REFUEL-MS

The Refuel MS clinical trial has started🎉 We’re testing how effective the Refuel MS intervention is vs usual care🔎

Recruitment is now by invite via @ukmsregister.bsky.social📝 Thank you to all who helped us get here🧡

@ronamoss-morris.bsky.social

#multiplesclerosis#msresearch#digitalintervention

🚀 REFUEL-MS attended the MedTech Accelerator Bootcamp – and what a fantastic experience it was!

Many thanks to the team at London Institute for Healthcare Engineering (LIHE) for hosting! @kingscollegelondon.bsky.social

🔗 Head over to our Instagram to read more: www.instagram.com/p/DMYApCJtv7...

💙 It’s Carers Week 2025!
⚖️ This year’s theme: Caring About Equality - highlighting the inequalities and need for change
At Refuel-MS, we stand with carers in the MS community and beyond. Your role and challenges matter.

Head over to our Instagram to read more: www.instagram.com/p/DKwvQYmtr2...

Happy Eid al-Adha from the REFUEL-MS team to everyone who celebrates! ✨🌙

#eidaladha #refuelms #eidmubarak #multiplesclerosis #msreserach #msfatigue #eid

Happy Pride Month from all of us at REFUEL-MS! 💚💛🧡

Inclusivity is a core part of our work, and we're proud to celebrate love, identity, and self-expression — not just this month, but every day 🩷💜💙

#refuelms #pride #pridemonth #multiplesclerosis #msresearch #multiplesclerosisawareness

It's World MS Day! 🌏🧡 This year’s theme: My MS Diagnosis – Navigating MS Together.

Check out our Instagram to hear from the MS community, and what research says, about the diagnosis experience, and how we can support people through it: www.instagram.com/p/DKRkvypMFE...

Living Well with MS Day 2025! A fantastic day of connection, updates in MS research, and sharing our work. So lovely to see some familiar faces and meet many new ones.
Thank you to the MS Society – West Central London for having us! 🧡 #REFUELMS #MSResearch #digitaltherapies #kingscollegelondon

We’re listening. What would you like more researchers to understand about MS? 👂💬🧠

MS Awareness Week 2025 - Part 3/3

#refuelms #msawarenessweek #msconversations #lifewithms #msawareness #msresearch #listeningandlearning #patientvoicesmatter #coproduction #researchwithimpact

What’s one MS-related conversation you are proud you had – or wish you had sooner? You never know who needs to hear your story 👇💬📢

MS Awareness Week 2025 - Part 2/3

#refuelms #msawarenessweek #msconversations #lifewithms #speakup #empoweredvoices #yourvoicematters #mscommunity #breakingthestigma

Have you had a conversation about fatigue that changed how someone saw MS? Share your experience below 💙 💬 ✨

MS Awareness Week 2025 - Part 1/3

#RefuelMS #MSAwarenessWeek #MSConversations #MSfatigue #InvisibleSymptoms #LifewithMS #FatigueAwareness #SpeakUp #YourVoiceMatters #MaketheInvisibleVisible

Check out any of the charities listed below to find out what support is available:

@mssocietyuk.bsky.social , MS Together, @mstrustuk.bsky.social , @ms-uk.bsky.social , Neuro Therapy Network, @shiftms.bsky.social , Talks with MS, @overcomingms.bsky.social

When we talk about MS, finding the right words can be tough – but it doesn’t have to be.

That’s why, this MS Awareness Week, the UK’s leading MS charities are teaming up start #MSConversations

This year’s theme is designed to break the stigma and get people talking about MS!

Our April newsletter is out!🌸📧

This issue is packed with updates, including highlights from the Refuel-MS launch event, details on our upcoming clinical trial, a recap of the MS Trust Conference, introductions to new team members, and information on how to get involved through PPI opportunities.

📢REFUEL-MS at the MS Trust Conference 2025! It was a fantastic time – such insightful talks on other innovative research and service developments, and a great sense of community.
Thank you to the @mstrustuk.bsky.social for bringing together so many passionate MS professionals💙

