International Heart Spasms Alliance's Avatar

International Heart Spasms Alliance

@heartspasms.bsky.social

We are a group of patients working with patients & clinicians. We aim to educate, inform & enlighten on the topic of non obstructive heart disease. #ANOCA #INOCA #MINOCA Based in Australia, USA & UK https://www.internationalheartspasmsalliance.org/

94 Followers  |  198 Following  |  28 Posts  |  Joined: 17.11.2024  |  1.6658

Latest posts by heartspasms.bsky.social on Bluesky

Preview
‘The monthly curse’: menstrual-associated coronary artery vasospasm in a premenopausal woman—a case report AbstractBackground. Catamenial coronary vasospasm has recently been recognized as a refractory form of vasospastic angina, characterized by recurrent episo

‘The monthly curse’:
‘De maandelijkse vloek’:

menstrual-associated coronary artery vasospasm in a #premenopausal woman— a case report

#catamenial #coronary #vasospasm🫀
#perimenopause #HRT #estrogen
#refractory #angina #ischemia

#ANOCA #INOCA #MINOCA 🫀
#NOCAD

academic.oup.com/ehjcr/articl...

08.12.2025 09:52 — 👍 3    🔁 1    💬 0    📌 1
Post image

'Your Heart Speaks' ANOCA patient survey.

Abstract presented at ESC congress 2025

18.09.2025 17:00 — 👍 3    🔁 1    💬 0    📌 0
Preview
Angina with non-obstructive coronary arteries: a success story This editorial refers to ‘Coronary function testing vs angiography alone to guide treatment of angina with non-obstructive coronary arteries: the ILIAS ANO

'In conclusion, ANOCA progressed from the initial scepticism of the scientific community regarding its existence to the demonstration of its clinical relevance and the need for a standardized diagnostic algorithm (as recommended in current ESC Guidelines)'

academic.oup.com/eurheartj/ad...

05.09.2025 16:42 — 👍 1    🔁 1    💬 0    📌 0
INOCA 2025. Online registration by Cvent INOCA 2025 | Millbrook Medical Conferences

Registration is OPEN for #INOCA2025!
🗓️ 25–26 Sept | 📍 London

Two days of cutting-edge insights into Coronary Microvascular Dysfunction.

✅ Live cases
✅ Patient stories
✅ Tech & trials
✅ Real-world clinical tools

Register here:

www.millbrook-events.co.uk/event/INOCA2...

03.07.2025 09:03 — 👍 0    🔁 0    💬 0    📌 0
Preview
Refractory angina: mechanisms and stratified treatment in obstructive and non-obstructive chronic myocardial ischaemic syndromes Abstract. The diagnosis of refractory angina has conventionally been limited to patients with angina and ischaemia secondary to obstructive atherosclerotic

academic.oup.com/eurheartj/ad...

03.07.2025 08:56 — 👍 3    🔁 2    💬 0    📌 0

The Role of Myocardial Bridging in Anoca
Jennifer A. Tremmel, MD, MS
Emory Cardiology
youtu.be/0DgL9GqHv8o?...

08.05.2025 04:29 — 👍 2    🔁 1    💬 0    📌 0
Post image Post image

Last month, I had the pleasure of welcoming Dr. Dinah van Schalkwijk and Mariëlle Hartzema from the Netherlands to our Cardiac Rehabilitation Program. They’re doing important work on women-focused rehab, especially for patients with ANOCA. Excited for our continued collaboration!

14.05.2025 20:42 — 👍 2    🔁 1    💬 0    📌 0

Thank you to everyone who passed on the details of our survey.

CONGRATULATIONS to all who took Survey 1! You are, in part, going to the ESC (European Society of Cardiology) Congress with Sarena La on August 29th in Madrid.
surveys.adelaide.edu.au/redcap/surve...

13.05.2025 14:40 — 👍 2    🔁 1    💬 0    📌 0
Post image

Congratulation to Her Heart Australia on their 10year Anniversary Event in Melbourne. Our Co Founder Cindy McCall was honored to be on a panel sharing her experiences, creating awareness of what heart disease truly looks like.

09.05.2025 11:32 — 👍 1    🔁 2    💬 1    📌 0
Post image

Happy Nurse’s Week!
Thank you to all the nurses who advocate for patients and watch out for them in vulnerable moments! They are the backbone of our care.

