Oncogene Cancer Research

This #WorldLungCancerDay, we’re reminding everyone: #lungcancer can hide behind ordinary symptoms.

A lingering cough, fatigue, bone pain — know what to watch for. Early detection saves lives. We need more research for everyone with lung cancer. 🩵 #LCSM

Talk of Hope Podcast on Liquid Biopsy and Speed to Lung Cancer Diagnosis - Oncogene Cancer Research - OncoDaily Talk of Hope Podcast on Liquid Biopsy and Speed to Lung Cancer Diagnosis - Oncogene Cancer Research / Alastair Greystoke, cancer, Liquid Biopsies, Lung

Oncogene Cancer Research - Talk of Hope Podcast on Liquid Biopsy and Speed to Lung Cancer Diagnosis
@oncogenecancer.bsky.social
@yvonnediaz.bsky.social
@prof-ali-g.bsky.social

oncodaily.com/blog/talk-of...

#OncoDaily #Oncology #Cancer #Health #Medicine #MedOnc #MedNews #TalkofHope #LungCancer

Screen grab of our co-founders Yvonne Diaz and Jan Clark with the OCR’s Dr Paul Huang. We’re thrilled to announce a £10,425 donation to the Institute of Cancer Research (ICR) to support vital work into oncogene-driven lung cancers, including research led by Dr Paul Huang’s team. This donation builds on the £90,000+ already contributed by our co-founders and community to help establish a cross-biomarker biobank and support world-class research at ICR. A huge thank you to our incredible marathoners — 🏃‍♀️ Christina Roberts 🏃‍♀️ Ruth Price 🏃‍♀️ Aude-Aline Eugene — for going the distance and raising these essential funds. You’ve inspired us all. And this is just the beginning. Stay tuned — we’ve got more big plans to support research on the way. 🔬💙 #OncogeneCancerResearch #ICR #LungCancerAwareness #PatientLedResearch #BiomarkerDriven #MarathonForResearch #ThankYou

We’re proud to donate £10,425 to @icr.ac.uk to advance oncogene-driven lung cancer research, supporting the vital work of Dr Paul Huang.

This is just the start — stay tuned for more big research plans. 💙🔬

oncogeneresearch.org/icr-donation

#LCSM

What Does it Take to Truly Move the Dial for People Facing Lung Cancer - Oncogene Cancer Research - OncoDaily What Does it Take to Truly Move the Dial for People Facing Lung Cancer - Oncogene Cancer Research / cancer, Cecilia Pompili, Gianluca Casali, Giuseppe

Oncogene Cancer Research - What Does it Take to Truly Move the Dial for People Facing Lung Cancer
@oncogenecancer.bsky.social
@yvonnediaz.bsky.social

oncodaily.com/blog/people-...

#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #LungCancer

Why are so many young women getting #lungcancer?

Our co-founder @janclark1.bsky.social’s daughter Amy was just 20. Jules was 37 and Mel just 52.

Worth reading
👇

dailymail.co.uk/health/article…

Post-ASCO 2025#LungCancer 🫁 Highlights by @VJOncology
👉 us06web.zoom.us/webinar/regi...

🗓 June 25, 2025
🕒 15:30–17:30 CEST | 08:30–10:30 CDT | 14:30–16:30 BST
📍 Virtual Webinar

Join us for an expert-led session unpacking the most important lung cancer data presented at ASCO 2025

Photo of Michael sky diving. How can rib pain lead to a lung cancer diagnosis? For Michael — a retired military skydiver, family man, and jack-of-all-trades — it was the first sign of large cell lung cancer, a rare and aggressive subtype. Early surgery gave hope. But within months, the pain returned. The cancer had spread. Michael passed away in 2022. It was only after his death that his wife, Christine, learned that Michael’s tumour had tested positive for the STK11 mutation — an important finding that had never been communicated to them. No one explained what it meant. No one mentioned the clinical implications. Christine now carries not just grief, but unanswered questions. She’s become a powerful voice in the lung cancer community — advocating for biomarker testing to be explained, for results to be shared with families, and for research that can offer patients not just more time, but better options. Michael’s story is not just about loss — it’s about the need for transparency, trust, and change in cancer care.

Photo of a Michael and his wife

Photo of Michael skydiving

How can rib pain lead to a #lungcancer diagnosis?

