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Joe - Dystrophy Dad

@dystrophydad.com.bsky.social

Disabled writer, blogger and poet. Dystrophydad.com

41 Followers  |  37 Following  |  12 Posts  |  Joined: 14.11.2024  |  1.3529

Latest posts by dystrophydad.com on Bluesky

A graphic design featuring the new Euan's Guide branding with text reading Something new is coming Today, on what would have been Euan's 51st birthday, we want to share the beginning of a new chapter for Euan's Guide.

A graphic design featuring the new Euan's Guide branding with text reading Something new is coming Today, on what would have been Euan's 51st birthday, we want to share the beginning of a new chapter for Euan's Guide.

A photograph of Euan MacDonald MBE with the new Euan's Guide logo and branding

A photograph of Euan MacDonald MBE with the new Euan's Guide logo and branding

A graphic design of the new Euan's Guide branding with text reading New Look. Same Purpose. Thank you for being part of the journey.

A graphic design of the new Euan's Guide branding with text reading New Look. Same Purpose. Thank you for being part of the journey.

Today would have been Euan’s 51st birthday πŸ’›

Later this summer, Euan’s Guide will have a gentle refresh - a welcoming, clear and accessible new look. Our new logo features Euan’s handwriting, a lasting tribute to the man who started it all. buff.ly/kFIVyoM

#Accessibility

14.08.2025 10:00 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 1
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Pride Month: Intersectionality and Inclusion A blog post by Euan's Guide Review Coordinator, Pat, on Pride Month: Intersectionality and Inclusion.

In recognition of #PrideMonth, our Review Coordinator, Pat, shares their thoughts on the experience of being queer and disabled, and the ways in which both communities intersect.

20.06.2025 19:00 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
A white, non-binary person with short curly hair and round gold glasses smiles at the camera. They’re wearing pink dungarees and a yellow shirt. They are sitting in front of a teal wall with the Euan’s Guide logo.

A white, non-binary person with short curly hair and round gold glasses smiles at the camera. They’re wearing pink dungarees and a yellow shirt. They are sitting in front of a teal wall with the Euan’s Guide logo.

Meet our new Review Coordinator, Pat!

Pat says, "When I became disabled, I missed doing the things I enjoyed. Getting back out there and travelling improved my quality of life, and I’m excited to share information that helps others do the same."

Please give them a warm welcome!

30.05.2025 14:01 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Heading into the long weekend like…

Where are you off to this Easter weekend? For inspiration - or to share great accessible places with others - head to our website #EuansGuide. Link in bio.

18.04.2025 08:07 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
A photo of Joe through the accessible door of a bus, sitting on a seat with his wheelchair in front of him.

A photo of Joe through the accessible door of a bus, sitting on a seat with his wheelchair in front of him.

Travel Takeover!

Our Community Manager has boarded his coach to set off on another accessible adventure. Over the next few days we'll be showcasing a UK city.

Where do you think we're going?

#accessibletravel #travelwithconfidence

17.02.2025 11:49 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0
Image of Joe, a white man with a beard and shaved head, sitting in his wheelchair and Sonny, a white man wearing a black beanie, standing. On the teal wall behind them is a white speech bubble with text reading "Euan's Guide Disabled Access Reviews:

Image of Joe, a white man with a beard and shaved head, sitting in his wheelchair and Sonny, a white man wearing a black beanie, standing. On the teal wall behind them is a white speech bubble with text reading "Euan's Guide Disabled Access Reviews:

Our Community Manager, Joe, was recently featured on the Invisible CitiesTalks podcast, where he discussed accessibility in tourism with host Sonny.

https://buff.ly/4hAxUa5

14.02.2025 14:00 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

An introduction from the good folks at @euansguide.com πŸ’š

29.01.2025 14:40 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Publications and Partnerships Below is a collection of commissioned articles and featured writing for various websites. If you’d like me to write for your website or publication, please contact meΒ here. Allied Mobility/Mob…

Did you know I’m available to write blogs and articles for your website?

