unaffiliated but can vouch this is being run by a group of alumni of the AAAS Science & Technology Policy Fellowship and USAID Science for Development Fellowship.

08.03.2025 23:11 — 👍 35    🔁 23    💬 2    📌 0

This was fantastic, thanks for sharing!

04.03.2025 00:34 — 👍 1    🔁 0    💬 0    📌 0
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Francis Collins, the NIH Director for 12 years, led the Human Genome Project and other NIH efforts for 32 years, resigned today. Key words from his resignation letter
www.nytimes.com/2025/03/01/u...

01.03.2025 18:07 — 👍 3159    🔁 1398    💬 62    📌 95

This is critical research. Cancelled.

01.03.2025 17:17 — 👍 1    🔁 0    💬 0    📌 0

Thank you for sharing this, Jace. I hope the researcher is able to appeal.

01.03.2025 15:53 — 👍 5    🔁 0    💬 0    📌 0
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Please see a collective response from an esteemed group of leaders in the dementia field to the NYT article and book “doctored” by Charles Piller. www.nytimes.com/2025/01/24/o...

08.02.2025 17:55 — 👍 32    🔁 16    💬 1    📌 1
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Opinion | The Price of Fraud in Alzheimer’s Research Readers worry that fraud may tarnish the field and slow the race for a cure. Also: Charles Blow’s farewell; treatment for addiction; the Gulf of America; Socrates and Donald Trump.

A scientist and dear friend wrote this response to misleading accusations of fraud in #Alzheimers research. www.nytimes.com/2025/02/06/o...

07.02.2025 20:04 — 👍 0    🔁 0    💬 0    📌 0

As a mom of a young teenage girl, I want to thank these researchers for this beautiful work! What a powerful example of good science and intentional co-production! #socialscience #inclusion #womenshealth

06.02.2025 17:08 — 👍 7    🔁 1    💬 2    📌 0

Go Oanh go!!

05.02.2025 17:40 — 👍 1    🔁 0    💬 1    📌 0
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Alzheimer's & Dementia: Behavior & Socioeconomics of Aging Click on the title to browse this journal

Y’all, @alzdemjournals.bsky.social Behavior & Socioeconomics of Aging (BSEA) has reached an important milestone ALREADY! 3 peer-reviewed research papers: PUBLISHED! Read and share: alz-journals.onlinelibrary.wiley.com/journal/2997...

05.02.2025 00:10 — 👍 13    🔁 3    💬 1    📌 1

So glad you are here!!

04.02.2025 16:38 — 👍 1    🔁 0    💬 0    📌 0

⭐Webinar reminder! Join us tomorrow, February 5th.

Find out how our panelists have navigated working as part of a research team, including what supports and facilitators they have asked for or created for themselves.

#PatientEngagement #PatientPartners #PPI #PxP25

04.02.2025 16:26 — 👍 4    🔁 3    💬 0    📌 1
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Really looking forward to this webinar on partnering with #Vietnamese communities - sign up here! Alz.org/research-webinars #dementia #research #participatoryresearch

04.02.2025 15:19 — 👍 3    🔁 1    💬 0    📌 1

This is unacceptable, clear disparity in diagnosis which will impact these individuals and families in enormous ways!

17.01.2025 19:49 — 👍 2    🔁 2    💬 0    📌 0
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UW Madison seeks a visionary and transformative leader for Division Chief, Geriatrics and Gerontology. This is an exceptional opportunity to expand research on aging, guide the professional development of faculty and shape the next gen of medical professionals. To apply: lnkd.in/gWp23jDN

15.01.2025 14:22 — 👍 1    🔁 1    💬 0    📌 0
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NIHR to increase commitment to Public Partnerships and Research Impact with new Coordinating Centre contract

UK #PublicInvolvement #PPI news:
@nihr.bsky.social Centre for Engagement & Dissemination (formerly INVOLVE) to be hosted by @bmj.com group from 1/4. They will lead & coordinate 'Public Partnerships & Research Impact activities'.
www.nihr.ac.uk/news/nihr-in...
Will be watching with interest...
#PPIE

17.01.2025 10:24 — 👍 10    🔁 4    💬 2    📌 0

It's so important to listen to patients! 👇

#PatientInvolvement #PatientEngagment #Listen

16.01.2025 13:50 — 👍 3    🔁 1    💬 0    📌 0
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When speaking to (or about) someone living with a #mentalhealth condition, it’s best to use person-first language that focuses on the individual, not the illness.

You can find a full list and a FREE DOWNLOAD wellbeings.org/LanguageGuide

08.01.2025 19:35 — 👍 1    🔁 1    💬 0    📌 0
N95 Masks are Available at all Los Angeles Public Library Locations

N95 Masks are Available at all Los Angeles Public Library Locations

All Los Angeles Public Library locations are providing free N95 masks. Libraries are essential!

