Roberta Horgan

What to expect from the NHS Bowel Screening Programme for people with Lynch syndrome If you live with Lynch syndrome, regular bowel screening is one of the most effective ways to reduce your risk of bowel (colorectal) cancer and catch problems early. The NHS Bowel Cancer Screening …

lynchsyndromeireland.com/2025/09/16/w...

Gene-Specific Detection Rate of Adenomas and Advanced Adenomas in Lynch Syndrome Colonoscopy is expected to reduce colorectal cancer (CRC) incidence in Lynch syndrome (LS) by detecting and removing adenomas. The existence of gene-specific differences in adenoma detection has be…

lynchsyndromeireland.com/2025/09/14/g...

Occurrence of dMMR/MSI-H tumor during follow-up in Lynch syndrome patients treated with immune checkpoint inhibitors for metastatic digestive cancer 2015 and 2024: a retrospective analysis of a monocentric prospective cohort study Highlights Patients with LS treated with ICIs are at risk of metachronous dMMR/MSI-H cancers (8% of cohort). The mo…

lynchsyndromeireland.com/2025/09/11/o...

Global epidemic of Young Onset Colorectal Cancer has arrived… Epidemiology is the study of how often diseases occur in different groups of people and why.

lynchsyndromeireland.com/2025/09/07/g...

Restrictive diets are unnecessary for colonoscopy: Non-inferiority randomized trial In colonoscopy, preparation is often regarded as the most burdensome part of the intervention. Traditionally, specific diets have been recommended, but the evidence to support this policy is insuff…

lynchsyndromeireland.com/2025/09/06/r... @kevinmonahan.bsky.social

Ovarian Cancer Awareness Month: What Every Woman Should Know | Newswise September is Ovarian Cancer Awareness Month, a time to spotlight a disease that remains one of the deadliest gynecologic cancers. To help raise awareness and share expert insights, Dr. Pedro T. Ramire...

September is #OvarianCancer Awareness Month, a time to spotlight a disease that remains one of the deadliest gynecologic cancers. In 2025, > 20,000 women in the U.S. will be diagnosed with OVCA, and roughly 60% of those diagnosed will die from it!

#gyncsm #womenshealth #medsky #hereditarycancer

Prevention – Lynch Syndrome Ireland Posts about Prevention written by Lynch Syndrome Ireland

lynchsyndromeireland.com/category/pre...

Lynch Syndrome UK – New Website Check out their newly launched version….lots of information that you might find useful.

lynchsyndromeireland.com/2025/08/30/l...

The diagnostic accuracy of the faecal immunochemical test(FIT) for the detection of early-onset colorectal cancer: an age-stratified analysis in South West England The faecal immunochemical test (FIT) is a diagnostic triage tool for patients presenting with clinical features of CRC in primary care, though its performance in individuals under 50 years is not w…

lynchsyndromeireland.com/2025/08/28/t...

Having reliable access to safe, affordable medicines 💊 is essential for everyone.

We are urging policymakers to prioritise these issues and encourage manufacturers to produce the medicines in demand.

➡️ www.sandoz.com/makingaccess...

#AccessToMedicines #HealthEquity @helloeacr.bsky.social

Bowel Cancer in Ireland: Patients, Bowels, Basics, and BreakthroughsOn 11th & 12th September, RSCI is holding a bowel cancer event dedicated to patients, families, and the wider community affected by this cancer. PVCR …

lynchsyndromeireland.com/2025/08/22/b...

👋 Welcome to InSiGHT on BlueSky!

We are a global community of researchers, clinicians, and scientists dedicated to advancing the understanding, diagnosis, and management of hereditary GI cancers. Follow us for updates on scientific advances, clinical guidelines, and upcoming events. #InSiGHT

BETWEEN HOPE AND HYPE: WHAT CANCER BLOOD TESTS REALLY MEAN FOR PATIENTS For us as advocates, the message is clear: celebrate the progress, but guard against the hype. Stories of individual breakthroughs are moving — but without long-term, carefully designed trials that…

lynchsyndromeireland.com/2025/08/24/b...

"Patients are stakeholders. So why are we being sidelined?

