Science for ME online forum

Our latest News in Brief post has headlines and links to further reading for #MECFS and #LongCovid news, advocacy and research for the week of Sep 29-Oct 5.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

Description from the Science for ME @scienceforme.bsky.social weekly update:

0A clear article explaining how a genome wide association study gives pointers to what may be causing ME/CFS, takes a closer look at some of the DecodeME findings and describes next steps.”
#MEcfs #PwME #CFS

Our latest News in Brief post has headlines and links to further reading for #MECFS and #LongCovid news, advocacy and research for the week of Sep 22-28.

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News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

Our latest News in Brief post has headlines and links to further reading for #MECFS and #LongCovid news, advocacy and research for the week of Sep 15 - 21.

Topics:
News, advocacy and articles
Coming events
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& Published research

www.s4me.info/threads/news...

Sorry, I don't have any information on this topic. I'd suggest searching the Science for ME forum to see if any of the forum members have posted about this.
cc: @paulaknight.bsky.social

Our latest News in Brief post has headlines and links to further reading for #MECFS and #LongCovid news, advocacy and research for the week of Sep 8-14.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

Our latest News in Brief post has headlines and links to further reading for #MECFS and #LongCovid news, advocacy and research for the week of Sep 1 - 7.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

The ME Association awards Decode ME the Howes Goudsmit Award 2025 - The ME Association The ME Association are pleased to announce that we have […]

The ME Association are pleased to announce that we have awarded Decode ME the Howes-Goudsmit Award 2025 for their extensive work and commitment to their genome-wide association study.

Find out more: https://meassociation.org.uk/ir3e

#MECFS #pwME #SevereME #MyalgicE #DecodeME #HowesGoudsmitAward

DecodeME graphic. In the centre it says 'Thank you' in white cursive writing and beneath it 'from DecodeME'.

As we move into the next phase of our study, we would like to say a huge thank you. Going forwards, we will no longer be able to respond to emails & check social media.

Stay up to date through our email list - sign up at the bottom of our new homepage: shorturl.at/46QSk

Our latest News in Brief post has headlines and links to further reading for #MECFS and #LongCovid news, advocacy and research for the week of Aug. 25 - 31.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

Our latest News in Brief post has headlines and links to further reading for #MECFS and #LongCovid news, advocacy and research for the week of Aug. 18 - 24.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

Our latest News in Brief post has headlines and links to further reading for #MECFS and #LongCovid news, advocacy and research for the week of Aug. 11 - 17.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

Our latest News in Brief post has headlines & links to further reading for #MECFS & #LongCovid news, advocacy, and research for the week of Aug 4 - 10.

Don't miss the news about the #DecodeME initial DNA results!

There's also news about #SevereME Day, Aug 8.

www.s4me.info/threads/news...

For anyone scientifically-minded, an in-depth discussion on @scienceforme.bsky.social of the new #DecodeME paper, including discussion of how it does/doesn’t fit into other evidence from the field:

www.s4me.info/threads/init...

#MEcfs #PwME

Logo: Science for ME: Where science and ME/CFS community meet Post-exertional malaise (PEM) Key points  People with ME/CFS have episodes when they are much more ill than usual following physical or mental exertion. This is called post-exertional malaise, or PEM.  PEM is a hallmark of ME/CFS and is important for diagnosis  Activities like a short walk or reading a few pages may trigger PEM. For the most severely ill, even chewing may trigger it. For many, light, sound and other sensory stimuli also trigger PEM. Often it is the combined effect of all activities and stimuli over a day or more that triggers PEM.  PEM usually starts hours or a day or two after it is triggered and can last for hours, days, weeks or longer. During this time, a person cannot do as much as usual and needs to rest.  There is no effective treatment for PEM.  PEM is not the same as the fatigue and muscle soreness anyone can experience after more activity than usual.

5-page @scienceforme.bsky.social post-exertional malaise ( #PEM ) fact sheet
www.s4me.info/docs/PEM_Fac...

