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Henry Anderson

@macanders.bsky.social

Mild-mannered author of several novels | ME #pwme | https://henryandersonbooks.com

182 Followers  |  219 Following  |  67 Posts  |  Joined: 11.10.2023  |  1.6963

Latest posts by macanders.bsky.social on Bluesky

#MEcfs #SevereME

08.08.2025 20:33 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Preview
The First Detective Edgar Allan Poe's Dreamlike, Fantastic Detective Tale.

The First Detective.
Edgar Allan Poe's Troubling First Detective Story.
open.substack.com/pub/macander...

08.08.2025 16:18 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Transfiguration, 6th century, Sant'Apollinare in Classe, Ravenna.

According to popular belief, the feast of the Transfiguration (August 6) is the last day to bathe in rivers, because it marks the change of seasons. Nature itself is 'transfigured'.

Indeed: the light of summer ends around August 6.

06.08.2025 09:12 โ€” ๐Ÿ‘ 8    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Ancient stones on a hill stare down on a distant field.

Ancient stones on a hill stare down on a distant field.

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Earlier. Six thousand years old, the Coldrum Stones in Kent. In his โ€˜Antiquities of Cornwallโ€™ book published in 1754, William Borlas stated that the name โ€˜Coldrumโ€™ came from the Cornish word โ€˜Galdrumโ€™ meaning โ€˜a place of enchantment.โ€™

30.07.2025 15:22 โ€” ๐Ÿ‘ 3    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Trump sent officials to see Ghislaine Maxwell quicker than he sent FEMA to Texas

25.07.2025 20:44 โ€” ๐Ÿ‘ 12093    ๐Ÿ” 3583    ๐Ÿ’ฌ 281    ๐Ÿ“Œ 125
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Hereโ€™s my #TransPride

26.07.2025 18:02 โ€” ๐Ÿ‘ 6    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Sign the Petition Save Savannah Victora-May - Prevent Another ME/CFS Tragedy

chng.it/dhvkZ7tfy8

23.07.2025 10:40 โ€” ๐Ÿ‘ 2    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Two feet in the surf on the shoreline

Two feet in the surf on the shoreline

22.07.2025 20:34 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

"All my big mistakes are when I try to second-guess or please an audience. My work is always stronger when I get very selfish about it."
-David Bowie

21.07.2025 19:40 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Wrongly

19.07.2025 17:16 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

One of the most unsettling things about having a bad prognosis for cancer was when medical staff stopped smiling or being reassuring. I remember a life-or-death oncology outpatient consultation about a year in where the nurse didn't meet my eye and I thought "I've had it".

19.07.2025 17:11 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

"St Swithin's Day, if it does rain
Full forty days, it will remain
St Swithin's Day, if it be fair
For forty days, t'will rain no more"

No rain near me, but I have seen other accounts where it did.

15.07.2025 20:29 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

To have any disease is plenty enough
To have a dissedsease is way too much
To be trapped in invisible physical quick sands
Is no way of living
#ME/CFS #pwME

09.07.2025 21:16 โ€” ๐Ÿ‘ 6    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Post-Truth I hope we donโ€™t live in a โ€œpost-truthโ€ age. (Oxford Dictionaries declared โ€œpost-truthโ€ to be its international word of the year in 2016.) A lot of people still care about evidence, logiโ€ฆ

henryandersonbooks.com/2025/07/09/p...
Reporting Reality

09.07.2025 19:31 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Just now.

13.06.2025 16:12 โ€” ๐Ÿ‘ 5    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Cutting-edge AI models โ€˜collapseโ€™ in face of complex problems, Apple study finds โ€˜Pretty devastatingโ€™ paper raises doubts about race to reach stage of AI at which systems match human intelligence

Hopefully this will delay the AI singularity.

www.theguardian.com/technology/2...

09.06.2025 16:31 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
A white ceramic mug of coffee overlooking green pasture.

A white ceramic mug of coffee overlooking green pasture.

08.06.2025 11:29 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Thank you! love a moongate

02.06.2025 18:45 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
A circular opening in a garden wall

A circular opening in a garden wall

A local moongate, possibly also an interdimensional portal to those "in the know".

02.06.2025 16:16 โ€” ๐Ÿ‘ 5    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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#TodaysPoem

"We dance round in a ring and suppose,
But the Secret sits in the middle and knows."
- Robert Frost

Odilon Redon. Reflection (ca. 1905).

21.05.2025 20:25 โ€” ๐Ÿ‘ 8    ๐Ÿ” 2    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

"We're all just walking each other home." ~ Ram Dass

21.05.2025 21:09 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Dark clouds surround a blue sky

Dark clouds surround a blue sky

Every cloud has aโ€ฆ what was itโ€ฆ

16.05.2025 16:51 โ€” ๐Ÿ‘ 3    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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1) One of the most interesting ME/CFS studies of 2025 this far, from the research teams of Hanson (Cornell) and Snyder (Stanford). ๐Ÿ‘‡

A neural network on rare genetic variants, found 115 ME/CFS risk genes.

07.05.2025 12:53 โ€” ๐Ÿ‘ 25    ๐Ÿ” 7    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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Secret Words of Cape Misfortune In honor of the new Cape Misfortune book โ€œRise of Krampusโ€ arriving imminently, here are some secret local legends and rituals recorded in the 1850s by Professor Theo Planck in a privatโ€ฆ

In honor of the new Cape Misfortune book โ€œRise of Krampusโ€ arriving imminently, here are some secret local legends and rituals found in an abandoned notebook from the 1850s.
henryandersonbooks.com/2025/04/09/s...