Every year, the NCPE Symposium brings together stakeholders to discuss issues surrounding how Ireland decides on access to new medicines. These are the medicines.."

Read full article here 👇
www.ucanireland.ie/nothing-abou...

Arndt Vogel: New Insights Into Metachronous Colorectal Cancer Risk in Lynch Syndrome - OncoDaily Arndt Vogel: New Insights Into Metachronous Colorectal Cancer Risk in Lynch Syndrome / Alexander Link, Andreas Block, Arndt Vogel, cancer, Christoph Engel,

Arndt Vogel: New Insights Into Metachronous Colorectal Cancer Risk in Lynch Syndrome
@arndtvogel.bsky.social

oncodaily.com/science/arnd...

#Cancer #Oncology #OncoDaily #Health #Medicine #ColorectalCancer

The Intersection of Lynch Syndrome and Hematological Malignancies: A Rare Short Report
onlinelibrary.wiley.com/doi/epdf/10....

Finding Support in Unexpected Places Through Hereditary Cancer Advocacy I share how my friendship with advocate Amy Byer Shainman helped me navigate hereditary cancer, showing that real support comes from empath and honesty.

Finding Support in Unexpected Places Through #HereditaryCancer Advocacy:
Shout out to @brcaresponder.bsky.social

#BRCA #LynchSyndrome #previvor #bcsm #gyncsm #womenshealth #genetics

Less than one week to go until our webinar 'Introduction to genomic testing in oncology' 🔗 Click the link to register: events.teams.microsoft.com/event/6d7013...
We hope to see you there!

#Oncology #Genomics #GeneticTesting #CancerCare #OncologyEducation #MedicalWebinar #OncologyWebinar #cancer

Please help us to ensure that cancer patients across the Ireland have a voice at this important symposium 🙏 Thank you.

#NothingAboutUsWithoutUs #UCANIreland #UnitedPatientVoice #NCPE #AccessMatters #StakeholdersNotSpectators

With NCPE Symposium fast approaching we ask that the most important stakeholders are treated as such... Patients should never be excluded or prohibited by costs to have a rightful seat at the table, one that decides what our lives are worth no less!
#UnitedCancerVoicesIE

Clinical “noise” in medicine: it’s not what you think Noise is getting in the way of good medical practice and better patient outcome, warns Dr. Kamran Abbasi at the BMJ

Clinical "noise" in medicine: it's not what you think myheartsisters.org/2025/08/10/c...

Building Supportive Communities for Patients Navigating Cancer Key Takeaways Stage 4 cancer patients often find more relevant information from peers than healthcare providers, highlighting the importance of community connections. The cancer community’s c…

lynchsyndromeireland.com/2025/08/18/b...

Cancer Revolution Exhibition WHAT YOU’LL DISCOVER Real stories from people affected by cancer Groundbreaking science that’s shaping the future of treatment Interactive exhibits that let you explore how cancer works The surpris…

lynchsyndromeireland.com/2025/08/19/c...

Patients, Bowels, Basics and Breakthroughs Very excited to share that @rcsi_irl ‘Patients, Bowels, Basics and Breakthroughs’ is back!!! This two day event is aimed at bringing together the patient & professional community to…

lynchsyndromeireland.com/2025/08/19/p...

Who is responsible? Is there anyone responsible for figuring this out, or is the whole system just going to drift into the future? Overall, the National Development Plan is not heavy on specifics. While it refers to t…

lynchsyndromeireland.com/2025/08/10/w...

🧡 Looking for trusted cancer support resources?

Our website links to practical advice and services, mainly from the Irish Cancer Society, who also fund €1M/year in cancer research through Cancer Trials Ireland.

🔗 www.cancertrials.ie/patients/sup...

#CancerSupport #IrishCancerSociety

Come and work with us!
We are seeking a Regional #LynchSyndrome Nursing Lead band 8 for 12 months to provide teaching and training across North London #Genomics apps.trac.jobs/job-advert/7...

Putting Early-Onset Colorectal Cancer on the Map A recent survey reveals the extent of the issue: 75% of EOCRC patients saw at least two doctors before receiving a diagnosis, and 20% saw four or more. These delays, often driven by medical bias, c…

lynchsyndromeireland.com/2025/08/14/p...