#MSTrust #MSResearch

Happy Eid al-Fitr from the REFUEL-MS team to everyone who celebrates! ✨🌙

#eidalfitr #refuelms #eid #multiplesclerosisresearch #msfatigue

refuelms on Instagram: "To celebrate everyone’s hard work over the past few years, we hosted our first REFUEL-MS event! 🎉 As we head into the next phase o…" To celebrate everyone’s hard work over the past few years, we hosted our first REFUEL-MS event! 🎉 As we head into the next phase of our programme, we wanted to showcase what REFUEL-MS is, and how the intervention was developed 📲To everyone who’s been a part of REFUEL-MS, past and present, we couldn’t have done it without you! Thank you to everyone who attended, and a special thanks to the @mssocietyuk , NIHR, GSTT, Avegen, and our PAG 🌟 📷: @fh_otography #refuelms #mssocietyuk #digitalhealth #ms #multiplesclerosis #multiplesclerosisresearch #msfatigue #msresearch #kingscollegelondon #research #digitaltherapy #healthpsychology #fatigue

To celebrate everyone's hard work over the past few years, and to showcase what REFUEL-MS is, we hosted our first REFUEL-MS event! 🎉

To see more, head over to our Instagram! www.instagram.com/p/DHqVsxfsgU...

#refuelms #multiplesclerosis #msfatigue #msresearch #digitaltherapy #healthpsychology

Lots of exciting things to come from @kcl-ms-research.bsky.social - be sure to follow their page!

Huge congrats to the @refuelms.bsky.social team on their app launch last week! 🎉

Excited for the upcoming projects in the health psychology team at @kingsioppn.bsky.social, where we're developing an app for psychological distress and other invisible symptoms of MS forming my PhD 🧠📱

Healthcare practitioners needed to join MS fatigue app trial

‼️ New Blog ‼️
In our recent blog for @ms-uk.bsky.social we share how UK-registered healthcare professionals can get involved to support people living with MS through our upcoming clinical trial!

Click this link to read the full blog and learn more: ms-uk.org/blog/healthc...

‼️ New Blog ‼️
Our latest blog for @ms-uk.bsky.social shares the next steps for REFUEL-MS, including details on our upcoming clinical trial to test our digital treatment app for MS fatigue!

Click this link to read the full blog and learn how you can get involved: ms-uk.org/blog/new-res...

Ramadan Mubarak from the REFUEL-MS team! Wishing everyone observing Ramadan a month of kindness and community ✨🌙

#ramadankareem #refuelms

MS Health Care Practitioner

🔗Click on the link below to learn more and apply:
www.kcl.ac.uk/jobs/107466-...

#refuelms #digitaltreatment #multiplesclerosis #msresearch #healthcareprofessional #healthcarepractitioner #healthpsychology #kingscollegelondon

🚨Job Alert🚨
We’re looking for UK registered Health Care Practitioners to join the REFUEL-MS team at King’s College London for our upcoming randomised controlled trial! @kingsioppn.bsky.social @divhealthpsych.bsky.social

Read more about the role below 👇

👩‍🔬✨ We are celebrating International Day of Women and Girls in Science! ✨👩‍💻

#WomenInScience #GirlsInSTEM #IDWGS #refuelms #healthpsychology #IoPPN #msresearch #mscommunity #msawareness

Congratulations to our research team and healthcare professionals as the REFUEL-MS acceptability study comes to a close! And a huge thank you to everyone who participated in the study🎉
Swipe through to read more about this study & stay tuned for exciting things ahead 📲
#multiplesclerosis #research

🧧✨Happy Lunar New Year from Refuel-MS!✨🏮

As we welcome the Year of the Snake, we celebrate new beginnings, resilience, and the strength of community — values that deeply resonate with those navigating life with MS.

Wishing everyone celebrating a joyful and prosperous year ahead!

Watch the reel (on Instagram) to hear more about our commentary paper here: t.co/jN1Xj010u3

Also, a huge shout out to our Patient Advisory Group and diversity expert collaborators, funders, and wider team members, who make this work possible! ✨

📢Closing soon📢
Our commentary paper on “Diversity and inclusion in behavioural intervention trials in multiple sclerosis” is free to download until the end of January!

Find the paper on our Linktree🔗 (in bio)

#msawareness #msresearch #inclusion #diversity #refuelms #openaccess #healthpsychology

🎉 Happy New Year from the REFUEL-MS team! 🎉

We want to thank everyone who's been involved in the REFUEL-MS journey so far, and we're very excited for what 2025 will bring!

#happynewyear #refuelms #mscommunity #lifewithms #msawareness #msresearch #multiplesclerosis #msfatigue #newyeargoals

Merry Christmas and Happy Holidays from REFUEL-MS 🎄✨🦌

A big thank you to our wonderful team, PAG, and collaborators for such amazing work this year! We’re excited to see you all in 2025 🎊

#refuelms #christmas #multiplesclerosis #msresearch #multiplesclerosisawareness #msfatigue