Headings:
-Characteristics of PEM
-Symptoms of PEM
-Exertion and other PEM triggers
-Effects of exertion that are not PEM
-Living with PEM
-Examples of PEM
-Research on PEM

#MEcfs #CFS #PwME

A 5 pages fact sheet on #PEM, the cardinal and core symptom complex of #ME/CFS www.s4me.info/docs/PEM_Fac...
By @scienceforme.bsky.social

Our latest News in Brief post has headlines & links to further reading for #MECFS, #LongCovid, and related news, advocacy and research for the week of July 28 - Aug 3.

Topics:
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Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

Thanks to @valebodi.bsky.social for tagging us.

Science for ME is an international, moderated forum for discussion of #MEcfs, #LongCovid & related illnesses. It also has subforums for support, chit-chat, etc.

Home page: www.s4me.info

Welcome page: www.s4me.info/threads/welc...

Hope this helps!

Our latest News in Brief post has headlines & links to further reading for #MECFS, #LongCovid, and related news, advocacy and research for the week of July 7 - 13.

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Research news and commentary
& Published research

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Our latest News in Brief post has headlines & links to further reading for #MECFS, #LongCovid, and related news, advocacy and research for the week of June 30 - July 6

Topics:
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& Published research

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‪Our latest News in Brief post has headlines and links to further reading for #MECFS, #LongCovid, and related news, advocacy and research for the week of June 16 - 22.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

Logo: Science for ME: Where science and ME/CFS community meet What is ME/CFS? Key points  ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) is an illness that has a substantial, often severe impact on people's lives and is usually long-term.  It affects about 1 in 250 people, including children.  Symptoms include feeling ill and exhausted, difficulty staying standing or sitting up, pain, and problems thinking or concentrating.  Physical or mental activity can be followed hours or days later by a long-lasting worsening of the illness. This is known as post-exertional malaise.  ME/CFS makes it difficult or impossible to keep a job, attend school, or have a social life. Some people with the illness are housebound or bedbound.  There is no known cause or effective treatment. Some people with ME/CFS improve over time, but others worsen. Full recovery is uncommon except in teens and children and in the early stages of the illness.

"What is ME/CFS?": 4-page factsheet created by members of the Science for ME Forum @scienceforme.bsky.social (February 2025)

s4me.info/docs/WhatIsM...

Takes a conservative approach e.g. with regard to prevalence.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome

Note: Due to a software upgrade the forum has a slightly different look.

Our latest News in Brief post has headlines and links to further reading for #MECFS, #LongCovid, and related news, advocacy and research for the week of June 9 - 15.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

Our latest News in Brief post has headlines and links to further reading for #MECFS, #LongCovid, and related news, advocacy and research for the week of June 2 - 8.

Topics:
News, advocacy and articles
Coming events
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& Published research

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Notice: Due to a planned software upgrade the Science for ME forum website will be unavailable for about a day over the weekend of June 7th - 8th.

#MEcfs #LongCovid

News in Brief - May 2025 This thread has a Science for ME 'News in Brief' post for each week in May 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman....

Our latest News in Brief post has headlines and links to further reading for #MECFS, #LongCovid, and related news, advocacy and research for the week of May 26 - June 1

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

News in Brief - May 2025 This thread has a Science for ME 'News in Brief' post for each week in May 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman....

Our latest News in Brief post has headlines and links to further reading for #MECFS, #LongCovid, and related news, advocacy and research for the week of May 19 - 25.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

News in Brief - May 2025 This thread has a Science for ME 'News in Brief' post for each week in May 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman....

Our latest News in Brief post has headlines and links to further reading for #MECFS, #LongCovid, and related news, advocacy and research for the week of May 12 - 18.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...

Science for ME Fact Sheets The Science for ME committee and members are running a project to develop fact sheets about aspects of ME/CFS. These are being developed in...

The Science for ME forum has published a fact sheet on PEM, post-exertional malaise.

This fact sheet may be copied and used freely by individuals and organizations.

Forum version:

www.s4me.info/threads/scie...

PDF version:

www.s4me.info/docs/PEM_Fac...

#MEcfs #PwME