POTS is not a fainting disorder. Syncope and/or presyncope aren’t the only symptoms of POTS. In fact, only 20-30% of people with POTS pass out at all.
Source: Postural Tachycardia Syndrome – Diagnosis, Physiology, and Prognosis. Arnold, A. et al. (2018)
It's a common misconception that POTS is a "fainting disorder." In reality, the majority of POTS patients don't faint at all. When healthcare providers don't recognize the symptoms of POTS and other types of dysautonomia, this can cause a diagnostic and treatment delay for many people.
08.03.2025 01:13 — 👍 7 🔁 1 💬 0 📌 0
About 94% to 96% of people diagnosed with POTS are white.
With an average diagnostic delay of 5 years, getting a POTS diagnosis is already difficult, but due to discrimination and lack of representation and diversity in healthcare, it’s likely BIPOC are having an even harder time getting diagnosed.
04.03.2025 16:22 — 👍 4 🔁 0 💬 0 📌 0
Women with POTS or VVS are more likely to have endometriosis than healthy women.
20% of women with POTS have endometriosis, compared to 5% of healthy controls.
11% of women with vasovagal syncope have endometriosis, compared to 5% of healthy controls.
Although research is limited, women with postural orthostatic tachycardia syndrome or vasovagal syncope are more likely to have endometriosis.
20% of women with POTS (Peggs, Kiffany J et al., 2012) and 11% with VVS (Muppa, Prasuna et al., 2013) have endo, both compared to 5% of healthy controls.
03.03.2025 22:43 — 👍 4 🔁 1 💬 0 📌 0
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We are the leading non-profit advocating for over 70M people around the world living with autonomic nervous system disorders. Research, Clinician Education, Patient Empowerment, Public Awareness & Advocacy is what we do. DysautonomiaInternational.org