Hardcover copies of SPLINTER & ASH: CITY OF SECRETS on top of paperback copies of SPLINTER & ASH. An illustrated cover, with wonderful art by Vivienne To, shows the two main characters.
Dusting off my account to share that SPLINTER & ASH 2: CITY OF SECRETS is out now!
This series is my love letter to the fantasy adventures that I grew up on, but with a disabled princess and a nonbinary squire taking the lead in the fight to make their wartorn kingdom kinder and fairer. π
07.10.2025 17:25 β π 20 π 10 π¬ 2 π 0
Everyone, @maedayj.bsky.social is DAYS from eviction. We cannot let this happen, especially with everything going on right now. Please share widely and/or chip in if you can!!!
07.10.2025 11:03 β π 6 π 4 π¬ 1 π 0
Medical expenses keep eating away at what we've collected for the move.
Need to pick the pace back up on fundraising to catch up. Been struggling with my focus lately.
Anything you can contribute helps! Thank you!!
πβοΈππΈπ³ββ§βΏπ
05.10.2025 13:23 β π 49 π 57 π¬ 0 π 1
unfortunately, nothing has come in lately. if possible, I'm going to be posting about this more. this need is very important.
if you can spare anything, it would really be life-changing for me.
05.10.2025 12:14 β π 17 π 17 π¬ 3 π 2
Donate to Midwest/West Catastrophic Illness Fund in honor of Karrie Higgins
Help Karrie Higgins's friends and family raise money for medical expenses associated with Ehlers-Danlos syndrome Catastrophic Illness. Donate today.
I am $500 from a milestone on the Help Hope Live that would help with paying for the biopsy, the consult at the U, meds, RX sunscreen & EEG! This fundraiser is scam proof because I can't even access the $ w/out a receipt & it's tax deductible!
helphopelive.org/campaign/159...
05.10.2025 13:47 β π 11 π 17 π¬ 1 π 2
Check out my list on Amazon
u might be like wow Alex that's a lot of little treats they look very pricy and you may be correct but it's my birthday month which was meant for treats
u too are cordially invited I think I've sorted out my list π www.amazon.com/hz/wishlist/...
05.10.2025 01:51 β π 0 π 3 π¬ 0 π 0
Bex was given a warning and might get EVICTED and become HOMELESS while battling cancer and trying to undergo radiation therapy
Please please please donate if you can and share!! Bex depends on us to stay housed and alive ππ please donβt turn away
04.10.2025 18:49 β π 15 π 22 π¬ 0 π 0
Me, posing to the left of a large scale golden elephant mural against a black painted wall in a bedroom. Three elephants march towards you, with a tiny baby elephant slightly concealed in the tall fern fronds that line the base.
new pinned post to wrap up the year β¨
I am now booking for Oct-Nov, check out my thread below for details on commissions and design projects. Space is limited and I would love to work with you!
17.09.2025 18:10 β π 20 π 9 π¬ 3 π 2
YouTube video by Kidzuko
No Cats In The Library π±π | Reading Rainbow π π | Full Episode | @Kidzukoβ
Reading Rainbowβ¦ is back! π₯Ή
This LeVar Burton/Reading Rainbow raised human is feeling all of the library joy. We hope your kids believe they belong in books, just like you β¨
Take a look, itβs in a book πππ¦π
youtu.be/gHAIjSkmnYI?...
04.10.2025 15:20 β π 2710 π 968 π¬ 45 π 76
Spoon Saving Social Media Tips and How to Resist Online
The current political landscape is having a devastating impact on the health of those within the disability community. A look at how we can save spoons and leverage our unique powers to resist.
Itβs been a heck of a week.
The βflooding the zoneβ strategy is damaging to nervous systems. Itβs ok if youβre exhausted, you have a right to be.
Many of us with chronic illness use social media as our main connection with the world.
We use it to combat the isolation.
But it can come at a cost:
04.10.2025 02:17 β π 113 π 28 π¬ 2 π 1
I haven't made any progress yet. I know all it takes is being seen by one person who wants to help, so I'm not giving up.
I am going to be resting in advance of a home blood draw scheduled by a medical mutual aid group for the tenth. I will be less active.
CA/Ven: kookysnell
ko-fi.com/moriende
02.10.2025 11:45 β π 13 π 16 π¬ 1 π 2
Hey, #MedSky & #SciSky! New text from Elsevier out today, "The Scientific Basis of Fatigue", with multiple chapters on different diseases, including #MECFS, COVID, Parkinson's, stroke and MS.
Proud to be the co-author of the #MECFS chapter with authors from Mayo and Bateman-Horne! More info:π§ͺ
01.10.2025 17:16 β π 135 π 48 π¬ 8 π 3
Gov Shutdown: What This Means For Healthcare | Patreon
Patreon is empowering a new generation of creators. Support and engage with artists and creators as they live out their passions!
www.patreon.com/mattbc/event...
