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Oncogene Cancer Research

@oncogenecancer.bsky.social

πŸ”¬ Advancing Research. Empowering Patients. Championing Advocacy. We’re patients & families dedicated to improving outcomes for people with oncogene-driven lung cancer through education, support, and powering cutting-edge research.

797 Followers  |  693 Following  |  148 Posts  |  Joined: 12.11.2024  |  1.7745

Latest posts by oncogenecancer.bsky.social on Bluesky

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Logan, diagnosed with stage 4 ALK+ #lungcancer age 32, thought he was protecting his son until this moment.

Be sure to watch the full interview to learn about how hard it was to get diagnosed and how he’s supporting others.

πŸŽ™οΈyoutube.com/playlist?list=…

#LCSM

06.12.2025 15:23 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Photograph of Dr Jose Luis Costa, of Thermo Fisher Scientific. He provides a quote for our lung cancer awareness campaign.  He says:  We want to see every patient receive the diagnostic that can guide the most precise treatment.

Photograph of Dr Jose Luis Costa, of Thermo Fisher Scientific. He provides a quote for our lung cancer awareness campaign. He says: We want to see every patient receive the diagnostic that can guide the most precise treatment.

#BiomarkerTesting has changed everything in #lungcancer. It gives those in our community the chance to receive the right treatment at the right moment.

It's why @thermofishersci.bsky.social JosΓ© Luis Costa believes in continued innovation.

#StoriesOfLungCancer #LCAM25

30.11.2025 12:09 β€” πŸ‘ 4    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

So true! Thank you

30.11.2025 12:07 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Yan Leyfman: New Evidence Highlights the Power of the Patient Voice in Oncology - OncoDaily Yan Leyfman: New Evidence Highlights the Power of the Patient Voice in Oncology / Ali Benour, Andrea Bezjak, Andrew Mihalache, cancer, Carlton Johnny, David

New Evidence Highlights the Power of the Patient Voice in Oncology - Yan Leyfman

@yleyfman.bsky.social

oncodaily.com/voices/yan-l...

#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews

29.11.2025 22:48 β€” πŸ‘ 6    πŸ” 3    πŸ’¬ 2    πŸ“Œ 0
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Progress in #lungcancer happens when we refuse to accept today’s limits as tomorrow’s reality.

As Nuvalent’s Dr Henry Pelish reminds us β€” let’s keep pushing science’s limits.

#StoriesOfLungCancer #LCAM25

29.11.2025 14:14 β€” πŸ‘ 4    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

Lung cancer causes more deaths than colon, breast & prostate cancers combined. Early detection saves lives.

If you're 50–80 with a smoking history, ask your doctor about a low-dose CT lung screening. bit.ly/487gjDn

28.11.2025 16:42 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
The image shows a drawing of two women - one a journalist called Sofia and a doctor known as Dr Ana.  It says:  Biomarker Testing: Watch this new education video.  It's all you need to know about lung cancer and biomarker testing.  Produced by Thermo Fisher with support from Oncogene Cancer Research.

The image shows a drawing of two women - one a journalist called Sofia and a doctor known as Dr Ana. It says: Biomarker Testing: Watch this new education video. It's all you need to know about lung cancer and biomarker testing. Produced by Thermo Fisher with support from Oncogene Cancer Research.

#Biomarkertesting helps people with #lungcancer get the right treatment at the right time. Yet too many still miss out.

This video created w @thermofishersci.bsky.social is a great resource for anyone diagnosed.

Help share to empower & inform more peopleπŸ‘‡
www.oncogeneresearch.org/biomarker-te...

28.11.2025 16:56 β€” πŸ‘ 4    πŸ” 2    πŸ’¬ 1    πŸ“Œ 0
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Troubling rise in young women getting lung cancer Doctors from around the country say they are seeing more cases of young women with no history of smoking being diagnosed with lung cancer. What’s behind the trend is unclear but the authors of a new s...

Sorry for both of your losses, words cannot replace what was lostπŸ˜”
This troubling news came out.

www.nbcnews.com/nightly-news...