06.05.2025 17:35 — 👍 0    🔁 0    💬 0    📌 0
Post image Post image Post image Post image

Awesome presentation about #SCAD at #ARRS25

🔑 points:
🫀Difficult dx but not rare— 40% of MI in 🚺 <50
🫀3 types (top L photo)
🫀A/W FMD + vasculopathy
🫀#yescct helpful for initial eval, work up new dx, clarify susp. dx
🫀#whycmr well-established for MINOCA/INOCA
🫀🔗 to AHA guidelines in reply

28.04.2025 20:13 — 👍 12    🔁 5    💬 1    📌 0
Preview
Surviving a ‘widowmaker’ heart attack, with Carolyn Thomas | Overlooked: Women's Health Can't Wait Carolyn Thomas was having a heart attack when an emergency room doctor diagnosed her with acid reflux and sent her home.

My podcast interview with Golda Arthur on "OVERLOOKED: Women's Health Can't Wait":
We cover implicit bias in cardiology, male-centric health care and why in 2025, we're still seeing women's heart disease "UNDER-researched, UNDER-diagnosed and UNDER-treated overlooked.simplecast.com/episodes/sur...

29.04.2025 13:31 — 👍 1    🔁 1    💬 0    📌 0
Preview
In medicine, the opposite of kindness is not cruelty. It’s dismissal. Six types of simple kindness in the practice of medicine can improve outcomes for patients.

In medicine, the opposite of kindness is not cruelty. It's dismissal.
"I cannot accurately express in mere words how demoralizing being abandoned by the experts you have turned to for urgent medical help can be..."
myheartsisters.org/2025/04/27/i...

27.04.2025 13:09 — 👍 5    🔁 2    💬 2    📌 0
Preview
Cardiac College for (Freshly Diagnosed) Women: “Your heart is like a house” The more heart patients learn about heart disease, the better we can manage the 8,765 hours per year we aren’t spending with our cardiologist. Here’s how ‘Cardiac College for Wome…

Cardiac College for (Freshly Diagnosed) Women:

"I spend about one hour per year checking in with my cardiologist but like many/most heart patients, I spend 8,765 hours per year managing the day-to-day reality of cardiac symptoms/concerns/meds on my own.

myheartsisters.org/2024/03/03/c...

26.04.2025 15:15 — 👍 1    🔁 1    💬 0    📌 0
Interview on Sex Differences in Microvascular Disease Parameters with Dr. Michel Corban
YouTube video by International Heart Spasms Alliance Interview on Sex Differences in Microvascular Disease Parameters with Dr. Michel Corban

Sex Differences in Microvascular Disease Parameters with Dr. Michel Corban.

youtu.be/UM8ZobLBA30?...

Part 2: patient perspectives from two men experiencing Coronary Vasospasm. It's not just women who live with #ANOCA

Direct link:
www.youtube.com/watch?v=EV44...

26.04.2025 13:31 — 👍 3    🔁 1    💬 0    📌 1
Preview
Patient “stories” vs. medical “reports”: The Patient Experience Library “All too often, patients are the first to know when something has gone wrong with their medical treatment.”

Patient "stories" vs. medical "reports": The Patient Experience Library
If a doctor speaks up when something goes terribly wrong at work, it’s called an incident report, but when a patient speaks up when something’s gone wrong, it’s a complaint. Words do matter."
myheartsisters.org/2024/09/22/p...

20.04.2025 02:24 — 👍 6    🔁 4    💬 0    📌 0
Preview
Just because I can lift it, doesn’t mean it’s not heavy Invisible illness: Few of us can tell just by looking at a person if they are suffering or not. Even the sickest among us can often look surprisingly “normal”.

Just because I can lift it, doesn't mean it's not heavy.

"Invisible illness: Few of us can tell just by looking at a person if they are suffering or not. Even the sickest among us can often look surprisingly "normal..."

myheartsisters.org/2025/04/20/j...

20.04.2025 12:34 — 👍 5    🔁 1    💬 0    📌 0
Post image

Join us for the 19th Annual Women and Ischemic Heart Disease Symposium on Friday, April 11th — a day dedicated to advancing knowledge, research, and care in women’s heart health. 💓🧠 #Cardiology #MedicalConference #CardiologyConference #MedicalEducation
cedars.cloud-cme.com/course/cours...

