Roberta Horgan's Avatar

Roberta Horgan

@horganroberta.bsky.social

Thriving with polyposis. Patient advocate and PPI rep Lynch Syndrome Ireland Group. Hereditary cancer awareness & support. Passionate about cancer research and PPI. Tries a bit of gardening ๐ŸŒฑ๐ŸŒบ๐Ÿ

303 Followers  |  739 Following  |  57 Posts  |  Joined: 09.03.2025  |  2.1141

Latest posts by horganroberta.bsky.social on Bluesky

Diagnostic yield of colonoscopy in Lynch Syndrome

We demonstrate a high adenoma burden with distinct phenotypic and gene-specific characteristics in a UK LS population undergoing high quality surveillance

fg.bmj.com/content/earl...

27.11.2025 18:42 โ€” ๐Ÿ‘ 6    ๐Ÿ” 5    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Weโ€™re proud to present the current Council members of The International Society for Gastrointestinal Hereditary Tumours (InSiGHT), driving progress in research, collaboration, and patient care worldwide.

Learn more about us๐Ÿ‘‰ shorturl.at/6cyJV

#Genetics #GIHealth #HereditaryGICancer #InSiGHT

25.11.2025 12:15 โ€” ๐Ÿ‘ 2    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Genetic testing and pancreatic cancer: Why is it important? By Eric Traub | Northside Hospital Cancer Institute Pancreatic cancer: arguably the most haunting pair of words in the medical world. Numerous high-profile people have succumbed to pancreatic cancer a...

November is Pancreatic Cancer Awareness Month ๐Ÿ’œ

Itโ€™s the deadliest of the common cancers due to late detection.
Researchers stress genetic testing - hereditary risk matters. Know your family history. Advocate for early detection. ๐Ÿ’œ
Read more ๐Ÿ‘‰ shorturl.at/eKuTB

#PancreaticCancer #GeneticTesting

27.11.2025 13:18 โ€” ๐Ÿ‘ 2    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

I'm sure you did more than okay. I'm sure you were brilliant! I'm in awe of your incredible advocacy Tony. You've always been a powerful and consistent voice for prostate cancer awareness and support ๐Ÿ˜Š๐Ÿ‘

25.10.2025 13:32 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Appreciating the small things (but not all the time) - Medical Independent Sometimes we need permission to be grumpy. What are the best things in life? A clear run of green traffic lights on your usual...

I am constantly bouncing from imminent death to endless life (mostly metaphorically, but sometimes literally) and the push and pull of it is exhausting.

www.medicalindependent.ie/comment/opin...

27.09.2025 16:17 โ€” ๐Ÿ‘ 3    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Day 2 of #ESSO44 in Gothenburg Sweden, Presentation by Dr. Jakob Hedberg of Uppsala๐Ÿ‡ธ๐Ÿ‡ช
dMMR tumors in clinical practice? Do we have evidence for neoadjuvant strategy?

16.10.2025 08:01 โ€” ๐Ÿ‘ 3    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Confirmed great data from #8HW trial at #ESMO25 with the combination NIVO+IPI confirms the standard of care option in 1st line MSI-H/dMMR mCRC patients @oncodaily.bsky.social

20.10.2025 07:11 โ€” ๐Ÿ‘ 3    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

And I'll bet you smashed it, Tony! You're a powerhouse ๐Ÿ’™๐Ÿ’ช

23.10.2025 20:01 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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Delighted with my presentation at #ESMO25 for @Medscape. Itโ€™s such a privilege to be given the patient voice and make the voices of the thousands of men that @TackleProstate support, heard. Now though I found a beer garden! Wonโ€™t be here long cos itโ€™s freezing!

