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Lindsay Baran

@lindsaybaran.bsky.social

Disability & healthcare activist/ policy nerd/ researcher on indefinite pause Chronically ill (EDS &co, ME/LC) & HoH Chicago She/her

522 Followers  |  513 Following  |  51 Posts  |  Joined: 22.08.2023  |  1.963

Latest posts by lindsaybaran.bsky.social on Bluesky

Andrew Cuomo being cheered at the finish line by Trump, Musk, and Stephen Miller says it all, and he will have the Election Day that New Yorkers find appropriate for such a man.

04.11.2025 04:26 β€” πŸ‘ 1925    πŸ” 316    πŸ’¬ 18    πŸ“Œ 13
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Read This When Things Fall Apart: Letters to Activists in Crisis Letters to Activists in Crisis

It's publication day for Read This When Things Fall Apart! So grateful to our contributors and to @akpress.org for making this book a reality. This is a strange time to be promoting a book, but I believe it's a text that has the potential to help us right now. Please get yourself a copy. ❀️

04.11.2025 14:43 β€” πŸ‘ 522    πŸ” 188    πŸ’¬ 22    πŸ“Œ 31
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A Mother’s Day Chat With Revolutionary Trans Activist Miss Major Griffin-Gracy Janet Mock has called Miss Major, who has nurtured generations of queer and trans youth, β€œthe mother we all deserve.”…

Rest in Power, Miss Major.πŸ’”

On solidarity: β€œWe can’t go it alone… I mean, you can try, and get knocked down and get up and try again, and get knocked down and get up and try again. But that’s how it’ll be, until somebody helps you up and says, let me stand with you.”
truthout.org/articles/a-m...

14.10.2025 01:13 β€” πŸ‘ 648    πŸ” 271    πŸ’¬ 0    πŸ“Œ 2

Please, PLEASE… if you can, help Britt. Imagine being forced into this life as an able-bodied person, then realize that Britt has the HORRIFIC energy-limiting disease #MECFS

14.10.2025 00:05 β€” πŸ‘ 4    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0

The e book is available link.springer.com/book/10.1007...

27.09.2025 11:32 β€” πŸ‘ 44    πŸ” 19    πŸ’¬ 0    πŸ“Œ 4

If you’d like to unpack all the lies being told to the public right now, here’s your fact valet β€”

Acetaminophen doesn’t cause autism&pregnant people w/fever or pain need it.

Leucovorin isn’t an autism treatment& the reason they’re trying to sell you that is explained in the attached thread& posts

22.09.2025 21:10 β€” πŸ‘ 60    πŸ” 29    πŸ’¬ 2    πŸ“Œ 2

I have taken
the Tylenol
that was in
the medicine cabinet

and which
they think probably
is the reason
you like trains

forgive me
but that’s bullshit
you got autism
from your dad

23.09.2025 00:02 β€” πŸ‘ 8500    πŸ” 1886    πŸ’¬ 94    πŸ“Œ 66

Legacy media and cable news reduced Trump's aggression against Chicago to a question of whether troops would be sent immediately. When he said he was taking his fascist military spectacle elsewhere, those media players declared the situation overβ€”while waves of federal agents attack our neighbors.

15.09.2025 00:28 β€” πŸ‘ 2639    πŸ” 960    πŸ’¬ 15    πŸ“Œ 34
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Can we reach consensus on an ME research case definition?

Friends with ME/CFS!

The incomparable Lenny Jason is working to develop consensus on a research definition and severity scales to use in studying ME. He needs your opinion!

Takes ~15 mins but you can save and come back if you need a break.

If you could also share this, that would be a huge help!

13.09.2025 18:15 β€” πŸ‘ 56    πŸ” 47    πŸ’¬ 8    πŸ“Œ 3
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Political violence is abhorrent. I have not celebrated Kirk's death.

But Newsom calling for his followers to "continue Charlie Kirk's work," someone who praised stoning gay people as "god's perfect law," who called for men to "take care of" trans people like they did in the 50s and 60s, is not it.

11.09.2025 00:25 β€” πŸ‘ 8356    πŸ” 1848    πŸ’¬ 239    πŸ“Œ 173

"They are stopping anyone who isn’t white to ask for ID and proof of residency. They are setting up ID checkpoints. They are harassing people sitting on their front porches. They are targeting and kidnapping migrant neighbors doing food deliveries."
-Shannon Clark @remorahousedc.bsky.social‬ #FreeDC

16.08.2025 15:57 β€” πŸ‘ 309    πŸ” 178    πŸ’¬ 5    πŸ“Œ 5
A purple and teal ombre image has blue and black text that says: β€œDealing with Severe ME after COVID-19?
 
tips for living with severe myalgic encephalomyelitis (ME), including:
β€’ understanding common symptoms
β€’ tips for managing your energy
β€’ finding care & support
β€’ resources for patients and doctors

 The footer reads, "Long COVID Essentials, www.tiny.cc/LCE. A series by The Sick Times x Long COVID Justice."

