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Sarah Brown

@sarahfbrown.bsky.social

Patient Rep & Advisor to research studies & NHS Women's heart champion https://heart.bmj.com/content/110/22/e4 Expert patient by experience #ANOCA #INOCA #MINOCA https://www.internationalheartspasmsalliance.org/ Former Midwife

86 Followers  |  163 Following  |  24 Posts  |  Joined: 16.11.2024  |  2.1707

Latest posts by sarahfbrown.bsky.social on Bluesky

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'Your Heart Speaks' ANOCA patient survey.

Abstract presented at ESC congress 2025

18.09.2025 17:00 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Just not listening – or β€œnarrative incompetence”? Dr. Jack Coulehan writes this about the patient story: β€œPatients understand their illnesses in a narrative way whether their physicians realize it or not. If this is so, and if physicians ign…

Just not listening - or narrative incompetence?

"He had hit a hole-in-one, but was on his own. If only someone had witnessed it! Patients’ narrativea are rather like that hole-in-one. Our stories need to be witnessed to give them meaning."

myheartsisters.org/2013/03/22/n...

01.08.2025 01:13 β€” πŸ‘ 6    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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🌟The #SCCT25 best abstract πŸ₯‡goes to Dr. Joel Lennell with the #WARRIOR serial imaging study of πŸ‘­ with suspected INOCA

✨️ OMT (ASA + statin + ACEi/ARB) results in ⬆️ lowering of non-calcified plaque volume on 2yr #yesCCT

@scct-heart.bsky.social
@drmarthagulati.bsky.social
@prodriguezmd.bsky.social

19.07.2025 19:21 β€” πŸ‘ 6    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0
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London Institute To Host INOCA 2025 - Australia News Beep INOCA represents a critical and emerging frontier in cardiovascular medicine, revealing the complexity of myocardial ischaemia beyond traditional models

London Institute To Host INOCA 2025

https://www.newsbeep.com/au/42820/

INOCA represents a critical and emerging frontier in cardiovascular medicine, revealing the complexity of myocardial ischaemia beyond traditional…

04.08.2025 13:00 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Coronary Arterial Function and Disease in Women With No Obstructive Coronary Arteries | Circulation Research Ischemic heart disease (IHD) is the leading cause of mortality in women. While traditional cardiovascular risk factors play an important role in the development of IHD in women, women may experience s...

🧡1\ The discovery of INOCA (Ischemia with No Obstructive Coronary Arteries) came from studying women with persistent chest pain. This led to the recognition of coronary microvascular dysfunction (CMD)β€”now known to affect people of all sexes. www.ahajournals.org/doi/full/10....

04.08.2025 16:00 β€” πŸ‘ 4    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0
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Less Plaque With Intensive Medical Therapy vs Usual Care in INOCA: WARRIOR The serial imaging substudy shows that intensive therapy might change plaque morphology positively, researchers say.

Intensive medical therapy usual care for reducing noncalcified coronary plaque in women who have INOCA, according to results of a serial imaging subanalysis of the WARRIOR trial. #SCCT2025 #CardioSky @damini-d.bsky.social

www.tctmd.com/news/less-pl...

29.07.2025 13:52 β€” πŸ‘ 5    πŸ” 4    πŸ’¬ 0    πŸ“Œ 0
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Refractory angina: mechanisms and stratified treatment in obstructive and non-obstructive chronic myocardial ischaemic syndromes Abstract. The diagnosis of refractory angina has conventionally been limited to patients with angina and ischaemia secondary to obstructive atherosclerotic

academic.oup.com/eurheartj/ad...

03.07.2025 08:56 β€” πŸ‘ 3    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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The next BCS webinar takes place on Monday!

Book your free place to attend 'Hot Topics in IHD Management' and hear from our expert panel during the 90 minute session. To finish, you'll be able to ask your questions in real-time during the Q&A section.

Book your place > tinyurl.com/IHDWebinar

20.06.2025 13:08 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Strategies to enhance recruitment of female participants to cardiovascular research: a joint British Cardiovascular Societies’ consensus document in collaboration with the British Heart Foundation Cli... Despite significant progress in cardiovascular pharmacotherapy and interventional strategies, cardiovascular disease (CVD) remains the leading cause of morbidity and mortality among females in the UK ...

heart.bmj.com/content/earl...

#cardiosky

03.06.2025 14:18 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0

☹️

29.05.2025 18:08 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Sadly, Carolyn I have to agree.
Here in the UK we have Maggie's Centres to support cancer patients.

I would love to see the same support for heart patients.

My heart goes out to you.

25.05.2025 21:40 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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Nine lessons about women’s heart disease that future doctors will learn in med school These nine @CWHHA teaching modules offer a one-stop Master Class package to any academic tasked with teaching future doctors and nurses about women and heart disease.

"Physicians now in practice have likely received little if any specific med school training in women’s health aside from reproductive health issues. As Emergency physician Dr. Alyson McGregor reminds her colleagues:
β€œWomen are NOT just men with boobs & tubes.”

myheartsisters.org/2023/09/10/n...

17.05.2025 14:35 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0

Thank you to everyone who passed on the details of our survey.

CONGRATULATIONS to all who took Survey 1! You are, in part, going to the ESC (European Society of Cardiology) Congress with Sarena La on August 29th in Madrid.
surveys.adelaide.edu.au/redcap/surve...

13.05.2025 14:40 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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When I was 8 1/2 months pregnant, I was diagnosed with preeclampsia. I didn't know then that pregnancy complications like this are a strong link to increased future heart disease risk. This study suggests that a simple blood test might identify over 90% of preterm high risk women ...