26.11.2025 10:49 β€” πŸ‘ 5    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

So sorry to hear this. Sadly so many of us have been led to believe that smoking is the only risk factor for lung cancer. It turns out the biggest risk factor is having lungs. Sending you peace and comfort.

28.11.2025 13:55 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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It’s a simple wish: to see your child grow up. But for people with ALK+ lung cancer, like Amanda, Jenna, Carla, and Hope, there are no guarantees. You can help give them more precious years with their kids by supporting research.

What would you give for more time?

27.11.2025 00:00 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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As Lung Cancer Awareness month comes to a close please consider buying a pair of laces & supporting much needed research into the leading cause of cancer deaths worldwide & in Australia. docs.google.com/document/d/e...

28.11.2025 02:55 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0
Photograph of Dr Lauren Byers from MD Anderson Cancer Center. In this quote she says: we have more ways to personalise patients’ treatments, especially in lung cancer which was  previously treated as one size fits all.

Photograph of Dr Lauren Byers from MD Anderson Cancer Center. In this quote she says: we have more ways to personalise patients’ treatments, especially in lung cancer which was previously treated as one size fits all.

Not all #lungcancer is the same - and neither should be our treatments. Today, we can personalize care to each person's unique biology.

As Dr Lauren Byers @mdanderson.bsky.social highlights, innovation is making precision care a reality. Let’s keep pushing for more.

#StoriesOfLungCancer #LCAM25

28.11.2025 13:53 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Behind a young adult facing #lungcancer, there’s often someone holding them up. For @Janclarkgirls, whose daughter Amy was diagnosed at 20, success means seeing Amy work, travel, hike & more. To every care partner who carries someone this, we see you. #StoriesOfLungCancer #LCAM25

27.11.2025 16:06 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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What brings Dr Melinda Hsu hope? Seeing researchers, clinicians & advocates advance survivorship science, creating innovative ways to improve long-term quality of life for people living with #lungcancer.

Every step forward brings hope.

#StoriesOfLungCancer #LCAM25

26.11.2025 21:29 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Early detection of lung cancer is key to improving outcomes. We also need to find ways to identify lung cancer in those who don't fit the scanning criteria - like younger people with no tobacco or light use. Anyone can get lunch cancer. Wonderful to hear of this procedure.

25.11.2025 13:09 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Early action saves Shannon from lung cancer Shannon underwent a biopsy and tumor removal surgery under one anesthesia at UW Health and is now lung cancer free.

A @uwhealth.bsky.social story shares the importance of early detection for lung cancer. Last year, Dr. Andrea Axtell performed a life-saving procedure on a patient whose lung cancer was detected early. #ExceptionalPeople #ExtraordinaryResults go.wisc.edu/wqo9g3

21.11.2025 17:30 β€” πŸ‘ 57    πŸ” 12    πŸ’¬ 2    πŸ“Œ 0
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Every advance in #lungcancer research is more than data - it’s hope for patients and families.

Mark Reale of Takeda reminds us that breakthroughs are measured in the lives they touch.

#StoriesOfLungCancer #LCAM25

25.11.2025 13:07 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Photo of Dr Jessica Lin

Photo of Dr Jessica Lin

Hope is the heart of research for people with #lungcancer.

It's why Dr Jessica Lin @massgeneralbrigham.bsky.social says, progress happens when we all come together to push the boundaries of what’s possible.

Let's keep working together to keep hope & progress alive.

#StoriesOfLungCancer #LCAM25

24.11.2025 11:06 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

No two lung cancers are the same. We may each have lung cancer and be facing the same storm, but we each experience different waves, have different tools, unique experiences. There are many paths. Together we bring more light and hope.

24.11.2025 10:39 β€” πŸ‘ 6    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Jill Feldman: One Diagnosis - Five Different Paths - OncoDaily Jill Feldman: One Diagnosis - Five Different Paths / cancer, Jill Feldman, Leah Phillips, OncoDaily, Oncogene Cancer Research, Oncology, Samantha M., Yvonne

One Diagnosis: Five Different Paths - Jill Feldman

@jillfeldman4.bsky.social @oncogenecancer.bsky.social

oncodaily.com/voices/one-d...

