#MEcfs #SevereME
08.08.2025 20:33 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0@macanders.bsky.social
Mild-mannered author of several novels | ME #pwme | https://henryandersonbooks.com
#MEcfs #SevereME
08.08.2025 20:33 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0The First Detective.
Edgar Allan Poe's Troubling First Detective Story.
open.substack.com/pub/macander...
Transfiguration, 6th century, Sant'Apollinare in Classe, Ravenna.
According to popular belief, the feast of the Transfiguration (August 6) is the last day to bathe in rivers, because it marks the change of seasons. Nature itself is 'transfigured'.
Indeed: the light of summer ends around August 6.
Ancient stones on a hill stare down on a distant field.
Earlier. Six thousand years old, the Coldrum Stones in Kent. In his โAntiquities of Cornwallโ book published in 1754, William Borlas stated that the name โColdrumโ came from the Cornish word โGaldrumโ meaning โa place of enchantment.โ
30.07.2025 15:22 โ ๐ 3 ๐ 0 ๐ฌ 0 ๐ 0Trump sent officials to see Ghislaine Maxwell quicker than he sent FEMA to Texas
25.07.2025 20:44 โ ๐ 12093 ๐ 3583 ๐ฌ 281 ๐ 125Hereโs my #TransPride
26.07.2025 18:02 โ ๐ 6 ๐ 3 ๐ฌ 0 ๐ 0Two feet in the surf on the shoreline
22.07.2025 20:34 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0"All my big mistakes are when I try to second-guess or please an audience. My work is always stronger when I get very selfish about it."
-David Bowie
Wrongly
19.07.2025 17:16 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0One of the most unsettling things about having a bad prognosis for cancer was when medical staff stopped smiling or being reassuring. I remember a life-or-death oncology outpatient consultation about a year in where the nurse didn't meet my eye and I thought "I've had it".
19.07.2025 17:11 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0"St Swithin's Day, if it does rain
Full forty days, it will remain
St Swithin's Day, if it be fair
For forty days, t'will rain no more"
No rain near me, but I have seen other accounts where it did.
To have any disease is plenty enough
To have a dissedsease is way too much
To be trapped in invisible physical quick sands
Is no way of living
#ME/CFS #pwME
henryandersonbooks.com/2025/07/09/p...
Reporting Reality
Just now.
13.06.2025 16:12 โ ๐ 5 ๐ 0 ๐ฌ 0 ๐ 0Hopefully this will delay the AI singularity.
www.theguardian.com/technology/2...
A white ceramic mug of coffee overlooking green pasture.
08.06.2025 11:29 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0Thank you! love a moongate
02.06.2025 18:45 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0A circular opening in a garden wall
A local moongate, possibly also an interdimensional portal to those "in the know".
02.06.2025 16:16 โ ๐ 5 ๐ 0 ๐ฌ 1 ๐ 0#TodaysPoem
"We dance round in a ring and suppose,
But the Secret sits in the middle and knows."
- Robert Frost
Odilon Redon. Reflection (ca. 1905).
"We're all just walking each other home." ~ Ram Dass
21.05.2025 21:09 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0Dark clouds surround a blue sky
Every cloud has aโฆ what was itโฆ
16.05.2025 16:51 โ ๐ 3 ๐ 1 ๐ฌ 0 ๐ 01) One of the most interesting ME/CFS studies of 2025 this far, from the research teams of Hanson (Cornell) and Snyder (Stanford). ๐
A neural network on rare genetic variants, found 115 ME/CFS risk genes.
In honor of the new Cape Misfortune book โRise of Krampusโ arriving imminently, here are some secret local legends and rituals found in an abandoned notebook from the 1850s.
henryandersonbooks.com/2025/04/09/s...
โThe End.โ An extremely tall tale coming soon.
31.03.2025 00:32 โ ๐ 3 ๐ 0 ๐ฌ 0 ๐ 0Poets in the 19th century lived larger than they do today.
Below, Shelley describes Byron's days as a guest at Palazzo Guiccioli, in Ravenna, from 1819 to 1821.
(Much the same as at Palazzo Mocenigo, in Venice, from 1816 to 1819, except for the aristocratic gamblers, harlots and catamites.)
Thereโs a mouse under my bed who is loudly rifling through old abandoned printed out stuff.
30.03.2025 01:00 โ ๐ 2 ๐ 0 ๐ฌ 1 ๐ 0R E S E A R C H A R T I C L E Open Access Rethinking the treatment of chronic fatigue syndromeโa reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT Carolyn E. Wilshire 1* , Tom Kindlon2 , Robert Courtney3 , Alem Matthees 4 , David Tuller 5 , Keith Geraghty 6 and Bruce Levin 7 Abstract Background: The PACE trial was a well-powered randomised trial designed to examine the efficacy of graded exercise therapy (GET) and cognitive behavioural therapy (CBT) for chronic fatigue syndrome. Reports concluded that both treatments were moderately effective, each leading to recovery in over a fifth of patients. However, the reported analyses did not consistently follow the procedures set out in the published protocol, and it is unclear whether the conclusions are fully justified by the evidence. Methods: Here, we present results based on the original protocol-specified procedures. Data from a recent Freedom of Information request enabled us to closely approximate these procedures. We also evaluate the conclusions from the trial as a whole. Results: On the original protocol-specified primary outcome measure - overall improvement rates - there was a significant effect of treatment group. However, the groups receiving CBT or GET did not significantly outperform the Control group after correcting for the number of comparisons specified in the trial protocol. Also, rates of recovery were consistently low and not significantly different across treatment groups. Finally, on secondary measures, significant effects were almost entirely confined to self-report measures. These effects did not endure beyond two years. Conclusions: These findings raise serious concerns about the robustness of the claims made about the efficacy of CBT and GET. The modest treatment effects obtained on self-report measures in the PACE trial do not exceed what could be reasonably accounted for by participant reporting biases. Keywords: Chronic fatigue syndrome, Myalgic enceโฆ
It's 7th anniversary of this paper.
A lot of it was only possible due to Alem's heroic FOI victory, which the #PACETrial team fought so hard to stop.That surely wasn't because the real results weren't as flattering as they had presented them?
bmcpsychology.biomedcentral.com/articles/10....
#MECFS
This speculation about benefits is very stressful for the sick and disabled who depend on them. #c4news
17.03.2025 19:26 โ ๐ 28 ๐ 4 ๐ฌ 3 ๐ 0โPowell called Pressburger the โwizardโ, โbecause of the wonderful things he doesโ (โThe Wizard of Ozโ came out in 1939); their relationship was, he said, a โmarriage without sexโ.โ
Alex Harvey on the films of Powell and Pressburger: www.lrb.co.uk/the-paper/v4...