Have a look at some of the work I’ve done for others and reach out to me if you’re looking for an authentic disabled voice and writing that finds humour in the challenges life brings.

dystrophydad.com/publications...

30.12.2024 14:19 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Image of a red wall with white letters reading "Welcome to Cardiff" in English and Welsh

Image of a red wall with white letters reading "Welcome to Cardiff" in English and Welsh

We're in Cardiff!

Today we're in the Welsh capital.

Keep an eye on the replies to see where we get to.

And let us know your favorite place in the Welsh capital!

10.12.2024 10:32 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 3    πŸ“Œ 0

Rather proud to be featured in here πŸ’š

08.12.2024 21:54 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Disabled Access Reviews As the Community Manager at Euan’s Guide, my day job gives me the opportunity to open the world for other disabled people. A key part of my job is to travel up and down the UK and write disab…

I've updated my website to include links to all 115 disabled access reviews I've written for Euan's Guide.

It covers Aberdeen, Dunfermline, Dundee, Glasgow, Manchester and Paisley so far.

dystrophydad.com/4457-2/

Have a read and consider adding your own at www.EuansGuide.com

02.12.2024 10:21 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Wandering the world on wheels - Muscular Dystrophy UK Joe lives with Becker muscular dystrophy and is a passionate writer, blogger, and poet. He shares his experiences to help make travel more accessible for everyone.

A wee piece written for Muscular Dystrophy UK.

25.11.2024 16:05 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

Ah don't worry about it. Happens all the time.

25.11.2024 14:57 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I'll pass that on 😁

25.11.2024 14:40 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Thanks for sharing. We have user generated reviews from across the world, if you find a good (or bad) venue, please consider adding your voice.

25.11.2024 14:39 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Disabled Access Reviews As the Community Manager at Euan’s Guide, my day job gives me the opportunity to open the world for other disabled people. A key part of my job is to travel up and down the UK and write disab…

I've updated my website to include links to all 115 disabled access reviews I've written for Euan's Guide.

It covers Aberdeen, Dunfermline, Dundee, Glasgow, Manchester and Paisley so far.

Have a read and consider adding your own at Euansguide.com

dystrophydad.com/4457-2/

25.11.2024 14:33 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 1
A red screen on a stage lit by puple lighting reading Antonia Lee-Bapty Chief Executive Euan's Guide. There are people sitting in front of the screen and stage.

A red screen on a stage lit by puple lighting reading Antonia Lee-Bapty Chief Executive Euan's Guide. There are people sitting in front of the screen and stage.

A selfie of Euan's Guide's CEO, Antonia, and Euan's Guide Ambassador, Chloe.

A selfie of Euan's Guide's CEO, Antonia, and Euan's Guide Ambassador, Chloe.

A photo of light up letters reading Power 100 on a white tiled floor.

A photo of light up letters reading Power 100 on a white tiled floor.

To say we've had an emotional evening would be an understatement! A tribute to our founder Euan MacDonald MBE and highly commended for our Safer Toilets campaign.
We're committed to continuing Euan's legacy. ❀️ #Power100

20.11.2024 20:20 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

150,000! πŸ‘πŸ‘πŸ‘

19.11.2024 18:23 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Fuelling the fire If you’ve read my blog before, you’ll recall that a clinical psychologist once explained to me that they felt writing was keeping me alive. And they were right. Like many disabled people, or indeed…

When my depression fuels my writing, how do I write when those feelings leave?

Find out in my new blog.

dystrophydad.com/2024/11/08/f...

18.11.2024 21:56 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Dystrophy Dad

A quick introduction. I'm Joe, a father with Becker Muscular dystrophy, hence the name. I'm a writer, blogger and poet and I work for a disabled access charity. We'll see how active I am on BS but feel free to check out my site dystrophydad.com or follow me on Instagram.

#disability #writer

14.11.2024 20:16 β€” πŸ‘ 9    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

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