#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews

24.11.2025 00:05 β€” πŸ‘ 5    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Progress in #lungcancer doesn’t happen in isolation.

It takes industry, researchers, clinicians & patient advocates pushing forward together.

Annarita Egidi’s words remind us what can be achieved when we come together.

#StoriesOfLungCancer #LCAM25

23.11.2025 13:06 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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World’s first lung cancer prevention vaccine gets Β£2 million for clinical trial People at high risk of lung cancer will soon be able to receive the first-ever experimental vaccine, 'LungVax', designed to prevent the disease, in a world-first clinical trial. The LungVax vaccine ca...

First trial of a vaccine against lung cancer will be starting soon.

#ShareGoodNewsToo

www.cancer.ox.ac.uk/news/world20...

19.11.2025 20:02 β€” πŸ‘ 81    πŸ” 30    πŸ’¬ 2    πŸ“Œ 1
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Katherine, from Houston, TX has been living a full life with ALK+ lung cancer for six years. As a participant in the Brightstar trial, research gave her more time to celebrate birthdays with loved onesβ€”and more birthdays of her own. More Research= More Time. Donate: secure.qgiv.com/event/lcam25...

21.11.2025 22:01 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Hope carried Kathrin when she was diagnosed w stage 4 ALK #lungcancer age 44.

For more days. More memories. More moments with her son.

Today she focuses on the present, celebrates the good days & sets big goals for the future.

#StoriesOfLungCancer #LCAM25 @younglungcancer.bsky.social

22.11.2025 10:28 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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One diagnosis. Five different paths.

@jillfeldman4.bsky.social @yvonnediaz.bsky.social Leah and Samantha remind us that #lungcancer isn't one story.

It's many. It's why we need more research.

It's why we need treatments to be ever more personalised.

#StoriesOfLungCancer #LCAM25

21.11.2025 13:09 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 1
Photograph of Dr Riyaz Shah who provides a quote which says, yesterday’s research is extending lives today.  Today’s research will do the same in the future. This is part of our stories of lung cancer campaign for  LCAM 25.

Photograph of Dr Riyaz Shah who provides a quote which says, yesterday’s research is extending lives today. Today’s research will do the same in the future. This is part of our stories of lung cancer campaign for LCAM 25.

Every breakthrough in #lungcancer builds on the work that came before.

Dr Riyaz Shah reminds us that tomorrow's outcomes depend on today's investments. Let's keep research moving forward for better outcomes for patients and families everywhere.

#StoriesOfLungCancer #LCAM25

21.11.2025 09:59 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Photo of leading physician-researcher Dr Christine Lovly from City of Hope.  The photo include a quote from Dr Lovly which says "Research equals HOPE for a future without lung cancer."  The card also lists her credentials.  From her prior role at Vanderbilt University.

Photo of leading physician-researcher Dr Christine Lovly from City of Hope. The photo include a quote from Dr Lovly which says "Research equals HOPE for a future without lung cancer." The card also lists her credentials. From her prior role at Vanderbilt University.

Life-saving treatments don’t happen by chance -they’re built through relentless research. We’re grateful for physician-researchers like Dr Christine Lovly who push science forward.

Progress happens when we stand behind research that saves lives.

#StoriesOfLungCancer #LCAM25

17.11.2025 13:53 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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So many people will see themselves in Stefanie’s words.

The fear, the love, the strength & the reality that living w #lungcancer is never straightforward.

What makes the difference is community. No one should ever face this alone.

#StoriesOfLungCancer #LCAM25

15.11.2025 19:19 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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They were storytellers, visionaries, icons.

From Walt Disney to Paul Newman, Betty Grable to Peter Fonda.

Each left a lasting mark on the world.
Each lost their life to #lungcancer.

Lung cancer doesn’t discriminate.
Let's push for better outcomes.

#LCAM25 #StoriesOfLungCancer

13.11.2025 10:18 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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In the #lungcancer community, we lift each other up. Every story, every connection, every moment matters. πŸ’™

It's why we get involved -
creating awareness, building community or cheering others on.

What community events or moments inspire you most?

#StoriesOfLungCancer #LCAM25

12.11.2025 21:39 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

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