14.01.2025 02:57 — 👍 6934    🔁 2422    💬 54    📌 58
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Engaging older adults in the process of aging research: a multimethod study evaluating the experience and efficacy of a citizen advisory group for a dementia risk reduction program - Research Involvem... Background Collaborative research with end-users is an effective way to generate meaningful research applications and support greater impact on practice and knowledge exchange. To address these needs,...

So wonderful to have the evidence that both researchers and community members benefit when we partner! Important learning —> community members value quality of relationship and a focus on #prevention #dementia #ppi researchinvolvement.biomedcentral.com/articles/10....

05.01.2025 19:21 — 👍 2    🔁 0    💬 0    📌 0

Happy new year #PublicInvolvement people 🎊
This starter pack is growing growing fast & almost at capacity. So if you work in health & care research #PPI &/or #Coproduction & would like to be added let me know 👋.
If you're on it already take another look 👀, as there may well be new people to follow

04.01.2025 12:20 — 👍 8    🔁 3    💬 1    📌 0
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TIDE (Together In Dementia Everyday) has been awarded a grant by the Dementia Trust to begin some peer support groups for carers of people with young onset dementia (YOD) in conjunction with the Alzheimer's Society
(@alzheimerssoc.bsky.social).

Read More: buff.ly/3ZZa8gl

01.01.2025 08:37 — 👍 2    🔁 1    💬 0    📌 0

It was a research and development year- next year will be production…

01.01.2025 01:10 — 👍 1    🔁 0    💬 0    📌 0
The final Calvin and Hobbes cartoon. The entire page is mostly white as they're in the winter snow. The pair is walking with a sledge, nicely duffled in in scarves, hats, gloves. Calvin delightedly exclaims 'wow, it really snowed las night! Isn't it wonderful?'. Hobbes follows up with 'Everything familiar has disappeared! The world looks brand-new!' -- A new year... a fresh, clean start!' adds Calvin. As they look over the landscape, Hobbes observes 'it's like having a big white sheet of paper to draw on!' -- 'A day full of possibilities!' Calvin affirms. They get ready on their sledge and Calvin tells his friend 'it's a magical world, Hobbes, ol' buddy... let's go exploring!', and the pair sledges off into the wintery landscape.

The final Calvin and Hobbes cartoon. The entire page is mostly white as they're in the winter snow. The pair is walking with a sledge, nicely duffled in in scarves, hats, gloves. Calvin delightedly exclaims 'wow, it really snowed las night! Isn't it wonderful?'. Hobbes follows up with 'Everything familiar has disappeared! The world looks brand-new!' -- A new year... a fresh, clean start!' adds Calvin. As they look over the landscape, Hobbes observes 'it's like having a big white sheet of paper to draw on!' -- 'A day full of possibilities!' Calvin affirms. They get ready on their sledge and Calvin tells his friend 'it's a magical world, Hobbes, ol' buddy... let's go exploring!', and the pair sledges off into the wintery landscape.

31 December 1995. Still the perfect goodbye.

31.12.2024 12:21 — 👍 22245    🔁 4804    💬 282    📌 269
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Late‐life social activity and subsequent risk of dementia and mild cognitive impairment INTRODUCTION Social activity is associated with better cognitive health in old age. To better translate epidemiological research for public health communication, we estimated relations of levels of .....

Critical findings from my man @bryandjames.bsky.social at Rush Alzheimer's Disease Research Center. Social activities may delay dementia onset by 5 years. That delay could result in $500,000 savings in healthcare costs. #ENDALZ #Alzheimer's

alz-journals.onlinelibrary.wiley.com/doi/10.1002/...

30.12.2024 20:31 — 👍 25    🔁 7    💬 1    📌 0

Fantastic paper- showing effectiveness of engaging with older adults to disseminate science!! Let’s go!!

28.12.2024 02:16 — 👍 4    🔁 0    💬 1    📌 0
Official NORAD Tracks Santa

🎅📡 Track Santa this Christmas!

The North American Aerospace Defense Command (NORAD)'s Santa Tracker uses radar, satellites & jets to monitor Santa's flight around the globe

A fun way to explore tech & science this Christmas!

Track Santa here: www.noradsanta.org

#Christmas #Santa #SciComm 🧪

24.12.2024 13:46 — 👍 17    🔁 8    💬 0    📌 0
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Blob-headed fish and amphibious mouse among 27 new species found in ‘thrilling’ Peru expedition Scientists surprised to find so many animals unknown to science in Alto Mayo, a well-populated region

Great to hear of new discoveries and I hope the exhibition bolsters conservation efforts 🧪🌍

20.12.2024 09:45 — 👍 51    🔁 11    💬 0    📌 0
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#researchadvent for today - excited to be part of the team planning #publicengagement with www.Aptwebstudy.org anyone over 50 is welcome to join our online Webstudy #prevention #alzheimers #endalz

16.12.2024 16:47 — 👍 4    🔁 0    💬 0    📌 0

@sarahmwalter is following 20 prominent accounts