09.04.2025 15:17 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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โ€œThe End.โ€ An extremely tall tale coming soon.

31.03.2025 00:32 โ€” ๐Ÿ‘ 3    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Poets in the 19th century lived larger than they do today.

Below, Shelley describes Byron's days as a guest at Palazzo Guiccioli, in Ravenna, from 1819 to 1821.

(Much the same as at Palazzo Mocenigo, in Venice, from 1816 to 1819, except for the aristocratic gamblers, harlots and catamites.)

30.03.2025 00:43 โ€” ๐Ÿ‘ 13    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Thereโ€™s a mouse under my bed who is loudly rifling through old abandoned printed out stuff.

30.03.2025 01:00 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
R E S E A R C H A R T I C L E Open Access
Rethinking the treatment of chronic fatigue
syndromeโ€”a reanalysis and evaluation of
findings from a recent major trial of graded
exercise and CBT
Carolyn E. Wilshire 1* , Tom Kindlon2 , Robert Courtney3 , Alem Matthees 4
, David Tuller 5
, Keith Geraghty 6
and Bruce Levin 7
Abstract
Background: The PACE trial was a well-powered randomised trial designed to examine the efficacy of graded
exercise therapy (GET) and cognitive behavioural therapy (CBT) for chronic fatigue syndrome. Reports concluded
that both treatments were moderately effective, each leading to recovery in over a fifth of patients. However, the
reported analyses did not consistently follow the procedures set out in the published protocol, and it is unclear
whether the conclusions are fully justified by the evidence.
Methods: Here, we present results based on the original protocol-specified procedures. Data from a recent Freedom
of Information request enabled us to closely approximate these procedures. We also evaluate the conclusions from the
trial as a whole.
Results: On the original protocol-specified primary outcome measure - overall improvement rates - there was a
significant effect of treatment group. However, the groups receiving CBT or GET did not significantly outperform the
Control group after correcting for the number of comparisons specified in the trial protocol. Also, rates of recovery were
consistently low and not significantly different across treatment groups. Finally, on secondary measures, significant effects
were almost entirely confined to self-report measures. These effects did not endure beyond two years.
Conclusions: These findings raise serious concerns about the robustness of the claims made about the efficacy of CBT
and GET. The modest treatment effects obtained on self-report measures in the PACE trial do not exceed what could be
reasonably accounted for by participant reporting biases.
Keywords: Chronic fatigue syndrome, Myalgic enceโ€ฆ

R E S E A R C H A R T I C L E Open Access Rethinking the treatment of chronic fatigue syndromeโ€”a reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT Carolyn E. Wilshire 1* , Tom Kindlon2 , Robert Courtney3 , Alem Matthees 4 , David Tuller 5 , Keith Geraghty 6 and Bruce Levin 7 Abstract Background: The PACE trial was a well-powered randomised trial designed to examine the efficacy of graded exercise therapy (GET) and cognitive behavioural therapy (CBT) for chronic fatigue syndrome. Reports concluded that both treatments were moderately effective, each leading to recovery in over a fifth of patients. However, the reported analyses did not consistently follow the procedures set out in the published protocol, and it is unclear whether the conclusions are fully justified by the evidence. Methods: Here, we present results based on the original protocol-specified procedures. Data from a recent Freedom of Information request enabled us to closely approximate these procedures. We also evaluate the conclusions from the trial as a whole. Results: On the original protocol-specified primary outcome measure - overall improvement rates - there was a significant effect of treatment group. However, the groups receiving CBT or GET did not significantly outperform the Control group after correcting for the number of comparisons specified in the trial protocol. Also, rates of recovery were consistently low and not significantly different across treatment groups. Finally, on secondary measures, significant effects were almost entirely confined to self-report measures. These effects did not endure beyond two years. Conclusions: These findings raise serious concerns about the robustness of the claims made about the efficacy of CBT and GET. The modest treatment effects obtained on self-report measures in the PACE trial do not exceed what could be reasonably accounted for by participant reporting biases. Keywords: Chronic fatigue syndrome, Myalgic enceโ€ฆ

It's 7th anniversary of this paper.

A lot of it was only possible due to Alem's heroic FOI victory, which the #PACETrial team fought so hard to stop.That surely wasn't because the real results weren't as flattering as they had presented them?

bmcpsychology.biomedcentral.com/articles/10....

#MECFS

22.03.2025 00:16 โ€” ๐Ÿ‘ 52    ๐Ÿ” 21    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

This speculation about benefits is very stressful for the sick and disabled who depend on them. #c4news

17.03.2025 19:26 โ€” ๐Ÿ‘ 28    ๐Ÿ” 4    ๐Ÿ’ฌ 3    ๐Ÿ“Œ 0
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Alex Harvey ยท Heavenโ€™s Waiting Room: When Powell met Pressburger Pressburgerย described their collaboration as a great romance: โ€˜Powell knows what I am going to say even before I say...

โ€˜Powell called Pressburger the โ€œwizardโ€, โ€œbecause of the wonderful things he doesโ€œ (โ€œThe Wizard of Ozโ€ came out in 1939); their relationship was, he said, a โ€œmarriage without sexโ€.โ€™

Alex Harvey on the films of Powell and Pressburger: www.lrb.co.uk/the-paper/v4...

17.03.2025 19:39 โ€” ๐Ÿ‘ 23    ๐Ÿ” 6    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 1

@macanders is following 19 prominent accounts