Millions Missing Podcast

It's so illogical and dangerous that even after seeing a virus kill tens of millions and disable many more, a majority of people still haven't adapted by making the most simple adjustments to their lives like wearing a mask or staying home when they are sick.

I'm just dipping my toe in here. I'm terrible with technology, so every new thing is a challenge. For my first post, I figured I'd offer a link to Berkeley's current crowdfunding campaign for Trial By Error, which focused on ME/CFS, long Covid, etc:
virology.ws/2023/11/16/t...

Jag har PEM, inte trötthet Aj! Medan jag vaknar så känner jag hur huden och musklerna smärtar. Halsen känns som taggtråd och armhålorna ömmar. Klockan visar 05.32 och jag inser att obehaget i kroppen har väckt mig allde...

ME är inte primärt trötthet utan en influensaliknande reaktion på belastning.

funkisfeministen.wordpress.com/2023/11/16/j...

Graphic of a computer screen and mobile phone screen displaying the updated MEpedia page. Behind the screens the words "Live Now!" repeat. The top of the graphic has the #MEpedia circular logo with the text "A project of #MEAction" beside it. At the bottom of the graphic is the website address: me-pedia.org plus the text: "Updated, Expanded, Revamped MEpedia!"

We are excited to announce that #MEpedia has gotten a complete overhaul courtesy of a generous grant! We've updated our software, staging, graphics, & design-- which got an accessibility audit, too!

Visit the new MEpedia: me-pedia.org/wiki/Welcome...

Learn more: www.meaction.net/2023/11/15/c...

The Millions Missing Podcast is and always will be nonprofit, non-monetized and ad-free

Please subscribe, rate and review the podcast on your podcast platform of choice, as it helps others to find and take part of the important testimonies ❤️

Where to find the podcast:

linktr.ee/millionsmissingpodcast

If you, or someone you know, is too ill to write or record your testimony, let us work together to platform that important testimony.Message here on X, or send an email to millionsmissingpodcast@gmail.com

You are not alone ❤️

On a black background, a white outline creates a silhouette of the profile of a human face, filled in with etched out scribbles, with text that reads Millions Missing - share your story

Testimony #9

Hear Litsa Dremousis uninterrupted testimony of her 32+ year journey living with #MyalgicEncephalomyelitis

Listen 🔊 sptfy.com/Pj2k

Don't just pass on by, PLEASE *share* her important story ❤️

#millionsmissing #pwme #Cancer

More info in comments ⬇️

As part of this year’s Triple Giving November campaign, we are honored to introduce Sammy Lincroft, a dedicated advocate for chronic illnesses and OMF Supporter! Discover Sammy’s powerful story 👉 www.omf.ngo/Sammys-story.

Shake It UP, NICE and the National Reporting and Learning System (NRLS) | ME Foggy Dog I asked NICE if the National Reporting and Learning System was suitable to be used as a reporting system to report harms from non-pharmaceutical 'treatments'.

Latest #blog post -

'I contacted NICE to make sure that I wasn't going to be pursuing this issue like a dog with a bone unnecessarily'

www.mefoggydog.org/2023/11/14/s...

#mecfs #pwME #Data #NHS #Health

Tomorrow 8pm (CET)

Testimony #9 - Litsa Dremousis shares her M.E. journey of 32+ years

PLEASE SHARE ❤️

For posterity, for a first hand account of our fates and for not letting them quietly sweep us under the rug

#MillionsMissing #pwme #MyalgicEncephalomyelitis

Linktr.ee/millionsmissingpodcast

Ady Barkan, activist who fought for universal health care, dies at 39 After being diagnosed with the degenerative and ultimately terminal disease ALS, he transformed himself into a symbol for health reform.

He was 32, a new father, when he got the ALS diagnosis — and made a choice.

“He made himself a force,” said a close ally. “It really all came down to nobody can bullshit a guy who’s dying.”

ADY BARKAN, activist who fought for universal health care, passes away at 39. Our piece.

Dear fellow #pwME #MECFS #ME #MyalgicEncephalomyelitis #LongCovid, one of the most powerful/informative vids I know is now available on Youtube. @dialoguesmecfs.bsky.social created this extraordinary documentary on the history of #ME #MECFS. Essential info for advocates and researchers in our field.

I'm selling my skis today — it's a concrete admission that I will never ski again.

I loved skiing. I've skied all over the US: I did the back bowls of Vail at 5yo. I've scored well in Nastar races on former Olympic courses. I even mastered the east coast ice fields.

Fuck #MEcfs.

Let’s start a thread of awesome follows on here that relate to #MyalgicEncephalomyelitis #MECFS #LongCovid or #InfectionAssociatedChronicIllnesses.

Because it is hard to rebuild community on a new platform…but doing it as a #PwME…nearly impossible.

Let’s help each other with safe suggestions.

Overjoyed to announce my Concise Clinical Review of ME/CFS in Mayo Clinic Proceedings (with updated diagrams!) Very glad to have worked with
Stephanie Grach, and Ravi Ganesh and Tony Chon on this! #MedEd #MedTwitter 🧵 www.mayoclinicproceedings.org/article/S002...

The #millionsmissing will not be quietly swept under the rug. Thank you for sharing, Sibylle!

‎Millions Missing Podcast i Apple Podcasts ‎Samhälle och kultur · 2023

Testimony #8 @millionsmissingpod.bsky.social

Almost 10 years in 13 minutes.
When will our stories finally be heard?

#MEcfs #Lyme #FQAD #MCAS #CCI #POTS #SmallFiber #LongList

🎧 podcasts.apple.com/se/podcast/m...

Thank you for given me that opportunity. If you can, please do so. #TellYourStory 🙏

The image shows the silhouette of a human face, with a white outline against a black background. Over the top of the image it reads Millions Missing -.share your story

It is vital that you share your story; your testimony has a critical role in advocating for further exposure, better funded research and to inspire others to share theirs ❤️

Listen to and share the testimonies linktr.ee/millionsmissingpodcast

Contact millionsmissingpodcast@gmail.com

Home we’re IGNITING A GLOBAL REVOLUTION IN ME CARE Our movement fights for recognition, education, and research so that, one day, all people with ME and CFS will have support and access to compassionate ...

So nice to see so many community members have found us here already! For anyone new to us- we are #MEAction, a US-based non-profit, igniting a global revolution in ME care.

ME= myalgic encephalomyelitis aka ME/CFS

Learn more at meaction.net.

#pwME #MECFS #MyalgicEncephalomyelitis #LongCovid