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Reeve Foundation

@christopherreeve.org.bsky.social

We are driven by this vision: a world in which spinal cord injury does not result in paralysis and paralysis does not result in diminished quality of life.

35 Followers  |  18 Following  |  132 Posts  |  Joined: 28.04.2025  |  1.5125

Latest posts by christopherreeve.org on Bluesky

Email Your Member of Congress Today and Urge Them to Sign-On to Rep. Chris Smith’s Letter on Competitive Bidding of Ostomy and Urological Supplies
powerslaw.quorum.us/campaign/155...

#VoicesForReeve

13.02.2026 18:07 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Ties That Bind: Caregiver Resiliency in Parent and Child Relationships
YouTube video by Christopher & Dana Reeve Foundation Ties That Bind: Caregiver Resiliency in Parent and Child Relationships

In parent-child relationships where one person is living with paralysis, helping one another becomes part of daily life. How do families reframe caregiving as connection, strengthen their bond, and prevent burnout?

πŸ“Ί Watch it here: youtu.be/3xmireqXCKY

#TodaysCare

12.02.2026 15:36 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Act Now: Thank Your Legislators for Fully Funding the PRC! With final passage of the FY2026 Labor-HHS Appropriations bill, the Paralysis Resource Center (PRC) is now fully funded for the remainder of this fiscal year. At the beginning of 2025, the President’s...

We are pleased to share that because of the steadfast advocacy of our dedicated advocates, Congress has rejected these proposed cuts and fully funded the Paralysis Resource Center (PRC) at the current funding level for programs that are vital to people living with paralysis. #VoicesForReeve

11.02.2026 21:09 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Quality of Life Grantee Spotlight: ALS United Rocky Mountain β€œWe are so grateful for this Reeve Foundation grant,” says Frisk. β€œThe opportunity to expand our impact by delivering in-home care support and financial relief helps families focus less on costs and m...

Our Quality of Life Grants program continues to make a real impact by supporting in-home care, helping families focus on care, dignity, and time together.

#TodaysCare

11.02.2026 21:08 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
A person in a wheelchair and another sitting on a bench outside are having a conversation. The seated person is holding a tablet. There is greenery and a building in the background. Text reads: "Share your thoughts! Brain-Computer Interface Survey."

A person in a wheelchair and another sitting on a bench outside are having a conversation. The seated person is holding a tablet. There is greenery and a building in the background. Text reads: "Share your thoughts! Brain-Computer Interface Survey."

If you’re an adult living with quadriplegia, we invite you to take a 15-minute survey on brain-computer interfaces (BCI) and help guide this exciting, emerging technology. Caregiver support welcome.
Learn more + participate here: bit.ly/4cm0tIv

11.02.2026 15:06 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Reeve Summit 2026 - Christopher & Dana Reeve Foundation Join us in Boston, MA, from May 6-8 at Reeve Summit 2026, where Care, Cure and Community Connect. This premier gathering brings together individuals living with paralysis, caregivers, family members, ...

Join us for Reeve Summit 2026 in Boston! This premier gathering brings together the paralysis community to drive meaningful change. From caregiving to SCI research, we'll explore crucial issues facing our community.

Care. Cure. Community. Connect with us May 6-8. #ReeveSummit2026 #TodaysCare

10.02.2026 15:32 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Aging With Paralysis and Aging Into Paralysis - Christopher & Dana Reeve Foundation Aging is a natural process. Many individuals develop health conditions related to aging in later years. Paralysis can affect the aging process in different ways.

Aging with paralysis presents unique challenges, but knowledge is power. Learn about prevention and interventions for skin care, bone health, and muscle changes to support a smoother lifestyle as you age. #TodaysCare #AgingWithParalysis bit.ly/3NTgegb

06.02.2026 20:55 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
This image is a promotional poster for an online discussion hosted by the Christopher & Dana Reeve Foundation. The event, titled "Ask Nurse Linda," features Linda M. Schultz, Ph.D., CRRN, known as "Nurse Linda," discussing paralysis, SCI topics, and healthcare integration. The event date is February 25, 2026, at 3:00 PM ET, with more information available on the foundation's website.

