Helen/OT_Skiff

YouTube video by Long COVID Physio Day 2 - Workshop: Daily Activities and Work

Throwing it back to September 2022 and the @longcovidphysio.bsky.social International Forum.

I was part of the planning committee for this event & also had the privilege of Chairing the Daily Activities & Work workshop.

youtu.be/cw0Ltg1NyPI?...

#LongCovid #PwME #POTS #Pacing #OccupationalTherapy

Blog "Bring It On" — Long COVID Physio Occupational Therapist Helen provides updates on her experiences of crashing, pacing, acceptance, returning to work, boosters, and why we need to count Long COVID.

Number 5 in my “Things I’ve Been Involved With” series 💚

Another blog for @longcovidphysio, this one titled “Bring It On”.

longcovid.physio/blog/bring-i...

#LongCovid #PwME #POTS #Pacing #OccupationalTherapy

Helen - PoTS UK Hi, my name is Helen & I’m 31 years old. My PoTS symptoms started when I was unwell with Covid in March 2020. I remember feeling faint, having palpitations and my chest felt tight. I put all of this d...

Number 4 in my “Things I’ve Been Involved With” series 💜

www.potsuk.org/stories/helen/

In the summer of 2021, I was diagnosed with POTS.

#LongCovid #POTS #PwME #chronicillness #OccupationalTherapy

Episode 37 - Long Covid and Me

Number 3 in my “Things I’ve been involved with” series 🎙️

This one was another podcast, for the OT & Chill series.

open.spotify.com/episode/5kxx...

#LongCovid #POTS #PwME #chronicillness #OccupationalTherapy

A white screen with the Long Covid Physio logo at the top (a blue circular virus-like symbol with a person icon in the centre). Below it, the date “14 Feb” appears. Large bold black text reads: “Should I stay or should I go?”

The next advocacy piece I was involved in was a blog for @longcovid.physio titled "Should I stay or should I go"

longcovid.physio/blog/should-...

#LongCovid #POTS #PwME #chronicillness #OccupationalTherapy

Graphic for the Long Covid Physio Podcast. On the left is the Long Covid Physio logo and text reading “The Podcast – Helen: ‘Navigating Pacing’” with the handle @LongCovidPhysio and social media icons underneath. On the right is a simple line illustration of a studio microphone. Video length shown as 50:11.

Thought I’d start sharing links to podcasts & webinars I’ve been involved in over the years.

Starting with the very first one!

It began with a tweet about spoons, which led to a chat on the @longcovidphysio.bsky.social podcast.

#LongCovid #POTS #ChronicIllness #Pacing #OccupationalTherapy

And behind the scenes, I’m in the preparation phase of setting up my own independent OT practice, with hopes to launch in the next few months 💚

Grateful for these opportunities and for the small sparks of purpose returning 🙏

#occupationaltherapy #LongCovid #PwME #chronicillness

An exciting start to 2026 so far 💚

In Jan, I was appointed joint Specialism Lead for ME/CFS & Long Covid in the @thercot.bsky.social Long Term Conditions Network.

#occupationaltherapy #LongCovid #PwME #chronicillness

Screenshot of a text message on a dark background inviting the recipient to complete a 3-minute outpatient experience survey, with a link provided to give feedback to help improve care.

Oooh I've just received this & I have a lot of feedback to give about this particular appointment 🙈

#LongCovid #PwME #POTS #MCAS #ChronicMigraine #TeamClots

To add salt in the wound this all happened at the very hospital I was working in when I caught covid in the first place...nice to see that absolutely nothing had changed

#LongCovid #PwME #POTS #MCAS #ChronicMigraine #TeamClots

💯 it is astounding!

It really is 🫶

So confusing!

Thank you, that means a lot 🫶

The medical student nodded when I said all my issues started after Covid. The consultant just looked at me like I was mad. Maybe there’s hope for the future after all 🙏

#LongCovid #PwME #POTS #MCAS #ChronicMigraine #TeamClots

I left feeling like I’d been in a fight for 15 minutes. Grateful tests are happening, but being believed shouldn’t be this hard.

#LongCovid #PwME #POTS #MCAS #ChronicMigraine #TeamClots

Somehow further tests were still ordered, minimising and investigating, which is such a confusing mix.

#LongCovid #PwME #POTS #MCAS #ChronicMigraine #TeamClots

Repeatedly questioned whether I was “really” well pre-Covid (at least 5 times), asked to justify my #POTS diagnosis & 🫁 clot history & abnormal blood results (the reason for referral) brushed off as “stress”. It felt like an interrogation.

#LongCovid #PwME #POTS #MCAS #ChronicMigraine #TeamClots

Screenshot of a clinic letter with most text obscured by blue scribbles. The visible sentence at the top reads: “She is pretty certain all her medical issues started after covid infection.” The rest of the letter content is deliberately hidden to protect privacy.

Had my long-awaited endocrinology appt yesterday and it felt deeply minimising. Woke up to the clinic letter today and realised I wasn’t imagining it.

#LongCovid #PwME #POTS #MCAS #ChronicMigraine #TeamClots

Flyer for the “2026 International Forum on COVID Rehabilitation Research” at the University of Toronto, Friday April 17, 2026, 10am–5pm EDT, hybrid (Zoom and in-person).

Registration is now open for @uoftcovidrehab.bsky.social 2026 International Forum on COVID Rehabilitation Research

rehabcovidnetwork.med.utoronto.ca/news/registr...

@kellyobrien25.bsky.social

#LongCovid #SafeRehab

Sounds wonderful!

Thank you so much & happy belated birthday 🫶

Thank you!

Still crashy from Christmas & started triple last week but feeling hopeful for 2026 🙏

Last week I was appointed as Specialism Lead for Long Covid in the RCOT Long Term Conditions Network & I was also invited to peer review a paper, made me feel like an OT again 💚🥹

36 today 🎂✨
The last few weeks I’ve been freaking out & feeling like a loser, life looks so different to what I imagined. I’ve had #LongCovid for all of my 30s (and typically spent my last night at 35 with a migraine from hell 🙃).
#POTS #PwME #MCAS #ChronicMigraine

I'm on a lot of meds for everything. I'm on loratidine, famotidine, ketotifen & sodium cromoglicate for MCAS and these seem to have really helped partivularly the latter 2

Three boxes of medication stacked on a wooden surface: Aspirin 75 mg gastro-resistant tablets on top, Apixaban 5 mg film-coated tablets in the middle, and Clopidogrel 75 mg film-coated tablets at the bottom, indicating triple antithrombotic therapy.

Started triple therapy today 🙏

Already been on apixaban & aspirin for years, now adding clopi 💊

Feeling nervous but hopeful, praying for benefits, mild side effects and nothing scary 🤞🤍🙏

#LongCovid #PwME #POTS #MCAS #ChronicMigraine #TeamClots

Long Covid Support To learn more visit LongCovid.org

1/ The Covid Inquiry's Module 2 report confirms critical failures at the highest levels of government, failures that have left millions with Long Covid and inadequate support.

We've drafted a press release in response:

www.longcovid.org/impact/news/...

I’ve spent the rest of the day in bed, still processing it but feeling seen and cautiously hopeful.

It’s been a long wait but definitely worth it. I really hope this is the start of a new chapter of this rollercoaster 🎢✨

#LongCovid #PwME #MCAS #TeamClots #Migraine

A great reminder that it is not "brain fog" but #cognitiveimpairment. Here is a paper I wrote with @kirrabrean about this very topic

journals.lww.com/cptj/fulltex...

#LongCovid #PwME #MCAS #TeamClots #Migraine