Bald Eagle 🦅 in Action. #eagle #baldeagle #photopraphy
05.07.2025 18:22 — 👍 1 🔁 0 💬 0 📌 0
YouTube video by E.S.PKU
Interview with Florentina (a PKU adult) - teaser
🎥 Here’s a sneak peek of today’s interview with Florentina Baričević as part of the #pkulifestories campaign! #adultpkuawareness
youtu.be/d6phyB0CLj0?...
Don’t miss out, click the link ⬇️ + enable notifications so YouTube alerts you when the interview premieres: m.youtube.com/watch?v=ahjn...
27.01.2025 08:09 — 👍 2 🔁 2 💬 0 📌 1
A awesome story coming up. Hope the editing work was worth this first of many very interesting stories!
26.01.2025 15:50 — 👍 2 🔁 1 💬 0 📌 0
We are excited to announce The PKU Life Stories Campaign that through the stories of people with PKU and their families will raise awareness of #PKU offer advice and show that with proper care people with Phenylketonuria can live their life to the fullest! Share & watch this space! #pkulifestories
26.01.2025 08:18 — 👍 3 🔁 1 💬 0 📌 1
🌟 E.S.PKU has joined BlueSky! 🎉 Follow us for updates, insights, discussions abt life with #PKU, innovative treatments, advocacy & political activity. Let’s connect + grow our community of people with PKU, supportive organizations, & dedicated professionals. Together, we can make a difference! 🌍💚
12.01.2025 10:20 — 👍 4 🔁 2 💬 1 📌 1
#Author, #publichealth advocate, #genetics PhD.
Creatively driven & scientifically inspired, Mom of 2 with #PKU.
Latest book: When the Baby Is Not OK: Hopes & Genes
https://jjbrownauthor.com/
Specialist Nurse, tenor, travel loving, new experience, answer seeking type of guy. Lifelong PKU experience and on treatment #PKU #RareDisease Own views shared
[bridged from https://mastodon.online/@caoimhin on the fediverse by https://fed.brid.gy/ ]
Professional interest in nutrition in rare disease. Very amateur interest in music and sport !
Dadding, nursing, PKUing. House servant to the child and @emmavardy2.bsky.social
Brexit pushed Uk migrant navigating life in Spain. Mum to two phenomenal kids living with the genetic metabolic condition PKU.
https://www.researchgate.net/profile/Sharon-Buckley-2
Lecturer Researcher Advocate
#PKU #LowProtein #BrainHealth #RareDisease
"Ní neart go cur le chéile"
The views and opinions expressed here are solely my own
Board member of European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria, social services specialist, patient advocate. ♥️: 📖🚗✈️🎶📺
Works #museum #education. Here for the #art, #comics, #SciFi, #news | Photos mine or otherwise credited. Followers with bio, activity, etc. more likely to become mutuals | ☘️ #SpeirGorm / #SpéirGhorm | 🐘 @MarkMaguire@mastodon.ie | 🧵 @markbmaguire
PKU ADHD Mother to my bb g & lil black cat, xbox player, crotchet hooker, ginger and expert on ice cream.
Physician. Honorary Professor of Geriatric Medicine, University of Manchester. Delirium. Dementia. Quality improvement. Book lover. Mum to daughter with PKU.
Wrangles code and dodges protein for a living (PKU).
🧬 Adult with Phenylketonuria (PKU)
🎥 Storyteller
📔Writer
🎸 Musician
Apple, iPhone, iPad, and Mac rumors, news, tips, and videos. This is the official MacRumors.com Bluesky account. Follow us! Message us with questions and comments.
International PKU Day was established and is led by the E.S.PKU to celebrate the legacy of Horst Bickel and Robert Guthrie as well as to raise awareness of Phenylketonuria.
E.S.PKU - European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria in the umbrella organization of about 41 national and regional associations from 31 countries established by parents and/or patients.
Politik, Medien & Sonstiges | Kein ORF-Account | Blog: arminwolf.at | Foto: Peter Rigaud