This image is a promotional poster for an online discussion hosted by the Christopher & Dana Reeve Foundation. The event, titled "Ask Nurse Linda," features Linda M. Schultz, Ph.D., CRRN, known as "Nurse Linda," discussing paralysis, SCI topics, and healthcare integration. The event date is February 25, 2026, at 3:00 PM ET, with more information available on the foundation's website.

Don’t miss our upcoming webinar with Nurse Linda!
πŸ—“οΈ Wednesday, February 25 ⏰ 3 PM ET
βœ… Register: bit.ly/4qCKny1

#TodaysCare

05.02.2026 16:14 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
The image is a promotional graphic for the "Regional Champions Webinar February 2026 Update" by the Christopher & Dana Reeve Foundation. It features the U.S. Capitol building in Washington, D.C., at sunset. Text details include the webinar date, February 24, 2026, at 3:00 PM ET, and a prompt to register at ChristopherReeve.org/events.

The image is a promotional graphic for the "Regional Champions Webinar February 2026 Update" by the Christopher & Dana Reeve Foundation. It features the U.S. Capitol building in Washington, D.C., at sunset. Text details include the webinar date, February 24, 2026, at 3:00 PM ET, and a prompt to register at ChristopherReeve.org/events.

Reeve Foundation Advocacy Update Webinar
πŸ“… Tuesday, October 14, 2025
⏰ 2:00 PM ET
πŸ“ Register here: bit.ly/3Zjd3Rq

#VoicesForReeve

05.02.2026 16:09 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
The image is a promotional flyer for an event hosted by the Christopher & Dana Reeve Foundation titled "Ties That Bind: Caregiver Resiliency in Parent and Child Relationships." It features photos of three speakers: Brayden Barnes, Marjorie Aunos, PhD, and Naomi D. Williams. The event date is February 11, 2026, at 4:00 PM ET. Registration details are provided at the bottom.

The image is a promotional flyer for an event hosted by the Christopher & Dana Reeve Foundation titled "Ties That Bind: Caregiver Resiliency in Parent and Child Relationships." It features photos of three speakers: Brayden Barnes, Marjorie Aunos, PhD, and Naomi D. Williams. The event date is February 11, 2026, at 4:00 PM ET. Registration details are provided at the bottom.

Join us for a conversation on how expanding our definition of caregiving can deepen relationships, as well as practical ways to balance responsibilities, set boundaries, and support one another with care and resilience.

Register here: bit.ly/4anvR89

#TodaysCare

30.01.2026 20:05 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Progress In Research Winter 2026 - Christopher & Dana Reeve Foundation For decades, scientists called spinal cord injury (SCI) the β€œgraveyard of neurobiology,” a field where progress was slow and recovery out of reach. Today, that narrative is changing. Across labs, clin...

For decades, scientists called spinal cord injury (SCI) the β€œgraveyard of neurobiology,” a field where progress was slow and recovery out of reach. Today, that narrative is changing.

#SCIResearch

29.01.2026 22:04 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Innovation takes community. Last year, donors helped the #ReeveFoundation reach more families with #SCI resources and support. We’re committed to an even greater impact in 2026, while accelerating breakthroughs to transform independence after #SpinalCordInjury. ChristopherReeve.org

29.01.2026 14:14 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Spinal Injury: What Happened Inside My Body
YouTube video by Christopher & Dana Reeve Foundation Spinal Injury: What Happened Inside My Body

Nurse Linda and guest, Dr. Rex Marco, explore "Spinal Injury: What Happened Inside My Body," offering valuable knowledge for those affected by SCI and their loved ones. Understanding is the first step towards empowerment. #TodaysCare

27.01.2026 14:53 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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During A Disaster: How to Stay Safe The Reeve Foundation’s Emergency Preparedness for People with Paralysis Booklet is designed to be one of the most comprehensive, crucial resources that aid national organizations, people living with p...

Winter storms can pose unique challenges for those living with paralysis. Activate dictation features on your devices now, and prioritize texting over calls during emergencies to conserve network resources.