19.10.2025 15:12 โ€” ๐Ÿ‘ 7    ๐Ÿ” 1    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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#ESMO25: Clinically relevant survival benefits reported in platinum-resistant #OvarianCancer with pembrolizumab plus weekly paclitaxel with or without bevacizumab in ENGOT-ov65/KEYNOTE-B96 #ESMODailyReporter ๐Ÿ‘‰https://ow.ly/MIjA50XeuR3

#immunotherapy

18.10.2025 16:01 โ€” ๐Ÿ‘ 3    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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#ESMO25 Wonderful to see so many โ˜˜๏ธ colleagues at @myesmo.bsky.social #ClimateChange task force meeting

Encouraging to see such interest in ๐ŸŒ Sustainability ๐ŸŒณ
@cancertrialsie.bsky.social @irishdocsenv.bsky.social

18.10.2025 17:19 โ€” ๐Ÿ‘ 9    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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#ESMO25: Regular exercise has a significant impact on patient survival, but how can physical activity be integrated into the patient journey? Pr Michel Ducreux considers barriers and possible solutions.
#ESMODailyReporter๐Ÿ“Œ https://ow.ly/zect50Xezeq

#CancerCare #CancerManagement

19.10.2025 13:00 โ€” ๐Ÿ‘ 3    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Powerful message from Dr Anne-Marie Baird (TCD, ILCC) at #ESMO25 on gender bias in cancer care:

๐Ÿ” Recognise โ€“ bias distorts outcomes
๐Ÿ”ง Redesign โ€“ integrate sex & gender in every step
๐Ÿ“Š Report โ€“ transparency in data, trials & diagnostics

#CancerEquity #PatientAdvocacy #LungCancer

19.10.2025 17:00 โ€” ๐Ÿ‘ 2    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
First-in-human trial of a TCR-T therapy targeting KRAS G12V reports a significant response rate Preliminary results of NW-301V are promising, with a lack of severe adverse effects at all doses tested in patients with pancreatic cancer or colorectal cancer

๐Ÿ—ž๏ธ Check out my short #ESMODailyReporter editorial on early data from a first-in-human TCR-T therapy targeting KRAS G12V in advanced pancreatic & colorectal cancer, presented today by Dr Bai from Zhejiang University.

#ESMO25
#CellTherapy
#ESMOAmbassadors
@myesmo.bsky.social

20.10.2025 20:08 โ€” ๐Ÿ‘ 8    ๐Ÿ” 4    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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#ESMO25: Are personalised #CancerVaccines the next frontier or an elusive goal? Catherine Wu discusses the exciting potential of genomics-guided personalised vaccines and some of the related challenges.
#ESMODailyReporter ๐Ÿ‘‰ https://ow.ly/aMxi50Xgn37

#ImmunoOncology

23.10.2025 10:25 โ€” ๐Ÿ‘ 3    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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National Family History Month: A Reminder for Providers and Genetic Counselors! Octoberโ€™s National Family History Month is an important opportunity to emphasize how family history drives cancer risk assessment, genetic referrals, and prevention. Even with growing access to geneti...

๐Ÿงฌ October = National Family History Month!

Read the blog๐Ÿ“œ๐Ÿ‘‰ tinyurl.com/bdhjjv83

Reminding us that even in the era of๐Ÿงฌtesting, ๐Ÿ‘ชhistory is still the foundation of hereditary cancer care. Asking the rightโ“& sharing results can save lives across generations.

#HereditaryGICancer

22.10.2025 11:20 โ€” ๐Ÿ‘ 2    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Baby Aspirin and Cancer Prevention in Lynch Syndrome: New CaPP3 Results Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.

๐Ÿ“ฃMissed #CGAIGC25 this year?

Catch the short discussion between Prof Sir John Burn & @swatipatelmd.bsky.social sharing long-awaited CaPP3 results, a follow-up to the landmark CaPP2 trial showing aspirinโ€™s ๐Ÿ’Šrole in lowering cancer risk in #LynchSyndrome
๐Ÿ‘‰ tinyurl.com/msshdb5b
#HereditaryGICancer

13.10.2025 17:20 โ€” ๐Ÿ‘ 2    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Congratulations to our UCAN Ireland members @miriamstaunton.bsky.social & @cynthiacravo.bsky.social on becoming EUPATI Fellows ๐ŸŽ‰

A wonderful achievement and testament of your dedication to patient advocacy๐Ÿ‘๐Ÿ‘๐Ÿ‘

#ExpertPatientVoices #CancerTherapeutics #Innovation #EUPATI

23.10.2025 19:39 โ€” ๐Ÿ‘ 2    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Radiation therapy targets consistently missed, cttee told The Irish Cancer Society has said there is a complacent notion that Ireland is doing well in terms of cancer treatment.