Tonight at at 8PM eastern β answering your questions about what the government shutdown has to do with healthcare, and what it means for our access to medical care
01.10.2025 22:35 β π 23 π 10 π¬ 1 π 0
I feel this way too. We need connection but have a limited capacity & need to connect in ways others donβt understand or respect. So they leave us. Cycle continues. itβs a terrible place to beβ¦. Iβm so sorry.
01.10.2025 21:28 β π 1 π 0 π¬ 1 π 0
Bex needs $4,100 as soon as possible for rent, life saving radiation treatment that is WORKING on their cancer but paused until payment, and food.
Can we do this for them? Share and donate a bit if you can ππ« everything adds up!
ko-fi.com/rebekamash
www.paypal.com/paypalme/the...
01.10.2025 12:31 β π 20 π 25 π¬ 0 π 0
Your worth is not defined by your size, your job or your health status.
Itβs not defined by what youβre able to contribute to capitalism.
Youβre worthy just as you are.
You have value, you are loved and you shouldnβt ever let anyone tell you otherwise. /end
01.10.2025 03:38 β π 54 π 13 π¬ 1 π 0
The disability community needs your solidarity to fight the tariff threat to prescription drugs.
Trump claims he will reduce drug prices by 1000%... which is mathematically impossible.
He's putting a 100% tariff on drugs made outside the US. That IS mathematically possible & it will devastate us.
30.09.2025 22:29 β π 97 π 30 π¬ 1 π 0
πΆ Take a look, it's in a book πΆ
π₯Ή After nearly 20 years... Reading Rainbow is returning to motivate, help, and encourage kids to become avid readers with new episodes, new friends, new projects, and of course... new books! Make sure to follow the rainbow ππ
#FollowTheRainbow
29.09.2025 15:06 β π 5025 π 1994 π¬ 237 π 608
Through the Lens of Disability: A Journey and Guide To Owning a Century Home
Homeownership is a challenge. A thing many people wouldn't even dream of accessing. Something I didn't dream of. Until I accidentally learned it was possible.Living on SSDI, limited in my capacity by ...
hi you may be new and maybe you too dream of escaping where you are but don't know where to start
I wrote a free disability centered guide to century home ownership which you can pick up for free here (it's pay what you can)
maybe, this resource can help you venaalex.gumroad.com/l/qwrrvr
27.09.2025 17:29 β π 3 π 4 π¬ 2 π 1
Utah friends!
Join me Tuesday 9/30 at University of Utah's Marriott Library. I'll talk about book banning, being a preacher's kid whose books are banned & "The Power of Story to Unite US."
There will be time for schmoozing afterward. I'm happy to sign any books that you bring from home! πβ₯οΈπΊπΈ
29.09.2025 01:03 β π 39 π 17 π¬ 0 π 1
Donate to Midwest/West Catastrophic Illness Fund in honor of Karrie Higgins
Help Karrie Higgins's friends and family raise money for medical expenses associated with Ehlers-Danlos syndrome Catastrophic Illness. Donate today.
Getting more of my care transferred back to the U (my Lynch Syndrome specialist is at Holden Cancer Center) after that biopsy result + gotta pay off the biopsy!
Donations = tax deductible. I can't even TOUCH the funds w/out a medical receipt! HHl = 501c3.
helphopelive.org/campaign/159...
29.09.2025 11:07 β π 9 π 12 π¬ 1 π 0
If youβre struggling with Long Covid, MCAS, POTS or other energy limiting chronic illnessβ¦ Iβve put together a series of guides to try and help.
These conditions are poorly understood and more often than not we end up learning from our fellow patients.
Mega π§΅ of resources
26.09.2025 03:21 β π 486 π 231 π¬ 11 π 7
If I could get non-autistic people to understand one thing, it wouldn't be that I have support needs. It would be that YOU have support needs.
25.09.2025 15:54 β π 604 π 204 π¬ 17 π 16
Disability accommodation represents a failure to plan and build accessible infrastructure βwork structures, public spaces, events.
We force people thru appts, paperwork, mtgs w their boss and HRβ¦bc of structural failures. The work of being included too often falls to individual disabled people.
25.09.2025 17:01 β π 245 π 85 π¬ 1 π 16
CTA: Telehealth, Yes, Again
by Matthew Cortland
09/24/2025
Shouldn't Need To Be A Lawyer Patreon.com/mattbc
There's a Medicare telehealth cliff at the end of this month that will impact other health insurance plans beyond just Medicare.
This post β€΅οΈ will walk you through how to effectively advocate for telehealth in ways that actually influence the outcome...
www.patreon.com/posts/139596...
24.09.2025 23:36 β π 93 π 57 π¬ 1 π 4
So if you want this to move, the ask has to be "include telehealth in any CR deal"
23.09.2025 23:51 β π 52 π 31 π¬ 0 π 0
β€οΈyour resilience is admirableβ€οΈ
π§‘your beauty is breathtakingπ§‘
πyou shine brighter than the sunπ
πyou are worthy of being cared forπ
π©΅you are enough to be loved rightπ©΅
πyou are so important to someoneπ
πyour feelings are always validπ
π©·you deserve the whole wide worldπ©·
23.09.2025 03:59 β π 245 π 76 π¬ 0 π 2
Great job from Violet Affleck!