#WinterStormPrep #TodaysCare

23.01.2026 18:46 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Peer & Family Support Program Spotlight: Yvonne Sterling β€œI didn’t know this was part of who I am, but I love it. I am so grateful for this opportunity. If my peers are willing to listen, I’m happy to share my story and hear theirs.”

"The more positive thinking you have, the better you are at healing." - Yvonne Sterling, Reeve Foundation mentor. This National Mentoring Month, we celebrate the power of connection and hope. #TodaysCare #NationalMentoringMonth

23.01.2026 18:33 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Emergency Preparedness For People With Paralysis Designed to be one of the most comprehensive, crucial resources that aid national organizations, people living with paralysis, and their caretakers in preparing for emergencies and impending weather.

Severe weather poses a particular risk for people living with disabilities as the routines and infrastructure they depend on are dangerously disrupted. It is critical that people living with paralysis plan today for tomorrow’s challenges.

#TodaysCare

22.01.2026 22:32 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Bone Health - Christopher & Dana Reeve Foundation Bone health issues are more common and critical in individuals with paralysis.

Osteoporosis risk increases after spinal cord injury. Early intervention is key! Ask your doctor about DEXA scans to monitor bone density. Knowledge is power in managing your health. #SCIAwareness #OsteoporosisPrevention #TodaysCare

22.01.2026 14:08 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Muscular Dystrophy | Living With Paralysis | Reeve Foundation Muscular dystrophy is characterized by the degeneration of skeletal muscles. Physical therapy is often practiced to prevent painful muscle contractures.

Did you know there are over 30 types of muscular dystrophy? Each type affects different muscle groups and has varying onset ages. Understanding your specific diagnosis is key to proper care and treatment. #MDfacts #TodaysCare

22.01.2026 13:59 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Act Now: Urge Congress to Vote YES and Fully Fund the PRC in FY26 This week, lawmakers are moving quickly to finalize Fiscal Year 2026 (FY26) appropriations before the January 30th deadline. With the release of the FY26 Labor, Health and Human Services, Education (L...

The National Paralysis Resource Center needs your support! Congress is considering full funding for this vital program. Your voice can make a difference. Contact your representatives today. #SaveThePRC #VoicesForReeve

21.01.2026 20:18 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Welcome! You are invited to join a meeting: Christopher & Dana Reeve Foundation Support Group Leader Training. After registering, you will receive a confirmation email about joining the meeting. Led by an experienced facilitator, the Support Group Leader Training will provide an introductory overview of support group leadership with a focus on best practices. Participants will gain new insigh...

πŸ“† Our National Paralysis Resource Center is holding a Support Group Leader Training on January 28th from 1:00 PM to 4:00 PM ET. The training will be held virtually.

Register here: us02web.zoom.us/meeting/regi...

#TodaysCare

20.01.2026 15:40 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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This January, we’re recognizing National Mentoring Month. TJ discusses the impact of peer support and why connection makes all the difference. Learn more at ChristopherReeve.org/Peer

#TodaysCare #PeerSupport #PeerMentor #NationalMentoringMonth

14.01.2026 19:06 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Promotional graphic for the 2026 Reeve Summit in Boston, featuring event details including registration date and venue at Sheraton Boston Hotel, with Christopher & Dana Reeve Foundation logo displayed.

Promotional graphic for the 2026 Reeve Summit in Boston, featuring event details including registration date and venue at Sheraton Boston Hotel, with Christopher & Dana Reeve Foundation logo displayed.

Join us in Boston, MA, from May 6-8 for our Reeve Summit 2026, where care, cure and community connect.

Register by Friday, February 20, 2026 to receive early bird pricing at ChristopherReeve.org/ReeveSummit

#TodaysCare #ReeveSummit

13.01.2026 20:23 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Promotional image for a Christopher & Dana Reeve Foundation webinar titled 'Spinal Cord Injury: What Happened Inside My Body' featuring speakers Nurse Linda Schultz and Dr. Rex Marco. Includes photos of each speaker and event details: January 14, 2026, at 3:00 PM ET.