The Irish Cancer Society has said there is a complacent notion that Ireland is doing well in terms of cancer treatment.

22.10.2025 11:03 โ€” ๐Ÿ‘ 11    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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What to expect from the NHS Bowel Screening Programme for people with Lynch syndrome If you live with Lynch syndrome, regular bowel screening is one of the most effective ways to reduce your risk of bowel (colorectal) cancer and catch problems early. The NHS Bowel Cancer Screening โ€ฆ

lynchsyndromeireland.com/2025/09/16/w...

16.09.2025 07:56 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Gene-Specific Detection Rate of Adenomas and Advanced Adenomas in Lynch Syndrome Colonoscopy is expected to reduce colorectal cancer (CRC) incidence in Lynch syndrome (LS) by detecting and removing adenomas. The existence of gene-specific differences in adenoma detection has beโ€ฆ

lynchsyndromeireland.com/2025/09/14/g...

14.09.2025 09:24 โ€” ๐Ÿ‘ 3    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Occurrence of dMMR/MSI-H tumor during follow-up in Lynch syndrome patients treated with immune checkpoint inhibitors for metastatic digestive cancer 2015 and 2024: a retrospective analysis of a monocentric prospective cohort study Highlights Patients with LS treated with ICIs are at risk of metachronous dMMR/MSI-H cancers (8% of cohort). The moโ€ฆ

lynchsyndromeireland.com/2025/09/11/o...

11.09.2025 07:54 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Global epidemic of Young Onset Colorectal Cancer has arrivedโ€ฆ Epidemiology isย the study of how often diseases occur in different groups of people and why.

lynchsyndromeireland.com/2025/09/07/g...

07.09.2025 08:51 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Restrictive diets are unnecessary for colonoscopy: Non-inferiority randomized trial In colonoscopy, preparation is often regarded as the most burdensome part of the intervention. Traditionally, specific diets have been recommended, but the evidence to support this policy is insuffโ€ฆ

lynchsyndromeireland.com/2025/09/06/r... @kevinmonahan.bsky.social

06.09.2025 09:42 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Ovarian Cancer Awareness Month: What Every Woman Should Know | Newswise September is Ovarian Cancer Awareness Month, a time to spotlight a disease that remains one of the deadliest gynecologic cancers. To help raise awareness and share expert insights, Dr. Pedro T. Ramire...

September is #OvarianCancer Awareness Month, a time to spotlight a disease that remains one of the deadliest gynecologic cancers. In 2025, > 20,000 women in the U.S. will be diagnosed with OVCA, and roughly 60% of those diagnosed will die from it!

#gyncsm #womenshealth #medsky #hereditarycancer

04.09.2025 16:44 โ€” ๐Ÿ‘ 6    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 1
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Prevention โ€“ Lynch Syndrome Ireland Posts about Prevention written by Lynch Syndrome Ireland

lynchsyndromeireland.com/category/pre...

02.09.2025 07:55 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Lynch Syndrome UK โ€“ New Website Check out their newly launched versionโ€ฆ.lots of information that you might find useful.

lynchsyndromeireland.com/2025/08/30/l...

30.08.2025 08:06 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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The diagnostic accuracy of the faecal immunochemical test(FIT) for the detection of early-onset colorectal cancer: an age-stratified analysis in South West England The faecal immunochemical test (FIT) is a diagnostic triage tool for patients presenting with clinical features of CRC in primary care, though its performance in individuals under 50 years is not wโ€ฆ

lynchsyndromeireland.com/2025/08/28/t...

28.08.2025 08:46 โ€” ๐Ÿ‘ 2    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Having reliable access to safe, affordable medicines ๐Ÿ’Š is essential for everyone.

We are urging policymakers to prioritise these issues and encourage manufacturers to produce the medicines in demand.

โžก๏ธ www.sandoz.com/makingaccess...

#AccessToMedicines #HealthEquity @helloeacr.bsky.social

26.08.2025 07:46 โ€” ๐Ÿ‘ 2    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

@horganroberta is following 17 prominent accounts