📢 Today @karenlhargrave.bsky.social and @binitakane.bsky.social will be representing #ThereForME on the Task & Finish group for the new delivery plan for ME.

Today's #ThereForME blog outlines six things they'll be looking out for as the delivery plan is finalised.

www.thereforme.uk/p/a-delivery...

14.01.2025 09:08 — 👍 51    🔁 25    💬 7    📌 3

Trial By Error: Yet Again BMJ Recommends CBT and Exercise for Long Covid | Virology Blog By David Tuller, DrPH What is going on at The BMJ? In May, the journal corrected an obvious error in a paper about a prominent Long Covid mental and physica ...

The BMJ @bmj.com has published a review of Long Covid interventions that of course recommends CBT and a mental/physical health rehab program. But the studies underlying the recommendations are at "high risk of bias." This is really propaganda.
virology.ws/2024/12/03/t...

03.12.2024 20:31 — 👍 115    🔁 50    💬 7    📌 1

Please share widely! This was the best an inquest could do. It took 4 years and the death of my only child to get here.
NHS England must keep to this promise; the simplest change to a long established narrative that killed Maeve and threatens every other person with #ME.
🙏 @gwynnemp.bsky.social

06.12.2024 08:20 — 👍 79    🔁 50    💬 2    📌 1

NHS to review ME services after death of Maeve Boothby O’Neill Health minister and Nice commit to work to improve patient outcomes after landmark inquest

"NHS to review ME services after death of Maeve Boothby O’Neill: Health minister and Nice commit to work to improve patient outcomes after landmark inquest" (The Times):

www.thetimes.com/uk/healthcar...

06.12.2024 07:47 — 👍 56    🔁 23    💬 3    📌 1

📣 If you’re in the UK and have not done so already, please email your MP today asking them to get involved with the #LongCovid APPG (All-Party Parliamentary Group)!!

Suggested content for your email can be found here:

www.longcovid.org/impact/news/...

05.12.2024 08:56 — 👍 28    🔁 12    💬 3    📌 1

2/
bsky.app/profile/tomk...

03.12.2024 14:01 — 👍 4    🔁 1    💬 0    📌 0

Done. Written to Valerie Vaz MP

03.12.2024 14:01 — 👍 0    🔁 0    💬 0    📌 0

A pretend polaroid shows Dr William Weir posing for a photo holding a #ThereForME Christmas card. The design shows two presents, one labelled "patient safety", the other "research". The photo is labelled "1".

This second image displays Dr Weir's handwritten message. It reads “Best wishes for Christmas to everyone with ME or Long Covid. You all deserve excellent and appropriate treatment, with a full understanding of its causes. William Weir”

Dec 1: It's Dr William Weir, who has worked with and supported patients with ME for decades.

His message: “Best wishes for Christmas to everyone with ME or Long Covid. You all deserve excellent and appropriate treatment, with a full understanding of its causes. William Weir”

01.12.2024 09:00 — 👍 173    🔁 57    💬 8    📌 8

News in Brief - November 2024 This thread has a Science for ME 'News in Brief' post for each week in November 2024 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman....

Find #MECFS, #LongCovid, and related news, advocacy and research in our latest News in Brief forum post for w/c 18th Nov.

Topics covered:
News, articles and advocacy
In Memory
Trial by Error by David Tuller
Research news
& Published research

www.s4me.info/threads/news...

24.11.2024 09:58 — 👍 23    🔁 12    💬 0    📌 0

Why are they suggesting exercise to "prevent" Long Covid? And CBT as a treatment? Based on "evidence" that doesn't pass the smell test, it seems.

23.11.2024 19:52 — 👍 40    🔁 14    💬 4    📌 0

Trial By Error: Interview with Karen Hargrave, Co-Founder of #ThereForME | Virology Blog By David Tuller, DrPH Karen Hargrave is co-founder of an advocacy campaign called #ThereForME, which was launched this past summer to draw public awareness ...

I spoke earlier today with @karenlhargrave.bsky.social about the #ThereForME campaign to bring awareness to lack of care and treatment for patients with ME and Long Covid.

virology.ws/2024/11/21/t...

22.11.2024 03:29 — 👍 29    🔁 9    💬 0    📌 0

youtu.be/RiwX9Y0NbiQ

23.11.2024 13:56 — 👍 0    🔁 0    💬 0    📌 0