Promotional image for a Christopher & Dana Reeve Foundation webinar titled 'Spinal Cord Injury: What Happened Inside My Body' featuring speakers Nurse Linda Schultz and Dr. Rex Marco. Includes photos of each speaker and event details: January 14, 2026, at 3:00 PM ET.

Join Nurse Linda as she interviews Dr. Rex Marco, a nationally renowned spinal surgeon living with paralysis and the Chief Medical Ambassador for the Reeve Foundation.

πŸ—“οΈ Wednesday, January 14 ⏰ 3 PM ET
βœ… Register: bit.ly/45aRm9r

#TodaysCare

12.01.2026 22:06 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Act Now: Urge Congress to Fully Fund the Paralysis Resource Center As Congress returns from their holiday district work period, they face a packed legislative agenda, with the priority being the need to finalize Fiscal Year 2026 (FY26) appropriations before the Janua...

Act Now: Urge Congress to Fully Fund the Paralysis Resource Center

12.01.2026 20:23 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Reeve Summit 2026 - Christopher & Dana Reeve Foundation Today’s Innovation. Tomorrow’s Impact. Boston, Massachusetts | May 6-8 Today’s Innovation. Tomorrow’s Impact. Bold ideas drive meaningful change for people living with paralysis, and that progress is ...

Join us in Boston, MA, from May 6-8 at Reeve Summit 2026, where Care, Cure and Community Connect. #ReeveSummit

12.01.2026 19:32 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Peer & Family Support Program Spotlight: Matthew Sexton β€œIt is so important to reach out soon after an injury before things get really difficult.”

This #NationalMentoringMonth, we highlight Matthew Sexton's journey SCI survivor to Peer & Family Support Program mentor. He's changing lives one conversation at a time. #TodaysCare

12.01.2026 14:16 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Peer & Family Support Program Spotlight: Ligia Andrade ZΓΊΓ±iga As a first-generation Latinx American with a disability, ZΓΊΓ±iga has spent the past decade working to improve opportunities for underrepresented communities.

"The peer support program in the hospital saved my life. It gave me purpose again." - Ligia Andrade ZΓΊΓ±iga. This #NationalMentoringMonth, we honor the mentors who make a difference in the lives of those with SCI. #TodaysCare

09.01.2026 20:28 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Spinal Cord Injury Peer Mentors | Reeve Foundation Connect with someone who understands. Our paralysis peer mentors provide invaluable insights to help navigate life with paralysis. Learn more!

Meet People Just Like You.

Our Peer Mentors are living with paralysis or caring for someone living with paralysis and understand what you are going through.

#TodaysCare #NationalMentoringMonth

08.01.2026 20:27 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Promotional graphic for a networking event hosted by the Christopher & Dana Reeve Foundation at Shake-a-Leg Miami, featuring a keynote speech by Dr. Marco Baptista about spinal cord injury research initiatives. Includes details on registration and event timing, with an aerial view of the venue by the water.

Promotional graphic for a networking event hosted by the Christopher & Dana Reeve Foundation at Shake-a-Leg Miami, featuring a keynote speech by Dr. Marco Baptista about spinal cord injury research initiatives. Includes details on registration and event timing, with an aerial view of the venue by the water.

🌴 Attention Miami community! Join us for a special Reeve Foundation Community Gathering!
Dr. Marco Baptista, our Chief Scientific Officer, will be sharing exciting research updates.
February 4 from 6-8PM at Shake-a-Leg Miami
Register here: bit.ly/4aQ6ywm

#TodaysCare

08.01.2026 17:20 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Ask Nurse Linda December 2025
YouTube video by Christopher & Dana Reeve Foundation Ask Nurse Linda December 2025

"How-to" advice can make a world of difference for those navigating life with paralysis. That's why we're proud to offer resources like our Ask Nurse Linda webinars.
πŸ“Ί Watch December's webinar here: youtu.be/V4hKP0R_ODY

#TodaysCare

06.01.2026 21:40 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

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