04.04.2025 16:40 — 👍 7    🔁 6    💬 1    📌 0
Post image

A packed room to see results from the largest trial in the #INOCA field, presented by Dr. Eileen Handberg. Congrats to the investigators, including Drs. Bairey Merz and @janetweimd.bsky.social of the @womensheart.bsky.social
#ACC25 #cardiosky

29.03.2025 15:45 — 👍 7    🔁 7    💬 1    📌 0
Post image

Important paper on rethinking heart disease, with a focus on atheroma and primary prevention, not just blood supply impairment (reactive, today's mode of secondary prevention) A @thelancet.bsky.social Commission
www.thelancet.com/journals/lan...

31.03.2025 22:43 — 👍 121    🔁 25    💬 3    📌 1

Dr. Eileen Handberg: Women with non-obstructive disease are highly symptom burdened, use significant system resources, and need to be treated. We must drop bias, recognize their pain, and ensure proper follow-up care. There’s real room for improvement. 💙 #ACC25

29.03.2025 15:02 — 👍 3    🔁 3    💬 0    📌 0
Post image

Invasive coronary function testing determination of #INOCA endotypes impacts medical management in patients with angina and no obstructive CAD #ACC25 @smidtheart.bsky.social @womensheart.bsky.social @drmarthagulati.bsky.social

31.03.2025 17:37 — 👍 16    🔁 8    💬 0    📌 0
Preview
WARRIOR: Intensive Medical Therapy vs. Usual Care in Women With Suspected INOCA - American College of Cardiology

WARRIOR trial results 'neutral'

"Intensive medical therapy did not significantly impact the rate of serious cardiovascular events at five years in women with suspected ischemia with nonobstructive coronary arteries (INOCA)"

www.acc.org/Latest-in-Ca...

30.03.2025 10:06 — 👍 2    🔁 1    💬 0    📌 0

Intensive medical therapy did not significantly impact the rate of serious CV events at five years in women w/ suspected INOCA, according to findings from WARRIOR presented during a #LBCT session at #ACC25.

Learn more: bit.ly/44a7uYO #MedSky #CardioSky

29.03.2025 16:04 — 👍 7    🔁 8    💬 0    📌 0
Post image

UF Cardiology research stalwart, Dr. Eileen Handberg presents the first late breaking trial at #ACC25, the WARRIOR trial @accintouch.bsky.social #cardiosky

29.03.2025 14:45 — 👍 7    🔁 6    💬 0    📌 1
Post image

🌟 Women have been trailblazers in the fields of medicine and science, making lasting impacts that shape our world today. 🇺🇸 🇨🇦 🇵🇱

Discover the stories of some of the women physicians & scientists who changed the game! 👇🧵

#WomensHistoryMonth #WomenInMedicine #MedSky

29.03.2025 13:00 — 👍 7    🔁 5    💬 1    📌 0
Post image

#ACC25 coverage has begun! First up: API-CAT and WARRIOR. Head to TCTMD for all the details: tctmd.com/conference/a... #cardiosky

29.03.2025 18:49 — 👍 5    🔁 6    💬 0    📌 0
Preview
2025 Canadian Women's Heart Health Summit Registration is open for the 5th Canadian Women's Heart Health Summit on April 25-26, 2025. Join us and help improve women's heart, brain, and vascular health together. Register at womensheartsumm...

Advancing women’s heart, brain and vascular health together: Don't miss the 5th Canadian Women's Heart Health Summit in beautiful Ottawa 🇨🇦 April 25-26:
FREE virtual registration for heart patients!
cwhhs.regfox.com/2025-canadia...

28.03.2025 14:57 — 👍 4    🔁 2    💬 1    📌 0
Preview
Clinical standards in angina and non-obstructive coronary arteries: A clinician and patient consensus document Patients with angina and non-obstructive coronary arteries (ANOCA) or myocardial ischaemia with non-obstructive coronary arteries (INOCA) comprise a relatively large subgroup within those with ischaem...

We were privileged to be able to contribute to this consensus document of expert clinicians and patients with lived experience, setting out the case for clinical standards for multidisciplinary, patient-centred services for
#ANOCA/INOCA

www.internationaljournalofcardiology.com/article/S016...

19.03.2025 18:42 — 👍 1    🔁 1    💬 0    📌 0
Post image

"Patients with ANOCA warrant more appropriate diagnostic and management pathways to improve the outcomes of these often overlooked individuals."

academic.oup.com/ehjqcco/adva...

17.03.2025 09:50 — 👍 2    🔁 1    💬 0    📌 0

@heartspasms is following 19 prominent accounts