For Michael, it was the sign of large cell lung cancer, a rare, aggressive type.
After he passed, his wife Christine learned of his STK11 mutation. She now advocates for answers, testing & research.
Read at 🔗 www.oncogeneresearch.org/michaels-story

🧠 What if trivia could fuel cancer research?
Nikki Hirsch, an ALK+ patient, rallied her friends for a sold-out trivia night—raising $6K+ for research & awareness. 💙
Her secret? Turning connection into action.
📖 Read more: alkpositive.org/blog/trivia-...
#PoweredByPatients #ALKPositive

💬 Help us understand the emotional toll of lung cancer. Have you or a loved one been impacted by lung cancer? We’re running a survey across Europe to explore the psychological impact of a lung cancer diagnosis—on both patients and caregivers. 🧠 We want to hear directly from you. What’s been hardest to cope with? What support (if any) have you received? What’s missing? 📢 Your voice matters. By sharing your experience, you can help improve mental health services for others affected by this disease. 👉 Open to people diagnosed with lung cancer and their caregivers (excluding healthcare professionals) living in Europe. Take the survey here

📢 Help us understand the emotional toll of #lungcancer.

With @lungcancereurope.bsky.social & 46 orgs, we’re surveying patients & caregivers across Europe to explore the mental health impact of a diagnosis.

🧠 Your voice can shape better support.

🔗 surveymonkey.com/r/LuCESurvey20…

#LCSM

These cards show case The Aun’s news coverage on the rising incidents of cancer in young people. It features the story of a young lady called Amy, who was diagnosed with stage four lung cancer at the age of 20. It also mentions her mother, Jan who co-founded our charity and campaigns for patient empowerment, advocacy and more lung cancer research funding

Young people get #cancer.
Amy was just 20 when she was diagnosed w stage 4 #lungcancer.

Her story & others show why we must act now. Amy’s what’s inspired @janclark1.bsky.social to co-found our charity.

Thanks @thesun.co.uk for covering: thesun.co.uk/health/3502801… 🩵

CALLING RESEARCHERS! The ALK Positive Australia & TOGA Inspirational Research Grant for ALK+ NSCLC is back. We are seeking innovative research that makes a real difference for people living with ALK-positive lung cancer.

Now is the time to prepare a proposal. Further information coming soon.

Happy Women’s Health Month everyone! This month especially we want to take the opportunity to keep spotlighting women in our community! This week we have a very special message from lunglifebalance!

Encouraging to see potential new treatment options like this combo showing strong responses & prolonged progression-free survival. Improved brain control is especially important to us. We look forward to more research that offers hope and better quality of life for ALK+ patients worldwide.

#LCSM

Seeing and treating the person before you is key in our cancer care. Silence doesn't necessarily mean agreement or no questions. Important to contextualise the person and meet them where they are. It's also a learning curve to get the courage to share thoughts. Great article - thank you

Summary of an article: This editorial emphasizes that patient education is a vital, not optional, part of lung cancer care. It argues that when patients are equipped with clear, culturally responsive, and accessible information, they are better prepared to engage in their treatment, make informed decisions, and adhere to care plans. Key insights include: Understanding the disease: Lung cancer is complex, and patients benefit from education tailored to different learning styles—visual aids, plain language, and culturally sensitive approaches are critical. Shared decision-making: Empowering patients to speak up and collaborate with providers leads to better care alignment with personal values, especially when patients overcome cultural norms that may discourage questioning authority. Treatment adherence: Clear explanations, ongoing support, and access to peer-driven resources like social media groups and journals improve patients’ ability to follow through with treatments and manage side effects. Collaborative education: Interdisciplinary teams—including oncologists, nurses, pharmacists, social workers, and patient advocates—enhance the education process. Technology, like apps and videos, makes information more accessible and engaging. Family involvement & cultural nuance: In many communities, decision-making is collective. Patient education must account for family involvement and be adaptable to cultural norms. Measuring impact: While anecdotal benefits are strong, more structured research is needed to measure the effectiveness of educational interventions and guide best practices. Conclusion: Patient education must be embedded into cancer care, supported by trained teams and infrastructure. As one patient co-author highlights, being informed and empowered transforms the experience from passive care to active partnership.

Understanding cultural norms in cancer care is key.

Aurora Lucas, an advocate living w EGFR #lungcancer, shares how she went from staying silent—out of fear of being disrespectful — to speaking up in this editorial with Dr @lungoncdoc.bsky.social.

👇 openworks.mdanderson.org/aceqi/vol1/i...
#LCSM

Breaking news: @abbvie.bsky.social Teliso-V, an ADC targeting c-MET overexpression, has received accelerated approval by @fda.gov.

"People w c-Met overexpressing #NSCLC have poor prognosis & limited options, and EMRELIS can address a critical unmet need."

news.abbvie.com/2025-05-14-U-S…

#LCSM

Sadly cancer knows no bounds & is common around the world.

That’s why Christina, Ruth & Aude, from US, Mexico & France, will take on the @londonmarathon.bsky.social next Sunday.