A purple and teal ombre image has blue and black text that says: β€œDealing with Severe ME after COVID-19? tips for living with severe myalgic encephalomyelitis (ME), including: β€’ understanding common symptoms β€’ tips for managing your energy β€’ finding care & support β€’ resources for patients and doctors The footer reads, "Long COVID Essentials, www.tiny.cc/LCE. A series by The Sick Times x Long COVID Justice."

Post image

Today is Severe ME Awareness Day, and we’re sharing our explainer about Severe ME.

Highlights in thread, and check out the full resource at longcovidjustice.org/severe-me

This is part of the Long COVID Essentials series by @longcovidjustice.org + @thesicktimes.bsky.social

08.08.2025 18:24 β€” πŸ‘ 39    πŸ” 24    πŸ’¬ 1    πŸ“Œ 1
Frame hanging on gallery wall with bench in front. Text in frame: Severe ME Artists Project Gallery 2025 Now open for virtual showing at #MEAction website: bit.ly/SMEAP25

Frame hanging on gallery wall with bench in front. Text in frame: Severe ME Artists Project Gallery 2025 Now open for virtual showing at #MEAction website: bit.ly/SMEAP25

In honor of #SevereMEday, #MEAction is honored to share the Severe ME Artists Project 2025! www.meartistsproject.com/severe-me-ar...

Over 100 of you submitted photos, drawings, writing, music and videos of your work for our 5th Severe ME Artists Project!

#SevereME #UnitedForME #pwME

08.08.2025 16:01 β€” πŸ‘ 28    πŸ” 22    πŸ’¬ 1    πŸ“Œ 0

I say it all of the time but I need to repeat this. Talk to elders who were activists and organizers in previous eras because they will share how much in the minority they were.

06.08.2025 19:04 β€” πŸ‘ 1160    πŸ” 269    πŸ’¬ 12    πŸ“Œ 0

Low income people of color are more likely to get Long Covid. Yet, it's mostly white people w/ Long Covid whose accounts tend to blow up more.

28.07.2025 21:45 β€” πŸ‘ 41    πŸ” 21    πŸ’¬ 1    πŸ“Œ 1

Every single story you are hearing from the Everglades Concentration Camp has been and is already taking place in hundreds of prisons and jails in the U.S. That's what PIC abolitionists have been trying to get the public to understand for decades.

14.07.2025 13:54 β€” πŸ‘ 3940    πŸ” 1466    πŸ’¬ 26    πŸ“Œ 0
A bar graph. On the left side is a bar showing that Republicans are cutting $930 billion from Medicaid. On the right side is a bar showing that Republicans are giving $910 billion in tax breaks to corporations under their budget bill, paid for by gutting Medicaid.

A bar graph. On the left side is a bar showing that Republicans are cutting $930 billion from Medicaid. On the right side is a bar showing that Republicans are giving $910 billion in tax breaks to corporations under their budget bill, paid for by gutting Medicaid.

Republicans may lie about what's in their budget bill but the numbers sure don't.

29.06.2025 00:15 β€” πŸ‘ 5260    πŸ” 2707    πŸ’¬ 145    πŸ“Œ 167
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Trump's war on Medicaid will institutionalize millions of people The GOP wants to fund billionaire tax cutsβ€”and let disabled Americans pay the price.

Institutional care isn't optional under Medicaid. Home and community based services care is optional. Cutting Medicaid will lead to more people losing HCBS and be forced into nursing homes, as I wrote for @motherjones.com in January. www.motherjones.com/politics/202...

28.06.2025 17:45 β€” πŸ‘ 201    πŸ” 118    πŸ’¬ 4    πŸ“Œ 16

Disabled kids like mine rely on Medicaid to survive; this bill cuts Medicaid.

I don't know how else to say that medically complex disabled children will die as a result of this bill.

29.06.2025 04:23 β€” πŸ‘ 3196    πŸ” 1207    πŸ’¬ 118    πŸ“Œ 61
A meme. In the first frame there is a T-Rex from Jurassic Park pictured with the words "DEMOCRATS FIGHTING ZOHRAN MAMDANI." In the second frame there is an image of Barney the Dinosaur shrugging along with text that reads "DEMOCRATS FIGHTING DONALD TRUMP."