01.05.2025 03:24 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Must women bring an advocate along so doctors will believe us? Three books, three authors, one big question: What is it about female heart patients that makes so many male doctors treat them differently than male patients?

3 books, 3 bold messages about the problem with male-centric medicine:
1. Sex Matters: How Male-Centric Medicine Endangers Women’s Health
2. The Exquisite Machine: the New Science of the Heart
3. Doing Harm
(Ladies, take your blood pressure meds before reading) πŸ’•
myheartsisters.org/2022/09/25/c...

27.04.2025 02:28 β€” πŸ‘ 8    πŸ” 3    πŸ’¬ 1    πŸ“Œ 0
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Making the unbearable bearable

β€˜the smallest acts of kindness made the unbearable bearable.’

Ken Schwartz

pmc.ncbi.nlm.nih.gov/articles/PMC....

27.04.2025 19:56 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

The alluring claim of the wellness industry is that doctors only understand treating disease, whereas wellness focuses on prevention

And yet they are obsessed with attacking two therapies that have prevented more deaths than any other medical interventions in history – statins and vaccines

26.04.2025 11:16 β€” πŸ‘ 293    πŸ” 52    πŸ’¬ 13    πŸ“Œ 6
Interview on Sex Differences in Microvascular Disease Parameters with Dr. Michel Corban
YouTube video by International Heart Spasms Alliance Interview on Sex Differences in Microvascular Disease Parameters with Dr. Michel Corban

Sex Differences in Microvascular Disease Parameters with Dr. Michel Corban.

youtu.be/UM8ZobLBA30?...

Part 2: patient perspectives from two men experiencing Coronary Vasospasm. It's not just women who live with #ANOCA

Direct link:
www.youtube.com/watch?v=EV44...

26.04.2025 13:31 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 0    πŸ“Œ 1

My African colleagues taught me how to carry my baby on my back too.

Here in the UK baby slings are used alot.

12.04.2025 20:33 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Congratulations on the birth of your baby!

People would leave the pram etc with a neighbour or relative, alternatively on order to be delivered after the baby was born.

I only had a sling, Moses basket, baby clothes, bedding and nappies in the house, before my eldest was born 30 years ago.

12.04.2025 20:21 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Back in the day, when I had just qualified as a Midwife in the mid 80's, it was considered bad luck to bring a cot or pram into the house before the baby was born.

It was considered to be tempting fate.

I don't get baby showers for the same reason.

11.04.2025 22:46 β€” πŸ‘ 4    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Pain is what patients tell you it is. Period.

07.04.2025 14:25 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

Many words used by healthcare professionals can be judgmental, somehow blaming patients for their illness or pain.

My personal dislike as someone who lives with vasospastic angina.

'abnormal pain perception'

'low pain threshold'

My pain belongs to me.

06.04.2025 23:03 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 1
Promotional card for the Lancet Commission on rethinking coronary artery disease: moving from ischaemia to atheroma. Background image depicts a blood clot.

Promotional card for the Lancet Commission on rethinking coronary artery disease: moving from ischaemia to atheroma. Background image depicts a blood clot.

πŸ†• Coronary artery disease (CAD) remains a leading cause of global morbidity & mortality.

A Lancet Commission redefines CAD, emphasising early detection, risk factor management, & a comprehensive approach to prevention throughout the life course: tinyurl.com/5axhtr85 #ACC25 #MedSky

01.04.2025 08:09 β€” πŸ‘ 37    πŸ” 20    πŸ’¬ 0    πŸ“Œ 1

Dr. Eileen Handberg: Women with non-obstructive disease are highly symptom burdened, use significant system resources, and need to be treated. We must drop bias, recognize their pain, and ensure proper follow-up care. There’s real room for improvement. πŸ’™ #ACC25

29.03.2025 15:02 β€” πŸ‘ 3    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0

Intensive medical therapy did not significantly impact the rate of serious CV events at five years in women w/ suspected INOCA, according to findings from WARRIOR presented during a #LBCT session at #ACC25.

Learn more: bit.ly/44a7uYO #MedSky #CardioSky

29.03.2025 16:04 β€” πŸ‘ 7    πŸ” 8    πŸ’¬ 0    πŸ“Œ 0
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Invasive coronary function testing determination of #INOCA endotypes impacts medical management in patients with angina and no obstructive CAD #ACC25 @smidtheart.bsky.social @womensheart.bsky.social @drmarthagulati.bsky.social

31.03.2025 17:37 β€” πŸ‘ 16    πŸ” 8    πŸ’¬ 0    πŸ“Œ 0
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Is menopause a disease? No! It's part of aging and occurs in 1/2 the pop.
Vasomotor symptoms are real
βœ…assess #cvd risk across the lifespan
βœ…Need outcome studies of HRT and GLP1RA by risk
βœ…ask♀️about all risk factors including pregnancy and cardiometabolic risks
@accintouch.bsky.social #acc25

30.03.2025 17:28 β€” πŸ‘ 9    πŸ” 5    πŸ’¬ 0    πŸ“Œ 0
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Check out @drmarthagulati.bsky.social’s insights on the WARRIOR Trial

#ESCTVOnTheRoad #ACC245

29.03.2025 16:30 β€” πŸ‘ 9    πŸ” 7    πŸ’¬ 1    πŸ“Œ 1
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WARRIOR: Intensive Medical Therapy vs. Usual Care in Women With Suspected INOCA - American College of Cardiology

WARRIOR trial results 'neutral'

"Intensive medical therapy did not significantly impact the rate of serious cardiovascular events at five years in women with suspected ischemia with nonobstructive coronary arteries (INOCA)"

www.acc.org/Latest-in-Ca...

30.03.2025 10:06 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

@sarahfbrown is following 19 prominent accounts