If you liked Will's POWERFUL story, you'll LOVE this article. Check it out at bit.ly/WillNews1

Wilbert's POWERFUL story takes us through his and his dad's journey of breaking generational norms by learning to ask for help. Wilbert is also a VERY poetic writer. Trust us—you don't want to miss his story. Check it out at bit.ly/AFHWilbert

Unfortunately, stories like Vanessa's are all too common. Black people living with ALS face longer diagnosis delays & less access to palliative care. That's why we're pushing to build a robust research ecosystem—to better understand ALS & find therapies that EVERYONE can access.

ACT for ALS passed in 2021 with STRONG bipartisan support—thanks to your advocacy! But it expires in just a few months if we don't redouble our efforts. PUSH for reauthorization TODAY @ bit.ly/fundALS

Many Shades of ALS has dispelled misconceptions, raised awareness, and increased diversity and representation within the ALS community. Learn more at tinyurl.com/MSOATeam

The GAO's report on ACT for ALS confirmed two things (among MANY!) that we already knew—EAPs increase access to investigational therapies AND help us better understand ALS. KEEP pushing for more progress at bit.ly/fundALS

Thanks to your hard work and dedicated advocacy, we secured an unprecendented $313 million in ALS federal funding in this year's budget! Let's keep this progress going. HELP the Leg Team @ bit.ly/LegTeam

We all know caregivers carry too much on their own—mentally, physically, and even financially. If passed, the Credit for Caring Act of 2025 would provide relief through a $5,000 tax credit. Ask your senators and reps to cosponsor the bill at bit.ly/credit4care

ACT for ALS doesn't just expand access to promising therapies now. It also fast-tracks FDA approval for these therapies. Check out the full video to learn more at bit.ly/A4AWebinar

Dr. Sean Smith, ALS Clinic Director at WashU Medicine, is often praised by his patients for his kind, compassionate care and manner. Thank you for everything you do, Dr. Smith!

Studies—and community stories—have shown that asking for help can bring us closer to each other. So tell us, community: How has asking for and receiving help changed YOUR relationships? Drop a comment below! ↓

Our support groups are safe spaces for connection and community, created by AND for people impacted by ALS. Join TODAY @ bit.ly/ALSgroups

Check out I AM ALS Peer Mentor Juan Reyes' "The ALS Express: Expressive Reflections on Living With ALS" for a raw, unfiltered glimpse into the reality of living with ALS! Grab YOUR copy → bit.ly/ALSExpress

Tim Lowrey began this panel series to educate more people about ALS through their schools or places of work. We miss him very dearly, and we're upholding his legacy by continuing to offer his virtual panel discussions. Request a panel @ bit.ly/ALSPanel

The ALS Caucus has made many of our wins possible—ACT for ALS, historic ALS funding, and promising therapies. But we'll lose 13% of the caucus this year without action. Ask your legislator to join TODAY → bit.ly/ALSviewer

Margit found strength in her Crossfit community—but not how you'd think. She asked for help, and they responded with an outpouring of love and support. Full story @ bit.ly/AFHMargit

Finding specialized ALS care is one of the hardest parts of navigating this disease. That's why we put this resource together for you! Check it out at bit.ly/myALSclinic

Community keeps us ALL going. If you're impacted by ALS, get 1:1 virtual ALS support from our trained Peer Mentors. They see you. They get it. And they're here to help :) SIGN UP TODAY at bit.ly/ALSpeers

Thank you to all who joined our ACT for ALS Webinar last month! In case you missed it, you can catch the full video on YouTube at bit.ly/A4AWebinar

Announcing the I AM ALS Storytelling Crew! If you're impacted by ALS, join us for a six-week workshop to build confidence and connection through storytelling. JOIN TODAY @ bit.ly/StorytellingCrew

Kendra Womack's dedicated efforts as co-chair of Many Shades of ALS have helped make the ALS community more responsive to people of color living with ALS. Drop a "Thank you, Kendra! 🧡" in the comments below!

Follow the Cures Collective TODAY for opportunities to advocate for ALL neurodegenerative diseases: IG: @curescollective | LinkedIn: Cures Collective | Updates: bit.ly/CuresUpdates

Find your tribe and join a Community Team TODAY @ bit.ly/vol4ALS

We secured $313 million in federal funding for ALS in the FY2026 budget. That means more funding than ever for ALS programs through agencies and programs such as the DoD, NIH, ARPA-H and CDMRP—all thanks to YOUR advocacy!

The Many Shades of ALS team's POWERFUL work has made strides within the ALS community—elevating the lived experiences of people of color living with ALS, connecting people with resources they need, and growing the movement along the way. Learn more @ tinyurl.com/MSOATeam

SO, what's next? BIG THINGS. But you'll only be the first to know if you sign up for our email list → bit.ly/News4ALS

Community, last year alone, our volunteers hosted 70 Tim Lowrey Panels—which bring virtual panel discussions from people living with & impacted by ALS to groups, orgs, and schools! Thank you to everyone who attended! Check out the full video → bit.ly/TimLowrey

Let's CELEBRATE! The new budget passed yesterday with an additional $45 million for ALS! Thanks to YOUR hard work, ALS has more funding than ever before, and we're on the cusp of so much research progress. KEEP IT UP, ALS community!

Thank you, Dr. Bedlack and I AM ALS advocate and volunteer Marvin Shaw, for walking us through the latest on promising ALS therapies! Tofersen is working well, but only for a small number of ALS patients. So we're pushing for progress to spread the hope. Full article @ bit.ly/ALShope

An estimated 6.5% of ALS patients in the U.S. are Black. However, that statistic, and many others, are impacted by underdiagnosis and underrepresentation of Black people living with ALS. If you're impacted, SIGN UP for a Natural History Study TODAY → bit.ly/ALSStudies