A meme. In the first frame there is a T-Rex from Jurassic Park pictured with the words "DEMOCRATS FIGHTING ZOHRAN MAMDANI." In the second frame there is an image of Barney the Dinosaur shrugging along with text that reads "DEMOCRATS FIGHTING DONALD TRUMP."

True story.

29.06.2025 19:53 β€” πŸ‘ 4464    πŸ” 1170    πŸ’¬ 25    πŸ“Œ 40

The system is designed for capitalism to do whatever it needs, including wars, colonialism, authoritarianism, and the impediment of democracy.

If you want something different it is going to have to change and we’re going to have to change it.

22.06.2025 23:19 β€” πŸ‘ 199    πŸ” 46    πŸ’¬ 0    πŸ“Œ 1
Lenacapavir is already sold as a treatment for H.I.V. infections that are resistant to other medications, at roughly $42,000 per patient per year. (Few individuals pay the full cost.)

Lenacapavir taken to prevent H.I.V. infection, a regimen called pre-exposure prophylaxis, or PrEP, will be sold at a list price of $28,218, according to Gilead.

Lenacapavir is already sold as a treatment for H.I.V. infections that are resistant to other medications, at roughly $42,000 per patient per year. (Few individuals pay the full cost.) Lenacapavir taken to prevent H.I.V. infection, a regimen called pre-exposure prophylaxis, or PrEP, will be sold at a list price of $28,218, according to Gilead.

Aids and HIV
β€˜HIV-ending’ drug could be made for just $25 per patient a year, say researchers
As regulator prepares to approve lenacapavir in the US, campaigners are urging the manufacturer, Gilead, to make it β€˜available and affordable for all who need it’

Aids and HIV β€˜HIV-ending’ drug could be made for just $25 per patient a year, say researchers As regulator prepares to approve lenacapavir in the US, campaigners are urging the manufacturer, Gilead, to make it β€˜available and affordable for all who need it’

Gilead has announced that lenacapavir, the game-changing HIV prevention drug just approved by the FDA will cost $28,218 USD per person per year.

Researchers say a generic version could be made for just $25 per person a year.

Capitalism kills.

18.06.2025 22:17 β€” πŸ‘ 2642    πŸ” 1313    πŸ’¬ 72    πŸ“Œ 124
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LISTEN: Illinois could be first state to protect right to mask up - Medill Reports Chicago By Layna Hong Medill Reports Five years after the start of the COVID-19 pandemic, anti-mask legislation is sweeping across the country. With growing pro-Palestinian activism, many lawmakers argue that...

LISTEN: Illinois could be first state to protect right to mask up

11.06.2025 15:44 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Emergency departments aren’t trained for Long COVID β€” and patients are paying the price - The Sick Times What do you call a system that doesn’t believe you’re sick until you’re dying? While emergency clinicians are trained to handle acute medical situations, many lack even a basic understanding of Long C...

Today @thesicktimes.bsky.social: Lauren May argues that emergency departments are woefully unprepared to handle Long COVID, even though many people with the disease -- including her -- must go to EDs for care. thesicktimes.org/2025/06/02/e...

02.06.2025 19:35 β€” πŸ‘ 48    πŸ” 23    πŸ’¬ 0    πŸ“Œ 1

I've been documenting movements for nearly 20 years & marching w/them for another 10 on top of that. There's a very narrow window of what pundits/politicians think is "acceptable" & it's usually based on an unattainable myth bc the truth is - a lot of them don't want any kind of activism at all.

10.06.2025 18:17 β€” πŸ‘ 330    πŸ” 95    πŸ’¬ 1    πŸ“Œ 0
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In an unprecedented move, US Health and Human Services Secretary Robert F. Kennedy Jr. removed all 17 members of the CDC's expert panel of vaccine advisers, citing conflicts of interest. cnn.it/4mYohFy

09.06.2025 21:20 β€” πŸ‘ 418    πŸ” 224    πŸ’¬ 153    πŸ“Œ 235

Nursing home owners

11.06.2025 05:10 β€” πŸ‘ 34    πŸ” 9    πŸ’¬ 0    πŸ“Œ 0

This was the plan the entire time and it was always going to be targeted towards Democratic run cities. It’s not about law and order. It’s about controlling by force the areas where Trump does not control by ideology.

11.06.2025 10:16 β€” πŸ‘ 4057    πŸ” 1455    πŸ’¬ 90    πŸ“Œ 36

I’ve never forgotten this picture from 2016 and how it completely reshaped my understanding of how the media covers protests.

11.06.2025 13:06 β€” πŸ‘ 12243    πŸ” 4684    πŸ’¬ 97    πŸ“Œ 45

@lindsaybaran is following 19 prominent accounts