@duncann-n.bsky.social
Specialist Nurse, tenor, travel loving, new experience, answer seeking type of guy. Lifelong PKU experience and on treatment #PKU #RareDisease Own views shared
π£ Last year's 'The Life of adults with PKU' campaign highlighted adult PKU life. Now, adults, share your REALITIES! Describe diet struggles, healthcare issues, social limits & ACHIEVEMENTS! π§ Use #adultpkuawareness to demand equal care! Your stories matter! πͺ
14.04.2025 07:29 β π 1 π 2 π¬ 0 π 1
Do you know someone making a real difference for PKU patients? π€ Nominate them for the Sheila Jones Award! π
Patients, families, doctors, dietitians & industry β anyone can nominate! π Birmingham Children's Hospital decides the winner. Nominate: espku.org/sheila-jones-a
This is the official Bluesky account for the International PKU Day. Follow this account not to miss anything related to International PKU Day and raising awareness of Phenylketonuria.
02.02.2025 15:09 β π 3 π 2 π¬ 0 π 0
The Scientific Advisory Committee of the E.S.PKU invites submission of abstracts (from health professionals only) on research and developments in PKU for oral presentation at the E.S.PKU professional meeting on 26th Sept. 2025. Submit the abstract here:
www.pku.at/x7w9gs
Hello, I've moved back into the light!
23.01.2025 23:24 β π 2 π 0 π¬ 0 π 0