All funds raised will support @icr.ac.uk’s life-saving research.

Let’s cheer them on 👇

#lcsm #LondonMarathon2025

Our EQUAL study is open for enrollment!

More in this video!

@florezlab.bsky.social @latinasinmed.bsky.social

Learned loads @lungcancereurope.bsky.social AGM, like: My behaviour style is different in advocacy from my employed work. Cannot crochet. “Chemo brain” is real & applies to cancer generally. Much more. Grateful for the unexpected LuCE Patient Advocate Award. Thank you LuCE family for all.

Exciting to see the opening of the EQUAL study to see if we can diagnose EGFR & hopefully later other oncogene lung cancers earlier. We often don’t meet screening criteria & know that early detection saves lives. Find out more 👇

#lcsm

Emerging importance of HER3 in tumorigenesis and cancer therapy - Nature Reviews Clinical Oncology HER3 is emerging as a promising therapeutic target that is often overexpressed or genetically altered across diverse solid tumour types. This Review describes the landscape of HER3 alterations in canc...

well-timed review on HER3 in cancer by Helena Yu (from @mskcancercenter.bsky.social @mskdeptofmed.bsky.social ) and colleagues. Multiple HER3 antibody-drug conjugates in development.
www.nature.com/articles/s41...

Cards showing statistics in lung cancer. ide 1: Title: "World Health Day: Spotlight on Women's Lung Health"​ Slide 2: Statistic: "Lung cancer is the leading cause of cancer death among women globally."​ Slide 3: Statistic: "In the past 40 years, lung cancer diagnoses in women have increased by 84%."​ News-Medical Slide 4: Statistic: "1 in 17 women will develop lung cancer in their lifetime."​ Lung Cancer Research Foundation Slide 5: Statistic: "20% of women diagnosed with lung cancer are non-smokers."​ Slide 6: Call to Action: "This World Health Day, let's raise awareness and support research for women's lung health."

​To mark #WorldHealthDay, which is focusing on women's health this year, we shed light on the alarming rise of #lungcancer among women globally.​

Let’s work together to safeguard and make progress on lung cancer early detection and medical research. #LCSM #WHD @who.int

So disappointing. The lung cancer research funding has also gone from $25m to ZERO. Double whammy

Hoping this is not the case. If so be sure to ask about biomarker testing to find out what’s driving it.

Image of Oncogene Cancer Research’s cofounder Yvonne Diaz with a quote stating the need to collaborate among patient organisations to improve lung cancer outcomes

We are looking forward to participating in the @lungcancereurope.bsky.social AGM & meeting next week in Berlin. By working together across patient organisations we can achieve outcomes for our lung cancer community faster.

We are #StrongerTogether. #LCSM

A slope chart showing the reversal in lung cancer rates in Sweden between 1973-2023. Four lines connect data points across the 50-year period: two declining lines for men (diagnosis and mortality) and two rising lines for women (diagnosis and mortality). In 1973, men's rates were nearly 4 times higher than women's (around 40 vs 10 per 100,000). By 2023, women's rates exceeded men's for both diagnosis (48.6 vs 37.1) and mortality (37.1 vs 30.3).

Day 2 of #30DayChartChallenge , Slope

Women's lung cancer rates now exceed men's in Sweden

Read more in @Socialstyrelsen's report: www.socialstyrelsen.se/globalassets...

Code: github.com/gkaramanis/3...

#RStats #dataviz

Heartbreaking. Sorry for your loss.

Am so sorry to hear this. So young

Hope your mother’s surgery goes well and that she has a great treatment plan ahead. Be sure she asks about biomarker testing. There are many types of lung cancer and treatments are ever more precise

Picture of Dr Catherine Wu. 🎥 Exclusive ALKtALK with Dr. Catherine J. Wu 🎥 We're thrilled to share this insightful conversation with Dr. Catherine J. Wu, Chief of Stem Cell Transplantation and Cellular Therapies at Dana-Farber Cancer Institute and Professor at Harvard Medical School. In this powerful video, Dr. Wu dives into the groundbreaking role of vaccines in treating ALK-positive cancer. She discusses how personalized, patient-specific treatments are reshaping outcomes and offering new hope to those battling this disease. 👉 Press PLAY to hear directly from one of the leading experts in cancer research and learn about the exciting future of personalized medicine. Don’t miss out – watch now to stay informed and empowered! 💡💪

🎥 Watch this ALKtALK replay w Dr. Catherine J. Wu

Dr. Wu dives into the groundbreaking role of vaccines in treating ALK+ #cancer. She discusses how personalized, patient-specific treatments are reshaping outcomes & offering new hope

🔗https://youtu.be/prnUBMjSDEk

#LCSM #lungcancer