23.09.2025 22:07 β π 112 π 18 π¬ 1 π 0
hey folks have a few dollars you can spare for my good friend Karrie?
22.09.2025 23:45 β π 0 π 2 π¬ 0 π 0
Donate to Midwest/West Catastrophic Illness Fund in honor of Karrie Higgins
Help Karrie Higgins's friends and family raise money for medical expenses associated with Ehlers-Danlos syndrome Catastrophic Illness. Donate today.
I still have my Help Hope Live. Donations=tax deductible $ can ONLY be used for medical expenses! The campaign so we could recover from disaster enough to flee to safety: gone.
I'm a victim of a serial predator & need therapy+meds.
helphopelive.org/campaign/159...
21.09.2025 11:27 β π 7 π 6 π¬ 0 π 0
#PhilTech #STS #DisabilityStudies #Cyborg #Bioethics #DisCoTec. Disabled person. Philosopher of technology. Strong opinions and typos my urn. Reskeets are not endorsements.
Poet, potter and eclectic artist.
I used to stream full time but now I'm full time sick.
This account will prob be about biomed researchβcomplex chronic illnesses and Covidβw/some material on disability justice and organizing.
ME β05, LC β23, many of their friends along the way. Very severe (FUNCAP 0.9). No unsolicited advice please!
Disabled advocate - #Interiordesigner - #Anthropology student - Multi local - #SWYer - #Fibro + #MECFS - 1 of the #MillionsMissing + #Disabledguerrera
https://linktr.ee/jailedtiger
Hard of Hearing, Doctor of Audiology, Hearing Aid User π€π¦», Mobility Aid User, Wheelchair User π¦½
π¨TRYING TO ESCAPE ABUSE-HELP!π¨
Human biology experiment running on limited energyπ₯
Collecting diagnoses like PokΓ©mon
#SevereME #LongCovid #MCAS #POTS #EDS #ChronicPain & more
π
ββοΈNo hookup or spam DMs
Beem: halcionandon
BMaC: buymeacoffee.com/halcionandon
PhD candidate researching ME/CFS at La Trobe University
πMelbourne, Australia
Writer and poet | Editor of The Yale Review | Professor of Creative Writing at Yale | playing with a Substack about writing
Most recent book: THE INVISIBLE KINGDOM: REIMAGINING CHRONIC ILLNESS, which was a finalist for the nonfiction National Book Award.
Oatmeal socialist, pocketed dress enthusiast, chaos goblin, insufferable dog mom, spoonie tattooed librarian. She/Her
https://www.feistywaters.com/
Hannah β’ Long COVID β’ POTS β’ Hashis β’ Epilepsy β’ ME/CFS β’ Mental Health Awareness β’ π΅πΈ π³οΈβπ Author of Equanimity and Grace on Amazon!
We are home to the PBS News Hour, PBS News Weekend and @washingtonweekpbs.bsky.social.
Subscribe to our newsletter: https://to.pbs.org/47dcMEJ
Support our work: https://bit.ly/3IXO4xW
More: linktr.ee/pbsnews
Disability & healthcare activist/ policy nerd/ researcher on indefinite pause
Chronically ill (EDS &co, ME/LC) & HoH
Chicago
She/her
PBS Utah tells stories for all Utahns that are informative, thorough, and compassionate; aiming to deliver trusted, quality programming that inspires!
βWeβre driving in the dark with our sunglasses on!β
Retired lecturer/therapist -CCCS Birmingham, feminism, politics, culture, science, music, languages
Woke AF
#ME (1987) Maker of #FanningTheFlames for two years
β€οΈ National Domestic Workers Alliance, Caring Across Generations, Care in Action, Supermajority. Opinions entirely my own. #CareCantWait
Welcome to the Disability Rebellion - a feisty fightback against ableism and cruel government cuts! β’ DM for Discord invite β’ DR links: linktr.ee/disabilityrebellion
Author (The Ember of Elyssia Quartet, Fortune's Calling Trilogy, THE BRIDAL PARTY, THE PRINCE WITH SIX FACES). Dice roller. Disabled in the library. All opinions mine. All around nerd.
https://linktr.ee/annaholmeswritesbooks
(She/they) βΏοΈπ³οΈβπ
Melinda is an author and historian currently working on her first manuscript (slowlyβ¦like a sloth that has also been tranquilized.) and knows too much history to allow Hate to win. #MS Warrior Woman, dx 2014. π«DMs, No Posts = No follow. π« Dating, π« Porn.
Family-led group advocating for our kids with complex medical needs and disabilities. Little Lobbyists Action Network is a 501(c)(4) org.